Daniel Freeman Profile picture
Jan 8, 2023 22 tweets 3 min read Read on X
There are a lot of people on Twitter who are vocal about not believing in #LongCovid

It got me thinking about what other “invisible illnesses” exist out there so here’s a thread 🧵
1 - Allergies (especially food allergies). “Are you really allergic or do you just not like carrots/nuts etc”
2 - Arthritis (particularly rheumatoid). “Do you really have arthritis or are you just lazy”
3 - Chronic Fatigue Syndrome (CFS). “It must be so nice to just stay in bed all day”
4 - Depression. “The world is a tough place; you just need to toughen up”
5 - Migraines. “Don’t be so dramatic - it’s just a headache”
6 - POTS. “You just don’t like standing up or walking around”
7 - Fibromyalgia. “Those are a lot of ‘symptoms’, sounds psychological to me”
8 - Irritable Bowel Syndrome. “Maybe if you are better, you wouldn’t have these problems”
9 - Anxiety. “You just worry too much and have an overactive imagination”
10 - Chronic Pain. “Ugh, take some ibuprofen and stop whinging”
INTERLUDE - I’m still working on this thread and will come back to it later. Once I’ve finished it, I’ll turn comments on. Thank you 🙏
11 - Endometriosis. “Why do women complain so much; it’s just bloating not pain”
12 - Lyme Disease. “I’ve only ever seen people get that on TV; it’s a made-up illness”
13 - Repetitive Stress Injuries. “You are clearly weak; go to the gym and lift some weights”
14 - Asthma. “Any excuse not to exercise I guess”
15 - Lupus. “Oh but that’s not really that big a deal eh”
Ok. So that’s 15 Invisible Illnesses. Many more exist. I’ve put 1 example of a gaslighting comment for each illness. Just to show how people who do not understand the illness will try to talk it down.
Now we have #LongCovid. I’m just one of many who have it.

As a health worker myself, I never THOUGHT I would become a patient.

As a human being, I never IMAGINED that I would get an illness that many people do not believe is genuine.
If you have read this thread - thank you 🙏. I’m happy for respectful debate & differences of opinion but I’m not going to engage in vax vs anti-vax OR any debate that LC is not real. Many of us are living it. If you are choosing to not believe us, I just hope you don’t get it.
End of thread 🧵. Comments now open. #LongCovid #LongCovidIsReal #NotRecovered #LongCovidNZ 🇳🇿.

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More from @GayKiwiDan

Feb 22, 2023
22 February 2011

At 12:51pm local, a 6.3m magnitude earthquake hit my home town. It was centred 6.7km SE of the CBD, at a depth of 5km.

Peak ground acceleration exceeded 1.8g (1.8x the acceleration of gravity). It was like being on a trampoline. /1
The initial tremor only lasted 10 seconds but the vibrations continued for much longer. 185 people died in this event (or as a consequence of) and around 2,000 were injured.

80% of the water and sewerage system was severely damaged. /2
More than 361 aftershocks occurred in the 1st week following the event.

Of 3,000 buildings inspected in the CBD in the 10 days following 22/02, 45% has been given RED or YELLOW stickers to restrict access, due to safety. /3
Read 11 tweets
Feb 21, 2023
It’s 7am on Wednesday 22 February. Today marks 12 years since a devastating earthquake in my city took the lives of 185 people and changed our landscape forever. Lest we forget.

At 12:51pm I will be taking some time of quiet reflection.
Image
Image
Read 11 tweets
Feb 21, 2023
I lost a friendship yesterday. Quite suddenly and unexpectedly. I may have already tweeted about this? My brain is not working today.

But yeah, I am sad over this loss. Even though we had differing opinions on some things, I considered him and his wife to be very good mates /1
Hopeful that maybe if I just send out good vibes to the universe that we may get a chance at some stage to clear up our communication issue that lead to this. I suggested we take the conversation offline. Hoping one day he will take me up on that. /2 END.
Not sure my tweets made sense? Happy to explain if not. Also I’m not here for sympathy or to through my friend under the bus. He’s a good guy even if our connection has been lost.
Read 4 tweets
Feb 19, 2023
Mon 20 Feb 2023

@drayeshaverrall @nzlabour @minhealthnz @msdgovtnz

Please release the official statistics and count of the number of people in NZ affected by #LongCovid

I will tweet this every business day from now until you respond.

Thank you 🙏
Clearly this tweet has had the desired effect. For now, I will wait for the 20 working days to pass.

If I have not had a satisfactory reply by COB Monday 20 March, I will take this further. Image
I posted a screenshot of this fo my FB account. An acquaintance questioned my timing given Cyclone Gabrielle. No - I’m not heartless. But, given that I’ve been waiting since last year for the Govt to step up, I ran out of patience. /1.
Read 4 tweets
Jan 20, 2023
Yesterday I foolishly fell down the rabbit hole of reading the reactions to Jacinda Ardern’s resignation. BIG MISTAKE that I’m going to try and not repeat.

If anyone should be angry at the current Govt, it should be people like me - a frontline healthcare worker who… /1
…did as I was requested (trusted the science blindly, had my 3 x Pfizer jabs, wore a mask religiously, continued working through the lockdowns, debates/politics) AND then ended up getting Covid-19 and now #LongCovid. I am unable to work, have sold my home to try and… /2
…survive. I’ve felt locked inside a body and brain for the last 7 months that “no longer operates” the way it used to. At all. I have spent countless hours seeing Drs, Physios, Massage Therapists, Counsellors etc and spent countless hours ON HOLD waiting to get through to… /3
Read 15 tweets
Jan 17, 2023
I’ve spent years of my life helping (or at least trying to help) people in my country, NZ 🇳🇿, as a frontline health worker.

Like many in the health sector, I put others 1st. Working continuously in 2020-2022. No lockdowns for us!

In June of 2022, I got Covid-19…/1
…and while I cannot be sure who I got it from (like it matters), it was likely a patient or colleague who gave me the gift that just keeps on giving.

Now I’m in month 7 of #LongCovid & my life has changed in ways I could never have imagined. /2
Twitter has been a great way to find & connect with other #Longhaulers around the world. For that I will be forever grateful. But, even with my thick skin, I can see I am wasting my time on here. I’m sick of the trolls, the doubters, non-believers and gaslighters. /3
Read 12 tweets

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