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charlos Profile picture
@loscharlos
May 18 • 10 tweets • 4 min read Twitter logo Read on Twitter
"Medicine has no answers: there are no diagnostic tests, no drug treatments.. Yet, at the moment it is being acknowledged that #LongCovid is having an impact on the economy, research funding is drying up." thetimes.co.uk/article/resear…
"Professor @Daltmann10.. says research funding bodies have “bailed out of any interest in following through to #LongCovid answers”. There was interest & money during the pandemic & progress has been made. But.. research funding is drying up before any sustainable breakthrough"
"Research funding for all conditions collapsed during the pandemic when funds were diverted to finding Covid vaccines. Now that the acute phase of the pandemic is over, #LongCovid researchers are having to compete with all the other projects caught in the backlog."
"This is a short-sighted approach, just at the time when conditions such as #ME and #LongCovid desperately need innovation, courage and long-term thinking."
"More than 2.5 million people of working age are not in employment because of long-term sickness (in UK)— the highest number recorded..The most common reasons for this.. an increase in people with post-viral fatigue" #LongCovid
"That label covers a lot of those who are suffering from what has become known as #LongCovid, an unexplained condition that bears striking similarities to another poorly understood illness, ME (myalgic encephalomyelitis)."
"Both #LongCovid and ME appear to be triggered by an abnormal bodily reaction to a viral infection & are marked by common symptoms: prolonged and debilitating fatigue.. brain fog and a flare-up of symptoms after mental or physical exertion."
"Hundreds of thousands of people in the UK struggle with these debilitating illnesses. They have to limit their activity and restrict time at school or work. Sufferers can become housebound and dependent on family carers. In the worst cases people die." #LongCovid
If you're not talking about #LongCovid in discussions of getting people back to work, you're completely lost. thetimes.co.uk/article/resear…
H/t @Dakota_150

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More from @loscharlos

charlos Profile picture
May 18
“It is a remarkable drug.. I have a feeling we’ve only scratched the surface of what this drug can do.”

“The advantage of LDN, compared to other anti-inflammatories is that it can enter the brain in large enough quantities to have an effect.” #LongCovid
nationalgeographic.com/premium/articl…
“For conditions such as ME/CFS, which is often triggered by a viral illness, and has many symptoms that overlap with #LongCovid, studies suggest inflammation in the brain is an issue. ‘That’s probably what’s causing the symptoms’ such as brain fog and fatigue.. Younger said”
“‘Overall, it has a great safety profile,’ said Linda Geng, a primary care physician and co-director of the Stanford #LongCovid Clinic. Since LDN is safe and has relatively few side effects, Geng estimates it helps roughly half of her long COVID patients”
Read 14 tweets
charlos Profile picture
May 18
“Mr O’Connell said the Government statement that #LongCovid in kids is rare, and they tend to recover’ was very upsetting for their family.”

“It's not that rare and my kid hasn’t recovered”newstalk.com/news/long-covi…
“He's gone from the first instance with mild symptoms – he recovered but wasn't 100% – to the second time he got it, his symptoms increased dramatically.” #LongCovid
Mr O’Connell said prior to Jake contracting COVID, he was a very energetic young boy.

“Every weekend we were at parks we were [playing] football, we were [playing] Frisbees, we were out and about,” he said. #LongCovid
Read 8 tweets
charlos Profile picture
May 15
“The clots caused by #LongCovid are made of unique proteins.. They're not typical #MicroClots we see with other diseases.. they're made up almost fully of abnormal type of fibrin.. amyloid" — Roy Silverstein, hematologist at Medical College of Wisconsin npr.org/2023/05/10/117…
“All #LongCovid patients Putrino has tested have microclots & hyperactivated platelets, which is something he doesn't commonly see in people who have never had COVID or fully recovered. It's this high level of microclots in LC patients that Putrino thinks might be the biomarker.”
"The spike protein has the capability to change your soluble clotting protein to insoluble little microclots.. @resiapretorius. "So when you have acute COVID you will have activated platelets, you will have vascular damage & endothelial damage” #LongCovid
Read 12 tweets
charlos Profile picture
May 14
New study:

“12-16% children and youth infected with Omicron met the research definition of #LongCovid at 3 and 6 months after infection, with no evidence of difference between cases of first-positive and reinfection”
jpeds.com/article/S0022-…
“Our predominant, & actionable, finding is that children & youth (CYP) with #LongCovid from Omicron (both first infection & reinfection) have a similar profile to CYP with long COVID after infection with other variants & that substantial numbers of CYP are likely to be impacted.”
H/t @ahandvanish
Read 4 tweets
charlos Profile picture
May 11
“A powerful Democratic lawmaker is interrogating the @NIH over its slow progress in addressing #LongCovid, citing a recent STAT investigation into the agency’s lack of urgency.” statnews.com/2023/05/11/esh…
“Rep. Anna Eshoo, House Energy & Commerce health subcommittee’s top Democrat, sent a letter to NIH acting Director Lawrence Tabak on Tuesday highlighting the agency’s delays in enrolling clinical trials, the lack of relief for patients, and…”
“… the exclusion of #LongCovid from the White House’s Next Gen program to accelerate development of Covid-19 vaccines and treatments. The Energy and Commerce Committee is responsible for overseeing the NIH.”
Read 12 tweets
charlos Profile picture
May 11
The updated #LongCovid posters are now up on @SFBART 🚈 !

Thanks @kfrhoads for inviting @LisaAMcCorkell & I to work on this with you, @umojahealth & @patientled

Let’s get more of this everywhere. Image
And shoutout to @haziethompson & @TheExtraFiles for organizing the very successful @LCawarenessInt day — & designing the ribbon.
The main poster text reads:

“Everyone is at risk of #LongCovid, which can last months, years or may be lifelong. Mask up to protect yourself and others”

“Symptoms of Long Covid may include..”

And then a list of LC symptoms.
Read 4 tweets

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