Discover and read the best of Twitter Threads about #EhlersDanlosSyndrome

Most recents (2)

If you don’t have an updated will, living will, and POA, get on that, okay?

I’m scrambling last minute because I have a genetic condition that makes the colonoscopy I have coming up higher risk for me than for most.

I know, I know, it’ll be fine.

Just get your papers in order.
I’m just now realizing I forgot to tell my gastroenterologist about my genetic condition that makes me more prone to tissue fragility, excessive bleeding, and unexpected cardiac reactions to anesthesia.

I was so relieved to get in to see him after a 3 mo wait that I just forgot.
Which, you know, seems like pretty important information.

Damn it.

I’ll have to make sure to tell him Friday morning.

Maybe I should do the procedure without anesthesia. Has anyone reading this done that? WDYT?

#EDS
#Hypermobility
#EhlersDanlosSyndrome
Read 4 tweets
And for my #visuallyimpaired folks, I will #type out the #text of that #image, down here. Cuz the data is #important. (one of these days I'll get all my comics done with text properly on the site)

Starts here: Hello, It's Trish Malone, creator of #NKVSSP and slightly hurty -
- artist monkey.
And it's just struck me now, so bear with me.
My forearm, right at the elbow, is needles and fire. It happens. And Overuse is the #1 suspect. Turns out today though, overuse is actually #2.

As a patient with #EhlersDanlosSyndrome, I have to be on top of, -
Read 7 tweets

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