Thread by @ahandvanish

I'm honored to be on @TIME’s 2022 #TIME100NEXT list, with a kind write-up by @timkaine.

Thousands of people are getting #LongCovid each day, many of which lead to ME/CFS, POTS, & other lifelong illnesses. We need clinical trials & treatments urgently!

time.com/collection/tim… 1/

This is a big responsibility & I will do my best to represent our communities well. So many patients with #LongCovid & ME/CFS brought light to the illness & continue to fight for better research, resources, & treatment. We all deserve this recognition.

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To everyone: please keep talking about #LongCovid. Please talk to your friends, family, neighbors, government officials. Please learn about and circulate our major calls to action (docs.house.gov/meetings/VC/VC…), and research requests (patientresearchcovid19.com/wp-content/upl…). We need allies!

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#LongCovid organizations to support:

@itsbodypolitic: tinyurl.com/5n6dh7wm

@patientled: patientledresearch.com/donate

@MEActNet: tinyurl.com/2h36bu3d

@MarkedByCovid: tinyurl.com/5e4sw2w7

@C19LH_Advocacy: tinyurl.com/35bwx8pk

@LongCOVIDNatl: tinyurl.com/LCJdonate 4/

To follow along with @patientled's work, sign up for our mailing list here:

patientledresearch.com/contact/

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Huge thanks to everyone at @patientled: @LisaAMcCorkell @GinaAssaf @herlifeinpixels @AthenaAkrami @YochaiReemMD @Robotistry @TheCrankyQueer @leticiasaurus @TheMegascope @yogafogie @BStelson & many others, & at BP: @AlisonSbrana @fi_lowenstein @ItsAngInLA @chiluvs1 @rcalwilson 6/

And thank you to the wider #LongCovid, ME/CFS (#pwME), and disability communities. This is collective work and I hope this results in more awareness of viral-onset conditions and support for patient-led initiatives.

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