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#MEAction Scotland Profile picture
#MEAction Scotland
@meactionscot
MEAction Scotland is an affiliate of #MEAction, an international network of people working towards health equality for #MillionsMissing with ME.
Jun 14, 2024 • 5 tweets • 2 min read
Good news! @NHS_Education has published a Practice Based Small Group Learning (PBSGL) Module on #MyalgicEncephalomyelitis

It's a method of education where GPs meet regularly & work in small groups to learn about a subject📖
Open access preview here:
(1/5) cpdconnect.nhs.scot/media/2711/mya…
A red graphic with four healthcare professionals, two women and two men. Three are wearing lab coats and stethoscopes and one is wearing scrubs. They are holding a sign which says 'PBSGL Module on ME/CFS published.' The ME Action Scotland logo is in the top right corner. #MEAction Scotland has been discussing this module with @NHS_Education since 2018! It developed as a result of Emma Shorter's @ScotParl petition on our behalf.

The module takes 1-2 hours & consists of patient case studies, evidence to work through them & some commentary.
(2/5)
May 19, 2023 • 4 tweets • 4 min read
This week, @scotgovhealth published findings from an analysis of surveys issued to NHS Health Boards in Autumn 2022, to understand existing support for #pwME (or lack of, as we would argue) and implementation of the 2021 NICE guideline.

Thread 🧵 [1/4]
gov.scot/publications/m… Pleased to see the publication of the report, & the acknowledgement that the survey was a direct result of #MEAction Scotland's meeting with the then Cabinet Secretary for Health, @HumzaYousaf.

We'll be calling on @MathesonMichael & @jenni_minto to take this work forward. [2/4]
Feb 2, 2023 • 17 tweets • 13 min read
We are here @scotparl ready to see which MSPs stand up for #pwME in #Scotland in @SueJWebber's debate today 💪

Brilliant to be joined by #pwME, their families, and colleagues from @actionforme and @LCKScotland

Watch live on Scottish Parliament TV: scottishparliament.tv ME Action Scotland volunteer Karima outside the Scottish Par @ScotParl @SueJWebber @actionforme @LCKScotland Meant to say, starts at 12.45pm! Can you tell we're excited 😅 Will do our best to live tweet on this thread as we go.
Oct 2, 2022 • 4 tweets • 2 min read
An #MEAction Scotland volunteer has shared her thoughts on #MillionsMissing Scotland 2022 and the unseen price that people with ME pay for their attendance:
Millions Missing
Well that was great.
People with ME, partners, friends, dogs.
Wheelchairs, scooters, chairs and a bed The bed for all our friends who can’t be here.
Some sent words, their voices for one moment as loud and clear
As any healthy person.
And MSPs. Wonderful, wonderful,
To see so many and hear their support.
They came, they spoke, they signed the pledge,
They saw and heard us
Oct 1, 2022 • 4 tweets • 2 min read
The awful reality of the price #pwME face for protesting. @therealmecfs is documenting the post-exertional malaise/symptom exacerbation she’s experiencing post #MillionsMissing

We don’t encourage anyone to push themselves into a crash but Jo was determined to join. Rest well ❤️
Sep 30, 2022 • 20 tweets • 16 min read
For ease of reference in future (for you and for us!) - a thread of all the MSPs who supported #MillionsMissing Scotland and chatted to #pwME/signed the pledge/spoke to the crowd 🧵

Starting with @BrianWhittle - the first there! @ScotTories MSP for South Scotland. ME Action volunteer Helen stands with Brian Whittle MSP outs Jackie Baillie, @jackiebmsp, MSP for Dumbarton and @ScottishLabour Deputy Leader and Spokesperson for Health, Social Care and Equalities.