Comrade Kira Nerys Profile picture
Apr 1 11 tweets 3 min read Twitter logo Read on Twitter
Spent all day working hard to write, be a good & attentive parent, do housework. Made "not melting down" my priority. I succeeded, my kid went for her nap and I thought "oh! I can do woodworking now!"

I had a two hour window, & I spent the ENTIRE time looking for my rotary tool
I know I charged it in the usual place this morning. I have a vague memory of grabbing it earlier thinking it was my vape, & realizing it wasn't. But I was doing a lot this morning, and I probably just put it down wherever I was when I realized it wasn't the thing I needed
I spent two fucking precious, rare, quiet hours tearing the house apart so I could get just a tiny hit of my special interest, and of course that didn't happen. I guess I could've done other woodworking stuff, but now I just need to know where it is
Everyone has these moments sometimes, but I have them daily. Sometimes multiple times in a day, just losing something, looking for it, putting my phone down somewhere while I look for it, eventually finding it just to realize that I don't know where my phone is
I can't even imagine how much time I've lost just looking for things I've misplaced. It has to be thousands of hours by now. It's relentless. I always kinda hate myself for not getting things done in a day, but I'm losing so much time attempting to find things
I didn't melt down. I'm really really trying to not melt down. But I'm in that pre-meltdown phase where its like that jerking motion toddlers make when they're having a tantrum, but on the inside. Barely concealed. I just wanted to round the edges on some goddamn earrings
without that special interest/hyperfocus time to center me and help me recharge, I'm much more likely to have reduced frustration & sensory tolerances, my rejection sensitive dysphoria gets worse, I'm worse at reading people & responding in the ~correct~ way. Headed for meltdown
Being #AuDHD is a full time job, basically from birth. You never get to stop managing it. There is no recovery, our nerve endings never stop receiving, our emotions need constant management to regulate. I have to think about my body, what my face is doing, if my tone is correct
Didn't do a typical meltdown, but started crying when I realized that I'm probably going to need to buy a new rotary tool, which means I won't be able to get my router table *again* because other shit keeps coming up month after month. I use my rotary more than anything else
Oh goddamnit my favorite grinding bit was on the lost rotary. I'm trying to not let it build up but it's building up anyways. I can feel my throat & chest getting tight, I've been more sharp responding to people, it feels like I'm gonna explode with frustration & self-hatred
I use the fucking thing every day, how do I lose it so completely? Can't ever find anything. Even when I can find things I'm just stumbling over my own feet because my body is very weird, stiff, shaky and unsteady. Just a disaster. I'm so tired of it.

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More from @Deezovariez

Apr 3
Yep! NarxCare was based on points-based tools developed in hospital systems to assess patients for "overdose risk."

In the "history of preadolescent sexual abuse" category we can see that women get 3 risk points for being abused as children, while men get 0 Opioid Risk Tool  This tool...
statistically women are less likely to "misuse" drugs & alcohol than men are. Women are more likely to seek treatment when we do have issues w substance use. But since we're also more likely to be sexually abused as kids (& more likely to talk about it), we get penalized for it
NarxCare doesn't take race or gender into account for your individual NarxScore because that would be discrimination. But it doesn't matter- predictive risk algorithms know who you are based on all the other data they collect on you, & punish you based on ~certain~ data points
Read 18 tweets
Apr 1
I need ADHDers to understand that the same forces (CDC, DEA) which made it nearly impossible to be prescribed opioids for chronic pain (unless you're sufficiently rich & white), is now coming after your #ADHD medication
The DEA will not respond to the Adderall shortage by easing restrictions on production. They will do it by eliminating treatment for ~undesirable~ patients, thus saving first line #ADHD treatment for the white & wealthy. Legal drugs for them, the dangerous illicit market for you
This has already been happening, just in less well-known, codified ways. ADHD is already tremendously underdiagnosed & under-treated for women, Black, Indigenous, & Latine people, poor people. The NarxCare algorithm has already denied care to poor & marginalized people
Read 37 tweets
Jun 30, 2022
Thinking once again about how crucial anxiety can be to surviving life with ADHD, how it can function differently for us, and how patients (esp women or perceived as women) often have our ADHD dismissed because of the anxiety we lean on to get through unmanaged ADHD
I cannot rely on my brain being able to order tasks by importance. It's like I set up a list ranking tasks by how important they are, then that list gets to my brain and my brain says: "eugh, yikes, that sounds tedious and boring so I'm gonna move [hyperfocus] to the top instead"
People with ADHD have decreased function in the dopamine reward pathway. We produce less of the neurotransmitter dopamine, or the dopamine can't get to where it needs to be. This leads to issues with motivation, prioritization, attention, emotional regulation, and so on
Read 16 tweets
Jun 29, 2022
I've had issues not knowing someone was interested in me, issues with me using my same overly-friendly mask voice w everyone & being accused of leading someone on. There's also the manipulation- for a lot of my life it's been very easy to mislead or lie to me bc I assume the best
When I was 18 the husband (25ish) of a friend told me that he & his wife were in an open relationship. It never occurred to me he could be lying. He would cry & isolate himself when she went on trips, I'd feel like I had to comfort him, he would make a move, & I'd just... freeze
It wasn't my friend's fault. If she had known she would've protected me, but she had no idea bc he only did this stuff when she wasn't there. For a long time I blamed myself thinking I should've known, how could I not know, what's wrong with me that I didn't know he was lying?
Read 10 tweets
Jun 28, 2022
This is frustrating. First, & emphatically- discrimination against people w substance use disorder is rampant & its good to use ADA to fight it. But it's stunning to see DOJ fight discrimination against SUD patients while the fed govt enforces discrimination against pain patients
I worry that when I talk about disparities between SUD & pain care it'll come off "how dare those bad bad drug users get care pain patients can't get!" (which tbh I regretfully used to believe). But it's more being stunned at how nonsensical the division is in the first place
It almost feels like a purposeful choice to split pain patients and SUD patients (and their respective advocates) into two camps incapable of organizing together to defeat the war on drugs that is killing both groups
Read 6 tweets
Jun 28, 2022
I tell this story occasionally, but I was a volunteer clinic escort for a few years. We had a lot of anti-choice protesters, & at one demonstration a white, Christian woman brought her two adopted Black sons. She went down the line trying to pressure us into hugging her kids
The kids were maybe 7 and 10? Unsure. But they looked incredibly uncomfortable. I ignored the woman, knelt down, asked the kids if *they* wanted to hug anyone. The little one looked up at the woman & then nervously nodded his head. The older one shook his head "no"
The white woman started every conversation w a clinic defender by pointing to her prop kids & launching into a spiel about how they wouldn't be alive if their mom chose abortion, then did the pressuring for a hug bit. When the kid said "no," she said "OF COURSE you want a hug!"
Read 5 tweets

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