Long covid clinics are full of previously healthy people. 🧐
Where are all the
-rheumatology patients on DMARD or biological medication?
-diabetics?
-cardiac patients?

Are their medications protective for long Covid? A study in Scotland looked at some medications at time of Covid infection and found injectable anti-coagulants to be the only one that was protective.
But many meds they could not analyse for various reasons
We urgently need to look at them all.

Long Covid is a disease that can be measured

Study
🔴113 long Covid patients,39 healthy controls
📢Result
long Covid patients had complement activation (component is first line of immune system), and increased vascular markers.
Long Covid is an inflammatory&vascular disease🩸 They used proteomics to analyse blood.

🔴LC patients exhibited increased complement activation during acute disease, which persisted at 6-month follow-up.

The complement system is part of the innate immune system&contributes to immunity by targeting pathogens&damaged cells

Do we actually have an end game for a virus that rots bloods vessels and trashes brain cells? 🧠
It will still kill us, just much more slowly
⏰ ⏰ ⏰
We still have time to change the trajectory- but I suspect there is a point at which one cannot undo all those infections..🦠 We could be storing up:
Dementia
Parkinson’s disease
MS
Cardiac failure
Strokes
Heart attacks
Metabolic issues
Diabetes
Fatty liver
Raised cholesterol
Effects on eyesight
Autoimmune diseases
Damaged immune systems that can’t fight normal infections

And more…

Throwing children with ME/CFS into water to ‘make’ them swim since they were adamant it was psychological. They did not swim. They nearly downed.
This is the murky history of #MECFS
And still there are those who insist ME/CFS is psychological.
HOW is this medicine?

https://twitter.com/rfh1955/status/1451299292128362505

We may have stopped throwing children into swimming pools but not much else has changed. Those with #LongCovid are now going through the same thing with being told it is psychological and to exercise their way out of it.
How long will this continue?

‘Anyone that was going to have long Covid has it by now’.
Nope. There is not a ‘type’ of person who gets #LongCovid that is wishful thinking.
There may be some susceptibilities but anyone can get long Covid.
I saw people throughout 2023 who had got
It after multiple infections The @StatCan_eng study showed long Covid increased by infection.
By infection 3, 38% had long Covid symptoms
That does not look like a graph showing the susceptible got it on
Infection 1 and everyone else was A-ok. 🤷🏻‍♀️

There has been many amazing #LongCovid studies recently I’ve just been mulling them over.
🏆 long covid patients get muscle NECROSIS with exercise.
N-protein in the muscles but ALSO controls.

We are going to find viral persistence everywhere, aren’t we?
No one wants to say it ‘Exercise-induced amyloid-containing deposit accumulation in skeletal muscle’

What???
Why on earth are we telling these people to exercise?
So they can destroy their muscle tissue and deposit more amyloid and feel terrible?

Multiple potential causes of #POTS including autoimmunity, mitochondrial cytopathy, diabetes, B6 toxicity, sjogrens.
We are not doing a good job in the UK of investigating for these,the US is miles ahead.
Read for some root causes of #POTS

https://twitter.com/dysautonomia/status/1743006922523951524

Most people I see with (usually undiagnosed) POTS have got it after #covid
Covid seems to have a predilection for the autonomic nerves.
However, it was prevalent in #MECFS long before Covid.
Always check for POTs if symptomatic of post viral symptoms or ME.

If cardiology refuse to see a patient&they then get a private diagnosis of #POTS should they have to pay £100 a month for medications forever because it was diagnosed privately?(when they had no choice.)
Help me out here This is different to the adhd situation since referrals are rejected by the NHS. So no NHS avenue.
Patients better on meds and back at work in tears because they can’t afford the medication.

For those who say mast cell degranulation is not real I give you BASCULE syndrome.
19yo woman with POTS& gastroparesis
Developed itchy lesions on her legs associated with standing.

⚫️central urticaria-like lesions are secondary to mast cell degranulation induced by HYPOXIA

BASCULE
(Bier anemic spots, cyanosis, and urticaria-like eruption) syndrome. prescribed 20 mg of loratadine once daily and she reported an improvement in pruritis.

1/This year 2024 we up
The pressure.
No MBEs for disassembling infection control.
No more should we have to sacrifice health for work&school.
The masses are about to find out about reinfection.
And they are going to start asking questions
Some of us have the answers. 2/ and always have done
Reinfection is bad- 2022


We have been DESERTED and our families health is in dangernature.com/articles/s4159…

I hope those reinventing the wheel have looked at POSTEXERTIONAL MALAISE &why this makes these ‘activities’ potentially dangerous for those with #MECFS & #LongCovid
A link to PEM- you may be next longcovid.physio/post-exertiona…

https://twitter.com/longcovidsos/status/1740855930726797717

Even @nhsinform has written about it .nhsinform.scot/illnesses-and-…

Jn.1 appears to be hitting different. 10% on ECMO in ICU is huge.
Increased transmissibility + increased immune evasiveness + increased severity is always worse case scenario we don’t want with acute Covid. Do we honestly think we can positively think it into staying ‘mild’?

https://twitter.com/rolandbakeriii/status/1738651180434395156

It’s not clear if more severe or more people just have it all at once. But keep spreading it like this and eventually, if not now, we will have a super variant. I really wouldn’t care what people did if it didn’t impact everyone else with their chains of transmission.

Worst case scenario #longcovid for those who call it fatigue
-suddenly feeling extremely unwell 24/7
- needing to be in a darkened room all day with no light/sound
-having to give up your job in your 30s to move in with your parents

-your parents having to put you on a commode Trigger warning 🔴 next tweet

Whilst watching Twitter argue over masking and ventilation, &media and government minimise Covid as a seasonal winter virus I want to highlight one thing. Ignore at your peril.

Long Covid patients are in hell, all day, every day, for years. 🔥

Don’t chance it. Risk is high. Merry Christmas.

How on earth can we fix/improve the lives of patients with long Covid while they keep being reinfected?
This has been a week already of listening to story after story of reinfection.
I can only hang my head in sadness as there is absolutely nothing I or anyone else can do. I can post here, or warn people about Covid and long Covid, but with 1 in 30 infected again, god knows what wave of the year we are on, immune evasive blah blah blah, reality is someone somewhere is culpable for this.

Can we have it all?

Christmas parties, indoors, unventilated?with sky high Covid levels?
I don’t think so.

US talking about RATIONING care.
This is what public health should be focusing on right now-reducing Covid levels to make sure there is a functioning health service

https://twitter.com/lauramiers/status/1735769904102387893

Reminder- new subvariant JN.1- immune evasive.

https://twitter.com/raffyflynnart/status/1726205976838377862

How much Covid is about?
Netherlands wastewater is the HIGHEST it has EVER been since 2020. So- a lot.
It looks double March 2022. When he had 4 million people at least infected in the Uk. So- 8 million? Who knows. But by this data- the most Ever. Over? Come off it! Data here

I predict by Boxing Day we will be in a pickle given 27% increase in hospital admissions in UK in a week.
JN.1? Something has made it shoot up vertically in the Netherlands.coronadashboard.government.nl/landelijk/rioo…

1/Covid is a cold?
This 47 year old went into cardiac arrest 2 days after feeling generally unwell.
Covid destroyed his heart. Not the virus invading it,no.

It made this patients OWN platelets clump together&block micro vessels.
Platelets hyper activated& destroyed his heart Covid was found in the pericardial effusion ( fluid around the heart)

Having an inquiry into how to learn for the NEXT pandemic, whilst still in the throes of this pandemic, actually blows my mind. My logical mind.
I’ve always been logical. Where is the logic here? Keep infecting everyone and hold an inquiry about the mitigations public health should be advocating but aren’t?

Finally we have some #longcovid data from Canada. @StatCan_eng
Showed that 1 in 9 have had long Covid.
Risk as we thought increases with number of infections. By infection #3
🔴38% people have ongoing symptoms 😕
@UKHSA and @ONS you can stop counting but others haven’t. 😉 That’s 3.5 million Canadians

80 per cent of those people with long-term symptoms have them for six months or more
🔴more than half of those who ever had long-term symptoms still had them as of June 2023.

Eg 50% with long Covid have never recovered

The new explanation for multiple Covid reinfections seems to be the ‘100 day cough’ aka whooping cough (pertussis)
It is possible to be infected with COVID 3x in 100 days.
Well played 👏 @UKHSA (not forgetting the same organisation blocked the recent Covid data being released) This is the headlines and yes it may well have soared 250% compared to last year but…
Covid is way more prevalent.
1 in 6 are sick with flu like symptoms.