An #MEAction Scotland volunteer has shared her thoughts on #MillionsMissing Scotland 2022 and the unseen price that people with ME pay for their attendance:
Millions Missing
Well that was great.
People with ME, partners, friends, dogs.
Wheelchairs, scooters, chairs and a bed
Millions Missing
Well that was great.
People with ME, partners, friends, dogs.
Wheelchairs, scooters, chairs and a bed
The bed for all our friends who can’t be here.
Some sent words, their voices for one moment as loud and clear
As any healthy person.
And MSPs. Wonderful, wonderful,
To see so many and hear their support.
They came, they spoke, they signed the pledge,
They saw and heard us
Some sent words, their voices for one moment as loud and clear
As any healthy person.
And MSPs. Wonderful, wonderful,
To see so many and hear their support.
They came, they spoke, they signed the pledge,
They saw and heard us
Now for the fallout.
Because that was all our energy.
There’s none left for cycling home
Or having a shower or cooking a meal
Or phoning parents or meeting friends.
We’ve all spent many hours in that bed.
The price for today is another sentence
Because that was all our energy.
There’s none left for cycling home
Or having a shower or cooking a meal
Or phoning parents or meeting friends.
We’ve all spent many hours in that bed.
The price for today is another sentence
In our feathered cage; comfortable but confined.
24 hours should do it for me.
For others it will be more.
And it will be days, or even weeks
Before we leave the house again.
People will say ‘You look so well’.
24 hours should do it for me.
For others it will be more.
And it will be days, or even weeks
Before we leave the house again.
People will say ‘You look so well’.
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