It's M.E. Linda ๐Ÿ’™ ๐Ÿ˜ท Profile picture
2001 PVFS 'Recovered' to 90% by 2006. Sepsis 2013 resulted in M.E. Brain/fitness 'not what it used be'. Beloved Lisnakill Myles-Happy Hound himself๐ŸŒˆ ๐Ÿ’”
May 12, 2023 โ€ข 8 tweets โ€ข 10 min read
2023 #MEAwarenessDay

A ๐Ÿงต of people with #MyalgicEncephalomyelitis for DECADES

Lives on pause
QoL drastically changed
Whether mild/moderate/severe/very severe ME
We have all been affected

No treatment
No cure
Is this FAIR?

#RingFenced funding needed for #BiomedicalResearch ImageImage Cal since 1984 @tweetercal

#MillionsMissing
Thatโ€™s Funding for Biomedical Research & the number of People

#MEAwarenessDay

#MyalgicEncephalomyelitis

#LearnFromME
Oct 22, 2019 โ€ข 20 tweets โ€ข 10 min read
@mecfsbiobank donation #3 appt on Thursday.
Biobank Diary 3:

Tues 13:40 finally packed, showered, dressed.

Ready for train up to the Big Smoke on Weds.

Trying different options, on each occasion, to make the journeys as easy as possible to manage.
HH bounced off to beloved dog sitter, without even a backward glance for Mummy & Daddy HH ๐Ÿ˜
May 6, 2019 โ€ข 11 tweets โ€ข 7 min read
Well done @therealmecfs for "coping" with participation at @mecfsbiobank and filming too. Hope you are being kind to yourself Jo.

Many of us are on donation #2, my trip (and, funnily enough, also a local ME friend) is tomorrow.

Train for me. Taxi booked 07:45 ๐Ÿ˜ฎ Tea on a train up from the country to the Big Smoke for 2nd donation to @mecfsbiobank

Lovely husband is in charge