Thread by @AFaktow

As people find it hard to believe that someone decided to end it because of the vaccine injury, I'll tell you how I've felt since it happened. I speak for myself, but I know many had similar thoughts and experience. Some gave up. #realnotrare #pfizer /1

I took my first shot 7mth ago. At first it was desbelief. Weird things were happening to my body. My left hand was going numb, muscle twitching all over. But I was trying to find an explanation like spine issues. Then I woke up one night and couldn't move both of my hands. /2

That's when fear came. My first thought of going to ER, but as after half an hour the numbness diminished I decided to just go to my GP next day. I was too afraid to sleep. My hands were too weak to hold a phone, I had to use two to hold a cup of tea. /3

My GP wasn't surprised at all. She said she filled in at least two reactions reports a day, but told me to rest, take vitamins and it should pass. I was reassured. I decided to ask in my local women group if someone experienced it too. 10 replied. /3

For most it passed within 2 weeks. I was 1 week in so I was hopeful. But next day it moved to my legs. They felt extremely heavy and numb. I couldn't stand for more than 2 min or walk more than 100m, but decided to wait. /4

I started heaving shortness of breath, but was blaming it on being so scared. Every night I was going to sleep afraid I will not wake up. I developed paresis. I crawled to my GP office. Just 500m away but took me 20min. When she saw me, she went pale. She sent me to neuro ER. /5

At this point it was terrified. I read about GBS and was afraid I'd become completely paralysed. As I live alone I was double afraid. I still was considering 2nd dose because of upcoming mandates though. I went to ER. /6

First neuro told me this is autoimmune reaction to the jab and not to take another one. She sent me for lumbar punction, MRI, EMG and countless blood tests. Next day, before the spinal tap, another doctor told me it is 100% MS. I was terrified. /7

I stayed in hospital for a week. I had muscle pains all over the body. My fingers were partially paralysed. I could use cutlery. When my MS and ALS results came back negative, they sent me home saying it's adverse reaction to jab and to take vitamins. /8

I was partially relieved because it wasn't MS or ALS, but disappounted I didn't get any treatment. I started researching myself. I am taking tones of supplements and go to acupuncture. It costs small fortune. /9

About two months is without improvement my fear of dying in sleep was replaced by fear that I keep waking up with those symptoms forever. Some friends and family members didn't believe me or were saying "still better than Covid". /10

And then mandate came. Even though my papers from hospital said I had adverse reaction, it wasn't enough to replace vaccine pass. I felt punished. I saw my friends living their life as normal, not seeing anything wrong that people like me are forced into lockdown. /11,

I was going from doctor to doctor. No one was offering any treatment. There were unaware of those supplements I found through Long Covid groups. They tried to persuade me it is psychosomatic, but the tests sere coming back abnormal, though not fitting any diagnosis. /12

I started to be afraid of going to doctors. I was so stressed of telling over and over my story, having to reassure them that I am not antivaxxer. I felt terrible. I couldn't stand meeting new people because everytime someone mentions jabs. /13

I felt isolated. Even those who believed stopped asking how I felt. Everyone was tired of that. I wasn't fun anymore. I couldn't do basic activities. I was hopeless. Honestly, if not for the support group, I am not sure I would still be there. /14

What keeps me going is other people who go through the same. People who as once I did, are afraid it may be MS and I can reassure them. Helping each other helps. But I do have moments of doubts. After 7 mths i don't remember how was it to feel normal. /15