My partner had to go to @CityMD today, which he’d been putting off to avoid exposing me, a chronically ill survivor of not one but two strokes, to unnecessary risk and the doctor point blank refused to wear a mask, saying she didn’t have to. He asked her to, saying he lived with
a high risk person and she refused, saying she didn’t feel it was necessary. A DOCTOR. Apparently “do no harm” no longer includes not intentionally playing Russian roulette with chronically ill stroke survivors lives. WHAT THE ACTUAL FUCK???!!! How is this okay in any world???!!!
How are high risk people and the people who live with them, or even interact with them, supposed to get medical care, let alone do anything else like work, get groceries, pick up meds, et al. I feel like I’m being held hostage. Do you all really want us dead that fucking much?
Somebody explain to me what the fuck I’m supposed to do exactly to avoid getting the stroke-causing plague during my stroke recovery (that also causes a lot of the same chronic illnesses I already had before 2020)? I already get groceries delivered. I was getting my meds
delivered until CVS stopped offering it as a free option. I already do every medical appointment I can as telehealth and got home INR care so I don’t have to go to the Coumadin clinic every week just to make sure I’m not at risk for another stroke or internal hemorrhaging.
The few times I’ve seen people socially have been outside while masked. I’m doing everything I possibly can here to avoid dying, getting more disabled, or having another stroke that could kill or further disable me. I’m not asking anyone to meet me halfway here. Just a centimeter
If you can’t put on a mask for 5 god damn minutes to help mitigate a chronically ill stroke survivor’s risk of death during an uncontrolled pandemic that causes brain and organ damage, after being specifically asked to, why in the fuck did you become a doctor in the first place?
It’s real cool that everyone just gets to put a loaded gun to my head whenever they feel like it and there’s literally nothing I can do about it. And then they’ll turn around and say, “Oh, gosh, you had a stroke. That’s terrible! Best wishes!” Great system we have here.

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More from @ShanBarnsley

Feb 17
Millions are missing
And the cooper’s wife is too
So we hold our silent vigil
For a girl in a gown too blue
Lost in halls and hospitals
A silver talisman bears true
The diagnosis they doubted
With “Maybe it’s just you?”
“Maybe it’s your fault
Did you ever think it might?
It sure looks like anxiety
Caught in fight or flight
This isn’t an emergency
I’ve no time to spare tonight
For another hypochondriac
Who thinks her Google search is right”
The words echo again
We’ve heard them all before
Generations of us girls
Lost to fable and to lore
Seal wives and fae women
Changelings left by the door
You wouldn’t hear our screaming
So now you’ll hear our roar
Read 15 tweets
Mar 11, 2022
If you have long covid I seriously recommend learning how to do a poor man’s tilt table test. POTS, which many long haulers are already getting diagnosed with, has an on average four year diagnostic delay. But if you know what you’re looking for, it takes 15 minutes to diagnose.
Also, familiarize yourself with the symptoms of POTS, MCAS, and ME/CFS. I don’t know why there aren’t PSAs about this because it would save people years (and probably thousands of dollars) in diagnostic limbo.
Okay, I do know why and it’s because if people understood what Long Covid truly is/can do, they might not be in such a rush to rip their masks off and slap their blinders on. Lifelong disability is no joke. Neither are pulmonary embolisms, CVSTs, or any of the other fun prizes.
Read 22 tweets

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