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Clinically Vulnerable Families 💙💜💗 Profile picture
Clinically Vulnerable Families 💙💜💗
@cv_cev
𝗖𝗼𝗿𝗲 𝗣𝗮𝗿𝘁𝗶𝗰𝗶𝗽𝗮𝗻𝘁 in the 𝗨𝗞 𝗖𝗼𝘃𝗶𝗱-𝟭𝟵 𝗜𝗻𝗾𝘂𝗶𝗿𝘆 #FBCV (follow back CV) and JOIN us on FB    📸cv_cev 🟦☁️@cvcev.bsky.social
Jan 31 • 26 tweets • 9 min read
🚨Clinically Vulnerable Families 💙💜💗

Our oral closing statement highlights 5 key concerns - however, further details will be explored in depth in our later written submissions.

1: Therapeutics programme - wasn't good enough!

1/ The immunosuppressed were left behind.

2/
Jan 29 • 5 tweets • 2 min read
🚨Prof Sir Pirmohamed

"Would you support the development of a more diverse portfolio of vaccine formats and antivirals, both as part of future pandemic preparedness plans and during [.] 'peace time' to ensure that Clinically Vulnerable groups are adequately protected?"

1/ "Absolutely, I think it is really important to make sure that we have good therapeutics and vaccines for the whole population."

2/
Jan 21 • 23 tweets • 8 min read
🚨Dame Kate Bingham🚨
Dubbed the "hero in a pink jacket 💕"

On Evusheld:
"I felt very strongly [.]. We were following a very clear 2 tier strategy where the CV immunocompromised were being deprioritised [.] I felt that was *manifestly* wrong both ethically and morally [.]"
1/🧵 The above video was taken out of sequence. The below should give more context...

KB "So actually, the first goal was around protecting the UK population."

CTI [Hugo Keith KC]
"Do you think you succeeded on securing or making available those monoclonal antibodies?"

KB "No!"
2/
Jan 17 • 21 tweets • 6 min read
💥Clinically Vulnerable Families 💥

Yesterday, @lara_wong, took the stand as founder and leader of CVF.
**Sorry for the delay!**

- New risks posed by Covid-19
- We need to be recognised as an equality group.

1/ FOLLOW THIS THREAD Clinically Vulnerable people were, and are still, being let down.

2/
Dec 28, 2024 • 8 tweets • 3 min read
💊 Important 🧵 - 'flu antivirals 💊

Here’s a quick thread on what you need to know about accessing antivirals for treatment and prevention in the UK.

1/ Image When are antivirals recommended?

Antivirals are advised for:
💙💜💗 High-risk groups (see list below)
🏥 People with severe symptoms or those hospitalised.

Early action is vital!

2/ Risk factors for complicated influenza These include: neurological, hepatic, renal, pulmonary and chronic cardiac disease diabetes mellitus severe immunosuppression age over 65 years pregnancy (including up to 2 weeks post-partum) children under 6 months of age morbid obesity (BMI ≥40)
Nov 27, 2024 • 28 tweets • 10 min read
🚨Clinically Vulnerable Families - closing
** Shared in full**

Thanks to the @covidinquiryuk staff & team

"The vast majority of people who died [.] were Clinically Vulnerable [.] including people who caught Covid-19 in hospitals, which were supposed to be places of safety."

1/ "Most urgently, we need to make healthcare safe for Clinically Vulnerable people."

"And by making it safe for them - by improving ventilation and putting in place other protective measures - we make it safe for others too."

2/
Nov 27, 2024 • 10 tweets • 4 min read
🚨 British Medical Association - closing

"aging estates meant that infection control measures could not always be fully implemented."
- Large open bays
- Inability to distance
- Lack of side rooms for isolating patients
- Lack of ventilation

1/ "The inquiry proceedings have laid bare the catastrophic consequences that are destined to be repeated without fundamental change."

2/
Nov 26, 2024 • 7 tweets • 3 min read
🚨 @cymru_inquiry Covid Bereaved🏴󠁧󠁢󠁷󠁬󠁳󠁿
Anne-Louise Marsh-Rees, Co-Leader.
Great witness!

🩺Symptoms were unclear
🛡Shielding comm confusing
⛔️Protect the NHS

Please do look at this whole 🧵
1/ No communication with the people who were affected. They have had to work hard to lobby for changes.

2/
Nov 16, 2024 • 17 tweets • 5 min read
Who will get a Covid booster in 2025? Far fewer than before...

The JCVI decision means that Clinically Vulnerable people u70 and who aren't immunosuppressed lose access.

“Cost-effectiveness” prioritised over protection.

NEW CONCERNING STUDY 👇

1/🧵 Adult eligibility Adult eligibility should be based on the willingness-to-pay approach that is subject to procurement and delivery at a cost-effective price. The advice for universal vaccination from age 75 years is an example. JCVI has no role in the procurement or delivery of COVID-19 vaccines or any other vaccine. Until now, Covid vaccine policy prioritised protecting 'at risk' groups.

Their approach focuses on “cost-effectiveness,” raising age thresholds. Not providing vaccine protection to younger Clinically Vulnerable. It’s a deeply worrying change.

This data may have been used.
2/ Fig. 3: Using data from the spring and autumn 2023 boosters and the 2023/24 winter wave of COVID-19, vaccine threshold prices stratified by age-group, risk-group and modelling approach. We calculate the vaccine threshold price for the two time periods (top row: winter 2023/24; bottom row: spring 2023), 16 age groups (y-axis), three risk groups (panels) and five methodologies (red, dark-blue, light-blue, grey and black). Dots show the most likely value assuming £20,000 per QALY; when assuming £30,000 per QALY the extended bar-and-whisker plots show the 95%, 80% and 50% credible intervals co...
Nov 10, 2024 • 10 tweets • 4 min read
🚨COVID INQUIRY ROUND UP (Wk 7)

Rosemary Gallagher MBE (Professional Lead for Infection Prevention and Control at the Royal College of Nursing) supported non-IP specialists e.g. aerosols experts "shaping guidance".

1/ "If Covid-19 was, in fact, airborne [.] it had implications for infection prevention and control guidance [.]"

"What was the NHS estate going to do to make it safe?"

"Improving the ventilation or looking at other technologies [.]."
2/
Nov 6, 2024 • 6 tweets • 2 min read
Questioning Jenny Harries is "like pinning jelly to a wall", according to one CVF💙💜💗 member!

Thanks @AdamWagner1 for trying!
🧱🍮🔨

"People should be enabled to wear what they wish, as long as it's safe."
"FRSMs recommended because of issues of handling and fit-testing."
1/ Would you agree that FFP3 masks, if fit-tested, mean that the Clinically Vulnerable patient *is* safer, they don't just "feel safer"[.]?

🔨 'Hierarchy of controls'
🍮 Don't want to tell people - no harm
🧱 Difference feeling safe and effective PPE. Equally support FRSM

2/
Oct 31, 2024 • 17 tweets • 6 min read
🚨Shielding Expert🚨

Prof @helen_snooks was on the shielding patient list herself.

She was keen to research evidence on effectiveness.

1/ In Prof Snooks' report, she found no evidence that shielding reduced C19 infections (except in rheumatoid arthritis patients).

She identified that hospital-acquired infections were higher, and there were no sustained effects.

2/
Oct 29, 2024 • 9 tweets • 3 min read
♻️ RETWEET if you think that Clinically Vulnerable people (those at the most risk from Covid) were economically impacted by the pandemic. ♻️

The @covidinquiryuk rejected us for this module, leaving us with * NO VOICE * !!!!

1/ Image
Image Clinically Vulnerable (CV) people and their families faced, and in many cases continue to face, enormous economic strain.

For many, shielding was the only safe option, but it came with serious costs—lost jobs, reduced hours, and in many cases, the inability to work at all.

2/ 82% of Clinically Vulnerable households lost work or retired early due to high Covid risks [Poll of 364 Clinically Vulnerable people March 2024] Clinically Vulnerable Families
Oct 8, 2024 • 34 tweets • 11 min read
💥Clinically Vulnerable Families 💥

Quite a moment as Dr Catherine Finnis take the stand as volunteer deputy leader of CVF.

1/ FOLLOW THIS THREAD Dr Catherine Finnis swears in A brief introduction to CVF

We were founded due to the risks in schools, but the inquiry is focused on the risks in healthcare in this module.

2/
Oct 6, 2024 • 11 tweets • 4 min read
🚨COVID INQUIRY ROUND UP (Wk 4)
Due to sickness, this week of evidence ended early.

CMO 🏴󠁧󠁢󠁷󠁬󠁳󠁿
Impact witnesses:
Ambulance, GPs, Intensive Care
Former medical director of WHSCT
National Ambulance Adviser NHS England
Intensive Care Experts and witnesses

1/ 🏴󠁧󠁢󠁷󠁬󠁳󠁿 The Welsh CMO, Sir Frank Atherton, spoke about "broadly accepting" advice from the now highly contentious 'IPC cell' led by Dr Lisa Ritchie.

2/
Sep 29, 2024 • 14 tweets • 4 min read
🚨COVID INQUIRY ROUND UP (Wk 3)
⚠️This week was bookended with heavy testimony.

We heard from:
Expert GP Prof Edwards
College of Paramedics, Tracy Nicholls
Dr Mulholland
CMOs ☘️ 🏴󠁧󠁢󠁳󠁣󠁴󠁿 🏴󠁧󠁢󠁥󠁮󠁧󠁿
and Prof Kevin Fong

🚫 Shielding expert Prof Snooks

For more ⬇️
1/
Please click through to read subthreads if you missed them. 🙏

Prof @adriangkedwards

2/
Sep 26, 2024 • 8 tweets • 3 min read
🚨Prof Chris Whitty - #CleanAir💨

"It's a very important point [.] we should have taken ventilation in public buildings much more seriously."

He was concerned about the cold. We will just need to make sure that warm air is used when needed!

1/ 👏 CVF's barrister @AdamWagner1 Whitty was far less good on masks.

He seems to think that "more research is needed"?

Yet....

2/
Sep 23, 2024 • 12 tweets • 4 min read
🚨AMBULANCE SERVICE🚨
Tracey Nicholls OBE, @tracyniks, shared the pressures on the ambulance service and the increased risks faced in confined spaces without appropriate masks or ventilation against the airborne infection.

1/ Ambulance staff then had to attend poorly ventilated, virus laden households. Multiple family members were frequently present, as many broke lockdown measures to be with their loved ones.

2/
Sep 22, 2024 • 18 tweets • 6 min read
🚨COVID INQUIRY ROUND UP (Wk 2)
This week started with key witness:

Dr Lisa Richie, Infection prevention & control decision-making 'IPC cell'

It also featured:
Prof Susan Hopkins, CMA - UKHSA
UK Chief Nursing Officers
IPC Medical Expert Witnesses
TUC
1/
 Dr Richie has a "admission risk
assessment and pre-emptive patient cohorting" for MRSA.

NB/ She is a nurse, not a medical doctor. Nurses run IPC in UK hospitals and IPC throughout the NHS.

Many of her views were deeply entrenched.

2/
Sep 17, 2024 • 4 tweets • 2 min read
🚨 MASKS🚨
Stick with this one... 4 tweets of content.

CTI "What about staff who wanted an FFP3 mask for their own peace of mind. In those circumstances, would you have expected them to have been provided with an FFP3 mask?"

NB/ Many of whom will have come from CV families.
1/ CTI "Did you agree with the decision of the UK IPC cell?"

CNO England "Yes"

Hallett "Even though you said you were concerned about having belt and braces?"

CNO "Yes, because I [.]'
2/
Sep 15, 2024 • 20 tweets • 7 min read
🚨COVID INQUIRY ROUND UP (Wk 1)

This week, the 'healthcare' module (which also includes shielding and the Clinically Vulnerable) started.

Here is a quick summary of key points!

Starting with our opening statement on Day 1 by @AdamWagner1
1/🧵
Other opening statements are also available!

Please follow other organisations involved (final tweets) for more. Also, follow the @covidinquiryuk here and on YouTube.

⚠️ Many hard-hitting stories were shared, including @MichaelRosenYes, and this paramedic with a CV family.
2/