Daily Reminder that @fordnation HAS NOT fixed the Ontario Autism Program:

What would constitute ‘fixed’?

1️⃣ Adequate funding, with the $600M promise being spent.
❌ Ford did not spend the promised funding and continuously fell short.
#50KIsNotOk #onpoli
2️⃣ A program that recognizes that AGE has no bearing on a child’s needs.
❌ Ford’s program penalizes children by clawing back funding as they celebrate birthdays.
#50KIsNotOk #onpoli
3️⃣ A program that delivers based on recommendations from a clinician who has evaluated the child.
@fordnation has removed clinical input. Funding is determined by an algorithm after a 2 hr phone call between a parent & a non-clinician who has never met the child. #50KIsNotOk
4️⃣ A program with reasonable wait times.
@fordnation’s OAP Waitlist has children on it who have been waiting since 2016 OR EARLIER. The waitlist for the “determination of need” process is more than 50k children long. #50KIsNotOk #onpoli
5️⃣ A program that is direct-billed for actual program costs determined by the clinician.
❌ Parents must be bookkeepers and must manage the funding after trying to find services with the funding they were arbitrarily issued. #50KIsNotOk #onpoli
6️⃣ Sustainable investment into capacity building especially in Northern, Rural & Remote Areas.
@fordnation offered a one-time grant to select providers. Families who must travel 100s of kms to the nearest provider will have travel expenses deducted from therapy dollars.
7️⃣ A program that doesn’t discriminate according to age.
❌ The programs that @DrFullertonMPP boasts about are only available until a child is 48 months old for one, and under 6 for the other. Those that are “too old” will be barred from accessing them. #50KIsNotOk #onpoli
8️⃣ A program whose waitlist has moved significantly over the past 4 years.
❌ The OAP Waitlist has more than doubled in size since 2019; only 645 children have entered a “test phase” of the new program over the course of @fordnation holding office. #50KIsNotOk #onpoli
9️⃣ A program where children’s needs are met.
❌ Children with profound, severe and even moderate needs will receive nowhere near the amount of support required with the funding caps @fordnation has imposed.
🔟 A program that follows the recommendations of the clinicians, doctors, advocates, self-advocates and researchers who were appointed to design the program.
@fordnation @MacLeodLisa @ToddSmithPC & @DrFullertonMPP twisted and ignored the advice to suit their bottom line.
The Ontario Autism Program is not fixed. Interim supports issued over the past 3 years were limited, temporary, non-clinical, arbitrary, discriminatory and only offered to some. The new “needs based” program is loosely based on need at best. There are still 50k kids waiting.
No matter how you slice it, after 4 yrs of @fordnation, @MacLeodLisa, @ToddSmithPC & @DrFullertonMPP we are NOT better off and only further behind. Our kids don’t get this time back. #50kisnotok #onpoli

@StevenDelDuca @AndreaHorwath @MikeSchreiner @TArmstrongNDP @JoelHardenONDP

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More from @ottawa_asd_mum

May 10
@MacLeodLisa is my MPP in #Nepean. How unbelievably sad that over the years we’ve become completely desensitized to her antics; this type of story is almost expected. I have autistic children. We have been deeply, deeply hurt by MacLeod’s policies. But we’ve also had enough face
time (or attempted face time) with the Minister to know that #Nepean deserves so much better. Our community has been publicly accused of trying to run her out of office. I think her record might do the job on its own.

We had been invited to an Autism Roundtable in January 2019.
@MacLeodLisa abruptly walked out of the meeting when the questions got tough.

I was invited into the Minister’s office during the first Ottawa protest after she made the Autism announcement that would send the program and families into a downward spiral for 3 years & counting.
Read 13 tweets
Oct 22, 2021
1/ I am the parent of autistic children and I need to stop watching Question Period in the Ontario Legislature.

I need to stop putting myself within earshot of redundant, scripted talking points that may sound good on paper, that may yield an MPP an “attaboy” (or girl) from
2/ someone on the sidelines who doesn’t know any better, that may earn someone political points for “making good” on promises their opponents failed to keep.

But I know better.

I know that best intentions from professionals were put on paper then twisted beyond recognition
3/ by bureaucrats who care nothing about the people they are paid to serve, and everything about the bottom line.

I have 2 school aged autistic children in Ontario. So I tune into Question Period to see if the Opposition delivers on holding government to task. I hope they will
Read 18 tweets
Jan 26, 2020
1/ Offering peace of mind to 25% of children will not placate 29k desperate families.

A year ago, thousands across the province rallied against a generalized funding program that would meet the needs of some, create waste where unneeded and leave many without the support they
2/ desperately require; particularly those with severe needs and those who are over the age of six.

After years of waiting, immediate funding, even if it falls far short, may very well be “better than nothing”. Families in crisis may prefer to take something for fear that they
3/ will otherwise remain on a waitlist forever. This is survival mode after years of disappointment and desperation.

Get help to families immediately. Urgency is required, but also in a method that doesn’t force 29k kids into one category or another, sending a message that this
Read 7 tweets
Nov 19, 2019
1/ Today is November 19, 2019. And we are still waiting for a plan from the Ontario Government.

Advocates, parents, researchers, therapists, stakeholders have reiterated to the @fordnation government, time and again, that urgency is critical.

And here we are.
2/ going on 10 months since @MacLeodLisa flogged us with her “plan” to remedy the Ontario Autism Program we are no better off than where we were.

Throughout the summer, while @ToddSmithPC was touring the province ‘listening’, the consistent answer to our questions was that
3/ ‘The Panel’ was hard at work on their recommendations, which we saw come to fruition just shy of November. The Panel recommended Needs Based Therapy. The Panel recommended Urgent Response Services. The Panel recommended reverting back to a chronological waitlist. The Panel
Read 30 tweets
Nov 18, 2019
1/ Tonight, maybe three blocks away from where I sit, a Santa Claus parade is still chugging it’s way down the Main Street in Barrhaven, #Nepean. I was there. But I had to leave.

My husband left maybe 10 minutes before I did. My son Jack has severe autism, and each year we try
2/ our luck with the parade, and each year, it’s no better than the last. Too late, too many flashing lights, too many bad memories from the year before. This year may have been the nail in the coffin. He doesn’t have many words to tell us, but it’s clear this “fun” Christmas
3/ activity just isn’t for him. My husband took him ahead home leaving me with my daughter who is also on the autism spectrum.

The Parade has been cause for reflection for me. A year ago, we stood roadside, and with just the right amount of happenstance, @MacLeodLisa’s
Read 20 tweets
Nov 3, 2019
1) Hi @ToddSmithPC. I hope you can find a moment for this, and I’m willing to try every avenue to reach you, as this is important.

I’ve spent the past year trying to advocate for services for my family. I have two children with ASD and had the opportunity to tell you about them
2) In person on July 3 in Ottawa, and again on August 19. I’m tired, @ToddSmithPC, but I’m privileged and I know it. I have a partner who stands equally beside me in every aspect of parenting. I have extended family who have been ready and willing to support us both
3) financially, and with extra sets of hands when needed. I was able to leave my job to care for our family. We accessed tens of thousands of dollars in savings, and tens of thousands of more in credit to buy early intervention for our kids. We are tired,
Read 30 tweets

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