Thread by @AzolaAlba

I received this message from one of my most impaired #longcovid patients … Sharing anonymously with permission …because this stories need to be told!

“I had a doctors appt yesterday and I couldn't stop crying:( I am so embarrassed. All I could think about is that an entire year has passed since he told me that my life was going to change and I absolutely DID NOT believe him and here I am living mostly in bed, mostly homebound.

My poor kids lost their active mother-now a nanny takes them to all their activities. It's my daughters 4th bday tomorrow and I'm grieving for her- all she knows is ever having a sick mommy. She's never had me at a school event or cheering her on at a soccer game or swim lessons.

I've never taken her to camp or even a playground. Its so devastating sending them on summer vacation and looking at pictures. She doesn't even remember a time when mommy went on vacations. It's just normal for her for me to always stay home and its so heart breaking.

My son has never had me walk him to the bus stop because I can't stand and wait. I panic and crash and get too sick. I can't believe this is my life now. I was an active, successful working mom and now I'm a hermit hobbling around the house attached to an IV pole.

Some days I can't even read to them because my voice is too weak. This is a torture chamber and I would never wish it on anyone. I do feel like I've made progress since last year but its soooo sloowwww and my worst fear is that this is the best I'm going to get.

I wish I could have spent the appt time more productively but I was so overcome with emotion that I  was focused on holding back tears and not begging him to fix me. I don't know what else to say. I guess I wanted to reach out to someone who understands what I'm going through.