Thread by @BrvHrt09

“Maybe your doctor leaned away from you when you brought up your concerns and suggested you see a therapist. Maybe you feel really alone right now. Maybe you’ve been feeling alone for a long time.” /1 #NEISVoid

https://twitter.com/bennessb/status/1490806578035007496

“I want you to know that you’re not alone. I want you to know that there are so many other people who feel uncertain and isolated and scared because something is happening with their bodies that their doctors can’t explain.” /2 #NEISVoid

“Maybe you’re wondering if this is all in your head. Maybe you’re wondering if you brought this upon yourself somehow … Maybe the doubt and the guilt and the wondering have stopped you in your tracks completely.” /3 #NEISVoid

Maybe u’re angry the ppl u counted on stopped showing up for u. Maybe u’re grieving the life u expected to have, plans u made when u believed ur body was healthy. Maybe u’re sad,desperate or numb. Maybe u don’t feel anything at all bc u use all ur energy just trying to survive./4

“I want you to know that I believe you. No matter what is going on with your body or how strange it sounds when you try to explain it, I want you to know that I believe you.”
noendinsight.co/dear-problem-p…
I needed to post these bits of this “Dear Problem Patients” letter for myself. /5

The #NEISVoid nature of my family dr’s dismissal of my chronic pain and now a whole new pain condition has done a number on me. It’s impacting my friendships bc they can’t deal w no answers, or unjust neglect or the no end in sight. All of it and more impacts my will to live. /6

So for now, I will cling to the fact that I am not alone. That there are people who believe me. And that’ll have to be enough for now. Thank gawd for #DisabilityTwitter and crip friends for whom not much explanation is needed. Where I matter.

-end-