charlos Profile picture
Aug 27 4 tweets 3 min read
“Colin Bennett, 34, has already spent a remarkable $100,000 on untested therapies… the barrage of #LongCovid symptoms that turned the financial analyst & golfer into a de facto old man since he got the virus a year ago.”

“I didn’t care if it killed me.”
sfchronicle.com/bayarea/articl…
“But he only went rogue..after doctors at Stanford, the University of Southern California, three University of Californias and various ERs failed to alleviate his ailments”

“I never had any problems before COVID,” - @econcolin
“Anisha Sekar of San Francisco ran ultramarathons before getting COVID 2 years ago. Now 31, she needs a wheelchair to go through the airport.
The tech entrepreneur says there is ‘exactly one’ doctor who has earned her trust because she is open to trying novel but safe treatments”
Thank you @econcolin & @AnishaSekar for sharing your #LongCovid stories 🙏

Great article @NanetteAsimov — & for highlighting how what we are doing is in fact a very sane response to desperation with no verified options.

This will continue until we find a way to #TreatLongCovid

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More from @loscharlos

Aug 28
Not wearing a mask in a public place is a fascist act — whether it is intentional or not.

This is one of the best reads of the year so far — by @msteenhagen link.medium.com/8dZ7PIcajsb
"The fascistic core of health supremacism is the idea that those who are healthy are somehow ‘better’ people, and that society may and must protect their interests and flourishing (rather than the interest and flourishing of members of society at large)."

H/t @simmian42
“The fact that so many treat the minimal inconvenience of wearing a mask as infinitely more important than the protection it offers to others, when they know that some really require that protection, shows that they regard those who seek such protection against covid as inferior”
Read 12 tweets
Aug 27
“The U.S. needs people to take this vaccine because it has nothing else. But its residents are unlikely to take it, because they’re not doing anything else.”

Exactly 🔥 Where is the sense urgency to get boosted if there’s no urgency to stop infection?
theatlantic.com/health/archive…
If the goal is to preemptively quell a winter case surge, “a booster that will have maybe 30-40% uptake is not something we can expect to have a huge population-level impact,” Bhattacharya told me.
“All of that bodes poorly for the coming fall and winter.. Cases of #LongCovid will continue to appear; sick people will continue to miss work and school. And ‘God forbid we get another variant’ that’s even more severe”
Read 6 tweets
Aug 26
RT if you think people should be informed about #LongCovid risk so they can make a real "personal choice".
This is where I'll give my incredibly friendly reminder that the goal posts for #LongCovid prevalence only varies from very common (5%) to very, very common (50%).

Nothing suggests less than 1 in 20 (5%).

A "medically rare event" is 1 in 1000. The public has the right to know.
But dude, I'm vaccinated & completely healthy! 👇

"The best-protected person still likely has at least a 1-in-20 chance of #LongCovid if they get covid today." - Bob Wachter, Chair of @UCSF washingtonpost.com/outlook/2022/0…
Read 5 tweets
Aug 26
"The jobs lost to #LongCovid could make up about a third of the country’s current labor shortage."

I feel like this story has captured more headlines than any other LC story yet & the situation is only getting much worse. Great work @kathrynsbach.
cnbc.com/2022/08/26/bro…
"If 4 million #LongCovid patients are out of work, the lost earnings could be as high as $230 billion, the report says.

That’s nearly 1% of the country’s current-dollar gross domestic product (GDP) of $24.88 trillion."
Those high numbers might not even account for the 'full economic burden' of #LongCovid, the report says. That’s because they don’t account for lower productivity among the many patients who are working while sick, or the health care costs & lost productivity of their caretakers."
Read 9 tweets
Aug 24
🚨#MicroClots research in #LongCovid has now been replicated in UK. Similar findings also in Germany & Ireland:

"Caroline Dalton, a neuroscientist at Sheffield Hallam University, UK, has replicated the results.. In Long COVID #MicroClots seem to persist."
nature.com/articles/d4158…
"Dalton has also found that fatigue scores seem to correlate with #MicroClot counts..That, says Dalton, 'increases confidence that we are measuring something that is mechanistically linked to the condition'. #LongCovid
"Danny Jonigk, a pathologist at Hanover Medical School in Germany looked at tissue samples from people who died of COVID. They found #MicroClots & saw that the capillaries had split, forming new branches to try to keep oxygen-rich blood flowing." #LongCovid
Read 11 tweets
Aug 21
“While the list of troubling symptoms is long, the number of proven #LongCovid therapies is very short — zero.”

“With so many millions of people impaired, the need for accelerating clinical trials.. is beyond urgent.” - @EricTopol latimes.com/opinion/story/…
“A recent study that tracked symptoms before infections and compared participants to controls has given us one of the best snapshots to date. It indicated that 1 in 8 people who have had COVID experience prolonged symptoms over many months.” #LongCovid
“.. even if it were half as many and we assume two-thirds of adults have had COVID, that would equate to more than 10 million Americans who have endured persistent symptoms that interfere with their daily life activities, frequently impairing their ability to return to work.”
Read 10 tweets

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