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Dr Claire Taylor Profile picture
Dr Claire Taylor
@drclairetaylor
Doctor|Special interest in Long Covid,POTS,ME/CFS&MCAS| neuroscientist🧠Long Covid kids champion|WHN expert advisor|long Covid clinic🏴󠁧󠁢󠁳󠁣󠁴󠁿Views my own
Ross Grayson, MPH, CIH Profile picture Ekinnajay Profile picture Alisontomyradioooo Profile picture Blue through and through Profile picture BendyHEDS&Co 🐴🦓🥄👩🏻‍🦼😷#NEISVoid#CleanAir🌍🕊 Profile picture 42 subscribed
Jul 22 • 12 tweets • 2 min read
Fascinating B12 study
- it looked at a patient with neurological symptoms with normal blood test for b12
- analysis of spinal fluid showed non existent levels
- antibodies found that stopped B12 entering the central nervous system
- study extended to more patients Contd Some with the antibodies to CD320 receptor had B12 deficiency and some didn’t.
Jul 21 • 11 tweets • 3 min read
Study on children with long Covid.
PLATELETS found to be in the activated state.
🔴Haematologists this may interest you: long Covid is a vascular disease. 🩸

🔴Platelets are not only involved in stopping bleeding. They are an important part of the immune response.
Cont Platelet activation may both contribute to endothelial dysfunction or represent a systemic inflammatory condition.
Viral persistence studies have suggested this to be a potential cause.
Covid was found to infect megakaryocytes and platelets. 🦠
Jul 21 • 35 tweets • 7 min read
1/Important 🧵
How many people have been damaged by Covid?
We don’t know. Not a clue.
We know ‘ long Covid’ stats in UK up to 2022- 2 million

But we are MISSING something
Illnesses caused by Covid but not called ‘long Covid’
we have NO IDEA how many
🔴Read on-it may affect you 2/ ‘ long Covid’ definition

‘continuation or development of new symptoms 3 months after the initial SARS-CoV-2 infection, with these symptoms lasting for at least 2 months with no other explanation. ‘ Image
Jul 18 • 19 tweets • 6 min read
Myth busting:
- once you’ve had Covid you don’t get it again.❌
Clearly not true
- Most people who are going to get long Covid probably already have it❌
Anyone can get long Covid from any infection
Newborns.They haven’t had Covid.1600 babies are born every day in the UK That’s 1600 babies a day, 45000 a month, half a million a year.
All vulnerable to Covid.
So no, not everyone has had Covid. And it would be nice to try and prevent one of their first experiences in life being Covid.
Jun 30 • 18 tweets • 3 min read
Excellent article on dogma in medical research.

‘A senior faculty member stood up&said neuroinflammation has nothing to do with Alzheimer’s,” she recalled. “It was intimidating.”

Now amyloid treatments have failed, they are looking at neuroinflammation&anti-virals. Most scientists could not get past amyloid as the cause of Alzheimer’s, instead of the product of the cause.
Meanwhile, patients suffer and die with Alzheimer’s, including one of my own family members. It is an horrific disease.
Jun 30 • 20 tweets • 5 min read
June 2024.Summer. A time when we usually don’t get many viruses. Yet Covid is surging.
Covid being endemic was an untruth. Nothing more, nothing less.
How many Covid infections are the population going to endure?
What’s the long term consequences of many infections? All of the medical and scientific research suggests nothing good can come from repeated Covid infections.
But you don’t need science to tell you that- it’s common sense
A virus that keeps coming back again& again so often- have we lost all common sense not to do anything?
Jun 10 • 11 tweets • 2 min read
If someone is bedbound with #longcovid & hospitalised, withholding urine bottles will not make them walk to the toilet. They will wet the bed. Withholding feeding will not make them eat. They will starve.
Sometimes this job hurts my soul at the lack of human rights.#NHS If you are the consultant in charge don’t ask them why they ‘don’t want to get better’
If you are the nurse in charge don’t watch whilst your nurses torture the patient messing around with not feeding or toileting.

We NEED to talk about these things.
May 26 • 7 tweets • 2 min read
According to Case, Vallance said there could be ‘lasting impact to children’ from
Covid. There is.
The number with long Covid has doubled in the past year.
Risk increases with number of infections.
How many Covid infections has YOUR child had?
Demand mitigations. Please. Just because ‘everyone else’ seems happy for their kids to be recurrently infected with Covid, doesn’t mean they are right.
Do some reading into the long term effects of Covid. @LongCovidKids is a good place to start.
May 18 • 27 tweets • 6 min read
Patient to doctor
‘I can hear music playing in my head that isn’t there’
(Musical hallucinations caused by neurological damage)
Doctor ‘we don’t know much about it,go to a nightclub until 1am. Not 4am.1am. See if that helps.’
Patient with light&noise sensitivity from long Covid Telling a patient to go to a nightclub when they have a severe illness that affects their mobility and light and noise sensitivity could make their condition much worse and cause a permanent relapse.
May 18 • 25 tweets • 6 min read
Patient to cardiologist:
‘I’d like to discuss POTS’❤️‍🩹
Cardiologist
‘No,there is FAR TOO MUCH POTS around right now. DO NOT google it. There is no treatment anyway’❌
Patient🤨

Oh my word
There is a lot of POTS around due to COVID wrecking autonomic systems
There IS treatment✅ This is my absolute pet hate.
POTS has went from rare to common.
Due to Covid. 🦠
It is extremely disabling.
It makes people exercise intolerant.
It gives people cognitive symptoms due to reduced blood flow to the BRAIN🧠
This person has to work lying down
Why can’t they ask?
May 13 • 15 tweets • 4 min read
NHS staff with long Covid are now losing their jobs in droves.
Beware-on applying for industrial illness benefits, if asked if you filled your car with fuel, the application goes no further as you might have caught Covid from touching the fuel pump handle Even if you worked on a Covid ward&only went to work and back and used ‘pay at the pump’
This is how they are getting out of industrial illness benefits. Is there anyone trustworthy and honest left?
Tricking staff
With questions about filling their car up to come to Covid wards
Feb 15 • 17 tweets • 5 min read
Long covid clinics are full of previously healthy people. 🧐
Where are all the
-rheumatology patients on DMARD or biological medication?
-diabetics?
-cardiac patients?

Are their medications protective for long Covid? A study in Scotland looked at some medications at time of Covid infection and found injectable anti-coagulants to be the only one that was protective.
But many meds they could not analyse for various reasons
We urgently need to look at them all. Image
Feb 12 • 12 tweets • 2 min read
Long Covid is a disease that can be measured

Study
🔴113 long Covid patients,39 healthy controls
📢Result
long Covid patients had complement activation (component is first line of immune system), and increased vascular markers.
Long Covid is an inflammatory&vascular disease🩸 They used proteomics to analyse blood.

🔴LC patients exhibited increased complement activation during acute disease, which persisted at 6-month follow-up.

The complement system is part of the innate immune system&contributes to immunity by targeting pathogens&damaged cells
Feb 10 • 4 tweets • 1 min read
Do we actually have an end game for a virus that rots bloods vessels and trashes brain cells? 🧠
It will still kill us, just much more slowly
⏰ ⏰ ⏰
We still have time to change the trajectory- but I suspect there is a point at which one cannot undo all those infections..🦠 We could be storing up:
Dementia
Parkinson’s disease
MS
Cardiac failure
Strokes
Heart attacks
Metabolic issues
Diabetes
Fatty liver
Raised cholesterol
Effects on eyesight
Autoimmune diseases
Damaged immune systems that can’t fight normal infections

And more…
Feb 2 • 10 tweets • 2 min read
Throwing children with ME/CFS into water to ‘make’ them swim since they were adamant it was psychological. They did not swim. They nearly downed.
This is the murky history of #MECFS
And still there are those who insist ME/CFS is psychological.
HOW is this medicine? We may have stopped throwing children into swimming pools but not much else has changed. Those with #LongCovid are now going through the same thing with being told it is psychological and to exercise their way out of it.
How long will this continue?
Jan 21 • 14 tweets • 4 min read
‘Anyone that was going to have long Covid has it by now’.
Nope. There is not a ‘type’ of person who gets #LongCovid that is wishful thinking.
There may be some susceptibilities but anyone can get long Covid.
I saw people throughout 2023 who had got
It after multiple infections Image The @StatCan_eng study showed long Covid increased by infection.
By infection 3, 38% had long Covid symptoms
That does not look like a graph showing the susceptible got it on
Infection 1 and everyone else was A-ok. 🤷🏻‍♀️ Image
Jan 16 • 18 tweets • 5 min read
There has been many amazing #LongCovid studies recently I’ve just been mulling them over.
🏆 long covid patients get muscle NECROSIS with exercise.
N-protein in the muscles but ALSO controls.

We are going to find viral persistence everywhere, aren’t we?
No one wants to say it SARS-CO-V-2 representation. On the right is the nucleocapsid protein this is just N protein surrounded by RNA. On left whole virus with N protein in middle and membrane protein and spike protein on outside ‘Exercise-induced amyloid-containing deposit accumulation in skeletal muscle’

What???
Why on earth are we telling these people to exercise?
So they can destroy their muscle tissue and deposit more amyloid and feel terrible?
Jan 14 • 7 tweets • 2 min read
Multiple potential causes of #POTS including autoimmunity, mitochondrial cytopathy, diabetes, B6 toxicity, sjogrens.
We are not doing a good job in the UK of investigating for these,the US is miles ahead.
Read for some root causes of #POTS Most people I see with (usually undiagnosed) POTS have got it after #covid
Covid seems to have a predilection for the autonomic nerves.
However, it was prevalent in #MECFS long before Covid.
Always check for POTs if symptomatic of post viral symptoms or ME.
Jan 13 • 16 tweets • 3 min read
If cardiology refuse to see a patient&they then get a private diagnosis of #POTS should they have to pay £100 a month for medications forever because it was diagnosed privately?(when they had no choice.)
Help me out here This is different to the adhd situation since referrals are rejected by the NHS. So no NHS avenue.
Patients better on meds and back at work in tears because they can’t afford the medication.
Jan 11 • 9 tweets • 2 min read
For those who say mast cell degranulation is not real I give you BASCULE syndrome.
19yo woman with POTS& gastroparesis
Developed itchy lesions on her legs associated with standing.

⚫️central urticaria-like lesions are secondary to mast cell degranulation induced by HYPOXIA
Picture of lower legs. They are purple with patches of white and urticaria
Image BASCULE
(Bier anemic spots, cyanosis, and urticaria-like eruption) syndrome. prescribed 20 mg of loratadine once daily and she reported an improvement in pruritis.
Dec 31, 2023 • 11 tweets • 2 min read
1/This year 2024 we up
The pressure.
No MBEs for disassembling infection control.
No more should we have to sacrifice health for work&school.
The masses are about to find out about reinfection.
And they are going to start asking questions
Some of us have the answers. 2/ and always have done
Reinfection is bad- 2022


We have been DESERTED and our families health is in dangernature.com/articles/s4159…