Criticism of the new #Fibromyalgia coding for ICD-11:

Concerns about the taxonomy, definition and coding of fibromyalgia syndrome in ICD-11: the potential for negative consequences for patient care and research, Häuser, Clauw, Wolfe et al:

Free text: clinexprheumatol.org/abstract.asp?a…
To submit comments on ICD-11 coding for Fibromyalgia:

First register with the ICD-11 development platform, here: icd.who.int/dev11/Account/…
Listings for "Fibromyalgia syndrome", "Fibromyalgia" and "Chronic widespread pain" can be found here:

Foundation Component:
icd.who.int/dev11/f/en#/ht…

ICD-11 for Mortality and Morbidity Statistics:
icd.who.int/dev11/l-m/en#/…
Click on the symbol that looks like two speech bubbles (grey and orange at the top right) to add Generic comment.

Or click wherever you see the small speech bubble symbols at the end of Code Titles, "Description", "Additional Information".
Comments can also be left on two proposals submitted by Antonia Barke, in July 2018, on behalf of the IASP/WHO working group, and approved and implemented by WHO in December 2019:

icd.who.int/dev11/proposal…

icd.who.int/dev11/proposal…
Again, look for small orange/orange & grey speech bubbles; click on these to read/add comment.

Note that once a comment has been posted it cannot be edited/deleted; best to draft off-line before submitting. No formatting allowed for comments so draft in plain text only.

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More from @dxrevisionwatch

Aug 17, 2021
nice.org.uk/process/pmg...…

11.1 Quality assurance of the guideline
After changes agreed by the committee have been made to the guideline in response to consultation comments from registered stakeholders, the guideline is reviewed by NICE staff with responsibility for
guideline quality assurance. They check that the changes made to the guideline are appropriate and that the developer has responded appropriately to the registered stakeholders' comments. Further changes to the guideline may be needed; the developer continues to maintain an audit
trail of all the changes. The NICE Pathway (everything NICE says on a topic in an interactive flowchart) and any supporting resources are amended in line with any changes to the guideline. These also undergo quality assurance and are signed off within NICE.
Read 5 tweets
Aug 17, 2021
nice.org.uk/process/pmg20/…

"11.2 Signing off the guideline

NICE's Guidance Executive considers and approves guidelines for publication on behalf of the NICE Board. The Guidance Executive is made up of NICE executive directors, centre directors and the communications director.
When considering a guideline for publication, the Guidance Executive reviews a report from NICE staff with responsibility for guideline quality assurance. The report details whether the guideline:

. addresses all the issues identified in the scope
. is consistent with the evidence quoted

. was developed using the agreed process and methods

. was developed with due regard to the need to eliminate discrimination, advance equality and foster good relations

. will lead to a resource impact when implemented.
Read 10 tweets
Aug 17, 2021
Science Media Centre: AUGUST 17, 2021
Expert reaction to the news that NICE have paused the publication of the updated guideline on ME/CFS

sciencemediacentre.org/expert-reactio…
"The National Institute for Health and Care Excellence (NICE) have announced today that they have decided to pause publication of its updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS).
"The Royal College of Paediatrics and Child Health (RCPCH), said:

“We are very pleased that this process has been paused and we look forward to working with NICE to ensure that future guidance is of benefit to children, young people and those who manage their care.”
Read 4 tweets
Aug 17, 2021
"NICE has today (17 August 2021) taken the decision to pause publication of its updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS).
"The guideline recognises that ME/CFS is a complex, multi-system, chronic medical condition where there is no ‘one size fits all’ approach to managing symptoms.
Read 10 tweets
Nov 15, 2020
NHS launches 40 ‘long COVID’ clinics to tackle persistent symptoms

15 November 2020
Long term conditions

england.nhs.uk/2020/11/nhs-la…
"The NHS will launch a network of more than 40 ‘long COVID’ specialist clinics within weeks to help thousands of patients suffering debilitating effects of the virus months after being infected."
"The clinics, due to start opening at the end of November, will bring together doctors, nurses, therapist and other NHS staff to physical and psychological assessments of those experiencing enduring symptoms."
Read 6 tweets
Nov 14, 2020
@Mindyou13 1 The International Classification of Diseases (ICD) is maintained and published by the World Health Organization (WHO).

ICD is the global classification and diagnostic standard of diseases for use in epidemiology, health management, clinical practice and research.
@Mindyou13 It is used to classify and monitor causes of injury and death and monitor illness and disease trends for statistical analysis, to monitor outcomes and inform policy makers on health care spending and resource allocation.
@Mindyou13 For NHS England, ICD-10 (Version: 2016) is the mandatory classification system used for coding diseases and is used in conjunction with the UK Edition of the SNOMED CT terminology system.
Read 13 tweets

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