Doctor|Special interest in Long Covid,POTS,ME/CFS&MCAS| neuroscientist🧠Long Covid kids champion|WHN expert advisor|long Covid clinic🏴Views my own
Sep 7 • 6 tweets • 2 min read
Not good reading about Ba 2.86 (pirola) and also EG 5.1 ( Eris)
All vaccine Sera tested showed NO neutralising activity.
Monoclonal antibodies didn’t work at all.
Literally the tools we have been told to rely on for living with Covid, in the lab, do not appear to work.
1/Why have assaults on Tesco staff risen by a third since 2022?
Staff now to wear bodycams
Could it be related to the let it rip of a brand new coronavirus that can affect the brain?
This is weird that it’s not being looked at as we enter another wave.
2figures reflect findings by trade association the British Retail Consortium published in March. It found attacks on staff, including racial&sexual abuse, physical assault, &threats with weapons, increased to over 850 incidents/day -almost double the *pre-COVID* levels of 450/day
Aug 20 • 28 tweets • 8 min read
1/ Confused about #covid ?
We have 2 new strains at once that are different from those seen previously.
One in particular- BA 2.86- the people who sequence think is not omicron but a brand new variant- Pi.
It seems Sars-CoV-2 has made a genetic leap…
2/ the other one- EG5.1- ERIS- accounts for 1 in 7 infections. It’s a ‘variant of interest’ according to @WHO
Months after declaring the global emergency over
Jul 7 • 6 tweets • 1 min read
If you feel reassured right now that you don’t see people wearing masks, think of it like this:
Those of us who know the risks of indoor Covid transmission have just stopped going to anything indoors.
We are too tired of it all 3.5 years in.
It’s falsely reassuring.
For anyone who uses logic to make decisions, this feels like stepping straight into the book 1984.
Eventually in time this period will be looked back on as utterly bizarre. The ability to convince the world to carry on as if there is not a rapidly mutating SARS virus. Wow.
Jun 25 • 11 tweets • 2 min read
The Scottish neurological symptoms study- CORRECTION regarding FND.
The claim that it affected 16% of people& kept claiming this until @davidtuller1 investigated. 👏
They still say it’s common.
In other words 94.6% of those attending neurology don’t have FND.
Why does someone like @davidtuller1 care?
Well, it’s important what you diagnose.
FND is the new name for conversion disorder.
The treatment of which is different from say, small fibre neuropathy or sarcoidosis.
I have many patients who have lived with undiagnosed POTS for years.
This is as disabling as heart failure.
Once diagnosed&treated I have patients whose lives have been drastically changed. #MedTwitter
The test is so simple.
The same as a lying/standing BP but for 10 minutes and not 3.
Full instructions here batemanhornecenter.org/wp-content/upl…
This can be done at home and best results I think are in usual environment (patients should always check this test is suitable before doing)
May 29 • 6 tweets • 4 min read
I can’t tweet much just now. I’m aware I haven’t tweeted on ME awareness day&much in general.
I have a very sick child.
But wanted to highlight
- risk of long Covid after 1 infection is 10%
-after reinfection is 20% (1 in 5)
Protect your brain
To read more of spike protein in the brain see here
1 in 45 Britons now have atrial fibrillation (that can lead to a stroke.) 50% rise
Professor Sir Nilesh Samani, medical director BHF, said: "These figures show a quite astonishing rise in the number of people diagnosed with atrial fibrillation’
A reminder we are in a pandemic that has a virus with a predilection for the heart ❤️
If you have any symptoms in the article please see a dr
May 5 • 7 tweets • 2 min read
If you ever wanted to read a mixed message this is it.
End of global health emergency but someone dying every 3 minutes& 10% of infections lead to long Covid.
We shouldn’t forget those lost-yet we will keep on losing people- deaths which could be preventable.
How can you pay homage to those lost, yet end a global health emergency before we have a sterilising vaccine?
Until we can prevent transmission the death toll and illness toll will continue to grow.
May 3 • 5 tweets • 2 min read
Another reminder that Covid is not over, it is year round not seasonal, 10% of infections lead to long Covid according to WHO, 30% of infections in hospital are ACQUIRED there, and it seems
The nhs has given up.
We should still be testing, still be isolating, still be segregating Covid from non Covid in hospitals. We are making the perfect environment for new variants that we may regret. I cannot stress how wrong I think these current policies are.
May 1 • 26 tweets • 11 min read
If you do one thing today, listen to cardiologist Dr Rae Duncan on #COVID19#LongCovid &what Covid could be doing to our children.
It is heartfelt and genuine from someone who has seen the devastating effects of long Covid.
She details that prior to the pandemic the average age of referrals to her cardiology clinic was aged 55-80yrs.
Now it is 16-40yrs
Now at least 50% are long Covid with cardiovascular symptoms.
Apr 25 • 5 tweets • 1 min read
Getting Covid is not a personal failing
Getting long Covid is not a personal failing
Being high risk for Covid is not a personal failing
People have about as much control over this as their eye colour.
So stop treating all of the above like it’s their fault
We are now in the next stage of this circus, which is to treat those who get Covid, long Covid, are high risk for Covid or who want to avoid Covid like it is a CHARACTER FLAW.
It may be inconvenient for those who want to forget, but many can’t. Their lives depend on it.
Apr 2 • 12 tweets • 3 min read
How mild can the mildest of mild omicron Covid be?
So mild it killed 600 people in the Uk last week ( and just about every week in the past year) and disables 1/10 who get it with long Covid.
But it’s ‘mild’
It causes inflammation in blood vessels&the brain but it’s ‘mild’.
The meaning of mild.
‘Not violent, severe, or extreme’
600 people dying a week is not extreme?
Mar 30 • 12 tweets • 2 min read
1/ The people I see are so incredibly sick. Please don’t listen to mainstream media, your pals or someone random on here.
There is a drive to pretend that Covid is not on the rise again and causing mass disablement- mainly of young people.
2/ the only way to avoid #LongCovid is to avoid Covid.
You think it won’t happen to you but have a 1 in 10 chance is you are infected. Not great odds.
Mar 25 • 10 tweets • 3 min read
Does any country have a plan for worst case scenario SARS-CoV-2?
By that I mean a recombinant variant as transmissible as omicron and as nasty as delta ( or worse).
Perhaps one that can evade immunity& be worse in children with robust immune systems (=cytokine storms)?
Why is no one talking about this?
We would likely not have time to adjust vaccines.
Its now so transmissible it could be around the world in a week and doubling rapidly.
We seem so willing to risk this gamble.
Current state of affairs in UK. Look at all these ‘subvariants’
Mar 19 • 8 tweets • 2 min read
Excellent explanation on why the long Covid prevalence estimates are affected by the fact people have individual symptoms as a baseline.If someone already has fatigue then develops LC they won’t count& studies like this will be inaccurate. Don’t believe everything you read.
@dgurdasani1 also points out that those with chronic illness or social deprivation will be less likely to get help. I definitely mostly see a cohort of previously well people. So where are the rest? The baseline of symptoms in a population matters.
Mar 18 • 14 tweets • 3 min read
1 in 5 pupils in England were persistently absent last year. This is a huge figure! theguardian.com/education/2023…
‘The figures from the Department for Education (DfE) showed the AFTERMATH of the pandemic continued to significantly affect state school attendance into the summer of 2022’
Mar 18 • 24 tweets • 5 min read
Why do people talk about the pandemic as if it’s over? If there is one thing that irritates me most it’s this.
This is from the Scottish Covid inquiry:
‘Coming out of the pandemic there are pressures across the system’
Coming out? Baseline one million infections at any time.
Baseline one million infections with peaks of 4-5 million every few months. Waves continuing all year including summer. Where has the notion come from that we are remotely coming out of this pandemic? Because we want it to?
Mar 14 • 10 tweets • 2 min read
This line alone should make us cautious:
‘The neuro-invasion of SARS-CoV-2 has been shown to result in brain vascular inflammation, but the long-term impact of COVID-19 neurological sequalae is still unknown’
Yes it’s not an RCT, or a controlled study in any way.
Yes, it doesn’t ask where/how/when/by whom
However, if the result is that high- we have a huge huge problem with how disabled people are treated in society.
Mar 8 • 13 tweets • 4 min read
Carer’s allowance is £69.70 a week.
Caring for someone is a full time job.
It should be paid at least national minimum wage.
What sort of country are we?
Carers are not sat doing nothing. 2/ In the august 2022 benefits report it was noted:
The total number of people claiming Carer's Allowance
at August 2022 was 1.4 million ➡️4.2% higher than at August 2021.