Spoke to a lady at a Garden nursery today, she looked concerned by me wearing a mask. I reassuringly said to her ‘as far as I know I don’t dont have C19.’
She said, ‘oh thats great.’ and looked relieved.
She then went on to say how she really should be wearing one too..…1/🧵
she has a problematic immune system. I felt she felt like she was pressured not too.
She said “I had covid. It was very mild. But… I haven’t been right since. It seems to get worse. I’m out of breath all the time like I can’t breath past a tightness right here in my chest…2/
.“I get dizzy & sweaty sometimes when I stand up, or if I am standing for long. The Dr checked me out and said my breathing is normal….but I’m not right. It’s like my energy levels didn’t recover, & keeping on going is making it worse. I really don’t want it again.”
She said..3/
So. Many. Stories. like. this.
Every single week I hear an outpouring of bottled emotion from people struggling with conflicting communication, health issues, feeling gaslit, feeling confused, lost… and either unwell or not at all like they were post infection. 4/
Medical trauma sucks. You know need medicine, it's logical & it can help. But it doesn't stand aside from the fact that in years gone by you have faced discrimination, gaslighting, & years of experimentally failed treatments based on the latter that has prolonged your hell 1/ 🧵
The lowest places have been places where you have not been listened to, & served more fresh hell, to a metabolism that dances at the fringes or normal, and barely dips a toe in. You are been 'the healthiest, most dysfunctional person you know' you joke... 2/
You minimum does is too much for me, I don't want more - I want right. I know what I can handle, I experience how it feels.
I have lead my care, I have led my needs, I have fought for myself & I have been my own advocate from places I have no idea where I got the energy from...3/