1 @JNkengasong is a key global leader on public health, Special Representative for Global Health Diplomacy & prev. director of Africa CDC. He led Africa's COVID-19 response. He was awarded the @virchowprize and was generous with his time . This is what I learnt #forgotten500k
2/x He said it is important to raise awareness of COVID-19. Many are suffering & people are still being hospitalisation & not recovering from it. 🧐 Health advocacy is important 💪. You must speak truth 🔊, use expertise, work for patients to appropriately lead emergency plans.
3/x He said it is important to acknowledge that we stand on the shoulders of giants, but it is also important for the new generation of health scientists 🧪 to show the way forwards when there are new ideas that can help and where there is experience. 🙂. His career showed this.
4/x Why is this important? Well, @JNkengasong changed the world and he inspired us to do the same for our projects and programmes. He challenged us all at the @IAPartnership to do so and this was visionary. For me this is about safeguarding the #immunocompromised in the UK.
5/x. There are half a million immunocompromised people in the UK. Many are still shielding, still in isolation, still unable to work, see friends or hug loved ones. They are #forgotten500k, unheard and calling on us to notice
6/x Prophylactic antibody therapies like #evusheld give back an “immune” system to those who are immunocompromised. It is a way out of the pandemic for those who can't respond to vaccines. Studies from Israel/France/US show it is working well, even against omicron.
7/x 32 countries are delivering additional levels of protection this winter to protect immunocompromised patients, using new therapies, not available in the UK- prophylactic antibody therapies. For everyone else but the UK, this *STANDARD PRACTICE* #evusheld
8/x Thanks to patients, clinicians @AlexRichter3@ProfBMT + myself as champions, the UK clinical community has sprung into action. Patients, 125 clinicians from 17 medical specialities & 4 nations are calling for a decision, an end to indefinite delays and to listen to doctors
9/x They are asking for a Winter roll out or pilot this winter and time is running out before Christmas. Cases are rising, but the voices of the #immunocompromised are still not heart despite unwaiving and universal support from their clinicians.
10/x They are waiting for @RobertJenrick and @theresecoffey for new leadership with fresh ideas to protect the #forgotten500k. To allow them to have their first Christmas in 3 years. To see family. Tens of thousans of people are backing #forgotten500k campaign.#evusheld
11/x As usual, my thoughts are with those suffering mental health from the ongoing delays and indecision and slow processes. There is support from clinicians and also new direction from many global leads and international colleages who find the UK position simply untenable.🤔
12/x Thanks to @JNkengasong for being an inspiration to young leaders globally. He is a model of what we can achieve when we speak the truth, advocate for the vulnerable and ensure that science is acknowledged and utilised for public health good. 🙂💚🤗
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1/x 🧵 ICYMI, the largest UK health campaign has just kicked off today. For the #immunocompromised in the UK, young and old, those with cancer, @bloodcancer_uk, autoimmune disease, transplants and kidney disease. And it's making a huge splash. I've been asked to comment.
2/x What's the background? There are half a million immunocompromised people in the UK. Many are still shielding, still in isolation, still unable to work, see friends or hug loved ones. They are #forgotten500k, unheard and calling on us to notice.
3/x Health campaigns are rare . Rarely are patients so motivated to demand action from MPs like @RobertJenrick. They are a minority, facing a niche issue, which is easy to dismiss. It's even worse if you can't leave the house because you are still shielding. How are you heard?
1/x 🧵Worried to be thrown into a big Berlin protest #whs2022. I am here for #immunocompromised patients and learn about better covid prevention. Now there’s protester glued to the buildings, shouting 😡 at the 3500 conferences attendees about climate change. Police have arrived.
2/x This all is not good. Global collective approaches are essential. People must talk. Leaders must talk. Then there should be action. When people don’t feel there is transparency and have to protest, something has gone DEEPLY wrong.
3/x There must be DEEP trust and transparency in leaders. We must bring the public with us and explain the pros and cons. There should not be closed doors. These are key messages that the @IAPartnership are pushing and trained us to deliver. Protests=failure
1/x 🧵 I was thrilled to be talk to @Chikwe_I, WHO assistant Director-General of Health Emerrgency intelligence at @WorldHealthSmt. We talked about protecting #immunocompromised. As an global leader, he had insight about working at system interfaces for change. #incrediblesummit
2/x. He talked about how systems must learn & maintain learning. He talked about a lot of the new talent and expertise generated, particularly entrenching change. He talked about @PeterHorby & other oxford wins, like vaccination. I couldn't believe Oxford had such global reach.
3/x. He was also very gracious with me. I explained the #forgotten500k plan to protect UK immunocompromised patients. He notes that protecting the #immunocompromised and those with cancer who don't respond to #vaccination is a global issue. I told him about antibody therapies.
1/x 🧵Thanks @acmedsci for picking @DrSusannaMills & me to attend @IAPartnership young physician leaders meeting on behalf of UK. This is as part of a peer-support network to improve health in their countries and globally. Great to connect with eminent covid specialists globally
2/x What have I learnt so far? 1⃣ Leaders show inclusiveness, 2⃣ decision makers should be open enough to re-evaluate in terms of changing situations 3⃣ you must follow the science and avoid overconfidence. Why's this relevant to #immunocompromised patients in the UK?
3/x Well, similar to any other clinician talking to our international clinical colleagues, we find that other countries are prioritising #immunocompromised patients with new treatments, like antibodies #evusheld. This is standard global practice.🧐
2/x For those who you don't know. @TheCrick is one of our UK's leading research 👩🔬💪heavy weights with some of the best scientists in the country like @stcshepherd@TurajlicLab@DavidLVBauer. For them to be weighing into the national pandemic landscape is timely & important
3/x. Paper 1⃣ asked the question about cancer patients. They are very #immunocompromised, especially @bloodcancer_uk patients. @stcshepherd@TurajlicLab assessed ~200 cancer patients from their study and looked at immune response to omicron. A study and measure of "protection".
3/x What's my take on the points? There are half a million immunocompromised people in the UK. Many are still shielding, still in isolation, still unable to work, see friends or hug loved ones. They are #forgotten500k, unheard and calling on us to notice.