Clinically Vulnerable Families πŸ’™πŸ’œπŸ’— Profile picture
USE TEMPLATE LETTER ON #MasksInSchool ON PINNED POST Facebook Support Group - open to all CV/CEV πŸ”—
Apr 12 β€’ 18 tweets β€’ 8 min read
🚨Living with Covid #Access2Antivirals 🚨

Antiviral treatments are available to the 'Severely Immunosuppressed' a subset of the Clinically Vulnerable who remain at high-risk despite up to 5 vaccine doses.

🧡will cover how Vulnerable groups can access antiviral treatments.
1/ #Access2Antivirals  We often cannot access essential antivir Early antiviral treatment is a vital tool to prevent severe outcomes in high-risk people.

Currently only a small group who have poor immunity following vaccination are allowed to access them.

Please look through this list to see if you qualify:…

2/ Please follow the link in Tweet   * too many words
Feb 21 β€’ 32 tweets β€’ 13 min read
πŸ“£ What today's announcement means to us? 🧡

This account gives an anonymous voice to Clinically Vulnerable people in our support group on Facebook.

Threats now to:
Lives, jobs, freedoms + safe access to schooling & healthcare.

Join us for support πŸ‘‡…
This thread aims to share our members thoughts, each struggling with the broad and significant impacts of the announcement to be made today by Boris Johnson in the HoC.

2/ Freedom for some is being granted at the expense of freedom
Feb 19 β€’ 8 tweets β€’ 5 min read
Ultimate Freedom Day is forcing the most vulnerable into impossible situations.

How can we #StaySafe?
No testing. No isolating.

How can we judge our risks?
No ONS data, no government data.

How can we even access healthcare?
No masks.

1/… With no masks and no isolating how can forced return to F2F work be viable in these circumstances?
We are choosing between #LivesAndLivelihoods

How can we send our children to school safely?
We are choosing between #educationANDlives

Nov 23, 2021 β€’ 19 tweets β€’ 5 min read
Nadhim Zahawi has written to School leaders.

Focus = attendance

This is particularly concerning attendance targets are already driving many headteachers to threaten vulnerable households with fines and prosecutions.

1/… He emphasises the fact that schools must not use the following mitigations: bubbles or isolation of contacts.

Whilst insisting on the need to improve attendance "maximising school attendance a top priority" in a #Pandemic.

Aug 25, 2021 β€’ 9 tweets β€’ 4 min read
🧡A letter, signed by Prof Jennifer Harries OBE, has informed parents of Clinically Extremely Vulnerable children that they are not CEV anymore.

Even being identified as needing a vaccine isn't a reason to shield.

NB/ Many (12-15) have still not received a first dose yet. 1/ Seeking to reassure parents
"Recent clinical studies have shown that children & young people are at very low risk of serious illness if they catch the virus. We are pleased to let you know that your child is therefore no longer considered to be clinically extremely vulnerable" 2/
Aug 24, 2021 β€’ 9 tweets β€’ 3 min read
With no

T&T billions supporting in-school contact tracing
Quarantine of those taking PCRs
OR of households with +ves
Updates on Delta symptoms
Reductions in class sizes

How can CV/CEV households keep safe exposed by schools?

We need #SAFESCHOOLS Families are in impossible situations.

We don't want to withdraw our kids and deny them formal education. We want our human rights to be conserved #educationANDlives.

#RemoteEd - extended to those isolating denied to those with households at risk.

What choices do we have?
Jul 21, 2021 β€’ 15 tweets β€’ 4 min read
There is evidence LEA's are planning to withdraw school places from Vulnerable families (again).

Some schools had been supportive.

Others had allowed people to remain On-Roll but not given resources.

Whilst many families were threatened with fines/prosecution/child services. Education is a HUMAN right.

Life is a HUMAN right.

These are continuing to remain in conflict *for ALL vulnerable CV/CEV families* as we are generating further vaccine escape.

That is *why* CV & CEV will be offered boosters in the Autumn.

Jul 19, 2021 β€’ 4 tweets β€’ 1 min read
Nadhim Zahawi announced:

"The JCVI recommends vaccines for children 12-15 who have severe neurodisabilities, Down's Syndrome immunosuppression and profound or multiple learning disabilities."

"The JCVI advice also recommends offering the vaccine to children and young people aged 12-17 who live with someone who is immunosuppressed."

Jul 19, 2021 β€’ 7 tweets β€’ 2 min read
CV/CEV families are being exposed to a deadly virus:

via public transport
via workplaces
via supermarkets (no priority slots)
via unsafe schools

At Home

They should only meet with double vax outside or should be responsible for ventilation if they meet inside. All of their visitors should test with a Lateral Flow first.

They can't meet their own kids any more, of course, who will be unvax.

Jul 15, 2021 β€’ 6 tweets β€’ 2 min read
Shocking news...

Bubbles and school contact tracing gone on Monday.

"..they will no longer be responsible for identifying Covid contacts with this responsibility being passed to the NHS Test and Trace."… It is the schools discretion to inform
parents of a +ve & adds that they should take account factorsΒ such as "known vulnerability".

Unclear if a vulnerability is only for children in their care. Schools have limited understanding of medical issues & even less so for 3rd parties.
Jun 20, 2021 β€’ 7 tweets β€’ 2 min read
Lateral flow tests can be have a very faint line.

* This test is positive *
(Confirmed by PCR) This is a common phenomenon with all lateral flow testing. There is no amplification of the sample and so you are only testing what you have - if there isn't much there the line will be faint. You see the same with pregnancy tests (also lateral flow).
Apr 21, 2021 β€’ 4 tweets β€’ 2 min read
🚨 #MedTwitter 🚨 we need your help!

Vulnerable families with children at Primary School are being told they must *not* wear masks.

🏫 😷 🚫

In some cases Doctor's notes πŸ“ are being demanded so as not to "open the flood gates.".

CV/CEV Families UK want to wedge the gates wide open for *all* children. Risks to lives & @LongCovidKidsπŸšͺ🌊πŸšͺ

Today, a parent was sent the attached email and told:

"If * comes to school wearing * mask you will be phoned & asked to collect them." πŸ˜·πŸ“²

*Pls read the email*

Apr 1, 2021 β€’ 27 tweets β€’ 9 min read
Q:When are mitigations not mitigations?

A:When they are optional in schools.

1/ When schools returned in 09/2020 the focus was on 'Hands' and surfaces.

There was no desire by @GOVUK to implement 'Face'masks.

And no extra 'Space' available,
Nightingale schools dismissed. 2/ "All children must be in school." we were told "There is little evidence of Covid transmission in school.".

* They were right because in the Summer term very few children had returned for face to face teaching and children spent lots of time outside and in tiny bubbles.
Mar 30, 2021 β€’ 4 tweets β€’ 2 min read
1/Shielding ends today. CEV expected to return to frontline professions without protections.

Risks to their lives unknown. Most with only 1 functional vaccine, some with none due to complex medical needs.

Studies ongoing. A 'leaky wall' unlikely to provide effective protection. 2/Their unknown risks have not been made clear to them, their employers or schools expecting CEV children and children of CEV back.

We know the vaccine might not offer adequate protection and additional risks are posed by variants of concern.