@ktclick "autism diagnosis criteria can’t ID autism in about half the world’s population"

50% of human population is not autistic...

My views on PDA are nuanced & derived from PDA literature, respecting divergent views on PDA, following typical research & ethics standards.
@ktclick Presumably, you are aware PDA is a highly controversial topic, with many ongoing-historical debates?

If not this video might be of use to you.
@ktclick You are welcome to submit into the special on issue on PDA & you can explain your views there.
frontiersin.org/research-topic…
@ktclick I am a modern approach to PDA, based on transactional stress. I am not viewing PDA as a form of autism for far too many reasons to go into detail at the moment. Here is a short video on how I model PDA:
@ktclick Here is a short video discussing the ethics of PDA.
@ktclick I would pay attention to the legal threshold to when a person counts as disabled due to impairment of their demand-avoidance & likewise threshold when demand-avoidance is pathologised as part of a Disorder.
@ktclick My PhD is investigating at what threshold PDA can be viewed as a Disorder at, which is something "PDA Profile of ASD" supporters should have done before assuming PDA was a form of autism. I suppose you are going to tell I am still conducting pseudoscience?
@ktclick Link to short video on rationale for my PhD.
@ktclick Yet, if you want an example of some PDA researchers not following typical research standards I can give you many examples. For instance:
paediatricsandchildhealthjournal.co.uk/article/S1751-…
@ktclick Another example of some PDA researchers not following typical research & ethics standards is from this thread yesterday.
threadreaderapp.com/thread/1551955…
@ktclick I suppose @ktclick, you are going to standby this:
"restart your whole “research” niche by first acknowledging autism diagnosis criteria can’t ID autism in about half the world’s population. Basing your PDA #pseudoscience on terrible data just makes you look silly."?
@ktclick @threadreaderapp if you could please unroll?

Thank you in advance.

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More from @Richard_Autism

Jul 26
"Sometimes this is asked alongside an existing autism spectrum disorder diagnosis, but can also be asked as an alternative to such a diagnosis or as an explanation for behavioural difficulties in children without any developmental disorder." Green et al 2018a, p456
This is a quote talking about requests to diagnose PDA in Green et al (2018a) review of PDA. Link below to the article.
thelancet.com/journals/lanch…
So why I am I mentioning this? It is from multiple authors from clinics across the UK.
The authors are: Jonathan Green, Michael Absoud, Victoria Grahame, Osman Malik, Emily Simonoff, Ann Le Couteur, Gillian Baird.
Read 55 tweets
Jul 23
This is a thread on my ideas for reasonable adjustments clinics can (should) make for autistic persons (or autistic parents of CYP who are being assessed for a mental disorder.

Includes making pre-emptive reasonable adjustments.
Most of these ideas are generic autism strategies, or reasonable adjustments for autistic persons in job interviews, or academic panel defenses (a viva).
Use clear and precise language where possible.
Give us time to process information.
Beware we might take things literally.
Do a sensory audit of environment where assessment will take place.
Offer virtual assessments.
Read 26 tweets
Jul 11
What would your say about the connotations of having a panda be a symbol for PDA, after watching these adverts of a panda being destructive while silence, adverts have the sayings “Just you know why…Why…” & “Never Say No To Panda”?
Broader context, this well known gif of an angry panda silently destroying office equipment is from one of the adverts in the link above.
Below is a modified image of the PDA Society's logo. I replaced the charity's name with Newson's Syndrome as part of a joke, comparing PDA to the fictitious @milton_damian 's Syndrome.
Read 15 tweets
Jul 10
@Fiona_Clarke_ @milton_damian This is something & Damian have both been pointing out.

Damian points out here, traditional autism strategies, i.e., PBS/ ABA do not work with autistic persons.
kar.kent.ac.uk/62694/431/Natu…
@Fiona_Clarke_ @milton_damian This is a rejected letter article where I ask can reinforcement-based approaches cause demand-avoidance features?
rationaldemandavoidance.com/2020/04/21/can…
@Fiona_Clarke_ @milton_damian I explicitly mention a reason why PDA is controversial as it is only meant to protect a minority of autistic persons from ABA/ PBS in this seminar recording, see around 33 minute mark.
Read 13 tweets
Jul 9
@GillLoomesQuinn I am not going to express persons who have not expressed it academically. For instance, I, @milton_damian, & @Allison66746425 have all written about how PDA pathologises a person's self agency.
@GillLoomesQuinn @milton_damian @Allison66746425 @milton_damian "I suggest that there are many issues with attempts to sub-type autism and such efforts can
also impact upon solidarity amongst the autistic community. For me, one needs to be aware of the
potential harms that could come from the application of the PDA narrative,"
Read 33 tweets
Jun 29
This is an example of a vulnerable caregiver being misled about PDA & the nature of PDA debates. It is a key reason why I am so passionate about PDA ethics & have substantial concerns over the likes of PDA Society's conduct on PDA.
I am full of sympathy for the caregiver & their family. They are clearly in difficult position & do need adequate support. Yet, portraying PDA as a "Profile of ASD", or a profile at all is hugely problematic & unethical.
Simple fact is if it was ethical to portray PDA as a distinct anything, @NICEComms @BPSOfficial @rcpsych all investigated PDA since 2020, they all concluded there is insufficient evidence to suggest what PDA is & equally respected divergent opinion.
Read 23 tweets

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