Clinical pearls for #LongCovid 1. Find the clots. They are there. If not PE or DVT there are Microclots. 100% of all long Covid patients tested so far have them.
2. If you don’t find PE on CTPA, do a VQ or dual energy CT. You will find the missed clots.
4. Then treat said autonomic dysfunction. Don’t tell people it’s ok to have a pulse of 160 doing the dishes. Great info at pots.org
5. Assess for mast cell activation syndrome. Some will says it’s not real. It’s real. Check for dermatographism. Ask about alcohol intolerance, new allergies, new rashes, urticaria. Etc etc
6. You don’t need fancy tests. Just treat it and see response. More info at @MastCellAction
7. Don’t tell people exercise will cure it. It won’t. It didn’t cure #MECFS and it won’t cure long Covid.
74% of patients felt worse with exercise in this study mdpi.com/1660-4601/19/9…
8. Don’t tell people it is psychological. They have been infected with a level 3 biohazard with unknown repercussions.
9. Don’t tell them to think themselves better, to try harder. They are already trying.
10. Advise them on pacing, which is a way of using what energy is available without crashing.
Familiarise yourself with post-exertional malaise- you are you are going to be seeing a LOT of it over the next few years. See @LongCOVIDPhysio
11. Don’t dismiss chest pain. This shouldn’t even have to be said but unfortunately does.
19% of long Covid patients in the coverscan study had myocarditisAlmost 1 in 5. Treat it. It’s not anxiety. bmjopen.bmj.com/content/11/3/e…
12. Try not to catch Covid yourself - you have between 1 in 10 and 1 in 20 chance each infection.
Damage is likely to be cumulative. It affects all the organs as every organ has a blood supply.
13. don’t think because you felt ok after one infection that this will be the case after 5 infections. (We can’t get long term immunity to this virus no matter what anyone on Twitter says).
14. Don’t listen to people who say it’s a cold- it’s not. It’s really really not. Colds don’t cause organ dysfunction and blood clots.
15. Anyone who uses this emoji 💉 over and over has an agenda. We knew the damage Covid caused in January 2020, well before the 💉
16. Protect the children from all of the above. They will be the generation with early heart disease. #CovidIsNotOver #MedTwitter #COVIDIsAirborne #CleanAirClassrooms #dontlookup
@Trinityaudiobot
Actual link to autonomic dysfunction treatment is here *forgot to put Uk after #potspotsuk.org
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On the 2022 child hepatitis outbreak.
If there is even a hint that it is Covid related it should lead to immediate changes in what we are doing with Covid in kids.
Hepatitis is no joke. It is a child’s liver inflamed and can lead to multi organ failure.
These are children.
‘suggests that paediatric hepatitis of unknown cause is likely to have been related to postinfection inflammation. This may have involved complex causal pathways, involving SARS-CoV-2 infection&/or AAV-2 infection or reactivation in genetically susceptible hosts…
Further work is required to establish causality. ‘
This is the woman who said in August 2020 that ‘children were more likely to be hit by a bus than CATCH coronavirus’.
Not only did they catch it, but 16% get long Covid.
When asked when parents were warned their kids could in fact come to harm, she did not answer the question.
In her answer to the UK Covid inquiry she instead said that only a ‘small’ number of children come to harm and waffles about outcomes in the elderly.
Long Covid IS harm.
It’s devastating.
It can end a child’s school career entirely.
I’ve seen gifted teenagers leave school with NO exam results because of long Covid.
ME/CFS Patient: I’ve been fainting or nearly fainting for 10 years.
Me: has anyone stood you up and done pulse/BP readings.
Patient: no 🤷🏻♀️
➡️Lay patient down- pulse 65bpm BP 120/80- nice.
Stood up-9 mins in
Patient: ‘I feel faint& sick’
Pulse 140bpm BP 70/50
🤢🤢🤢🫀🫀🫀
In a hospital a BP of 70/50 would have alarm bells going and half the medical team running to the patient. ‼️ 🛎️
There are thousands upon thousands of patients living like this-for decades.
This is not deconditioning.
This was an ambulant patient who somehow ( god knows how) got a bus to see me.
No wonder they struggle.
POTS: postural orthostatic tachycardia syndrome.
Pulse increase of over 30bpm on 10 mins standing/tilt test
🔴 we need to get away from such rigid thinking.
🟢 home monitoring of pulse/BP/symptoms will give a lot of valuable information on the problem and treatment
I’ve seen POTS as described above.
But also people who have a stand test that doesn’t quite meet the 30bpm criteria but everytime they do anything ( eg walk to the toilet) they have a pulse of 130bpm.
Should we just leave them like that? Of course not.
There are people who have rapid heart rate even lying down. If it’s assessed as sinus rhythm should we just leave it? Of course not.
This is an extremely valid point.
I have been raising this for 2 years.
Your Dr calculates your 10 year cardiovascular risk using a calculator with age/blood pressure/BMI/cholesterol etc.
if over 10% a statin is offered.
HOWEVER Covid doubles cardiovascular risk for 3 years.
‘Children aren’t at any significant risk’ from Covid.
This is the dangerous messaging that has come through from government @wesstreeting @GwynneMP
Resulting in abuse of any doctors who tell the truth.
Children are at significant risk from long Covid.
Having seen many children with long Covid, lives in tatters ( if it happens before or mid A-level they have no exam results even if very intelligent). They are lost amidst a health service with little help. The worst are bedbound with tubes for feeding.
I hope parents are not listening to Randoms on the internet. However non randoms in government are not currently giving any better messaging.