Fantastic #pedsGIchat discussion last week with @JonathanMoses77 & @ICNPatients. Here is a recap of some high points during discussion. Please fell free to read through specific tweets from the chat for further information.
1. For Providers, events like Take Steps are great opportunity to get to know patients outside of 🏥 @CrohnsColitisFn. Patients also appreciate providers getting to know what is important in day-to-day life to put in context of IBD treatment goals #SharedDecisionMaking
2. It is helpful for adolescent & young adult #IBD patients to also talk to 🧑⚕️ w/o parent present to help develop autonomy. Parents should discuss with kids who to discuss dx and how much to share. Validated tests such as PHQ-9 can help screen for anxiety and depression
3. Important for 👩⚕️ to use conversations to gauge where patients are regarding independence with care. Things like having patient schedule appointments/infusions, organizing meds or calling insurance with caregiver are helpful ways to foster independence
4.Good resources for #IBD for good information/guidance include: @ICNPatients, @ImproveCareNow, ibdpatient.org, gikids.org, crohnscolitisfoundation.org. Be wary about potential misinformation that may be present in certain online groups/social media
5. Overall important to manage patient as a whole. Mental health, body image, family and social life are all important. #IBD can be mentally hard, but important for patients to give themselves grace and compassion through process. Highly recommended talk! improvecarenow.org/ignite_i_don_t…
• • •
Missing some Tweet in this thread? You can try to
force a refresh
