MEAction Scotland is an affiliate of #MEAction, an international network of people working towards health equality for #MillionsMissing with ME.
May 19, 2023 • 4 tweets • 4 min read
This week, @scotgovhealth published findings from an analysis of surveys issued to NHS Health Boards in Autumn 2022, to understand existing support for #pwME (or lack of, as we would argue) and implementation of the 2021 NICE guideline.
Thread 🧵 [1/4] gov.scot/publications/m…
Pleased to see the publication of the report, & the acknowledgement that the survey was a direct result of #MEAction Scotland's meeting with the then Cabinet Secretary for Health, @HumzaYousaf.
An #MEAction Scotland volunteer has shared her thoughts on #MillionsMissing Scotland 2022 and the unseen price that people with ME pay for their attendance:
Millions Missing
Well that was great.
People with ME, partners, friends, dogs.
Wheelchairs, scooters, chairs and a bed
The bed for all our friends who can’t be here.
Some sent words, their voices for one moment as loud and clear
As any healthy person.
And MSPs. Wonderful, wonderful,
To see so many and hear their support.
They came, they spoke, they signed the pledge,
They saw and heard us
Oct 1, 2022 • 4 tweets • 2 min read
The awful reality of the price #pwME face for protesting. @therealmecfs is documenting the post-exertional malaise/symptom exacerbation she’s experiencing post #MillionsMissing
We don’t encourage anyone to push themselves into a crash but Jo was determined to join. Rest well ❤️
For ease of reference in future (for you and for us!) - a thread of all the MSPs who supported #MillionsMissing Scotland and chatted to #pwME/signed the pledge/spoke to the crowd 🧵
Starting with @BrianWhittle - the first there! @ScotTories MSP for South Scotland.
Jackie Baillie, @jackiebmsp, MSP for Dumbarton and @ScottishLabour Deputy Leader and Spokesperson for Health, Social Care and Equalities.