Passionate about treatment & research of ME/CFS and LC. Chronic illness deserves chronic curiosity. @RehabHopkins and @HopkinsKids. My opinions are my own.
May 20 • 6 tweets • 2 min read
Five years ago, she got COVID.
By November 2021, she came to our clinic with disabling #LongCOVID symptoms.
Today, for the first time in years, she told me she feels closer to her pre-COVID baseline. Closer to herself again. 🧵
There is still no single cure for Long COVID or #MECFS, yet .
But that does not mean there is nothing we can do.
It did not happen overnight.
It took years of listening, adjusting, pacing, setbacks, medication trials, titration, and persistence -from both patient and clinician.
Jul 21, 2022 • 7 tweets • 2 min read
I received this message from one of my most impaired #longcovid patients … Sharing anonymously with permission …because this stories need to be told!
“I had a doctors appt yesterday and I couldn't stop crying:( I am so embarrassed. All I could think about is that an entire year has passed since he told me that my life was going to change and I absolutely DID NOT believe him and here I am living mostly in bed, mostly homebound.