Discover and read the best of Twitter Threads about #AskingAutistics

Most recents (24)

Sorry Allistics (non Autistic people) - my timeline is not where you come to get intellectual labour about Autism. I perform enough for my marginalized intersections. Go to #AskingAutistics #ActuallyAutistic or do a Twitter search of the thing. Follow Autistics too.
I will tweet about my experience being Autistic. Will talk about how dehumanizing it is to be called "person with Autism". But it's not my job to tell you why. Enough information is on Twitter about it. There's a whole community of us here who talk about this.
@commaficionado Have anything at hand?
Read 12 tweets
#AskingAutistics

"Can you recommend any books by autistics for someone starting to identify as autistic?"

Hi @drdevonprice, @EricMGarcia, @biancatoeps, and @stevesilberman would you mind telling the Autistic community about your books?

Any other Autsitic authors welcome too!
Full disclosure, Since learning that I am Autistic I have not had a chance to read any of the books out there by Autistic Authors about the Autistic experience. We where DMed this question and thought other people would be much more qualified to answer it. 💚
Hi, some Autistic people are looking for books by Autistic Authors. Would you care to talk about your book or link an article?
@DrTempleGrandin, @TheRichardPanek
Read 4 tweets
#AskingAutistics

Curious if an Hair salon / Barber that catered to Autistic needs would be a viable buisiness model.

* Multi-question thread.*

How far would you travel for a hair salon / barber shop that catered specifically to Autistic needs?
How much would you pay for a hair salon / barber shop that catered specifically to Autistic needs?
Would you be willing to have someone specialized in cutting the hair of the Autistic come to your house / appartment / etc to cut your Hair? If so, what would you pay them:
Read 4 tweets
One thing I’m learning right now is that people who’ve never heard of ABA at all, when they are introduced to it from the perspective of an autistic ABA survivor, they’re first reaction is “that sounds terrible! I can’t believe they still do that.”
Granted I’ve only been able to talk to like two people like that from my perspective as a survivor. But. Even one person I absolutely expected to not understand, was horrified that this is still in practice.
Anyway, if your a parent in the fence or considering ABA, listen to ABA survivors. That’s the most important set of voices in this conversation.
Read 17 tweets
It is used by Autistic people to openly designate they are Autistic.

I understand that it was made necessary because the Autism community kept co-opting the Autistic community tags.

It was coined by @RealKaristina
The “Autism Community” is arguably anyone who has a connection to Autism.

The “Autistic Community” is anyone who is Autistic.

The distinction is very important when speaking on matters of Autism, especially the experience of being Autistic.
It is considered a breach of social norm for anyone but an openly Autistic Person to use it because of the importance that hashtags have in finding tweets.

There was at least one particularly offensive event where people used the tag to troll Autistic people.
Read 7 tweets
In Saratoga County, NY, the police were called by a @Target employee on Black teens, siblings. Police harassed & became forceful & violent with a 14 year old autistic boy who was holding candy. He kept saying over & over, “I have money.”#AskingAutistics #AutismAcceptanceMonth Image
Officers tackle the child. His 17-year-old sister is screaming, "he's autistic!" over and over. She is manhandled and aggressed against and ARRESTED. Police put felony assault & a resisting arrest charges on her. The autistic boy was not arrested because he committed no crimes.
His sister didn’t either. Gratuitous and unprovoked violence against a family member, a disabled child, is legal cause for defense. Looks like a pair of hate crimes.
Read 20 tweets
um, #AskingAutistics/#AllAutistics /#ActuallyAutistic
do y'all get ~2week-2month swings where you simply cannot remain asleep for more than a few hrs at a time?

There's a gross deficit-focused term for it but I'm thinking it's another monotropism expression...

thread👇
Parents call it "#SleepRegression" but I think that's a bad way to frame kids' experiences & it's rooted in a silly linear binary of development.

I call it "getting thrown awake", I think it's because, as our brains process so much more info at rest
(frontiersin.org/articles/10.33…)

👇
Processing in our brains is a huge force of neural signals/connections & especially during times of stress or change or great new joys, sometimes the brain's asleep processing cycle ends with a jolt that wakes the body up.

I've found it best to manage the environment
👇
Read 7 tweets
Autism and Body Tension - 🧵

If you’re autistic and regularly tense:

- your eyes until you get a migraine;
- your forehead and cheeks until you get a sinus headache;
- your shoulders until you can’t move them;
- your calves until they cramp every time you try to move them;
- your stomach until your GI issues multiply tenfold; and
- any other part of your body in a way that causes you pain

then this thread is for you!

I do all of these things - and to my detriment.
I often feel at least some sort of distracting or overwhelming ache, pain or discomfort. I’m actively trying to stop, but I generally do these things subconsciously and don’t realise I am doing them until it’s too late.
Read 20 tweets
I contacted @SPARKforAutism and the PI @WendyKChung with questions about equity, inclusion, ethical engagement, consent, and the use of autism GWAS and PRSs in polygenic embryo selection. Unsurprisingly, they refused to answer most of my questions. docdro.id/CfOUuix 1/n
@WendyKChung directed me to the SPARK YouTube channel to showcase their "community engagement". Nearly every video is for neurotypicals, by neurotypicals, focusing on interventions, "teaching social skills", etc. 2/n Image
I didn't get any response to, e.g., why SPARK partners with @autismspeaks and not with any autistic-led organizations, or whether any of the PIs have connections to the ABA industry. 3/n
Read 8 tweets
The founder of ABA said the following about Autistic kids:

“You see, you start pretty much from scratch when you work with an autistic child. You have a person in the physical sense – they have hair, a nose and a mouth – but they are not people in the psychological sense...."
"One way to look at the job of helping autistic kids is to see it as a matter of constructing a person. You have the raw materials, but you have to build the person.”
Lovaas strongly believed in intense behavioral modification interventions, that included harsh aversive techniques such as withholding touch and attention, isolation, and even giving electric shock "therapy"...
Read 7 tweets
(Waves in greeting.)
I see tons of #ActuallyAutistic folx chiming in on #Sia today, & I hope that you all will devote the same fervor to going to this link: iacc.hhs.gov/meetings/publi… to quickly make Public Comments for the upcoming US federal autism IACC meeting in April 2022. /1
I realize making Public Comment about #autism research & policy is not trendy nor exciting like celebrity news, BUT it’s a platform: iacc.hhs.gov/meetings/publi… to potentially help influence important issues impacting the lives of millions of autistic ppl & their families. /2
Currently, the “loudest” & most consistent/persistent voices who are “representing” autism are privileged non-autistic literal curebie martyr moms who openly tout institutionalization & sub-minimum wage employment as solutions for autistic people w/the highest support needs. /3
Read 18 tweets
Has anybody had any experiences with a brand called public gift publicgift.com I feel like I'm being stalked by their brand ambassadors on Instagram to also become an ambassador & I feel quite convinced my complaint about it just got handled by a bot. #askingAutistics
They also did not answer any of my questions about how much of their revenue is being donated to the causes they support. Would appreciate info from any one with more information or personal experience with this org
Read 4 tweets
The first thing I would love for people to understand about sensory processing and sensory overload is that a NeuroDivergent Person, with sensory processing difference’s ability to tolerate certain stimuli can vary, from week to week, month to month, even day to day.
The ability to tolerate sensations can very, depending on a variety of factors.

One of those factors being how well rested, or how well off that individual NeuroDivergent Person is doing, on that particular day.
It can be the perfect storm if that person is feeling low energy that day, or they’ve already got a lot on their plate.

Maybe they’re already really stressed out about some personal thing or some change that’s happening in their life, or they’ve not slept well all week.
Read 5 tweets
Growing up, I struggled in my relationships with other kids my age.
When I did hang out with other kids, they were often older or younger than me, additionally, my relationships were often very superficial, because, even when I wanted to, I didn’t understand how to get close to others or let people in.
For many years, as a preteen and a teenager, my best friends were our family cat and my dog, Ripley.
When I struggled to bond with others around me (even my family and caregivers) animals always were as kind to me as I was to them - like a mirror reflection back on me.
Read 8 tweets
It had been a long and tiring weekend. We’d had fun, but I was running on minimal sleep and hadn’t had enough to eat, so my blood sugar was a bit low.
As we neared the end of the day, I thought I knew what was coming next, but suddenly and without warning or my input, the plans changed – leaving me feeling shaken and unstable.
CW: desecration of past meltdown

Suddenly, I found myself past the point of no return. Tears started to well up in my eyes as I quickly hung up the phone.
Read 12 tweets
[THREAD] #AskingAutistics and allies, especially people in Africa or of African descent throughout the world: We need your help. A bad thing has happened for #DisabilityRights in Africa: ABAI has sponsored an American, Ashley Knochel, to promote ABA in Africa by formalising it.
There has been a neocolonialist trend with aggressive ABA infiltrations from America into Ghana, Kenya and other countries for some time now, including a CARD-associated organisation in South Africa; but this latest move is worse.
This American person has established a Pan-African Association of Behaviour Association along with Kenyans, and they are launching this Saturday.

facebook.com/panafricaaba/
Read 39 tweets
If the "professionals" and the big autism charities could PLEASE stop convincing parents that an autism diagnosis is the end of the world for their child/ family, it would be awesome. The tragedy narrative has to stop. 1/
It is heartbreaking and infuriating how many parents I see who are heartbroken and terrified their kid is or might be Autistic. Shedding literal tears over some concept of "lost normality" and desperate for any hope their child can be saved/fixed/cured of their neurotype. 2/
You know who deserves to shed a tear? A) The Autistic individuals who see/hear/read this crap from their caregivers. B) The Autistic children being raised in households that call them "damaged" to their face and throw them into so many therapy hours they don't get a childhood. 3/
Read 9 tweets
#Thread
To someone realising they may be autistic as an adult, and feeling overwhelmed by it.
Please don’t be alarmed. In spite of nearly everything you read about autism being negative there are many positive aspects.
And, most importantly, it’s part of what makes you ‘you’.
1/
It’s nearly three years since my own very late diagnosis.
I remember vividly the moment when I fist realised.
I was reading an email from a former colleague who’d just found out she was autistic.
It really felt like my heart stopped for a moment.
This was something momentous.
2/
I knew that discovering I was autistic meant my world would change forever in ways I could not anticipate.
And it was hard to begin with.
Revisiting past events made me burn with shame, embarrassment, anger and indignation.
It all made sense, why hadn’t it been obvious before?
3/
Read 22 tweets
#AskingAutistics

For autistic People of Color as well as Indigenous and Biracial people -

If you ever sought an official diagnosis for autism -

1. Were you diagnosed with anything?
2. What were you diagnosed with, if you were?
3. Did you think it was an accurate diagnosis?
For autistic People of Color as well as Indigenous and Biracial people -

4. If you haven't sought an official diagnosis but have wanted to, have there been any specific barriers you faced to getting assessed for autism?
Anonymous autistic person answered through DM:
"1. Yes
2. CPTSD, ADD, GAD, Bipolar
3. I do not think I’m bipolar
4. My psychiatrist laughed at me and said “YOU ARE NOT AUTISTIC”. I tried to explain myself and he just kept laughing."
Read 5 tweets
hi autistics, i have some questions for you if you have the spoons to answer #AskingAutistics

please only reply if you are autistic (s-dx welcome, just no allistics) and please answer personally, not generally - i'd like to hear your experience, not googles :)
how do you experience shutdown?
how do you experience sensory overload?
Read 12 tweets
Recently a group of parents has made a claim that Autistic Adults sharing the better parts of the Autistic Experience online has made it more difficult for parents to peruse services for their children because people don’t automatically see Autism as a bad thing anymore.
Being Autistic is not all sunshine and rainbows. In fact, it sucks sometimes, especially because of society systems & the world being stacked against us.

Let’s talk about why some of us share the good parts of being Autistic:
1. Historically, most of the conversation about Autistic People has only been about our weaknesses and completely ignored our strengths.

Some of us are seeking balance to the narrative.

We are more than our weaknesses. We are a combination of our strengths & weaknesses.
Read 7 tweets
Things that will automatically make me have a shutdown as an autistic person. A thread
1) Shouting and loud noises in general. Also, busy crowds can cause a shutdown.
2) Demanding me to do things on the spot without any prior warning
Read 14 tweets
We’re only in the first week of April & I’ve already received a multitude of emails asking about how to respectfully speak about Autism & Autistic people.

Here are a few gentle reminders, for those of you who want to be good allies this month:
In the debate over “Autistic Person” or “person with autism”, though individual opinions can and do vary, Autistic person is preferred by most Autistic (not all) people.

It’s always good to ask & respect the individual’s choice in how to identify themselves.
Aspergers is being phased out as a diagnosis though some Autistic people have received this label in recent years (depending on where they live in the world).

Autistic is Autistic.

Separating Autistic people this way harms all of us even those who are given the Aspergers label.
Read 9 tweets
It’s official April. You may have heard that April is considered “Autism Month” to many people.

A few gentle reminders to non-Autistic people, as we jump into this month:
1. Please step aside and let Autistic People lead the conversation about Autism this month.

Historically, April has often been a time non-Autistics speak over Autistic voices, effectively silencing us and cutting us out of conversations about issues that impact us.
2. Please DO help to amplify the voices/words of Autistic people on Autistic issues this month (and all year long).
Read 7 tweets

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