Writer & folklore devotee from New England. Author. Poet. Editor. Chronic illness bard. Stroke survivor. Make like Navi & follow the link for more.
Feb 17, 2023 • 15 tweets • 7 min read
Millions are missing
And the cooper’s wife is too
So we hold our silent vigil
For a girl in a gown too blue
Lost in halls and hospitals
A silver talisman bears true
The diagnosis they doubted
With “Maybe it’s just you?”
“Maybe it’s your fault
Did you ever think it might?
It sure looks like anxiety
Caught in fight or flight
This isn’t an emergency
I’ve no time to spare tonight
For another hypochondriac
Who thinks her Google search is right”
Feb 16, 2023 • 8 tweets • 2 min read
My partner had to go to @CityMD today, which he’d been putting off to avoid exposing me, a chronically ill survivor of not one but two strokes, to unnecessary risk and the doctor point blank refused to wear a mask, saying she didn’t have to. He asked her to, saying he lived with
a high risk person and she refused, saying she didn’t feel it was necessary. A DOCTOR. Apparently “do no harm” no longer includes not intentionally playing Russian roulette with chronically ill stroke survivors lives. WHAT THE ACTUAL FUCK???!!! How is this okay in any world???!!!
Mar 11, 2022 • 22 tweets • 5 min read
If you have long covid I seriously recommend learning how to do a poor man’s tilt table test. POTS, which many long haulers are already getting diagnosed with, has an on average four year diagnostic delay. But if you know what you’re looking for, it takes 15 minutes to diagnose.
Also, familiarize yourself with the symptoms of POTS, MCAS, and ME/CFS. I don’t know why there aren’t PSAs about this because it would save people years (and probably thousands of dollars) in diagnostic limbo.
