Thread by @jeffreytran

@H2OhTwist @Rainbow_Bodies @LoveInYourTummy @PaperJamLuna @sophiacbess @DrEReinhold @bennessb @BendyBrain @throughfibrofog @FibroBloggers @Be_Kinderr Yes. I. Will probably have worked a year in order to find/begin/see results from PT with training in hyper-mobility.

I’m on the edge of hEDS. My sister has fully realized #hypermobility.. however has never found it causes any dysfunction.

@H2OhTwist @Rainbow_Bodies @LoveInYourTummy @PaperJamLuna @sophiacbess @DrEReinhold @bennessb @BendyBrain @throughfibrofog @FibroBloggers @Be_Kinderr However by adulthood (22) I needed to have major jaw surgery, resetting it then bolting things down.

Over the past few years I’ve done hard work revising the consequences of that through “minor” oral surgeries and intense soft tissue work.. regaining the lost natural mobility.

@H2OhTwist @Rainbow_Bodies @LoveInYourTummy @PaperJamLuna @sophiacbess @DrEReinhold @bennessb @BendyBrain @throughfibrofog @FibroBloggers @Be_Kinderr I’m looking at some of the dance videos I’m doing on TikTok and seeing I don’t know how to control this excessive freedom (my sister says this was the only downside.. in cheerleading as in dance here body rotated past the desired lines).

I’m trying and failing to control.

@H2OhTwist @Rainbow_Bodies @LoveInYourTummy @PaperJamLuna @sophiacbess @DrEReinhold @bennessb @BendyBrain @throughfibrofog @FibroBloggers @Be_Kinderr Here I can see that before doing a sequence requiring some power and support of the spine I have to prep by *literally sucking in my lips to stabilize cervical joint*.

Consulting PT (lifelong EDS) said I didn’t have cervical instability and perhaps dance training protected me.

@H2OhTwist @Rainbow_Bodies @LoveInYourTummy @PaperJamLuna @sophiacbess @DrEReinhold @bennessb @BendyBrain @throughfibrofog @FibroBloggers @Be_Kinderr But that didn’t take into account ongoing surgical and soft tissue remodeling.

I think it *will* protect me; Pro-tip: train in dance for twenty years and get your wife to train and practice professionally in Alexander Technique for a dozen.

@H2OhTwist @Rainbow_Bodies @LoveInYourTummy @PaperJamLuna @sophiacbess @DrEReinhold @bennessb @BendyBrain @throughfibrofog @FibroBloggers @Be_Kinderr But I do have to be careful. Upon unlocking some cervical mobility I overdid some arm movements and probably bruised a nerve, still causing pain months later.

Oof.. thanks for the warning. I replied a lot because it’s so a hard to find someone who cares 😞😊.

@H2OhTwist @Rainbow_Bodies @LoveInYourTummy @PaperJamLuna @sophiacbess @DrEReinhold @bennessb @BendyBrain @throughfibrofog @FibroBloggers @Be_Kinderr Thank you for being that person. You are such an asset to the community.