@H2OhTwist @Rainbow_Bodies @LoveInYourTummy @PaperJamLuna @sophiacbess @DrEReinhold @bennessb @BendyBrain @throughfibrofog @FibroBloggers @Be_Kinderr Yes. I. Will probably have worked a year in order to find/begin/see results from PT with training in hyper-mobility.

I’m on the edge of hEDS. My sister has fully realized #hypermobility.. however has never found it causes any dysfunction. ImageImageImageImage
@H2OhTwist @Rainbow_Bodies @LoveInYourTummy @PaperJamLuna @sophiacbess @DrEReinhold @bennessb @BendyBrain @throughfibrofog @FibroBloggers @Be_Kinderr However by adulthood (22) I needed to have major jaw surgery, resetting it then bolting things down.

Over the past few years I’ve done hard work revising the consequences of that through “minor” oral surgeries and intense soft tissue work.. regaining the lost natural mobility.
@H2OhTwist @Rainbow_Bodies @LoveInYourTummy @PaperJamLuna @sophiacbess @DrEReinhold @bennessb @BendyBrain @throughfibrofog @FibroBloggers @Be_Kinderr I’m looking at some of the dance videos I’m doing on TikTok and seeing I don’t know how to control this excessive freedom (my sister says this was the only downside.. in cheerleading as in dance here body rotated past the desired lines).

I’m trying and failing to control.
@H2OhTwist @Rainbow_Bodies @LoveInYourTummy @PaperJamLuna @sophiacbess @DrEReinhold @bennessb @BendyBrain @throughfibrofog @FibroBloggers @Be_Kinderr Here I can see that before doing a sequence requiring some power and support of the spine I have to prep by *literally sucking in my lips to stabilize cervical joint*.

Consulting PT (lifelong EDS) said I didn’t have cervical instability and perhaps dance training protected me.
@H2OhTwist @Rainbow_Bodies @LoveInYourTummy @PaperJamLuna @sophiacbess @DrEReinhold @bennessb @BendyBrain @throughfibrofog @FibroBloggers @Be_Kinderr But that didn’t take into account ongoing surgical and soft tissue remodeling.

I think it *will* protect me; Pro-tip: train in dance for twenty years and get your wife to train and practice professionally in Alexander Technique for a dozen.
@H2OhTwist @Rainbow_Bodies @LoveInYourTummy @PaperJamLuna @sophiacbess @DrEReinhold @bennessb @BendyBrain @throughfibrofog @FibroBloggers @Be_Kinderr But I do have to be careful. Upon unlocking some cervical mobility I overdid some arm movements and probably bruised a nerve, still causing pain months later.

Oof.. thanks for the warning. I replied a lot because it’s so a hard to find someone who cares 😞😊.

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More from @jeffreytran

Dec 6
Added entry about sodium oxybate to treat #fibromyalgia to Wikipedia. Rejection by @FDACBER was based on potential abuse by others (like as GHB) rather than effectiveness of treatment.

There remain few, if any, effective treatments for fibromyalgia. 1/

en.m.wikipedia.org/wiki/Sodium_ox…
managed to get the main reference. Hard to do on phone. If anyone able to help FDA rejection at webmd.com/fibromyalgia/n… .. any number of places regarding paucity of effective treatments for fibromyalgia.

If anyone with spoons able to help add these, appreciated. 2/
My psychiatrist was quite put out when he read the data from the trials. It has as good or better evidence as any approved treatment.

Sodium oxybate is used to treat excessive daytime sleepiness, with prescribing and distribution tightly controlled. 3/
Read 5 tweets
Jun 13
.@ImmunizeUnder5s

A friend warned me **the week before Christmas** that some indications from South Africa suggested young children might be at greater risk of hospitalization from the omicron variant.

It is now June 12th.

🧵

1/
I have posted some version of this data from the @CDCgov probably a hundred times.

Here I chose to emphasize how much higher 0-4 is than 5-17, and how close it is to adults 18-49

The idea that these children are at less risk is history.

2/
In it’s briefing document for approval of the Pfizer 0-4 vaccine @US_FDA makes an almost identical point.

The data is hardly a secret, but the @US_FDA damns itself for it’s delays in the approval process.

I’ll quote it in it’s entirety.

fda.gov/media/159195/d…

3/
Read 10 tweets
Jun 12
I’ve bragged about this before, but last night our four year old told me he was going to be a scientist, study water (?) and all types of diseases and invent a shot like Jonas Salk.

The anti-vaxxers aren’t getting this one..
Hi @StartsWithABang !

Salk seems so acclaimed that it seems like the omission minimizing the prize rather than the other way around.

Kiddo will be the first person in the family to pass molecular biology.. ⬆️.
(@PJLibrary sent us a book about the polio vaccine. Recommended.)

pjlibrary.org/books/polio-pi…
Read 4 tweets
Mar 7
I was going to write that it would be nice if at lease *some* of Covid twitter also pivot the the boggles-the-mind humanitarian crisis in Afghanistan. But all first page Google news links for “crisis Afghanistan” are about (somehow?) Ukraine. Image
‘good’ news!!! “Humanitarian agencies may have distributed enough aid in Afghanistan to avert famine and large-scale starvation, but the country's economic collapse is "approaching a point of irreversibility," the U.N. envoy to Kabul said on Wednesday.”reuters.com/world/asia-pac…
Maybe invasions aren’t great for the people that live there, the majority of whom just want to take care of their families and such.
Read 4 tweets
Mar 6
@ImmunizeUnder5s @ImmunizeUnder5s it’s not something to advocate for but this is why I chose to pass my four year old off as five. I believe his chances of avoiding infection this long while in pr-school are slim and our family situation needs him in pre-school. The least terrible option.
@ImmunizeUnder5s “Can any of those doctors or advisory boards look me in the eye and say, ‘Your son is better off getting COVID without the vaccine than with some protection?’” Emily w/ 4-year-old w/ brain malformations,at risk of experiencing a seizure if he gets sick.

propublica.org/article/whats-…
@ImmunizeUnder5s “There's no biological reason why a four-year-old and a five-year-old are going to behave really differently” Dr Rick Malley, professor of pediatrics @harvardmed infectious disease @BostonChildrens @rickmalley @WBUR amp.wbur.org/news/2022/02/1…
Read 21 tweets
Mar 4
.@ProPublica a little over a year before @CarolineYLChen’s article here on the lack of <5 vaccines she wrote on b.1.1.7. A memorable line was “I interviewed 10 scientists for this story and was surprised by the vehemence of some of their language. 1/
“Are you sure it could be that bad?” I asked, over and over. propublica.org/article/why-op… . I have copious notes, this piece used a tone far more consistent with the scope of the threat than found in, for example, @nytimes. Many followed an anodyne ‘vaccines vs variants’ 2/
taking points with peak alarmism being @CDCDirector ‘s fleeting ‘impending doom’. Below cumulative deaths since that article was published. As many deaths in front of us as behind us. And more to come. It wasn’t b.1.1.7 (now alpha) that got us but I think we can definitively 3/
Read 14 tweets

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