1 in 4 people in this country rely on Medicaid for their health care – and the grand majority of the people who receive Medicaid are disabled people, older adults, and children.
As my brilliant boss @njorwic says, Medicaid keeps families together. For disabled people who want to stay in our homes and communities, receiving the care that often keeps us alive, Medicaid is the primary way to receive home and community based services in this country.
For parents who want their disabled or medically complex children to live in their homes, Medicaid is the lifeline that makes it possible. For older adults who want to age together in their homes, Medicaid provides the guarantee that they can remain together.
Medicaid keeps people alive. @CenterOnBudget showed that Medicaid saved the lives of at least 19,000 people from 2014-2017, just because of expansion. Fewer older adults passed away following Medicaid expansion. cbpp.org/deaths-among-l…
But in the #DebtCeiling negotiations, Republicans are proposing to cut Medicaid, to strip health care and home care away, to leave millions of people in a lurch.
In 2018, when I was very, very sick and wasn't able to work, I was on my mom's health insurance (Thanks, ACA!) but my partner @LFG_arrett had just finished graduate school, aged out of his parent's insurance, and hadn't started a new job yet.
Medicaid was a lifeline.
Medicaid was there at a time when we were underwater financially and when I was so, so sick that the water kept getting deeper.
Without Medicaid, @LFG_arrett would've either been uninsured or we would have had to spend money we didn't have to cover him.
Buddies I miss eating in restaurants!!! I miss a happy jaunt through a bookstore with a coffee and smelling candles with my nose and taking the metro and eating meals in my friends apartments I love socializing but also to socialize I have to be *alive*. It’s that simple!
Also I miss going to the doctor without terror that I’ll get sick *from* going to the doctor! We live in hell!
Sometimes I think a lot of able bodied people cannot wrap their heads around limiting their world to help their bodies. I’m not driving rn because my neck is fucked and driving would make it worse (lots of head turning!) and that’s an example of my world shrinking -
I used to be a person who never, never rested, which was a combo of ableism (“my body doesn’t have needs!”), capitalism (fear I’ll fail and end up back on the farm), and trauma, because if I let myself think, I was washed away by how much pain existed just under the surface.
You can’t outrun having a body. You can’t outrun trauma. You can’t outrun your body having needs. It finally caught up to me, and I could barely work for 3 years.
I’m better now, and I value rest so, so much. If I don’t rest, I can’t do anything else. My body won’t allow it.
Friends COVID is not a cold or even the flu — when you have COVID you need to *rest*. Rest like you’ve never rested before. I’m talking do not use your brain, don’t read books, don’t use the time to call your mom. Lay in the dark and pretend you are a rock as much as possible.
Even if you feel up to doing more, do not do it! You’re trying to avoid long COVID and the best way to do so is to truly rest rest rest. It’s similar to having a really bad concussion in terms of the amount of rest you need.
Even mild cases where you feel mostly okay can become long COVID! Rest!!
It would’ve been really easy for the Fetterman campaign to lean into ableism after his stroke,
And instead he and the campaign addressed the reality that millions of Pennsylvanians and Americans have had health crises, just like he did, and deserve the life saving care he got —
— and don’t deserve to be mocked by doctors or other candidates or the press.
It’s a big fucking deal.
Especially up against Dr. Oz, who made his name and his money off horrific ableism and peoples fear of being disabled.
The Fetterman win is a win against ableism, both Oz’s own and the narrative around his stroke.
Even *if* all you get is the equivalent of sudden onset asthma, sudden onset asthma is *brutal*. I have to take an inhaler every 3 hours. Anything resembling smoke and my lungs shut down. If I am not always always adequately medicated, my brain fog is so extreme I can't speak -
- because I can't get enough oxygen to my brain. I'll be toodling along, doing fine, and suddenly my lungs will be so bad that I get very little oxygen to my brain, and I'll lose 100% of whatever I was just doing.
I'd never had asthma attacks, and now I regularly do.
I can't cook because the stove sets my lungs off. I can barely be *inside* if @LFG_arrett is cooking because the stove sets my lungs off. Sometimes even 5 or 6 hours after cooking I have to stay in the bedroom with all the doors closed and my rescue inhaler on hand.
In case you need a public health friend to tell you it’s okay to cancel your holiday plans, hello it’s me, I’m a graduate of Johns Hopkins School of Public Health, I work in health advocacy, and I volunteer to be anyone’s Public Health Expert Friend who told you not to travel
My partner is also an MPH and an expert in health policy so if you need TWO public health friends here we are now!! Use us!!
.@LFG_arrett and I are happy to recommend you not go anywhere!!
We can also ofc recommend mitigation strategies ♥️♥️