It's M.E. Linda šŸ˜· Profile picture
May 12 ā€¢ 8 tweets ā€¢ 10 min read Twitter logo Read on Twitter
2023 #MEAwarenessDay

A šŸ§µ of people with #MyalgicEncephalomyelitis for DECADES

Lives on pause
QoL drastically changed
Whether mild/moderate/severe/very severe ME
We have all been affected

No treatment
No cure
Is this FAIR?

#RingFenced funding needed for #BiomedicalResearch ImageImage

ā€¢ ā€¢ ā€¢

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More from @HappyHoundHouse

Oct 22, 2019
@mecfsbiobank donation #3 appt on Thursday.
Biobank Diary 3:

Tues 13:40 finally packed, showered, dressed.

Ready for train up to the Big Smoke on Weds.

Trying different options, on each occasion, to make the journeys as easy as possible to manage.
HH bounced off to beloved dog sitter, without even a backward glance for Mummy & Daddy HH šŸ˜
Read 20 tweets
May 6, 2019
Well done @therealmecfs for "coping" with participation at @mecfsbiobank and filming too. Hope you are being kind to yourself Jo.

Many of us are on donation #2, my trip (and, funnily enough, also a local ME friend) is tomorrow.

Train for me. Taxi booked 07:45 šŸ˜®
Tea on a train up from the country to the Big Smoke for 2nd donation to @mecfsbiobank

Lovely husband is in charge
Country to City
Read 11 tweets

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