Thread by @Richard_Autism

Reflecting on how my "expertise"/ knowledge-experience base is constantly growing. Hence, so is my credibility. Raises the question of:

At what threshold are "PDA Profile of ASD" proponents going to start respecting me & take my work seriously?

Catalyst for this has been reflecting on some comments responding to Singer et al 2022, where they object to being challenged for using terms autistic community generally dislikes. Link to Singer et al 2022 below:
onlinelibrary.wiley.com/doi/full/10.10…

It is the claims by Singer et al 2022 of proponents of things like "Profound Autism", or using medical model based terms being challenged for using such terms.

There have been a couple of robust responses to such comments being made by Singer et al 2022. For this one has been accepted & is awaiting to be published:
psyarxiv.com/3vjnq

"Singer et al. assert that some autism researchers have been denied funding and have experienced heckling at public presentations due to language choices, citing a handful of tweets out of their original context...

"...We do not condone harassment and would hope that feedback is delivered respectfully and with the intent to educate, not harm. Still, non-autistic people hold nearly all the power in autism research, including funding and publishing decisions..."

"...Members of the public have few opportunities to engage with researchers, and open platforms such as social media enable direct engagement between researchers and communities. Autism researchers should expect their work to be consumed and critiqued by the public,.."

"...including autistic people affected by their research. Such critique is not bullying or weaponization,but feedback that offers autism researchers an opportunity for reflection and dialogue with the wider autistic community they purportto serve..."

"...Autism researchers with concerns about how their work will be received should proactively seek guidance and consultation from autistic scholars and self-advocates."
@HeiniMNatri et al 2023, pp. 1-2.

Second response is already published, link to it below:
onlinelibrary.wiley.com/doi/epdf/10.10…

"They assert that “accurate, scientifically and clinically appropriate terminology” is mutually exclusive with less stigmatizing language and call for “scientists and clinicians [to] use the terms they feel best represent” what they are identifying..."

"There is an irony in demanding scientific language be used because of the way the clinician feels while ignoring how the recipient feels. While I agree no one should be attacked,..."

"... if you choose to use language you were told is offensive you cannot act surprised when people are offended, when granting agencies do not want to fund you, and when journals do not want to publish your work."
Collis 2023, p1.

Core themes of 2 quotes:
1) Agreeing people should not be attacked.
2) If their work is are controversial to others within the autism community, it is going to be critiqued & such critique should be treated as feedback.

3) Authors who are aware their views are controversial, should treat critique as feedback, i.e., an opportunity to reflect & learn.

All researchers & practitioners should be doing this, so should not need being said.

I am aware some would claim RW you have in the past attacking "PDA Profile of ASD" proponents.

I do not want to get into discussion that. I would point to the growing evidence of me respectfully engaging with others on PDA online...

... I considered some of the seemingly bold claims made against me, by the likes Judy Eaton. I concluded they were spurious. Considering Eaton's claims was a substantial reason for me asking Catherine Lord's views on PDA & ADOS-2. Lord backed my interpretation...

... I have been treating critique of me as feedback & acting on it where appropriate.

This is nothing new, I have long track record of being highly reflective & acting on others input, to constantly evolve & grow as a person.

"However more recently there does not appear to be any overt obsessive hobbies but his dedication to self improvement and trying to be more insightful into himself to develop his character appears quite obsessive."
From my 2012 Asperger's diagnostic report.

So how does this all tie into the question:

At what threshold are "PDA Profile of ASD" proponents going to start respecting me & take my work seriously?

PDA literature acknowledges PDA is controversial & substantially contested. Likewise, those attributed with PDA & their caregivers are a vulnerable group. I argue PDA caregivers are vulnerable group below:
researchgate.net/publication/33…

"PDA Profile of ASD" proponents themselves acknowledge interest in PDA as a form of autism far exceeds its limited evidence base, e.g., O'Nions & Eaton (2021) below:
paediatricsandchildhealthjournal.co.uk/article/S1751-…

Anyone researching/ speaking/ writing about PDA are writing something which is going to be viewed as controversial by others within the autism community, including many vulnerable persons like myself or @milton_damian

While also their scholarship is going to be consumed, in many cases uncritically by vulnerable persons who seem to be invested in the hype surrounding PDA.

I think the two quotes by @HeiniMNatri et al (2023) & Collis (2023) responding to Singer et al (2022) are equally applicable to anyone researching/ writing/ speaking on PDA, particularly "PDA Profile of ASD" proponents.

Reason for the later statement is that they are producing scholarship which is likely targeted to be consumed by thousand of vulnerable persons who are prematurely invested in "PDA Profile of ASD". Their work should be to the highest standards.

I think anyone who researches/ writes/ talks about PDA should be open to receiving feedback & acting on it. Which takes me back to the question:

At what threshold are "PDA Profile of ASD" proponents going to start respecting me & take my work seriously?

As I stated earlier, people should not be attacked. People, should be open to receiving feedback from others, especially when they know they are producing controversial scholarship, which is likely targeted at thousands of vulnerable persons.

I should not even need to ask this question of "PDA Profile of ASD" proponents.

At what threshold are "PDA Profile of ASD" proponents going to start respecting me & take my work seriously?

@threadreaderapp please can you unroll?

Thank you in advance.