Discover and read the best of Twitter Threads about #AskingAutistics

Most recents (24)

Just before the psychologist told me whether or not the multi-disciplinary team had concluded I was #autistic, she asked me what I thought about getting an #autism diagnosis.
#AllAutistics
#ActuallyAutistic
1/
While I was being assessed I had done a huge amount of #research on #autism, I’d also joined an online forum and had conversations with many autistic people, and I’d reviewed the whole of my life from an autistic perspective.
2/
Being autistic was a much better explanation for exceptional aspects of my life than anything else I’d ever found. Not just difficulties, challenges and disasters but abilities, achievements and triumphs.
3/
Read 20 tweets
#AllAutistics #ActuallyAutistics
#AskingAutistics

A thread of things said to me by professional colleagues in senior leadership positions.

What outrageous things have people said to you when you disclose you're autistic?
1. "Are you sure you're autistic, you're very self aware."
2. "Oh, we're all a little bit autisic."
3. "You must be high functioning then, you're not like other autistics."
4."It's good to get out of your comfort zone."
5. "Change is good for us, it challenges us to improve".
Read 6 tweets
Ok so here's a thread for a Sunday. Parents of ND children/ND adults reflecting on your childhood...

What would you truly like your child's teacher to understand about your child/experience?

I want to use your answers for staff training this year so PLEASE engage with me and
Retweet far and wide. I want to get as many responses as possible to reflect the diversity of experiences.

#AskingAutistics #AllAutistics #ADHD #neurodiversesquad #neurodiversity

Please tag people in too if you think their insight will be valuable.

Thank you ❤️
Thank you for all your responses. They will be put to good use!
Read 3 tweets
This is a thing about being autistic. NeuroClastic had an article about 50 ways society gaslights autistics. I experienced a different one yesterday, but it's happened to me a lot. This is informational for allies and an #AskingAutistics and #NeuroLurkers to see if others relate.
I was doing something internal, and it was glorious. I mean, I doubt most people's brains work this way, but I really don't know. I was totally in my mind, oblivious to the world around me, rearranging all these moving parts visually in my head. I see my thoughts. (cont)
I can explain it best by saying that it's like dreaming in that I'm not seeing it with my eyes, and the things I "see" are like a coded language. I can use this "system" to bring thousands of disconnected things to working memory and arrange them to make sense of them. (cont)
Read 8 tweets
I am encouraging a boycott of autism research participation by autists and parents of autistic children, unless autistic people are involved in setting the goals of the studies. Don't participate just because it's about autism. The study design and ethics may be up to maggots.
People who participate in ethics committees are not necessarily trained in the #CRPD. In my experience, many of those people are clueless about the realities of human rights.
A simple example is that many of the supervisors and ethics people insist on researchers using person-first language in research papers, which is exactly what most autistic participants in English-speaking environments DON'T want. (This is, like, 'Autistic Culture 101'.)
Read 216 tweets
Now attending the #ESHG2020 session on neuropsychiatry. As an #ActuallyAutistic person, this was very insightful. The research presented was also interesting, but what I gained most insight in was how autism is viewed and talked about. And it needs to change. (1/n)
Autism is still seen as a disease. While there are definitely impairments, in some people more than others, these are often impairments that can be improved by talking TO the autistic person in question about their individual needs. (2/n)
Some autistic people have bigger impairments, which are often due to intellectual disability. Again, communicate WITH the autistic person to facilitate them. Good to realize that some autistic people are non-verbal, but there are alternatives to verbal communication. (3/n)
Read 8 tweets
#AutisticsAloud would like to recognize #MentalHealthWeek.

We extended our deadline for #ActuallyAutistic Canadians to send us a joke! Now Wednesday May 11th.

100 words or less or an image.

We hope that our page of jokes will bring some much needed laughter.

#AskingAutistics Image
Image description. Poster that says autistics aloud lifespans. Autistic Canadians please share your favourite joke it may be printed in Edition Two entitled health. It is a quick deadline of Wednesday May 11th. Laughter is shown to be good for our physical and mental health.
This is an opportunity to bring some laughter to our readers during these challenging times. If you have autism, no diagnosis necessary send your all-ages friendly joke, 100 words maximum or an image to autisticsaloud@autismns.ca or you can send it to us here on Twitter.
Read 3 tweets
#MayThe4thBeWithYou!

#AskingAutistics in Canada check out this opportunity to share your jokes with #AutisticsAloud.

Anyone remember, "Laughter is the best medicine" section from Readers Digest?

I'm inspired by that & needing to laugh more myself.

#ActuallyAutistic
#jokes
Video/poster description.

Autistic Canadians please share your favourite joke! It may be printed in Edition 2 of Autistics Aloud Lifespans.

Autistic people have an amazing sense of humour and laughter is shown to be good for our overall health.
This is a fun opportunity to bring some laughter to our readers during these challenging times and be published in a magazine.

If you have autism/are autistic please send your all-ages friendly joke to

autisticsaloud@autismns.ca

or you can share here on Twitter.
Read 4 tweets
I've known I have #ADHD for 4 years. I've known I'm #dyslexic & Autistic for 2 months. This semester, I've spent enormous time/energy understanding what this means for me. I am relieved & unbelievably excited; I've found an incredible #ActuallyAutistic community through Twitter;
& for the FIRST time in my life (let that sink in) I'm seeing other people talk about experiences that mirror my own. I understand myself in a way that I have tried to find words for my entire life. (TY @SNeurotypicals @steve_asbell @autistictic @A_Silent_Child) #ActuallyAutistic
I'm also navigating grief. I now see the ways I'm called to & do invalidate, erase, & hurt myself in the "necessary" betrayal of my needs to exist in a neurotypical, "appropriate" way. Camouflaging causes negative health outcomes & creates #healthdisparities #NMHM2020 #Autistic
Read 9 tweets
Thread: #autism #employment statistics are unreliable but 44 years of working has taught me this: #autistic people struggle to reach their full potential unless organisational culture and environmental issues are addressed.
#neurodiversity
#employability
#inclusion
#careers
1/
I once did some work on job design and evaluation for the NHS. In attempting to improve #employment outcomes for #autistic people we often start in the wrong place. It’s no good trying to fit people into roles that are unsuitable, and this applies to working environments too.
2/
A degree of mutual adaptation is possible, but true workplace inclusion begins with design.
We have plenty of information about common challenges experienced by autistic people - our #sensory and #communication differences are well-defined.
So what seems to be the problem?
3/
Read 19 tweets
Cn childhood trauma, ablism

#ActuallyAutistic #AskingAutistics
I have a theory I'd like input on: that alexthemia is so common in autistics largely bc it's a c/PTSD response that happens to be an incredibly common result of the way our emotional responses are /1
Cn abuse, ablism, panic attacks

Gaslit and punished starting from childhood

Basically i recently had a thing were i was experiencing a lot of stress but repressed it wo realizing i was doing so until it induced a panic attack /2
Cn ablism, abuse, panic attacks

And even after identifying the things that had been stressing me out, a part of me kept trying to say those things weren't enough to warrant having a panic attack over. There must be a better justification /3
Read 25 tweets
#AskingAutistics: is the 'uncanny valley' a useful metaphor for how autistic / neurodivergent people interact with social norms?

/thread
Context:

1. I'm not formally diagnosed, but score high on ASD tests. (I'm new to autism, not an expert.)

2. My livelihood is derived from my expertise in understanding how groups work.
3. My natural way of being tends to 'rub people the wrong way': they find me disagreeable, grumpy, difficult, demanding, frustrating, triggering, etc.

Most of the people who know me think I am agreeable, kind, relaxed, flexible, compassionate, etc because...
Read 9 tweets
Autistic burnout is terrifying.

Both the sharp moments of what feels like brain lock, & the prolonged dullness of "regression".

It hurts & it can change your expression of identity, but people who haven't experienced it don't know why.

Anyone willing to share? #AskingAutistics
I've been pondering over the physical & emotional trauma that happens.
Also differentiating autistic burnouts from autistic shut downs.

Shutdowns can lead to burnouts, but burnouts are prolonged

Read 4 tweets
I finally took an improv class at @SecondCityTO. It was super fun b/c the instructor let me observe rather than interact so I was able to learn a bunch of really useful info. Then came the angry abusive desk clerk who unloaded on me saying I'd been "aggressive this whole time"...
@SecondCityTO When I gave my credit card to pay, he refused to give it back because "collateral" then threatened to call the police. I have no idea what he was on but it was terrible. I told him he could us inclusivity training because he was treading in lawsuit territory. His response was...
@SecondCityTO ...to ask me what my disability was. I told him he couldn't ask that. He then asked the instructor if I'd been giving him trouble then proceeded to comment derisively on my stimming (I was trying to keep calm).

It was awful, y'all.

This is why we are at risk in the world.
Read 8 tweets
It’s not just the general public that misinterprets #Autistic “severity” & hidden meanings from observable behaviours (see analysis in ‘A Tale of Two Ableisms’ by @TheAspergianCom RT @RussellRElliot) re. GretaThunberg & Kodi Lee.

Even professionals can get it wrong.
A so-called body language expert’s interpretation of Greta Thunberg’s #Autistic facial expressions is a case in point. For some time now Greta Thunberg has been a convenient target for unsolicited thoughts from all sorts of people in this world, good and bad.
Yet since most of us have never met Greta or her parents, nearly all of these must be projections from the inner recesses of people’s psyches, good and bad.
Read 12 tweets
#AskingAutistics desperately seeking your advice. An autistic student draws the whole day at school and if redirected to engage in academics, gets violent and aggressive. Has difficulties with speech. Tried draw and wrote sort of exercises, he only draws. Hates interuption.
I feel like he's like water. Will flow out if we try to contain him. But by channeling his talents, can be great. Ecellent at visual perception. Builds complicated structures with any block like items. Draws superbly. Fine tunes his art on a daily basis. Is just 7.
Read 3 tweets
Pro-tip: A note on self-harm and self-help: self-harm happens in multiple diagnoses. It can be acute (cutting, head-banging, biting, etc.) or chronic (skin-picking, eating disorders, teeth grinding, etc.) Both types are neurologically driven and provide a way to meet a need.
Chronic self-harm is a way of attending to generalized discomfort of unknown origin. This is common with sensory processing disorder and alexithymia. It is a quite-literal manifestation of being uncomfortable in one’s own skin.
Stopping chronic forms of self-harm often lead to different forms of self-harm because the underlying needs driving compulsive behaviors are not met. You might be hungry or dehydrated, constipated, overly-full, stressed, bored, over or under-stimulated.
Read 22 tweets
Thread about living with alexithymia #ActuallyAutistic #Neurodiversity #autism

I experience alexithymia. It's one of those anecdotal conditions that autists know we experience, but it's not formally dxed or researched.

It's like colour blindness for feelings. /1
I can tell light from dark, or in this case, positive from negative. I know I'm feeling good or bad feelings.

But it's hard to give them a name. I feel good, but do I feel happy? Proud? Serene? I feel bad, but am I feeling shame? stress? sadness? /2
My psychologist asked me how it made me feel to reflect on the experiences I'd had as an undxed girl.

I was stumped. I tried, but couldn't pinpoint a feeling. I said, "I wish I hadn't spent so much time being so hard on myself." The feeling I couldn't name then was REGRET. /3
Read 15 tweets
How to ruin people's faith in themselves and in you as an advocate:

1. Don't forgive missteps
2. Put mistakes on display for others to ridicule
3. Be the harshest comment
4. Be passive aggressive
5. Don't show good faith
6. Don't consider what brought a person to their beliefs
7. Make their needs about your feelings
8. Don't care about their struggles if they're not related to yours
9. Dismiss their struggles as not real or valid if they're different from yours
10. Leave no room for new ideas
11. Punish differences of opinion
12. Establish yourself as the authority so that no other voices or ideas can be expressed or heard
13. Show blind loyalty to/take sides with people who are demonstrating toxic or abusive behaviors
14. Isolate, bully, or criticize people as being "all bad" who disagree in one area
Read 18 tweets
#AskingAutistics Post a pic of something you have recently aligned, lined up or stacked.

Tag it your tweet with #LetsLineThingsUp.

Retweet this tweet so that others can join the celebration.
PS: If you're NOT autistic and you like lining things up, feel free to post your pics too, and tag them with #LetsLineThingsUp.
Some of you may remember @thingsorganized from a few years ago. So much aaaaah. 😊
Read 4 tweets
Childhood isn't only about preparing for adulthood, you officious ableist fools. And if the child is disabled, even preparing for adulthood should mean preparing to live effectively as a disabled adult, not learning to fake being non-disabled.
If you feel inspired to make a career in the autism industry, why aren't you #AskingAutistics about the many unmet needs? Why enter the fray of abusive therapists all vying to fan and cash in on parents' ableist fears?
Imagine you ran a therapy centre for women, and all your glowing testimonials and endorsements were from husbands, brothers, fathers and sons.

No actual women.

But your therapy is advertised as being 'evidence-based'.

What's wrong with this picture?
Read 11 tweets
Autistic people "go hard" when they do something. Finding the autistic community and making the cognitive and emotional paradigm shift from "I am always wrong and need to show deference" (how we grow up) to "I am valuable and have been abused by systems and industries" (cont)
is a brutal rearranging of our whole psyche and sense of self. We make the decisive covenant with ourselves that we aren't going to be abused anymore and we will do anything possible to keep others from having the same experiences. It is a radical shift and a brave one (cont)
Sometimes, we over-correct. The lines are so obscure and hard to read between what is toxic abuse and what is ableism. We oscillate between realities: the reality that our voices are needed to help future autistic generations not suffer the way we did, but also (cont)
Read 19 tweets
I don’t have many friends. The few I do have are long distance friendships or I see them only once or twice a year. I struggle to maintain friendships because others often expect more out of me than I have to give. But I’m happy. Anyone relate?#ActuallyAutistic #AskingAutistics
Growing up I would have “one friend at a time” because I could keep track of one friend (often fawning over them inappropriately). It was never good to “put all my eggs in one basket” because if my friend moved I would suddenly find myself alone & in need of a new friend.
Making new friends is always difficult, because I struggle to read new people. I can “memorize” the mannerisms and preferences of a person to learn to work around them but a new person is an unpleasantly fresh slate. #ActuallyAutistic
Read 6 tweets
A few gentle reminders (thread):

1. Neurodiversity is not ‘extremist’, it simply means humans have a variety of brains

2. Autistic people who celebrate autism and don’t want to be cured can (and do) consider autism a disability. They are not mutually exclusive views.
3. The #ActuallyAutistic hashtag means the person tweeting is autistic. That is all. This is also not ‘extremist’. (NTs please don’t misuse it - if you want our attention use #AskingAutistics 🙂)
4. If an individual, or even a few individuals, tweet abuse and they are part of the neurodiversity/ actually autistic community... they are just individuals tweeting abuse. They do not represent me or the group at large. You cannot extrapolate and conclude we are all abusive.
Read 7 tweets

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