Thread by @GroverDheera

@MondayNightIBD 1. Welcome back to #MondayNightIBD with our #Back2Basics team! ⭐️

Let’s prepare for the HOLIDAY season!! 🎉✈️

#TravelingWithIBD #TravelingWithOstomy #IBDHolidays with @GroverDheera @MarcelYibirin #MakeitSimple
w help from #IBDAdvocates

@MondayNightIBD @MarcelYibirin @Empoweringpts9 @aboutIBD @ownyourcrohns @Youcantmakethi4 @Spencerkelley7 @RomyChamoun @ibdtweets @JosephHabibi_MD @dunleavy_katie @yaransarkis 2. ✈️Why is it important to talk about this
🗳️In a survey of #IBD pts in 2018
⚠️47% ✈️abroad w/o health insurance
⚠️63% didnt’ know to avoid live virus vaccine
⚠️92% didnt know high altitude can➡️flare
⚠️Most unaware of resources like “Can’t wait card” & IBDPassport.com

@MondayNightIBD @MarcelYibirin @Empoweringpts9 @aboutIBD @ownyourcrohns @Youcantmakethi4 @Spencerkelley7 @RomyChamoun @ibdtweets @JosephHabibi_MD @dunleavy_katie @yaransarkis @BassiMehak @snehadave98 @Clin_Med @IBDPassport @ibdesis @IBD_FloMD @ibdgijami @mlatorremd @MadhuraB_ @nataliesparacio 3. ✈️Why is it important to talk about this?
🧑‍🍳Change in diet & alcohol 🍸consumption & sleep 😴habits, missing meds can ➡️ GI symptoms or a flare 🔥
🥳Holidays can trigger or⬆️ anxiety & depression☹️
🔑Prepping ahead of time and advice from the medical team can go a long way!

@MondayNightIBD @MarcelYibirin @Empoweringpts9 @aboutIBD @ownyourcrohns @Youcantmakethi4 @Spencerkelley7 @RomyChamoun @ibdtweets @JosephHabibi_MD @dunleavy_katie @yaransarkis @BassiMehak @snehadave98 @Clin_Med @IBDPassport @ibdesis @IBD_FloMD @ibdgijami @mlatorremd @MadhuraB_ @nataliesparacio 4. Plan Ahead🗓️
▶️Have a list of👨‍⚕️ at your destination @CrohnsColitisFn @IBDPassport
▶️Buy travel insurance
▶️Review what vaccines you need/avoid 💉
▶️Script of antibiotic for travelers diarrhea
🪪 Get your CANT WAIT card: 888-MY-GUT-PAIN (888-694-8872)

crohnscolitisfoundation.org/find-a-medical…

@MondayNightIBD @MarcelYibirin @Empoweringpts9 @aboutIBD @ownyourcrohns @Youcantmakethi4 @Spencerkelley7 @RomyChamoun @ibdtweets @JosephHabibi_MD @dunleavy_katie @yaransarkis @BassiMehak @snehadave98 @Clin_Med @IBDPassport @ibdesis @IBD_FloMD @ibdgijami @mlatorremd @MadhuraB_ @nataliesparacio @CrohnsColitisFn 5.🥳Holidays changes that can lead to a flare🔥
💊💉Forgetting/skipping meds
🦠Infectious colitis (avoid raw meat/seafood, street vendor food, tap water.. sp. abord)
✈️Flights & High altitude🏔️>2,000m → flare within 4 weeks of travel
@ibddoctor #JCC

@MondayNightIBD @MarcelYibirin @Empoweringpts9 @aboutIBD @ownyourcrohns @Youcantmakethi4 @Spencerkelley7 @RomyChamoun @ibdtweets @JosephHabibi_MD @dunleavy_katie @yaransarkis @BassiMehak @snehadave98 @Clin_Med @IBDPassport @ibdesis @IBD_FloMD @ibdgijami @mlatorremd @MadhuraB_ @nataliesparacio @CrohnsColitisFn @ibddoctor @MuzaffarAkbar @HalehVaziri @DrZuriMurrell @Badr_AlBawardy @JillGaidosMD @JPAchkarMD @drsophiadar @BrunoCapucin 6. Pack well 🛄

✔️Ostomy supplies + 💊
✔️Hand sanitizers 🧴
✔️Plastic bags for soiled clothes
✔️Take extra clothing and underwears
✔️Keep meds and supplies in carry on 🧳
✔️Fulfill final med refill of 2022 if on calendar year

@MondayNightIBD @MarcelYibirin @Empoweringpts9 @aboutIBD @ownyourcrohns @Youcantmakethi4 @Spencerkelley7 @RomyChamoun @ibdtweets @JosephHabibi_MD @dunleavy_katie @yaransarkis @BassiMehak @snehadave98 @Clin_Med @IBDPassport @ibdesis @IBD_FloMD @ibdgijami @mlatorremd @MadhuraB_ @nataliesparacio @CrohnsColitisFn @ibddoctor @MuzaffarAkbar @HalehVaziri @DrZuriMurrell @Badr_AlBawardy @JillGaidosMD @JPAchkarMD @drsophiadar @BrunoCapucin 7a. Meds and Ostomy supplies

Meds
✴️📦 more than enough for the trip
✴️Carry then in the original container 🫙
✴️Bring portable cooler for meds requiring refrigeration
✴️Request typed and signed prescriptions in case of emergency + custom official interrogation ✍️

@MondayNightIBD @MarcelYibirin @Empoweringpts9 @aboutIBD @ownyourcrohns @Youcantmakethi4 @Spencerkelley7 @RomyChamoun @ibdtweets @JosephHabibi_MD @dunleavy_katie @yaransarkis @BassiMehak @snehadave98 @Clin_Med @IBDPassport @ibdesis @IBD_FloMD @ibdgijami @mlatorremd @MadhuraB_ @nataliesparacio @CrohnsColitisFn @ibddoctor @MuzaffarAkbar @HalehVaziri @DrZuriMurrell @Badr_AlBawardy @JillGaidosMD @JPAchkarMD @drsophiadar @BrunoCapucin 7b. ✈️SQ meds that need be refrigerated🧊; If need be can be stored at room temp
🧊#Adalimumab max of 77ºF/25°C, up to 14 days.
🧊Individual #Ustekinumab prefilled syringes max of 86ºF/30°C for max single period of up to 30 days in the original carton to protect from light

@MondayNightIBD @MarcelYibirin @Empoweringpts9 @aboutIBD @ownyourcrohns @Youcantmakethi4 @Spencerkelley7 @RomyChamoun @ibdtweets @JosephHabibi_MD @dunleavy_katie @yaransarkis @BassiMehak @snehadave98 @Clin_Med @IBDPassport @ibdesis @IBD_FloMD @ibdgijami @mlatorremd @MadhuraB_ @nataliesparacio @CrohnsColitisFn @ibddoctor @MuzaffarAkbar @HalehVaziri @DrZuriMurrell @Badr_AlBawardy @JillGaidosMD @JPAchkarMD @drsophiadar @BrunoCapucin 7c. Ostomy supplies

⭐️Calculate the no. of appliance changes
⭐️Keep extra supplies - special wipes, barrier strips, belts, skin protectants
⭐️🤙your supplier if you ran out of supplies

Find more tips to optimize #IBDHolidays with @ibdtweets #CrohnsColitis4Dummies