Tania ๐Ÿ‡ฟ๐Ÿ‡ฆ Autistic Strategies Network Profile picture
Think what the world needs and start changing it. You're not too insignificant to make a difference. #CRPD #FoodForALLInSouthAfrica
Jeannette King OG aka Jett Profile picture 2 added to My Authors
19 Jun 20
I am encouraging a boycott of autism research participation by autists and parents of autistic children, unless autistic people are involved in setting the goals of the studies. Don't participate just because it's about autism. The study design and ethics may be up to maggots.
People who participate in ethics committees are not necessarily trained in the #CRPD. In my experience, many of those people are clueless about the realities of human rights.
A simple example is that many of the supervisors and ethics people insist on researchers using person-first language in research papers, which is exactly what most autistic participants in English-speaking environments DON'T want. (This is, like, 'Autistic Culture 101'.)
Read 216 tweets
29 Apr 20
Some months ago I shared a video of nonspeaking autistic author Lucy Blackman typing a conference speech. Today I am sharing Lucy's bio at the Brotherhood of the Wordless site. brotherhoodofthewordless.com/our-authors/luโ€ฆ
Autism at Cal (at UC Berkeley) has elected @HariSri108 as its new president. Hari is the first nonspeaking autist to fulfil this role. uniquelyhari.blogspot.com/2020/05/presidโ€ฆ
Today I'm sharing a poem by nonspeaking autistic poet Imane Boukaila, titled 'In the Quarantine Body'.
#istandwithnonspeakers
explicitliteraryjournal.com/2020/04/26/covโ€ฆ
Read 10 tweets
26 Apr 20
My mother and I took more than two hours trying to sew a 3-layered mask from a 2-layer pattern.

We didn't finish.

Come 1 May, Cape Town is gonna have the largest number of fake niqabis the city has ever seen, thanks to modern women being klutzes at traditional skills.
IMPORTANT

Your mask is to protect OTHERS in case YOU are infected and you don't know it.

An infected person in an inferior mask (e.g. loose, single layer) places others at risk.

So if YOU want to be safe from others, you need to help THEM get access to good masks.

#Masks4All
If you are sewing decent 3-layer masks for yourself, sew some for others and give them away for free. Encourage other people to do the same. To reduce the spread of the virus, we need to spread THIS idea virally.
#Masks4All
Read 5 tweets
10 Mar 20
Will people pay their part-time no-contract domestic servants to not come to work? #CoronavirusInSA
What happens to day labourers - men at the side of the road? #CoronavirusInSA
Who will pay the sex workers to not work? #CoronavirusInSA
Read 60 tweets
2 Mar 20
I've figured something out. We don't necessarily another service organisation for autists in South Africa, although ALL the service organisations could do with massive improvement (and it doesn't all depend on funding increases).

We need a DISABILITY RIGHTS ORGANISATION.
We need this because existing service organisations are not equipped to deal with human rights violations and in particular, the nature of the abuse that many autistic children and adults experience at the hand of caregivers.
They are not well structured and equipped to lobby for change and they are DEFINITELY not geared towards prosecutions and victim placements.
Read 6 tweets
29 Feb 20
[THREAD] DISABILITY RIGHTS QUIZ

๐Ÿ˜Š Test your knowledge.

๐Ÿ˜Š Learn by reading what others say and by looking up answers.

๐Ÿ˜Š Share YOUR opinions by answering questions marked YOUR VIEW.

๐Ÿ˜Š Skip questions if you like.

๐Ÿ˜Š Retweet questions or answers to help others learn too.
1. What do the letters #CRPD stand for?
2. Has your country signed the #CRPD?
Read 33 tweets
3 Jan 20
With autistic pattern recognition, you often know what can be expected in world events, because you recognise the patterns. Then curiosity and confirmation bias makes you seek reinforcement. But it's all too awful, so it just remains theoretical, and when it actually happens...
You're still shocked like everyone else, even though you saw it coming.

I think I have reached the point where I am prepared to recognise that the bad things I saw coming since I was a child probably will happen in my lifetime after all -- and worse.
Because all the people who could really turn things around are not focusing on the reality that glaciers have melted, the poles are melting an entire continent is on fire and we are in the grip of a drought right here with animals dying daily, but we're talking about Boity's bum.
Read 41 tweets
20 Nov 19
Thereโ€™s no point anymore in trying to persuade them to care. All that remains now is to show those who do care that the ABAI is a despicable institution, and that membership and adherence to its code of ethics is merely a pact of honour among thieves. tania.co.za/global-autism-โ€ฆ
tell me you won't allow this to happen in your country. That you will fight against this torture being rolled out where you are. tania.co.za/aba-state-fundโ€ฆ
People say that in the autism industry, thereโ€™s โ€œgood ABAโ€ and โ€œbad ABAโ€, and one shouldnโ€™t write off an entire profession based on a few bad apples. OK, so, letโ€™s toss out a few bad apples so that we can get down to the good ones. tania.co.za/bad-aba-and-goโ€ฆ
Read 7 tweets
13 Sep 19
[THREAD] I want to tell you about Spelling to Communicate, a method for non-speaking autistic communication that I helped to bring to South Africa along with Nicola Sowah (a speech & language therapist) and Luli Carillo (mother of non-speaking autist Leonardo).
Spelling to Communicate (S2C) teaches individuals with motor and sensory differences the purposeful motor skills necessary to spell to communicate. Motor skills progress along an increasingly complex hierarchy from pointing to letters to typing independently on a keyboard.
The goal is to achieve synchrony between cognition and motor.
Read 49 tweets
6 Sep 19
@AOC And ban conversion therapy for use against autistic people, where it's called ABA and the US government sponsors it across the entire country. #ABAisAbuse #CRPD #DisabilityRights
@AOC Conversion therapy was turned mainstream first against gay people and then against vulnerable autistic children by Ivar Lovaas. There is still a nationwide multimillion dollar abuse industry sponsored by the US government, based on his work, and autistic people are the victims.
Read 5 tweets
25 Aug 19
[THREAD] "If youโ€™re not in the autism world and if youโ€™re not in the world within that world of nonspeaking autistics, those who have historically (and quite noxiously) been labeled โ€œlow-functioning,โ€ then you might not know about the current controversy involving Wikepedia."
"It has been erasing pages about prominent autistics who type, point, or write to communicate, insisting that such communication canโ€™t be definitively attributed to these individuals."
"WikIpedia has now altered the page devoted to โ€œDeejโ€
(@DeejMovie), the film that my son stars in, wrote, and co-produced, the film that won many awards, including a Peabody."
Read 21 tweets
18 Aug 19
@Foster_Science @anomalapropos Apraxic people sometimes take a long time to develop purposeful motor skills, and even when they can communicate independently, they may have days when they need some help.
@Foster_Science @anomalapropos This is similar to some wheelchair users who can walk, but not on all days.
@Foster_Science @anomalapropos Some of us autists who can speak also have times when speech dries up and we need to flip over to AAC. Alyssa Hillary has written and lectured on this subject.
Read 10 tweets
10 Aug 19
Nonspeakers are rarely the authors of their own narratives in academic journals. This article changes that, with nonspeakers Samuel Capozzi, Dillan Barmache and Emma Cladis giving their own direct accounts of mentoring for autistics by autistics. liebertpub.com/doi/10.1089/auโ€ฆ
Today I'm sharing a 2018 interview with nonspeaking autist Rhema of the Rhema's Hope blog, in which she gives advice to therapists about helping her and others like her with impulse control and other challenges associated with autism. rhemashope.wordpress.com/2018/03/28/rheโ€ฆ
Nonspeaking autist Matteo Musso writes about how learning to use a letterboard liberated him, and how ABA is not useful to nonspeakers trying to prevent themselves from having meltdowns. #CommunicationFirst #istandwithnonspeakers the-art-of-autism.com/how-the-letterโ€ฆ
Read 9 tweets
29 Jul 19
#AskingAutistics Post a pic of something you have recently aligned, lined up or stacked.

Tag it your tweet with #LetsLineThingsUp.

Retweet this tweet so that others can join the celebration.
PS: If you're NOT autistic and you like lining things up, feel free to post your pics too, and tag them with #LetsLineThingsUp.
Some of you may remember @thingsorganized from a few years ago. So much aaaaah. ๐Ÿ˜Š
Read 4 tweets
29 Jul 19
Childhood isn't only about preparing for adulthood, you officious ableist fools. And if the child is disabled, even preparing for adulthood should mean preparing to live effectively as a disabled adult, not learning to fake being non-disabled.
If you feel inspired to make a career in the autism industry, why aren't you #AskingAutistics about the many unmet needs? Why enter the fray of abusive therapists all vying to fan and cash in on parents' ableist fears?
Imagine you ran a therapy centre for women, and all your glowing testimonials and endorsements were from husbands, brothers, fathers and sons.

No actual women.

But your therapy is advertised as being 'evidence-based'.

What's wrong with this picture?
Read 11 tweets
15 Jul 19
There is something super-problematic about ABA therapists, who don't understand either autism or apraxia as it manifests in autistics, saying, "Behaviour is communication," and then trying to change that behaviour based on their assumption of what the behaviour is communicating.
Because not only do they often miss what the behaviour is communicating, but there may be many times (especially in those with apraxia) that the behaviour is NOT communication. At all. Even if there is laughter. Or screaming. Even if the behaviour contains words.
Here's something for you to check out if you thought all behaviour is communication.

Because you'd be wrong.

And if this blows your mind, then check out every link in that thread.

Read 21 tweets
16 Jun 19
Jeepers, #ActuallyAutistic people, learn to recognise when some other autistic is having a meltdown on Twitter. How's your ability to reason through and resolve things mid-meltdown? Ja, me neither. So give the same consideration to them as you would want for yourself.
If you are convinced that you are right and you need to teach them your truth, know also that this won't be the other person's "most teachable moment"..
Also, think about who YOU have hurt during meltdowns. Some of those people were probably quite decent people, compared to the many jerks you could have chosen to hurt if meltdowns were premeditated.
Read 14 tweets
28 May 19
Here's what I see in the lethargic response from most #ABAICon19 delegates towards the idea of condemning torture...
The ABAI leadership and conferencegoers actually don't care about human rights because they don't care about humans.
There's no point anymore in trying to persuade them to care. All that remains now is to show those who do care that the ABAI is a despicable institution, and that membership and adherence to its code of ethics is merely a pact of honour among thieves.
Read 34 tweets
27 May 19
[THREAD] CW: Graphic descriptions of abuse, images of open sores, children crying.

Evidence of over 50,000 people being abused in Uganda. Adults and young children given bleach to drink. Unpaid independent #actuallyautistic investigator @fionapettit71 is threatened.
CW: Graphic descriptions of abuse, images of open sores, children crying.

Evidence of over 50,000 people including children abused in Uganda by cult introduced by Westerners.
fionaolearyblog.wordpress.com/2019/05/27/mmsโ€ฆ
CW: Descriptions of abuse, image of child abuse.

Evidence of over 50,000 people including children abused in Uganda by cult introduced by Westerners.
theguardian.com/world/2019/mayโ€ฆ
Read 4 tweets
8 May 19
[THREAD] 4 FOCUS AREAS FOR AUTISTIC ADVOCACY - VIDEOS
In this thread, I will be adding a series of six videos which I made (in a rush), providing an overview of the four main focus areas which I address in workshops, at conferences, in training events, and so on.
They are MY four focus areas for advocacy, which doesn't mean that they are THE priority areas which everyone else should have.
Read 14 tweets
1 May 19
The biggest focus area for #autismawareness should be awareness of the principles embodied in the #CRPD.

Do #nothingaboutuswithoutus.

While you exclude both speaking and non-speaking autists from your decisions, you commit human rights abuses whether you realise it or not.
If people in the autism industry stopped violating the #CRPD, we would see:

- the end of harmful practices and substances masquerading as therapy and (ABA, Le Packing, MMS etc.)

- autistic people driving the priorities of autism research

- nonspeakers' access to communication
We have to stop excluding nonspeakers' inputs from these conversations.

Making them the excuse for not listening to autistic people who speak, while you pay ZERO attention to THEIR actual words means you respect neither group.
Read 9 tweets