"..whats keeping them sick may not be a virus in the first place" - "the virus may have started something off....all sorts of other factors may be responsible for why they are ill many years later". I note that the basis of such a statement is simply Wessely's notion of "other"
The virus may have started something off? - what exactly? the key question Wessely never answered. Deale and Wessely ran a survey of ME patients in his own clinic & most recounted an infection and were dissatisfied with a psychiatric diagnosis. sciencedirect.com/science/articl…
Deale/Wessely viewed patients' disagreement with a psych diagnosis for ME/CFS as evidence of Stigma - I read, its simply patients disagreeing because its an error. ME/CFS know their own bodies, if fit and well and then sick after a virus, why believe its a mental health breakdown
#LongCovid: lets apply same error: Sars-Covid-19 may have kicked something off but "..whats keeping them sick may not be a virus in the first place...the virus may have started something off...all sorts of other factors may be responsible for why they are ill many years later".
As a researcher, if I can uncover any evidence to support my claim on "other factors" - eg some LongCovid patients watched more news channels than recovered patients, are more depressed, report being more stressed pre-Covid, I can say I have evidence its not the virus but other.
By starting with a theory or assumption/aka model, you wish to support, this bias spills over into methodological bias in studies, whereby confirmation bias accentuates the original error - this happened in #ME/CFS & is likely to happen in #LongCovid research if unchecked.

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More from @keithgeraghty

Jun 6
The Science Media Centre produced this Factsheet on 'the Controversy of ME/CFS' - claiming CBT-GET trials are of high quality in high impact journals, whereas post-hoc analysis of flaws and problems with the PACE trial are published in low impact journals sciencemediacentre.org/wp-content/upl…
this would include some of my analysis papers on the PACE trial's methods and data - as well as work by others. The SMC view the journals as low impact without any consideration of the accuracy and import of the analysis in Health Psych or Fatigue @david_f_marks @davidtuller1
As in the recent chapter by Ms Fox, the SMC factsheet claims the US @CDCgov removed its recommendation for CBT-GET as treatments for ME/CFS due to pressure from "activists" - such a claim is not evidenced, but simply written up as fact, yet it is unlikely the CDC work this way.
Read 7 tweets
Jun 4
I have not yet read Fion Fox's book 'Beyond the Hype..." and its chapter comparing people with question the science of CBT-GET in CFS/CFS to Nazi's so I hold judgement - but I DO often ask myself this, what is the Science Media Centre? Who pays for it, who does it represent?
As you can read in Fiona's own words, Science Medica Centre is a PR company, a private company, set up to present a spin on science stories - who gets to write the script at Science Media Centre? "Science doesnt have a PR company representing it?" - so who's spinning what and why
'We help journalists access the best scientists' ? umm, I dont know if I'm one of the best, but a few journalists have contacted me, and they were able to search my university email address or they contact the University directly, which is similar most all academics! So access?
Read 6 tweets
Apr 16
well done finding this historical evidence: as it happens I just used Dr Thomas in a paper I'm writing, he & another prominent psychiatrist dismissed the role of infections in ME causation in 1993 talk to UK Government officals. Here we hear his voice and his harmful ideas re ME
here is one line in a talk Dr Thomas gave that I quote in my paper: there are other misleading statements, this is just one and accounts for why you, ME patients, have suffered for years after 1993 when Thomas said this:
the other psychiatrist presented a similar statement to UK Disability Board-Chief Medical Advisor in 1993 - "benefits often make patients worse" and "exercise is good for these patients"- so, the antecedents of the PACE trial and CBT_GET promotion and benefit issues for many
Read 10 tweets
Apr 11
PACE lead author wants to teach the CBT model of CFS to LongCovid practitioners - based on nothing more than "the idea....psychological processes contribute to ongoing symptoms" this was the same idea for ME/CFS - which is now rejected as unscientific babcp.com/Events/Event-D…
@gezmedinger @doctorasadkhan our #LongCovid and #ME/CFS worlds are very much colliding now, with PACE authors taking on the training of LongCovid rehab workers using the same approach CBT-GET. Perhaps a large multi-million pound RCT trial called "GET-FIT" will follow soon.
If people want to read what "ideas" the PACE authors now wish to impose on LongCovid sufferers, I detail them in this paper, its ideas turned into a so-called model that has more scientific holes than the titanic ncbi.nlm.nih.gov/pmc/articles/P…
Read 5 tweets
Apr 6
The latest from the PACE lead author, continuing to promote GET for ME/CFS, shows us work is still needed to ensure the NICE guidelines are properly implemented and we need to educate health care professionals about ME and the role of pacing. Much more work to be done here still.
without rehasing the many problems we identified in the PACE trial covered in journals, I take note that there was very little "specialist" medical care as I know it in the trial, that named changed from standard medical care to specialist care to make it seem as if there was Image
PACE lead author suggests people have criticised PACE because it was a big trial and that CBT-GET works by taking away fear of exercise. "Fear of exercise" is the basis of his CBT-GET Model of ME/CFS which is totally unscientific and must be challenged - and also for Long-Covid. Image
Read 8 tweets
Feb 16
Imagine being a junior researcher and you write a paper commenting on some obvious problems you observe in a CBT RCT that cost almost £5million & this many authors write a conjoined response saying you are not correct? - time to hide? no.... coyneoftherealm.com/2017/07/31/wha…
One of my points back then was the PACE authors had run multiple smaller RCTs giving the same treatment since the early 1990s, Wessely, Sharpe, Chalder, White 20 years. So why mid PACE trial did they decide to "abandon" their published trial protocol & change their analysis plan
...the statistical advice in Walyn et al. came from their stats ie data, collection centre, who took in all data from RCT sites. That advice seems to be akin to, "we were too strict on how we defined recovery...we need to change things" - and change things mid-trial they did.
Read 9 tweets

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