skipping over the hassle that was trying to fill the prescription (which involved Herculean assistance from my mom and the pharmacist)
I am *definitely* having a lot of hypoglycemic episodes
Like I didn't expect it to be this bad
[medical BS, medical diet]
I'm currently awake because the dang hypoglycemia alarm went off again
I kinda feel like that time I ended up babysitting a sick, teething baby who screamed the entire time
Exhausted, trying all the tricks, sobbing "what do you want from me??"
[medical BS, medical diet]
I finally got my blood sugar out of the "consider going to the emergency room" zone, but only after I went through all my usual snacks and finally resorted to just licking a mix of sugar and salt off my palm
[medical BS, medical diet]
This is my fourth "hey this Hypoglycemia could turn into a serious medical emergency if you can't get these numbers up" episode in the 12 hours I've been wearing the continuous glucose monitor
cool cool cool
[medical gaslighting]
I've only been saying, "hey I think I'm having serious Hypoglycemic episodes" for the past 20 months or so
[medical gaslighting, medical trauma]
But after I found out I might need to do a three day inpatient test in the hospital
During the pandemic
And also it's the same hospital where my three day inpatient EEG was Made of Trauma
I was second guessing myself
[medical trauma]
Plus my endocrinologist referred me to neurology, so I've been doing all the neurology tests
Which have frequently just reminded me of how terrible that previous round of inpatient testing was
[medical BS]
I won't know if this is because of an insulinoma or something else without a lot more tests
But I am hoping I have a chance to actually get some of those tests done
[medical BS, medical diet]
Woo! My blood sugar has officially reached "it's safe to sleep" levels again
So I'm going to attempt to sleep again
• • •
Missing some Tweet in this thread? You can try to
force a refresh
Since they started, my post-viral cognitive issues (and honestly, some of the movement ones) have really felt similar to every time I've had Autistic burnout
Is that a thing? Like, can a viral illness cause Autistic burnout?
In addition to just all the Inflammation and everything, this particular round of illness just... completely wrecked literally everything about my routine, including making many of my stims and safe foods...things that made me physically ill
Alternatively, maybe Autistic burnout is also caused by neuroinflammation? So that's why parts of this post viral giant MCAS havoc flare feels so similar to Autistic burnout?
I explained some of the things I've been doing that have been working
My understanding of current research around positional headaches and EDS/MCAS/POTS
And possibilities indicated by extremely hot off the press medical research
My GP was like, "well we're officially outside the bounds of things I'm familiar with, so I don't know enough to say whether you're onto something....but I also don't immediately disagree with anything you've mentioned"