Disabled Undem Profile picture
Apr 18 10 tweets 2 min read Twitter logo Read on Twitter
[thread CW: child & patient abuse, mention CSA]

A Boston hospital just sent out a new "code of conduct" message thru their patient portal to tell me all about the zero tolerance tone policing policy.

Because patients are "being more combative".
Let's consider that.

1/10
Are patients becoming more combative?
Or when patients get caught on the jagged edges of our shattered healthcare system, when patients are hurt by this violent to all system, is it now a dischargeable offense to do anything other than sit there silently while being hurt?
2/10
[child abuse]
3/10
As a survivor of long-term child abuse, my vigilance is hyper.

A medical analogy: I don't have super specificity, but do have high sensitivity to early & slight signs of toxic, abusive, & violent systems & people.

I want this to be a false positive, but...
[CSA mention]
4/10
I recently, calmly told a nurse (before she took my blood pressure at an appointment where I needed a pelvic exam) that I had PTSD as a survivor of CSA. This might affect my BP.

Her response:
"If you get combative, I'll call security."

She said it twice.
5/10
I realize most healthcare professionals say they practice trauma informed care but they don't actually.

It's aspirational.

So I'm not surprised many fall short of real trauma-informed care, which is why I'll sometimes actually SAY something to cue them into trauma space.
6/10.
It doesn't work great, but it means if I get "weird" there's at least a chance someone won't take it as a personal offense.

Now? There is no chance.

Now, just disclosing PTSD is treated as a threat of violence. Now, you better be good. Better not tell. Better be quiet.
7/10

In 2012, I had unexpected surgery. I woke screaming, swinging, trying to pull out lines, run away. I was terrified & delirious.

I joked sheepishly later that maybe just my amygdala woke up. Staff said: it happens, you can't control it, it's ok.

Now? Guess I'd be punished
8/10.
One time I passed out hard & came around in the ambulance as someone was putting an O2 mask on my face. Semi-conscious, I didn't know where I was. I fought b/c I truly thought someone was trying to suffocate me.

My care wasn't terminated back then.

But now? It would be.
9/10. [medical neglect, abuse]
#Disabled people get left without assistance to reposition, toilet, eat. Even in acute care.

What is a more offensive offense? Leaving a human without even basic care; or that human expressing anger & fear when they're left without even basic care?
10/10 [child & patient abuse]
I fear that to hospital admin & staff, it's the latter.

I worry this hospital admins see that their broken system is chewing us up & rather than remedying it, they're effectively saying: "Shut up or we'll give you something to cry about".

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More from @DisabledDem

Apr 17
profile below is using ableism as engagement bait. He tweeted the packaged peeled fruit thing yesterday like it wasn’t discussed extensively years ago. Looks like he wants to ride the omnidirectional outrage for engagement at our expense.

Pls unfollow.
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Well thank you app for hiding that 2nd photo so I couldn’t alt text it.

Pic here (again apparently) with alt text. Alan MacLeod tweeted 18 hou...
This exact photo was used 7 years ago in a tweet that drove outrage engagement.

It’s pretty hard to consider that the person currently tweeting it is doing so in good faith.

Here’s a blog post from 2016 about it. Link preview photo is the same picture

crippledscholar.com/2016/03/04/whe…
Read 4 tweets

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