Thread by @biocultural13

@JolentaG @ADANational @ACLU @Disabilitygov @DRNY_org @CDRNYS @ADANational @ACLU @CDRNYS @CID_NY @DEJCollab @DRNY_org @Disabilitygov that’s what I’m wondering!

Segregation is supposed to be over. Even disabled people were legally desegregated by Ruth Bader Ginsburg et al writing majority opinion in 1999. Right?!

@JolentaG @ADANational @ACLU @Disabilitygov @DRNY_org @CDRNYS @CID_NY @DEJCollab How is it remotely legal, then, for @CDCgov to deliberately make all public spaces a grave threat to our lives/health?

To force us to choose between “living life”/existing in public or literally staying alive?

Purging us from society through death or indefinite isolation

@JolentaG @ADANational @ACLU @Disabilitygov @DRNY_org @CDRNYS @CID_NY @DEJCollab @CDCgov IS certainly segregation!

It’s also a basic infringement of the ADA’s accessibility mandate in public spaces. It’s also reminiscent of the Ugly Laws @Imani_Barbarin taught me about!

Is it because they assume disabled folks are “not doing so well anyway?” 🧐

@JolentaG @ADANational @ACLU @Disabilitygov @DRNY_org @CDRNYS @CID_NY @DEJCollab @CDCgov @Imani_Barbarin @CDCDirector probably has no idea how to enjoy/share orgasms—OR laughs—the way my disabled ass does.

By that metric, she’s “not doing too well” herself, then! But I’m not a eugenicist, so I wouldn’t call for culling her out of humanity just bc she’s a tight-ass.

@JolentaG @ADANational @ACLU @Disabilitygov @DRNY_org @CDRNYS @CID_NY @DEJCollab @CDCgov @Imani_Barbarin @CDCDirector (Psst! How’s your post-COVID recovery going @CDCDirector ?! I heard you took off quite a few more days than the 5 days you allotted the rest of us paeans, didn’t you? I hope you’ve recovered fully by now. No more leaching off those tax dollars my disabled 🍑 paid to the tune of

@JolentaG @ADANational @ACLU @Disabilitygov @DRNY_org @CDRNYS @CID_NY @DEJCollab @CDCgov @Imani_Barbarin @CDCDirector ten$ of thousand$ yearly while laboring ~2 decades with “mild” #MyalgicEncephalomyelitis, which I acquired from mono at age 18!

But if you don’t recover, and instead join the #MillionsMissing as one of the 10s of millions of Americans with #LongCOVID / #ME/CFS?

Not to worry!

@JolentaG @ADANational @ACLU @Disabilitygov @DRNY_org @CDRNYS @CID_NY @DEJCollab @CDCgov @Imani_Barbarin @CDCDirector You’ll have PLENtY of company!
😅🥹Even if you’re still in the closet about your not-quite-full recovery—or you’ve yet to even have your first crash?

We’ll welcome you with open arms!! —or virtual high-fives from our beds where so many of us have to spend all/most of our time!

@JolentaG @ADANational @ACLU @Disabilitygov @DRNY_org @CDRNYS @CID_NY @DEJCollab @CDCgov @Imani_Barbarin @CDCDirector You could even join our advocacy campaigns and become the STAR of our movement to finally get your crusty pals at the @NIH to invest more than $.06–yep, 6 that’s fucking cents!—per patient to the annual #ME/CFS research budget!

Helping unlock the chokehold on funding

@JolentaG @ADANational @ACLU @Disabilitygov @DRNY_org @CDRNYS @CID_NY @DEJCollab @CDCgov @Imani_Barbarin @CDCDirector @NIH for research into what’s literally/metabolically smothering the bodies and lives and minds of #MillionsMissing like myself?!

Would be decades overdue!

This is by all objective accounts/surveys/studies, after all, the most COMMON + the most DEBILITATING disease in the US!

@JolentaG @ADANational @ACLU @Disabilitygov @DRNY_org @CDRNYS @CID_NY @DEJCollab @CDCgov @Imani_Barbarin @CDCDirector @NIH So #PwME should obviously receive *at least* the same @NIH funding allocation per capita as all those other diseases with a fraction of the “national burden”—right? Aren’t you a logical woman?

At any rate: your involvement would be epic!

@JolentaG @ADANational @ACLU @Disabilitygov @DRNY_org @CDRNYS @CID_NY @DEJCollab @CDCgov @Imani_Barbarin @CDCDirector @NIH It could make your career—your life, even—truly worthwhile. (I mean, who am I to judge what makes YOUR life worth living?! 😅 Only a eugenicist high AF on bureaucratic power would do such a thing!)

By sharing in our experience of disability, you’d arguably have MoRE power

@JolentaG @ADANational @ACLU @Disabilitygov @DRNY_org @CDRNYS @CID_NY @DEJCollab @CDCgov @Imani_Barbarin @CDCDirector @NIH to change history—or get on the RIGHT side of it, finally—than you have right now as a cog in the oligarchic machine.

But first—if this COVID infection, or the next, decides it’s not done with you?!

@JolentaG @ADANational @ACLU @Disabilitygov @DRNY_org @CDRNYS @CID_NY @DEJCollab @CDCgov @Imani_Barbarin @CDCDirector @NIH You’d have to decide that *your life has value* !!

EVEN IF if you can no longer work full time, with your glial cells and 🧠 functioning held hostage to some brutal immunologic inflammation you’ve failed to prioritize with any societal care or substantive investment…

@JolentaG @ADANational @ACLU @Disabilitygov @DRNY_org @CDRNYS @CID_NY @DEJCollab @CDCgov @Imani_Barbarin @CDCDirector @NIH You’d have to decide your life still has value EVEN IF … 😨😱

—it leaves you with some new ***comorbidities***…

like so many of us “recovering” from COVID or other infections who find ourselves “not doing too well.”

@JolentaG @ADANational @ACLU @Disabilitygov @DRNY_org @CDRNYS @CID_NY @DEJCollab @CDCgov @Imani_Barbarin @CDCDirector @NIH When/if that happens, those of us in the disability community who manage to survive your policies @CDCDirector, will be here to show you the way!

Hopefully I’ll be one of them! 👋

Signed, with all due disrespect,

✨Your favorite POTSy cripple, who her comorbid cripple life ✨

@JolentaG @ADANational @ACLU @Disabilitygov @DRNY_org @CDRNYS @CID_NY @DEJCollab @CDCgov @Imani_Barbarin @CDCDirector @NIH @threadreaderapp Unroll please! ✨

@JolentaG @ADANational @ACLU @Disabilitygov @DRNY_org @CDRNYS @CID_NY @DEJCollab @CDCgov @Imani_Barbarin @CDCDirector @NIH …who LOVES her comorbid life!!
(Pardon my 🧠 🌫 induced omission; like most #PwME, I still have no access to the saline infusions my cardiologist rxd to help get more blood to my heart and brain and convince my autonomic nervous system to stop bloodchoking the shit out of me!)