@H2OhTwist @Rainbow_Bodies @LoveInYourTummy @PaperJamLuna @sophiacbess @DrEReinhold @bennessb @BendyBrain @throughfibrofog @FibroBloggers @Be_Kinderr Yes. I. Will probably have worked a year in order to find/begin/see results from PT with training in hyper-mobility.

I’m on the edge of hEDS. My sister has fully realized #hypermobility.. however has never found it causes any dysfunction. @H2OhTwist @Rainbow_Bodies @LoveInYourTummy @PaperJamLuna @sophiacbess @DrEReinhold @bennessb @BendyBrain @throughfibrofog @FibroBloggers @Be_Kinderr However by adulthood (22) I needed to have major jaw surgery, resetting it then bolting things down.

Over the past few years I’ve done hard work revising the consequences of that through “minor” oral surgeries and intense soft tissue work.. regaining the lost natural mobility.

Added entry about sodium oxybate to treat #fibromyalgia to Wikipedia. Rejection by @FDACBER was based on potential abuse by others (like as GHB) rather than effectiveness of treatment.

There remain few, if any, effective treatments for fibromyalgia. 1/

en.m.wikipedia.org/wiki/Sodium_ox… managed to get the main reference. Hard to do on phone. If anyone able to help FDA rejection at webmd.com/fibromyalgia/n… .. any number of places regarding paucity of effective treatments for fibromyalgia.

If anyone with spoons able to help add these, appreciated. 2/

.@ImmunizeUnder5s

A friend warned me **the week before Christmas** that some indications from South Africa suggested young children might be at greater risk of hospitalization from the omicron variant.

It is now June 12th.

🧵

1/ I have posted some version of this data from the @CDCgov probably a hundred times.

Here I chose to emphasize how much higher 0-4 is than 5-17, and how close it is to adults 18-49

The idea that these children are at less risk is history.

2/

I’ve bragged about this before, but last night our four year old told me he was going to be a scientist, study water (?) and all types of diseases and invent a shot like Jonas Salk.

The anti-vaxxers aren’t getting this one.. Hi @StartsWithABang !

Salk seems so acclaimed that it seems like the omission minimizing the prize rather than the other way around.

Kiddo will be the first person in the family to pass molecular biology.. ⬆️.

I was going to write that it would be nice if at lease *some* of Covid twitter also pivot the the boggles-the-mind humanitarian crisis in Afghanistan. But all first page Google news links for “crisis Afghanistan” are about (somehow?) Ukraine. ‘good’ news!!! “Humanitarian agencies may have distributed enough aid in Afghanistan to avert famine and large-scale starvation, but the country's economic collapse is "approaching a point of irreversibility," the U.N. envoy to Kabul said on Wednesday.”reuters.com/world/asia-pac…

@ImmunizeUnder5s @ImmunizeUnder5s it’s not something to advocate for but this is why I chose to pass my four year old off as five. I believe his chances of avoiding infection this long while in pr-school are slim and our family situation needs him in pre-school. The least terrible option. @ImmunizeUnder5s “Can any of those doctors or advisory boards look me in the eye and say, ‘Your son is better off getting COVID without the vaccine than with some protection?’” Emily w/ 4-year-old w/ brain malformations,at risk of experiencing a seizure if he gets sick.

propublica.org/article/whats-…

.@ProPublica a little over a year before @CarolineYLChen’s article here on the lack of <5 vaccines she wrote on b.1.1.7. A memorable line was “I interviewed 10 scientists for this story and was surprised by the vehemence of some of their language. 1/

https://twitter.com/propublica/status/1499596387490713600

“Are you sure it could be that bad?” I asked, over and over. propublica.org/article/why-op… . I have copious notes, this piece used a tone far more consistent with the scope of the threat than found in, for example, @nytimes. Many followed an anodyne ‘vaccines vs variants’ 2/

We have been building homes in rural Haiti over the last year and have completed 8 of 15. In the recent earth quake, these homes survived. I’m just starting a gofundme so we can begin the next 7. I committed myself to share it by EOD. #tweet100 gofund.me/fe3a9846 2/ Check out the link! It’s the first time I’ve ever run such a drive so if anyone has experience or feedback I’d love to hear it. The project origins: At the beginning of the pandemic lockdowns in spring 2020 our family first had to adjust to the shock to our own lives..

.@co2detective 24 hours of co2 with the cooperation of my son’s preschool, which we appreciate very much. The chart is bounded by outside air.. picking up and dropping off the sensor. The levels aren’t great but there is some good info here. 1/ We can see how the system clears CO2 overnight.. though don’t know if it was running full out. Can anything be inferred about the overall transfer rate here I wonder. 2/

The majority of children under the age of twelve may be infected by the delta variant before a vaccine is available to them. I just donated 1000 kf94 masks to our local mutual aid. If you have or know a child in school consider doing the same. behealthyusa.net/collections/sm… #tweet100 Apologies for the lack of chill. I hope that by doing the #tweet100 challenge that I might diversify my engagement a little bit, but when push comes to shove I had to start here: this is the most important thing I know. In modeling funded by the CDC.. medrxiv.org/content/10.110…

0/ *brief* summary and implications of imperial.ac.uk/media/imperial… , a preprint from imperial college in December on evolution of b117 during the second English lockdown of November of 2020. 1/ The key finding was they looked at 42 regions for the 4 weeks of lockdown in Nov.. so 168 samples, and tracked b117 and non-b117 cases. In 34 both increased, in 36 both decreased. In 97 non-b117 increased and b117 increased. In only ONE did b117 decrease and non-b117 increase.