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Candace D. Profile picture
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Mar 2 • 5 tweets • 1 min read
If you have #EhlersDanlosSyndrome has your shoe size changed?
I was a size 6 shoe til I got pregnant with my son. Then a 6 wide/6.5. Then I got the big sick, now I’m a 6/6 wide/7 lol 😆
Oops also meant to include 6.5 for the now shoe size
I want to add that my mom and sisters shoe sizes have changed too! They don’t have a diagnosis but they’re related to me so 👀
My sister have never had any children and my mom had 2!

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More from @DiaryofaSickGrl

Candace D. Profile picture
Nov 27, 2022
Someone fed my dad pepper today even though he asked them not to put it in the Thanksgiving food & he got sick & had to go home. They thought “a little” would be ok. No means no. If someone has food allergies/sensitivities, dietary preferences, religious reasons, etc—no means no!
I wasn’t there which is probably a good thing 😠
You can add pepper to your own food afterwards, I don’t think this was a big ask. 🤷‍♀️
Read 7 tweets
Candace D. Profile picture
Aug 19, 2022
If you see someone accepting the fact that they’re chronically ill/disabled I can promise you it’s not because they’re lazy, negative, etc. It’s because acceptance means moving on and living the life you have without waiting for a miracle that may never come.
Most of us exhausted all our resources and tried absolutely everything before we came to accept that this is life now. We now want to move on and be accepted as we are.
We all handle it in our own way, but I know at least for me—I can’t take the heartbreak of believing that something will be my magical fix ever again. If that somehow happens I would be so glad! And believe me when I say I am always researching and learning.
Read 4 tweets
Candace D. Profile picture
Aug 18, 2022
Depression is a horrible, tragic thing. I don’t think I’ve really had whole-hearted, genuine happiness since I became with sick with it at 16 years old (I’m now 32). It casts a shadow over everything and even the small glimmers of happiness I’ve had often get clouded with it.
I wonder if I’ve ever had genuine happiness or if the way my brain was made has denied me of it completely. But I think I was happy as a child. Other than being sick all the time & all that I missed out on because of it. I just really wonder how people’s brains feel without it
I think I’ve had at least some amount of mental illness since I was really little! It kinda stole my childhood because I didn’t really think like a child. I worried all the time. At 16 is when things abruptly became bad though and I needed help. I’m guessing because of puberty.
Read 4 tweets

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