Clinically Vulnerable Families ๐Ÿ’™๐Ÿ’œ๐Ÿ’— Profile picture
๐—–๐—ผ๐—ฟ๐—ฒ ๐—ฃ๐—ฎ๐—ฟ๐˜๐—ถ๐—ฐ๐—ถ๐—ฝ๐—ฎ๐—ป๐˜ in the ๐—จ๐—ž ๐—–๐—ผ๐˜ƒ๐—ถ๐—ฑ-๐Ÿญ๐Ÿต ๐—œ๐—ป๐—พ๐˜‚๐—ถ๐—ฟ๐˜† JOIN us on FB โ€ƒโ€ƒ ๐Ÿ“ธcv_cev ๐ŸŸฆโ˜๏ธ@cvcev.bsky.social
Apr 11 โ€ข 12 tweets โ€ข 5 min read
๐—˜๐—ฎ๐˜ ๐—ข๐˜‚๐˜ ๐—ง๐—ผ ๐—›๐—ฒ๐—น๐—ฝ ๐—ข๐˜‚๐˜

When did focus groups replace the need for appropriate Equality Impact Assessments?

#EOTHO was discriminatory at best (vulnerable people didn't benefit).

1/๐Ÿงต
theguardian.com/business/2024/โ€ฆ "The documents reveal that polling for the Treasury in June 2020 found that only 13% agreed the government should create incentives for people to spend on eating out[.]."

Even the public did not agree!

2/
Apr 11 โ€ข 9 tweets โ€ข 4 min read
At the #CovidInquiry yesterday.

Our barrister @MaryRachel_McC reiterated @AdamWagner1's previous submission that Clinically Vulnerable people need to be considered as a separate equality group.

@Kim_LHarrison @ShaneSmith_Law
@SlaterGordonUK @DoughtyStPublic
1/๐Ÿงต The new needs of Clinically Vulnerable people, since the emergence of Covid, were not considered as public health measures were withdrawn.

Clinically Vulnerable people, to this day, are struggling to safely access:

๐Ÿ’™ Healthcare
๐Ÿ’œ Workplaces
๐Ÿ’— Schools and beyond...
2/
98%  of Clinically Vulnerable people feel that healthcare is unsafe  [Poll of 534 Clinically Vulnerable people March 2024]  Clinically Vulnerable Families
82%  of Clinically Vulnerable households have lost work or retired early due to high Covid risks.  [Poll of 364 Clinically Vulnerable people March 2024]  Clinically Vulnerable Families
Apr 6 โ€ข 9 tweets โ€ข 4 min read
Yesterday was a very bad news day for UK people with poor immune protection against Covid.

The SUPERNOVA trial for the updated version of Evusheld is delayed, and so NICE is now not set to report until the end of February 2025.


1/๐Ÿงต nice.org.uk/guidance/indevโ€ฆ
Image People in this group include: transplant patients, whose immune systems must be heavily suppressed to prevent them destroying their new organs; or people with blood cancers.

Below are some further examples of high risk groups:

2/ Image of graph showing risks for certain conditions. List ordered from highest risk to lower (also high risk).  Solid organ transplant Renal transplant Bone marrow transplant Immunosuppressants Rare neuro disease Sickle cell disease CKD stage 5 Blood or bone marrow cancer Cirrhosis of the liver
Mar 30 โ€ข 6 tweets โ€ข 3 min read
๐Ÿšจ Mask wearing became heavily politicised even before it was common practice in 2020.

Now, we are finding that even high-risk people face discrimination despite relying on masks as an essential measure to protect health.

1/๐Ÿงต #MaskDiscrimination
โฌ‡๏ธโฌ‡๏ธโฌ‡๏ธ
clinicallyvulnerable.org/post/interviewโ€ฆ โฌ†๏ธ In our first anonymous blog, a CVF member shares the challenges they encountered whilst job-seeking as a mask wearer.

Not all CV people are covered by disability laws, which enable 'reasonable adjustments' and even those who do qualify still struggle.

2/ #MaskDiscrimination Masked interviewee in an office setting. Four interviewers sit, unmasked, wearing disparaging faces.
Mar 23 โ€ข 11 tweets โ€ข 4 min read
๐ŸงตThis article flags some important issues faced by people with learning disabilities (LD), their experiences regarding Do Not Resuscitate orders.

๐Ÿšจ However, for Clinically Vulnerable (CV) people (including those with LDs), several aspects of the article are highly problematic: Thousands of disabled people died after 'Covid treatment withheld', inquiry to probe  EXCLUSIVE  Mencap says Do Not Resuscitate notices were placed on the medical files of many people with Down's syndrome, autism and other learning disabilities who were otherwise healthy before contracting the virus By primarily discussing the impact on people with LDs, especially those who were not Clinically Vulnerable *which is important*, it inadvertently marginalises the experiences of Clinically Vulnerable people (most who don't have LDs but all are CV).

2/

inews.co.uk/news/politics/โ€ฆ
Mar 21 โ€ข 5 tweets โ€ข 3 min read
๐Ÿ“ข It seems the BBC may not be pleased that Clinically Vulnerable people have shared video clips from Casualty and are now complaining.

Their potentially discriminatory (against us) content has now been removed from Facebook.

1/๐Ÿงต

BBC Studios blocked your video because it may contain content that they own.
There are changes to your video because of a copyright match  The following actions were applied to your video by BBC Studios, because it may contain 1 minute and 36 seconds of content they own:  X  Your video was made unavailable by the rights owner. Applied in 5 territories  Copyrighted content found in your video  Audio segment 00:00-01:36  Video segment 00:00-01:36  Image: of doctor acting in Casualty   Subs: "which could've been really, really serious"
The content still remains on iPlayer.

2/ IPlayer image of episode with a Fire lady holding a helmet and a medic outside an ambulance.  ONE
Mar 19 โ€ข 8 tweets โ€ข 3 min read
๐Ÿšจ Andrea was DENIED her vote when new #VoterID laws clashed with her health need to wear a mask.

Her experience highlights one of the new barriers faced by Clinically Vulnerable people.

#MyMaskMyVote๐Ÿ˜ท
๐Ÿงต/1

Her situation isn't just about one election or one person. It's about ensuring democracy is inclusive for ALL.

In the post-Covid era, the UK government is ignoring the ongoing impacts on its most vulnerable.

#MyMaskMyVote๐Ÿ˜ท
/2



Image
Mar 14 โ€ข 13 tweets โ€ข 5 min read
Hi @BBCCasualty, your recent episode will contribute to the discrimination faced by people who are Clinically Vulnerable to Covid.

It concerns a character called Aishling, a lady wearing an FFP2 mask, who had isolated herself for four years.

1/๐Ÿงต Episode 4 - 'Trauma'

Aishling's "Covid anxiety" had resulted in her overdosing on anxiety medication and being unable to drive.

To assist this narrative, she was completely healthy and, therefore, clearly portrayed as a bit mad.

2/
Feb 21 โ€ข 11 tweets โ€ข 4 min read
โš ๏ธ #SafeHealthcare

. *REALLY IMPORTANT THREAD *

#BREATHTAKING shows PPE used to protect staff.

Masks
๐Ÿ’™Should tested be for "fit"
๐Ÿ’œBe high quality FFP3 masks sealed around the face to prevent airborne infections
๐Ÿ’—Be ๐˜„๐—ผ๐—ฟ๐—ป ๐˜๐—ผ ๐—ฝ๐—ฟ๐—ผ๐˜๐—ฒ๐—ฐ๐˜ ๐˜๐—ต๐—ฒ ๐—ถ๐—ป๐—ฑ๐—ถ๐˜ƒ๐—ถ๐—ฑ๐˜‚๐—ฎ๐—น Image from Breathtaking. Patient unmasked with oxygen tube in nose. Doctor in full PPE. .@doctor_oxford explains, healthcare workers are not given FFP3s - even treating ๐—ถ๐—ป๐—ณ๐—ฒ๐—ฐ๐˜๐—ถ๐—ผ๐˜‚๐˜€ ๐—ฝ๐—ฎ๐˜๐—ถ๐—ฒ๐—ป๐˜๐˜€. If CV themselves JOBS and LIVES have been lost.

There was ๐—ป๐—ฒ๐˜ƒ๐—ฒ๐—ฟ a policy to wear FFP3 to protect patients. So staff don't mask for uninfected vulnerable.
Feb 11 โ€ข 8 tweets โ€ข 3 min read
Lee-Anne, who has a Clinically Vulnerable family, has just spoken to @carolvorders about her experience - as her child was off-rolled (which is an illegal practice) rather than offering him a safe learning environment.

This is discrimination - education is a human right.

1/ She, and others like her, have saved the government money. She has to take the financial burden of educating her child.

@carolvorders noted parents and medics are asking for #CleanAir๐Ÿ’จ.

We are!!!

When we upgrade buildings for RAAC we MUST be improving ventilation.
2/
Feb 7 โ€ข 9 tweets โ€ข 3 min read
โš ๏ธ Covid vaccine access likely to reduce from Autumn 2024 โš ๏ธ

๐—ง๐—Ÿ๐——๐—ฅ : Potentially bad news for "such groups as ๐—ต๐—ฒ๐—ฎ๐—น๐˜๐—ต๐—ฐ๐—ฎ๐—ฟ๐—ฒ ๐˜„๐—ผ๐—ฟ๐—ธ๐—ฒ๐—ฟ๐˜€ and ๐—ต๐—ผ๐˜‚๐˜€๐—ฒ๐—ต๐—ผ๐—น๐—ฑ ๐—ฐ๐—ผ๐—ป๐˜๐—ฎ๐—ฐ๐˜๐˜€ ๐—ผ๐—ณ ๐—ถ๐—บ๐—บ๐˜‚๐—ป๐—ผ๐˜€๐˜‚๐—ฝ๐—ฝ๐—ฟ๐—ฒ๐˜€๐˜€๐—ฒ๐—ฑ ๐—ถ๐—ป๐—ฑ๐—ถ๐˜ƒ๐—ถ๐—ฑ๐˜‚๐—ฎ๐—น๐˜€. GOV.UK  Menu  Home >  COVID-19 spring 2024 and future vaccination programmes: JCVI advice, 4 December 2023  Department of Health & Social Care  Independent report  JCVI statement on COVID-19 vaccination in spring 2024 and considerations on future COVID-19 vaccination, 4 December 2023  Published 7 February 2024 Today's statement from the JCVI is jaw dropping.

What starts off as a seemingly innocuous announcement of the usual spring vaccine groups who are eligible for spring boosters veers off at the end with some bombshells. Advice on spring 2024 vaccination  In spring 2024, the Joint Committee on Vaccination and Immunisation (JCVI) advises that a COVID-19 vaccine should be offered to:  โ€ข adults aged 75 years and over  โ€ข residents in a care home for older adults  โ€ข individuals aged 6 months and over who are immunosuppressed (as defined in tables 3 or 4 in the COVID-19 chapter of the Green Book)  This should be offered around 6 months after the last vaccine dose, although operational flexibility around the timing of the spring dose in relation to the last vaccine dose is considered appropriate (with a minimum in...
Feb 2 โ€ข 17 tweets โ€ข 4 min read
This is interesting but also helpful.
"the ads may not have broken the rules"

Here are the rules:


Now we need to work out which rules we believe were broken and how... ๐Ÿงต asa.org.uk/codes-and-ruliโ€ฆ


Image
Image
1. Social Responsibility (1.3)
The adverts are socially irresponsible, suggesting children with symptoms of illness, such as a runny nose or stomach ache (which may be symptoms of Covid or other serious conditions), should still attend school.
Jan 1 โ€ข 10 tweets โ€ข 4 min read
๐Ÿคฏ Cognitive dissonance

As we head into 2024, we all need to step up to actively challenge this more. Whether that is a news report, government advertising, or social media.

This year, we had "Summer flu".
Now we have "Festive flu" (only some of which is actually 'flu)

1/ [Facebook post]  North East Updates  1d  Anyone else notice the festive flu seems to be hitting people hard this year?  Like 311 We wouldn't recommend dipping into these posts unprepared. It is often hard enough often to manage your own family and friends...

But you will see everything from the conspiracy theorists:

2/ Has Covid Disappeared Now Then...  1 d  Like  Reply  5  there was no such thing as It's because they couldn't convid' tweak the flu vaccine as every year it mutates and they didn't know what to do  also there was a new illness shouted out in November by the whistle-blower of covid in China again so could be that too  1 d  Like  Reply  2
Dec 31, 2023 โ€ข 15 tweets โ€ข 6 min read
๐ŸšจWARNING :
Old bivalent vaccines were given to the MOST vulnerable population when a summer surge triggered an early start to the autumn vaccine campaign, before the newer XBB vaccines were available.

1/

However, a new study has found that these older bivalent vaccines are ineffective against the JN.1 variant, currently circulating at a high rate globally. This is now resulting in the preventable hospitalisation of thousands of vulnerable people.

2/
Dec 13, 2023 โ€ข 13 tweets โ€ข 5 min read
๐ŸšจREAD THIS THREAD
(it was a tough write)

Clinically Vulnerable Families were rejected from M2 #CovidInquiry as our interests are not "sufficiently significant".

Yet, most reported deaths were followed by dismissive "underlying health condition" / "elderly".

#IncludeCVF๐Ÿ’™๐Ÿ’œ๐Ÿ’— We are those people who remain at risk, which is why we *still* qualify for Covid vaccines / antivirals.

We had a significant interest then, and we do now. #CovidInquiry

#IncludeCVF๐Ÿ’™๐Ÿ’œ๐Ÿ’— 12. The Applicant does not suggest that they played a direct or significant role in core political and administrative decision-making (Rule 5(2)(a)) and I do not find that they did. Whilst recognising the significant interest the Applicant has in the matters for investigation in Module 2 (Rule 5(2)), I do not consider, having regard in particular to the need to manage the Inquiry effectively and efficiently, that its interest in the areas in the provisional outline of scope is sufficiently significant as to grant it Core Participant status in this Module.  13. I am determined to run the Inq...
Dec 6, 2023 โ€ข 8 tweets โ€ข 3 min read
๐Ÿ™If you see this, *please* RT & QT and tag someone who needs to see it๐Ÿ™

Today, CVF members have shared our stories. Left behind by a past tensed virus, which remains ever present.

@BorisJohnson @RishiSunak

๐ŸšจHear our voices๐Ÿšจ

1/ Freedom day took ours
2/ Clean Air and Masks are needed:

#IncludeCVF๐Ÿ’™๐Ÿ’œ๐Ÿ’— #CovidInquiry
Nov 8, 2023 โ€ข 5 tweets โ€ข 2 min read
It's gone a bit Baldrick today.

"A cunning route into segmentation"

"The only answer I can see beyond the existing mitigations (other than the fantasy app) is Stalinist segmentation. The virus kills the old and sick. The lockdown hits the young and healthy."

โš ๏ธ #IncludeCVF โš ๏ธ
"[.]could enable us to dodge straight age-based segmentation and use a personalised RAG rating instead."

"In extremist, if HMG wanted to make it illegal for a person u75 to meet someone o75 without a hazmat suit on, then that's a political/delivery call, not one for scientists!" [[30/07/2020, 11:29:32] Mark Sedwill: It's the group (forget the names but can find out) working on personal risk profiles. Typically quite complicated but could enable us to dodge straight age-based segmentation and use a personalised RAG rating instead. Maybe even an app! Then greens do what they like with greens, reds go into seclusion, ambers carry on carefully. I don't but the SAGE argument that it's all too difficult.  [30/07/2020, 11:32:06] Simon C: Neither PM nor CX buy SAGE argument either. And I am just not sure this is a SAGE issue. This is about political will and implementation...
Nov 7, 2023 โ€ข 12 tweets โ€ข 4 min read
โš ๏ธ Segmentation โš ๏ธ

'The Great Barrington Declaration' by another name was presented to the Prime Minister by Gupta Heneghan and Sweden's State Epidemiologist.

News to us!
Why?
We were rejected for this module.

Who asked further questions on it?
Nobody...

#IncludeCVF
1/๐Ÿงต Head of the Covid Task Force, Simon Ridley, spoke a lot about Clinically Vulnerable people.

He discussed shielding and then the potential step of 'segmentation'.

Starting with shielding... it seems there were lots of discussions on who to shield.
#WhoDoWeNotSave

#IncludeCVF
Oct 15, 2023 โ€ข 4 tweets โ€ข 2 min read
๐ŸšจDangerous journalism can risk lives

๐Ÿ’™ The only protection vulnerable people only have is personal responsibility
๐Ÿ’œ Many are still unvaccinated
๐Ÿ’— Infections are raging (*and it is Autumn)

๐Ÿ™Please help, see below...

bbc.co.uk/news/health-66โ€ฆ ๐Ÿ’”Don't pressure people like Sally (vulnerable o70) to get infecfed, she is doing all she can at a high personal cost

๐Ÿ’”Don't test!? It doesn't make it go away

๐Ÿ’” Hand gel is a social cue? Implicit suggestion to remove it.

* This article deserves compliants *
Oct 4, 2023 โ€ข 11 tweets โ€ข 3 min read
A reminder of inequalities faced by Clinically Vulnerable Families ๐Ÿ’™๐Ÿ’œ๐Ÿ’”, as we do not have a voice in this critical Covid-19 Inquiry module on core government decisions.

Below is a compilation of submissions from other organisations this morning:

1) Children's charities: We are pleased that they have highlighted the fact that children have lost lives to Covid.

However, they have failed to identify significant impacts to clinically vulnerable children in unsafe schools/children from clinically vulnerable households.

No mention of Covid orphans.
Aug 14, 2023 โ€ข 8 tweets โ€ข 2 min read
โš ๏ธ WARNING โš ๏ธ : Masked staff might not be the conscientious ones, but instead may have active infections.

This is a serious concern as local guidance appears to contradict government guidance and put patients at risk.

1/ Image Current guidance for "Managing healthcare staff with symptoms of a respiratory infection or a positive COVID-19 test result"

Advises:
๐Ÿ”น๏ธDon't need to test
๐Ÿ”น๏ธIf +ve don't -ves to return
๐Ÿ”น๏ธFollow local protocols to test / return if work with severely immunosuppressed (SI)
2/