Discover and read the best of Twitter Threads about #Disabled

Most recents (24)

Stop calling me a "self-advocate" in political stuff. I'm not here for me. I'm here for all autistic people, to protect a huge community.

No one ever called me a "bi/queer self-advocate", just a queer advocate.

Stop degrading #autistic & #disabled ppl like this. Thread. ⤵️
This means no offense to those Autistic folks who identify as "self" advocates.

But I'm not in this for my self. Using that language implies that I'm here to fight for my individual needs. I am a "self-advocate" when I'm alone, fighting a professor at school for accommodation
/
I'm a "self-advocate" when I challenge a doctor who has ignored my symptoms.
However, that's not when this language is used.

When I'm organizing autistic people across the country and doing years of research and engaging with my community, I'm not a "self" advocate.
/
Read 8 tweets
We don't talk enough about the medical gaslighting that happens in the natural/holistic/alternative medicine world and how incredibly destructive it is for #disabled and #ChronicIllness folks. #NEISVoid Thread 🧵
Today I saw a new massage therapist who specializes in neuromuscular work, hoping he could help with muscle spasms in my neck and jaw. He did, but here's why I will never go back to see him: First, he looked at the history form I filled out and out of twelve medical conditions 2/
I checked, he zeroed in on "anxiety." He told me at length about the 9 anxiety muscles he, and only he, knows how to release to make anxiety go away. I never said I wanted help with anxiety. He ignored my #EhlersDanlosSyndrome and didn't listen when I explained what massage 3/
Read 21 tweets
As a #Disabled person, #Accessibility is my right not a requirement! It should never be an afterthought! (thread)
Add descriptions to images, videos and GIFS you post, close-caption your videos, make transcripts available for your podcasts, videos and audios, capitalize each word within a Hashtag and follow accessibility practices! #A11Y
Some resources to help you get started:
rnib.org.uk/rnibconnect/te…
Read 10 tweets
Being a #disabled #nurse is hard - a 🧵 I might delete because this is uncomfortable to share.

I have had #Lupus and several other autoimmune disorders for 20 years and it is frustrating, painful, and at times debilitating.
I don’t talk about my health or what I go through openly because I am afraid that ppl will withhold opportunities or overlook me because I am “sick”. I don't even share how sick I am with most of my family.
I have pretended to be well a lot. Why? Because many nurses and healthcare professionals are ableists. If I don't pretend to be well I am criticized and marginalized. I get treated like a burden when I need accommodations.
Read 12 tweets
For me, the worst part of being #disabled is the drain on my ego. Its incredibly hard to maintain a sense of self-worth and confidence when you are literally constantly thwarted by simple tasks that almost everyone else does with ease, compounded by the social isolation. 1/8
This thread isn't to invite pity.

For the #disabled, its to give hope that you can achieve great things. I'm living out my dreams, even though I still struggle with the weight of my brokenness. 2/8
For the abled, this thread is to share a piece of my world and ask that you extend empathy to those who have a very different set of challenges and blessings due to a disability they have zero control over. 3/8
Read 9 tweets
As a person who has worn a mask on planes pre-pandemic, it's scary to me to think about how politicized masks have become. Will it cause me issues in the future to be wearing one? Will I face harassment for it? I shouldn't have to ask these questions, and yet here we are.
For what it's worth, y'all are showing your hand. When you were fighting the mask mandates you swore up & down it was just about "personal choice." I knew that was a lie, but now y'all just gave the proof w/ all these hot takes & articles about people who wont "quit" the pandemic
If this pandemic has had 1 constant, it's that #disabled people are not actually included as people when y'all discuss what "we" should be able to do

"We should reopen everything"
"We shouldn't need masks anymore"
"We should be back in school"
"We should have church in-person"
Read 8 tweets
This morning, as I started packing up my desk in preparation for my move, I came across the numerous meeting notes with faculty from first year. I came across this list of all of the objectives the faculty felt I would not be able to do because of my disability. /1
These physical skills were the grounds for them to challenge my competence/ability to complete medical education before I even set foot in the school. Assumptions about my competence were made solely based on my diagnosis and the presumption of incompetence stemming from it. /2
I can proudly say that I have successfully completed clerkship and every skill on this list with the use of one hand. In fact, I was nominated for outstanding performance on every single rotation where these skills were necessary. /3
Read 8 tweets
.@TwitterA11y, people with disabilities need things to be accessible on BOTH ends.

The fact that the #AltText process is not easier on the writer’s end can make it difficult for #spoonie peeps & those with #cfsme to make posts that are accessible for the #VisuallyImpaired.
I know others are working on it, but with all of the algorithms out there, it should be possible to make viewable *predicted* text of what’s in a picture, so we can quickly approve it, or make edits.

That wouldn’t just “make life easier.” It’s about #accessibility & #autonomy.
#Disabled autonomy is more important than than many abled ppl realize.

So many things in our lives are based on the assumption that we “have someone to help us,” simply bc systems are falling short. It’s #ableist, & forces us to rely on others. We may not HAVE others available.
Read 5 tweets
Ok, I’m TIGHT, y’all. This is why I have less and less patience for FB nonsense.

Saw a meme about how people should be FORCED to get the vaccine.

Asked if they ever heard of MCAS, CVID, or tons of other rare diseases, and sent them this.
cnn.com/2015/05/01/hea…
Meanwhile, the whole thread was them *complaining they wanted vacations.*

While #disabled people have the fear EXISTING, & about being stuffed back in our homes. Some of us have anaphylaxis to vaccines, &/or studies haven’t been done on how it affects our (auto)immune conditions
**Having a rare disease, a condition that causes anaphylaxis, an immune disorder, or #longCovid doesn’t make you an anti-vaxxer for wanting to wait for studies on the impact of the vaccine on your condition, or to find out what the fillers are, to get the right shot.**
Read 5 tweets
So much of the progress of #MentalHealthAwareness gets cancelled out by the culture of #ToxicPositivity. More than many people realize.

Your “just take it, and work harder” memes aren’t helping, or “inspirational.”

They’re #gaslighting.
Not only that, but for those that have been traumatized, you are often literally *promoting* an unhealthy type of trauma response known as fawning - which is FANTASTIC for predators, especially in toxic workplace situations.
The fawn response - BOLSTERED by the toxic positivity movement - tells you “well everyone has job issues...if you just stay quiet & keep working HARDER, the people abusing/bullying/excluding/threatening you will notice your hard work, and stop.”
Read 6 tweets
Hello #a11y crowd!

I know that a lot of people have been following some comments I made regarding content/trigger warnings, so I figured I'd gather all my comments in a thread with some anecdotal best practices and food for thought for people who are interested. (1/20)
First off, I'm humbled by the number of #accessibility professionals who are following this conversation and taking my words so seriously. I meant my comment to be a one-off comment regarding better care and consideration in UX regarding mental health in/and digital #a11y. (2/20)
I'd also like to offer the reminder that while I have mental health and medical triggers related to #OCPD, #PTSD, and post-concussive syndrome, #disabled people are not a monolith and what others experience and what they need will be different. What I share is anecdotal. (3/20)
Read 20 tweets
The #Oscars would not permit winner Anthony Hopkins, 83, to participate remotely from overseas during a deadly pandemic with a heavy death toll - particularly for people over 60? Forgive me if I feel this does not reflect well on their commitment to #accessibility.
Let me be clear: That is some #ableist garbage right there.
Not allowing Anthony Hopkins to participate remotely in the #Oscars is literally #ableism. 'We are powerful and well-funded, and have the technology for you to participate safely and be heard, but we don't feel like using it.' This is what disabled folks have heard for years.
Read 6 tweets
It’s #EarthDay2021 and it really needs to be pointed out how many environmental campaigns either ignore that #disabled people exist or are willing to sacrifice our health, safety, & wellbeing in the name of “saving the planet.”

What do I mean? Examples like:
Straw bans, getting rid of plastics, telling people to stop shopping online & “shop local,” pushing for “car free zones,” stigmatizing disposable products & things like packaged precut produce...

Every one of these puts disproportionate burden on the #disabled population.
Trust me: #disabled people DO care about climate change, especially because we bear a disproportionate level of the effects of that as well.

But campaigns that HARM disabled people in the name of solving climate change? That ain’t it y’all. And here’s the thing:
Read 10 tweets
#DuanteWright had a learning disability so severe he dropped out of high school. His dad says he was planning to get his GED.

More than half of people killed by police have some kind of disability. I've reported so many stories about this.
Half of People Killed by Police Have a Disability: Report
namiillinois.org/half-people-ki…
“Police have become the default responders to mental health calls,” write the authors, historian David Perry and disability expert Lawrence Carter-Long. They propose that “people with disabilities” are presumed to be “dangerous to themselves and others” in police interactions.
Read 4 tweets
Good point. I was referencing physical #disability, but wasn't explicit. Haines is often talked over by her co-hosts when she raises the topic of mental illness, though, which exemplifies why we need more PWDs on TV talk shows. Standing up to non-disabled people can be very hard.
FYI: PWDs = People With Disabilities.
I also should have used more appropriate terms: visible and invisible disabilities. All disabilities are body, but not all can be seen. I was dxd with MS at 30 and that #disability was largely invisible. But since non-disabled people prefer to hide visibly #disabled--show us!
Read 4 tweets
#COVID19: THE #GREATRESET July 9, 2020.

"1) individuals w/ pre-existing #mentalhealth conditions like #depression will increasingly suffer from anxiety disorders; 2) #socialdistancing measures, even after they’ve been rolled back, will have worsened mental health issues;" Image
"2) #socialdistancing measures, even after they've been rolled back, will have worsened #mentalhealth issues; 3) in many families, the loss of income consecutive to unemployment will plunge people into the "#death of #despair" phenomenon;"

#Lockdowns Image
"4) #domesticviolence and abuse, particularly against #women and #children, will increase as long as the pandemic endures;" Image
Read 14 tweets
This is a critically important thread.📌 Mocking #disability is, alas, bipartisan--everyone loves to do it. When I challenge people about their #ableism, they take offense. Non-disabled people talk over and through #disabled people all the time. Stop using ableist language. ...
... Disabled people are victimized on so many levels by so many people. Performative #ableism is commonplace. People use ableist language constantly. And victimizing disabled people is systemic. More than half of all police shootings are of disabled people. All so disheartening.
Case in point: If anyone GAF about #disabled people, Cuomo would have been forced to resign months ago over what he did to disabled and elderly people. And Trump's abuse of a #disabled reporter was a clear indicator of his #ableism, bigotry and saying the quiet parts out loud.
Read 5 tweets
I use a lot of acronyms. I’m gonna explain what some of the acronyms mean and what services each provides to many not all #disabled and chronically ill Albertans.

PUF FUNDING - Program Unit Funding for young children (preschool) Early Intervention (EI).
....... thread
FSCD - Family Support for Children w/ Disabilities
Provides funding/specialized services supports for families of children w/disabilities from birth until age 17 at midnight......
PDD - Persons w/ Developmental Disabilities
Provides funding to Organizations, Agencies for/with disabled people regardless of a family.

FSCD & PDD provide dollars to support disabled people to live a full inclusive life. At home, community, school, employment....
Read 5 tweets
Good morning, America. What time is it?

It’s time to prioritize the #CovidVaccine for all #disabled/#ChronicallyIll #HighRiskCovid19 people.

1/
For the last year, #Disabled/#ChronicallyIll #HighRiskCovid19 individuals have been doing our part to isolate and minimize our risk, often at the detriment to our chronic conditions.

2/
Our regular care has suffered in the process. We have made the choice between seeing our doctors or staying safe. We have made the choice between getting that blood work or staying safe.

3/
Read 7 tweets
It’s fantastic to have an advocate for #disability in domestic policy, so yes, congrats @kiknack. Now we have a long list of issues to get to...

#1: Many #disabled #HighRiskCovid19 individuals are not getting the #CovidVaccine. Make us all a priority group now.
By creating a list of specific diseases, it excludes many #RareDiseases and even some common ones. It creates #inequity. It once again leaves #disabled people behind. We are 25 percent of the population, and many of us are #HighRiskCovid19 for a variety of reasons. Prioritize us.
#2 Bring actual #disabled people to the table. Yes, you have experience as an advocate, @kiknack, but you are not #disabled yourself. We are. Our lived experiences cannot be replicated in advocacy.
Read 6 tweets
Drs: "I don't know what's wrong with you."

Education: 4 yrs college, 4 yrs med school, 3-7 yrs residency, & passing a licensing exam

Me: It's celiac disease (insert 3 other dx's)

Process: Months of research, tests & a NP

Note: I've been right more than Drs have.

#Spoonie
Chronic illness and disabled patients know that we help ourselves and each other bc Drs can't or won't.

Our community is filled with stories like this. I'm not an anomaly. This is the norm.

#chronicillness #disabled #DisabilityTwitter
And, if you're a Dr reading this, instead of getting angry or defensive, try actually listening to us for once in your career. You might learn something.

Until you and the medical community changes, we'll never trust you.
Read 4 tweets
Thread by @JessicaMeigs (THANK YOU THANK YOU!)

➡️ Hey #entrepreneurs, #TwitterMarketing, and ANYONE who is #selfemployed

‼️EVERYONE should know this information that's being buried in the news cycle:

‼️The PRO Act, or HR 842‼️👎

...…📵🔊 threadreaderapp.com/thread/1366805…
The voting date is scheduled for 03/08! (aka THIS Monday!)

🚨Remember the heavily OPPOSED smack-down that #California imposed on millions of #independentcontractors?

That they are ‼️STILL‼️ fighting? The law that says you cannot even do #Rideshare unless @uber, @lyft, @Grubhub
... EMPLOY you as an official employee of the company. 😱

Even IF they could afford to do that (and these companies have ALREADY said they CANNOT,) you could not:

🔸set your own schedule
🔸where you want to work
🔸or any other #sidehustle - GONE

Not sure if you’re in this 📦?
Read 12 tweets
This is false, @JAMA_current.
Many physicians are racist.
The history of American medicine is racist, misogynist, homophobic, transphobic. There are myriad studies on this, as well as a hundreds of books. Your podcast is two white men claiming racism is non-existent. Apologize.
Every Black friend I have has had issues with racist doctors. One of my closest friends was diagnosed late with pulmonary hypertension because her white doctor ignored what she told him. She died in her 40s--she should still be alive. I'll never stop being angry about it.
Even famous Black women like Serena Williams have spoken out about their experiences. VP Harris prioritized Black maternal health as a senator. And women and Black patients have their pain under-treated. This is systemic. @JAMA_current needs to retract this.
Read 6 tweets

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