Clinically Vulnerable Families πŸ’™πŸ’œπŸ’— Profile picture
Apr 12, 2022 β€’ 18 tweets β€’ 8 min read β€’ Read on X
🚨Living with Covid #Access2Antivirals 🚨

Antiviral treatments are available to the 'Severely Immunosuppressed' a subset of the Clinically Vulnerable who remain at high-risk despite up to 5 vaccine doses.

🧡will cover how Vulnerable groups can access antiviral treatments.
1/ #Access2Antivirals  We often cannot access essential antivir
Early antiviral treatment is a vital tool to prevent severe outcomes in high-risk people.

Currently only a small group who have poor immunity following vaccination are allowed to access them.

Please look through this list to see if you qualify:

england.nhs.uk/coronavirus/do…

2/ Please follow the link in Tweet   * too many words
The 'Severely Immunosuppressed' group is smaller than those offered 5 vaccine doses & includes some never flagged as CEV.

So...
1) What should you do if you have Covid and DO qualify for antivirals?

2) What if you are Clinically Vulnerable/50+ and DON'T qualify on the list?

3/
What should you do if you have Covid and DO qualify for antivirals?

1. Make sure you have lateral flows at home. If you qualify for antivirals you can still order lateral flows for your own use.

gov.uk/order-coronavi…

4/ Check if you are eligible to order rapid lateral flow tests
2. If you, or a member of your household, have Covid symptoms you* should test.

*Keep testing for a few days, especially if at all symptomatic. Try to Isolate / HEPA / ventilation & FFP3.

3. Even a pale positive on lateral flow is still a positive.



5/
⏳️Your 5 day timer starts from your symptom start date⏳️

4. Report your result online.
(must be an NHS ordered test kit)
gov.uk/report-covid19…

In theory, this should be enough to trigger a referral.

Our experience shows you should also contact your GP or 111 / 119.

6/ GOV.UK  Report a COVID-19 test result  When was the test tak
Ask to be referred you to your local Covid Medicines Delivery Unit (CMDU) for triage. (They should not refer you to each other.)

5. The CMDU should contact you within 48hrs.

If they do not, or you are on day 5, you need to follow it up.

Do not give up!

7/ NHS   Covid Medicines Delivery Unit (CMDU)
6. If during triage you are told that your symptoms are too 'mild' refer them to the guidance.

8/

england.nhs.uk/coronavirus/do…
7. If you are told they only consider patients until day 6 or 7 refer them to this pathway.

By day 6/7 you would be limited to Remdesivir or 'off-label' (where a medicine used in a way different to that in the licence) access to the other treatments.

9/
england.nhs.uk/coronavirus/do… Please use the link.
⚠️ BEWARE of WEEKENDS ⚠️

Weekend access is generally poor. It appears to be a postcode lottery.

We are worried about the availability of services over the upcoming 4 day Bank Holiday weekend.

Some areas will offer treatment on day 6/7, but this is far from optimal.

10/
8. If you are refused treatment and you do qualify you need to take it further try escalating within the hospital via your specialist team / PALS but be prepared to take it all the way to your local MP if all else fails by day 5.

nhs.uk/nhs-services/h…

11/
We have heard that 10-15% of people who DO qualify can access these antiviral treatments.

Put another way, it means 85-90% can't access the antivirals.

We are highly concerned about this number!

12/
What if you are Clinically Vulnerable/50+ and DON'T qualify on the list?

The only possibility is accessing treatments via the Panoramic trial.

Lots of people can qualify for the trial but only 450 participants are added daily, of which only 225 are given the treatments.

13/ Who is eligible to join PANORAMIC:  You are currently experi
The demand has been high, due to the current surge.

However, this is currently closed for Easter...

It also appears to close over the weekends.

14/ Thank you for your interest in the PANORAMIC Trial, we are n
The Panoramic trial has a screening process and either your GP, or a study nurse or doctor will assess your eligibility and ask for your consent.

If you do qualify you will have a 50:50 chance of being offered antivirals, which should arrive the next day.

15/ Chronic Respiratory disease (including chronic obstructive p
Even if you don't receive the antivirals you will need answer questions online for 28 days and answer 3 phone calls to discuss with the trial team on days 7, 14 & 28.

16/ Taking part in the study will involve answering a few questi
We believe this constitutes health rationing.

Those 75+ should have been added to the antivirals list.

Plus, since treatments are already proven safe and effective for all Clinically Vulnerable / 50+, they should all have #Access2Antivirals through GPs and emergency GPs.

/END Sajid Javid   MHRAgovuk has just approved #Paxlovid, the cut
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More from @cv_cev

Mar 25
πŸ“‰ Kent MenB outbreak

⚠️East Kent Trust failed to report their first case for 2 days⚠️

Here's what you need to know.
TLDR: Peaked 13th March. No new cases since - with reporting delays, but that's even better news than it sounds.
1/🧡 πŸ‘‡ @laurabundock @SkyNews
THE OUTBREAK IS DECLINING but understates how well that's going. πŸ“‰

The earliest case became unwell on 9th March, with the latest on 16th March, and the peak was 13th March.

2/
Cases take time to be confirmed and reported.

The fact that nothing new has surfaced in the data as of 23rd March - despite the reporting lag - means the real-world situation is almost certainly better than the numbers show.

3/ Image of bar chart  Figure 2. Cases of invasive meningococcal disease in Kent outbreak, by case category, outbreak bacterial subtype: serotype P1.12-1,16-183, attendance at Club Chemistry, and date of onset (data as of 23 March 2026)  6  5-  4  Number of cases  3  2  1-  0  07 Mar  09 Mar  11 Mar  13 Mar  15 Mar  17 Mar  19 Mar  21 Mar  23 Mar  Date of onset  Confirmed outbreak strain  Confirmed  Probable  Attended Club Chemistry  Includes 17 Confirmed - outbreak strain and 3 Confirmed and 2 Probable case(s). Excludes 1 Probable case with missing date information.
Read 15 tweets
Mar 18
Meningitis
* Important thread for those who prefer balanced and factual information *

In order to understand risk we need to break down a few things....

🦠Risk from the bacteria
πŸ’™πŸ’œπŸ’— Individual risk
πŸŽ“ Environmental risks
1/
The Kent outbreak is predominantly MenB (Group B). This is a serious infection - and potentially an adapted strain - investigations are ongoing...

Bacterial meningitis is rare but more severe than viral, and up to 1 in 10 cases of bacterial meningitis in the UK is fatal.

2/
MenB isn't new. There are around 300 cases of MenB per year in the UK, even with vaccination programmes.

What's unusual is the cluster - multiple cases linked to a single location in a short window. It has now spread to a student at a second university in Canterbury, Kent.
3/
Read 9 tweets
Mar 5
UK COVID INQUIRY - CVFπŸ’™πŸ’œπŸ’—
@AdamWagner1 Closing Submissions

The Covid Inquiry has good ventilation protocols (as advised by CVF at the start of the Inquiry) including HEPA filters.

Under 1000ppm is therefore the safe threshold ( but without it would be under 800ppm).

1/
We need to understand airborne transmission in order to make all indoor environments safer for everyone, and especially for Clinically Vulnerable people.

2/
The need for Clinically Vulnerable people to have:

Safety
Support
& Status

3/
Read 14 tweets
Mar 1
🚨COVID INQUIRY ROUND UP (Wk2)

This week saw CVF's evidence & organisations representing: disability, domestic abuse, faith, migrants, homeless, prisons, local government.

Expert evidence focused on: later life, LGBTQ+, race and gender inequalities (Dr Clare Wenham, below)

1/
EXPERT RACIAL INEQUALITIES

Prof Laia BΓ©cares discussed the risks in multigenerational households where there were keyworkers and children in schools.

2/
EXPERT LATER LIFE
Prof @JamesNazroo

CVF were concerned that many older people, who were at high risk, were not supported to shield - which included advice on how to stay safe, as well as food deliveries and community outreach.

3/
Read 15 tweets
Feb 26
🚨 NEW DfE GUIDANCE
- VENTILATION & AIR QUALITY -

Clean air matters - especially for #ClinicallyVulnerable children, staff and families. This is an important recognition that airborne transmission is preventable.

1/ Image
But the proposed COβ‚‚ thresholds are too high. 800ppm should be the upper limit - not 1500ppm. By 1500ppm, air is already significantly rebreathed. That’s not a precautionary standard for children, let alone those at higher risk.



2/gov.uk/government/pub…
If we’ve learned anything from the pandemic, it’s that minimum compliance is not the same as safety. #ClinicallyVulnerable pupils cannot β€œchoose” lower exposure if the baseline standard is poor.

3/
Read 8 tweets
Feb 25
🚨FINAL CVF EVIDENCE

We would encourage you to watch @lara_wong 's inquiry evidence in full.

However, out amazing team have clipped these extracts for you!

1/
CVF's Survey

In the summer of 2025, CVF gathered in depth survey evidence about the impacts of the pandemic on CV households - which has now been shared multiple times to inquiry experts and others.

2/
People were commonly told that

"They should hurry up and die so that they could get their lives back."

3/
Read 31 tweets

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