It gets to me when public organizations frame flawed and convenient group-think as unimpeachable logic. The genuinely pragmatic, intellectual position on COVID right now is not being represented by the CDC guidelines or /1
-something like 2-4million people out of full-time work force due to long COVID (see the work of @kathrynsbach)
-something like 7.5% of Americans with long COVID
-infections barely controlled with new variants that more easily infect vaccinated & previously infected folks
/4
What we don't have:
-an overhaul of our spotty sick leave
-revamped air filtration in public spaces
-a clear-cut path to disability support for folks with long COVID
-planned accommodations for kids/workers w/ long COVID
-enough science on reinfections
/5
I mean, the list goes on. COVID is definitely here to stay: Yep. That much is true. The question is, then what?
Do we pretend it's the flu because midterms are coming and it's hard to do the work of facing the reality that this virus does some scary longterm stuff?
/6
Before "easing" guidelines, the CDC should (to take but one example) offer some clear answers to @EricTopol's good questions in this thread:
Having COVID as someone who spent a decade + sick with an infection and then infection-associated illness, I have a few totally impressionistic thoughts about my virus experience... (mini 🧵)
So you have some sense of my health history: I have POTS, EDS, suspected MCAS, small fiber neuropathy, autoimmune thyroiditis, and post-treatment Lyme disease syndrome/some kind of tick-borne illness. I was really sick from 2011-14, after which I got *much* better. /2
This is a tricky virus. I am highly used to self-monitoring and managing my health and am alert to most signs of trouble. Today, I thought I was doing well, & I took the stairs to pick up a grocery delivery to spare infecting anyone thru my mask. Elevators in Paris = tiny. /3
Let's be really clear about what is happening at this stage in the pandemic: We are giving up on public health and embracing the privatization of health in ways that serve the able and young & write off anyone vulnerable. 1/
I recommend listening to @gregggonsalves on @BrianLehrer today for his edifying reminder that the now normative view that each of us should assess "personal risk" is in fact a very radical version of "public health": wnyc.org/story/pandemic… 2/
Instead of having a rational discussion of layered strategies like masking, we are in a maddening cycle of suggesting that strategies to prevent COVID *means* harming kids or failing to get colonoscopies.
/3
The blanket assertions about #longCOVID in the recent @Nytimes newsletter quoted below are dangerously reductive. We are at a place in #longCOVID and pandemic discourse where a lot in the media minimize the reality of long COVID. Why is that? /1
It's partly because of most journalists' lack of experience with/understanding of the state of the science of infection-associated illnesses such as #MECFS and more. I just spent 10 years reporting on them and I still am overwhelmed. But... /2
I think it's also because those who haven't grappled with the real vulnerability of our bodies simply find it too scary to contend with the (seeming) randomness of #longCOVID. You can't rationalize a way to be safe from it. /3
2/ The causes of #longCOVID are manifold—and there is a lot we don't know. But what is clear is that we’re facing a major crisis: Informal estimates suggest that 10 to 30 percent of those infected with the novel coronavirus have long-term symptoms.
3/ Science has a “knowledge gap” about chronic conditions such ME/CFS, PTLDS/chronic Lyme, EDS, and more—and indeed has long actively marginalized patients with such conditions. See this tweet: