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Clinically Vulnerable Families 💙💜💗 Profile picture
Clinically Vulnerable Families 💙💜💗
@cv_cev
UK Covid-19 Inquiry Core Participant | Safety | Health | Work | Education | Inclusion |⠀ ⠀⠀⠀ Donate: https://t.co/ljsO2XVStz⠀ ⠀ FB 📸cv_cev 🟦☁️@cvcev.bsky.social
2 subscribers
Oct 8 • 8 tweets • 3 min read
Professor Steve Turner, President of the Royal College of Paediatrics and Child Health (@RCPCHtweets) @SteveTurnerABDN.

"children, mercifully, were spared from the harm of that came from Covid. Even my most sick patients .... it was their parents who were unwell...."

1/ Advice on shielded children.

"The College was pleased that the UK government adopted the College's advice on shielding for babies, children and young people. Recommending that most but not all C&YP did not need to shield."

2/
Oct 5 • 48 tweets • 14 min read
🚨COVID INQUIRY ROUND UP (Wk1)

On Monday, the "Children and Young People’s Module" opened.

As CVF is designated as a 'Core Participant', we can make opening & closing statements and suggest questions.

See @AdamWagner1 KC's opening here.

1/
 The first hearing started with "Impact videos," including Seren (18) from CVF.

Please do take a moment to listen to her experiences.

2/
Oct 2 • 38 tweets • 14 min read
💙💜💗Yesterday was a BIG day for CVF at the UK Covid Inquiry.

After a year of work, @lara_wong’s full written statement (much longer than her oral evidence) is now public.

You can also watch her full oral evidence on YouTube.

Highlights below.

⚠️LONG thread warning 🧵

1/ What is Clinically Vulnerable?
No exception for shielded Clinically Vulnerable children when schools returned.

Full (~1 hour) YouTube evidence here:
youtube.com/watch?v=B_Bjbh…

Written evidence here:
covid19.public-inquiry.uk/documents/inq0…

Please help to BOOST this thread to your followers!

2/
Sep 30 • 13 tweets • 4 min read
👪 As the UK Covid Inquiry began to focus on Children and Young people yesterday, CVF's barrister @AdamWagner1 KC stood to address the chair, Baroness Hallett, and shared our powerful opening submissions.

He started by sharing "David's" story (13).
1/ Then, Lana's story and the pressure she faced.

2/
Sep 23 • 4 tweets • 2 min read
"Something as simple as breathing in shared indoor spaces has become a barrier to accessibility and inclusion for millions of people, and it's time to change that!" "Millions of people with chronic conditions are being put at risk or quietly excluded because clean indoor air has not been treated as a fundamental human right."

"If the act of breathing in a space puts someone at risk, access isn't equitable."
Sep 23 • 6 tweets • 2 min read
Boston schools 👏👏👏

Leading the way since 2020. They invested in IAQ sensors in every classroom across the district. Their data was made publicly available, and they connected implemented demand controlled ventilation by linking sensors to the building management system.
Sep 15 • 14 tweets • 5 min read
📢 Children and Young People Voices report about their pandemic experiences has been released today.

We would be interested in hearing your views. There is a chapter on Clinically Vulnerable families.

We have included screenshots below...

1/ They have recognised that children in CV families took on new caring responsibilities. Many have never been recognised or supported as "Young Carers".

2/ Weight of responsibility: Some children and young people took on responsibilities at home during the pandemic. As well as carrying the load of practical tasks that needed to be done, such as looking after someone who was ill, taking care of siblings, or sanitising shopping for someone who was clinically vulnerable, some also felt the emotional weight of supporting their family through this time, particularly where people outside of the household could not come and help. Some were also affected by an awareness of the difficulties the adults were going through, including worsening mental hea...
Exposed to adult stress Riley, aged 22, was living at home during the pandemic with their parents. This was a difficult time for the family because their mum was clinically vulnerable and their sibling, who had moved out, was struggling with an addiction. Living at such close quarters during lockdown - "like you're in a pressure cooker" - exposed them to the stress that their parents were going through and they described starting to share in this rather than feeling like a child any more. "Everyone felt very nervous. So then having that kind of like group worrying... I feel ...
Jun 11 • 26 tweets • 8 min read
The final preliminary hearing for the Children & Young People’s module was today, CVF, again, made the case for safety.

Children's deaths *would* have been higher if many Clinically Vulnerable families had not kept their children away from schools.

⚠️Long thread
1/ 💔 88 children died (2020 - October 2022)

In the first year of the pandemic:

🏥6,338 paediatric Covid admissions
❤️‍🩹259 needed intensive care

2/
Mar 17 • 21 tweets • 6 min read
Today @BBCMoreOrLess discussed pandemic impacts on Children & Young People:

"It turned out that they would be spared from the worst impacts of the disease."

The specific impacts on CV children, those in CV families or struggling with Long Covid were barely considered.

1/🧵 Dr Munroe dismissed risks to children:

"Covid itself had a relatively small clinical impact on young people."

In reality, CEV children were told to shield due to their risks. Over 200 children have died, and with a different response those deaths may have been preventable.
2/
Feb 25 • 11 tweets • 3 min read
This 3yr anniversary that won't be in the news!

When the UK government rolled out the "Living with Covid" policy it simply scrapped protections and shifted to personal responsibility. For most, it meant "back to normal." For Clinically Vulnerable people, life became harder.
1/🧵 Image The plan was based on a single assumption: that vaccines alone would be enough... vaccines due to be withdrawn this Autumn.

But for millions who are Clinically Vulnerable, vaccines weren’t a magic bullet. Protection wasn’t universal and some were left with little to none.

2/
Feb 18 • 12 tweets • 5 min read
😅CVF are relieved to announce that we will be representing you in the final section of the UK Covid-19 Inquiry looking at the 𝗜𝗺𝗽𝗮𝗰𝘁 𝗼𝗻 𝗦𝗼𝗰𝗶𝗲𝘁𝘆.

It will consider the effects on keyworkers, vulnerable populations, bereaved, & mental health.

1/12 *Stick with this* Protective measures were often described as "restrictions" and the lifting of measures described as the return of "freedom".

2/
Jan 31 • 26 tweets • 9 min read
🚨Clinically Vulnerable Families 💙💜💗

Our oral closing statement highlights 5 key concerns - however, further details will be explored in depth in our later written submissions.

1: Therapeutics programme - wasn't good enough!

1/ The immunosuppressed were left behind.

2/
Jan 29 • 5 tweets • 2 min read
🚨Prof Sir Pirmohamed

"Would you support the development of a more diverse portfolio of vaccine formats and antivirals, both as part of future pandemic preparedness plans and during [.] 'peace time' to ensure that Clinically Vulnerable groups are adequately protected?"

1/ "Absolutely, I think it is really important to make sure that we have good therapeutics and vaccines for the whole population."

2/
Jan 23 • 6 tweets • 2 min read
🚨JCVI - Wei Shen Lim🚨

Find out more about what led to his reaction below ⬇️

1/🧵 Do you agree that mRNA COVID-19 vaccine protection has been shown to wane after 5-6m?
WSL: Yes

Covid-19 has not transitioned into a seasonal virus like influenza?
WSL: Yes

If so, why did the JCVI not recommend more frequent vaccinations for all clinically vulnerable groups?

2/
Jan 21 • 23 tweets • 8 min read
🚨Dame Kate Bingham🚨
Dubbed the "hero in a pink jacket 💕"

On Evusheld:
"I felt very strongly [.]. We were following a very clear 2 tier strategy where the CV immunocompromised were being deprioritised [.] I felt that was *manifestly* wrong both ethically and morally [.]"
1/🧵 The above video was taken out of sequence. The below should give more context...

KB "So actually, the first goal was around protecting the UK population."

CTI [Hugo Keith KC]
"Do you think you succeeded on securing or making available those monoclonal antibodies?"

KB "No!"
2/
Jan 17 • 21 tweets • 6 min read
💥Clinically Vulnerable Families 💥

Yesterday, @lara_wong, took the stand as founder and leader of CVF.
**Sorry for the delay!**

- New risks posed by Covid-19
- We need to be recognised as an equality group.

1/ FOLLOW THIS THREAD Clinically Vulnerable people were, and are still, being let down.

2/
Dec 28, 2024 • 8 tweets • 3 min read
💊 Important 🧵 - 'flu antivirals 💊

Here’s a quick thread on what you need to know about accessing antivirals for treatment and prevention in the UK.

1/ Image When are antivirals recommended?

Antivirals are advised for:
💙💜💗 High-risk groups (see list below)
🏥 People with severe symptoms or those hospitalised.

Early action is vital!

2/ Risk factors for complicated influenza These include: neurological, hepatic, renal, pulmonary and chronic cardiac disease diabetes mellitus severe immunosuppression age over 65 years pregnancy (including up to 2 weeks post-partum) children under 6 months of age morbid obesity (BMI ≥40)
Nov 27, 2024 • 28 tweets • 10 min read
🚨Clinically Vulnerable Families - closing
** Shared in full**

Thanks to the @covidinquiryuk staff & team

"The vast majority of people who died [.] were Clinically Vulnerable [.] including people who caught Covid-19 in hospitals, which were supposed to be places of safety."

1/ "Most urgently, we need to make healthcare safe for Clinically Vulnerable people."

"And by making it safe for them - by improving ventilation and putting in place other protective measures - we make it safe for others too."

2/
Nov 27, 2024 • 10 tweets • 4 min read
🚨 British Medical Association - closing

"aging estates meant that infection control measures could not always be fully implemented."
- Large open bays
- Inability to distance
- Lack of side rooms for isolating patients
- Lack of ventilation

1/ "The inquiry proceedings have laid bare the catastrophic consequences that are destined to be repeated without fundamental change."

2/
Nov 26, 2024 • 7 tweets • 3 min read
🚨 @cymru_inquiry Covid Bereaved🏴󠁧󠁢󠁷󠁬󠁳󠁿
Anne-Louise Marsh-Rees, Co-Leader.
Great witness!

🩺Symptoms were unclear
🛡Shielding comm confusing
⛔️Protect the NHS

Please do look at this whole 🧵
1/ No communication with the people who were affected. They have had to work hard to lobby for changes.

2/
Nov 16, 2024 • 17 tweets • 5 min read
Who will get a Covid booster in 2025? Far fewer than before...

The JCVI decision means that Clinically Vulnerable people u70 and who aren't immunosuppressed lose access.

“Cost-effectiveness” prioritised over protection.

NEW CONCERNING STUDY 👇

1/🧵 Adult eligibility Adult eligibility should be based on the willingness-to-pay approach that is subject to procurement and delivery at a cost-effective price. The advice for universal vaccination from age 75 years is an example. JCVI has no role in the procurement or delivery of COVID-19 vaccines or any other vaccine. Until now, Covid vaccine policy prioritised protecting 'at risk' groups.

Their approach focuses on “cost-effectiveness,” raising age thresholds. Not providing vaccine protection to younger Clinically Vulnerable. It’s a deeply worrying change.

This data may have been used.
2/ Fig. 3: Using data from the spring and autumn 2023 boosters and the 2023/24 winter wave of COVID-19, vaccine threshold prices stratified by age-group, risk-group and modelling approach. We calculate the vaccine threshold price for the two time periods (top row: winter 2023/24; bottom row: spring 2023), 16 age groups (y-axis), three risk groups (panels) and five methodologies (red, dark-blue, light-blue, grey and black). Dots show the most likely value assuming £20,000 per QALY; when assuming £30,000 per QALY the extended bar-and-whisker plots show the 95%, 80% and 50% credible intervals co...