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I don't talk a lot about having #PostExertionalMalaise because people just don't take it seriously. People have told me that I'm just making excuses or not trying hard enough. And it's like if I could work harder, I would. But my health just does not work that way.
https://twitter.com/Tinu/status/1649650384464490497
I have lost people that I thought were friends & followers cause of my PEM. People could not empathize or understand why it takes me so long to respond or why I don't have the energy to respond fast enough to things. They also looked down on me for depending on disability benefit
It's very isolating to suffer from PEM because people just don't understand it. They need you're just being lazy or not trying hard enough. They think you're a leech in society because you either can't contribute at all or not enough in their eyes. And it's so unfair and cruel.
You end up being the type of disabled person that they don't think is worth saving. All because you lack the energy or health to do much. And it sucks that our value as a human being is tied to how much we can work or do for others. And the harder we work, the worse our health is
Having such a debilitating invisible illness can make things so hard. It's hard enough dealing with PEM but you also don't get as much help from others because people think you don't deserve it. Because you're not able to contribute enough to society. This attitude kills.
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