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Clinically Vulnerable Families 💙💜💗

@cv_cev

May 20, 2023 • 14 tweets • 6 min read • Read on X

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@SHSorguk

"We've got parents with chronic health conditions..." Clancy Clonnal from @SHSorguk.

Who'd have thought that the consequences of constant high Covid infections would fall hardest on those most at risk?

Clinically Vulnerable Families have been struggling @NickMartinSKY.

1/

https://twitter.com/SkyNews/status/1659561106317213701

Unfortunately, time and again, our needs have not been considered.

Clinically Vulnerable people have a 5.4x increased risk of Long Covid and an 8.5x increased risk of death (data from the final ONS Covid survey).

Withdrawing protections from schools has hit us hardest.

2/

Our increased risks, without any protections in place, make our lives more difficult and impact our children - even if they are attending school. It is a barrier to attendance and a barrier to learning.

3/

Many Clinically Vulnerable Families no longer feature in official attendance data, as they have been off-rolled, because schools and local authorities do not want their own data blighted.

4/

@samanthajbooth

Clinically Vulnerable Families reject the incredibly distasteful title "Ghost Children".

This article by @samanthajbooth explains in more detail:

5/
schoolsweek.co.uk/dont-call-us-g…

Minimum estimates for Covid Orphans continue to grow.

Because by not protecting our children were are not protecting their households, families and communities.

6/

We have been collecting data,

We hope to share it with the Education Committee Inquiry into attendance, but we have yet to be invited to share our oral evidence.

Even winter pressures on healthcare affected our school attendance.

7/

All children are now frequently getting sick with Covid itself, as it remains in high prevalence year-round. This also has a direct impact on attendance figures.

Whilst some people may be asymptomatic, others can take a long time to recover - if they ever do...

8/

Children are developing post-viral conditions such as T1 diabetes which make them Clinically Vulnerable.

And highly vulnerable children are now locked out of high demand special schools due to a shortfall in provision.

However, there is something they could do...

9/

And it isn't recycling the old "Schools Bill" to crack down harder on struggling parents.

Because fines, prosecutions, social services referrals, and school attendance orders are blunt instruments, which only make matters worse and won't fix our problem.

10/

All we are asking for is a safe learning environment. It is a very simple and basic request.

Because even those who are in school are struggling. How can children learn or perform when 'personal responsibility' means that they are constantly managing risk?

11/

💙 We want to *live* with Covid
💜 #educationANDlives are essentials
💗 Everyone needs safe schools

Let's invest in health. Air filtration can reduce the risks for everyone.

By reducing Covid, 'flu, Strep A. & RSV we improve pupil & staff attendance and community health.

12/

Join us in the unmentionable place to find the most supportive community and to contribute to our attendance survey:

Search for : Clinically Vulnerable Families

Additionally, please complete the DfE survey requesting evidence on children missing from education.

⬇️⬇️⬇️
consult.education.gov.uk/vulnerable-chi…
⬆️⬆️⬆️

14/

https://twitter.com/LongCovidKids/status/1659827897681551360?t=dmjsBOA6tA5fgrcjukdubQ&s=19

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More from @cv_cev

Clinically Vulnerable Families 💙💜💗

@cv_cev

Feb 25

This 3yr anniversary that won't be in the news!

When the UK government rolled out the "Living with Covid" policy it simply scrapped protections and shifted to personal responsibility. For most, it meant "back to normal." For Clinically Vulnerable people, life became harder.
1/🧵

The plan was based on a single assumption: that vaccines alone would be enough... vaccines due to be withdrawn this Autumn.

But for millions who are Clinically Vulnerable, vaccines weren’t a magic bullet. Protection wasn’t universal and some were left with little to none.

2/

😀Mask mandates ended
📥Free tests were phased out
👩‍👩‍👧‍👦Self-isolation was no longer required

Covid was treated as a personal problem, not a public health issue. If you got sick, you were on your own.

3/

Read 11 tweets

Clinically Vulnerable Families 💙💜💗

@cv_cev

Feb 18

😅CVF are relieved to announce that we will be representing you in the final section of the UK Covid-19 Inquiry looking at the 𝗜𝗺𝗽𝗮𝗰𝘁 𝗼𝗻 𝗦𝗼𝗰𝗶𝗲𝘁𝘆.

It will consider the effects on keyworkers, vulnerable populations, bereaved, & mental health.

1/12 *Stick with this*

Protective measures were often described as "restrictions" and the lifting of measures described as the return of "freedom".

2/

🚗 Seatbelts were once seen as a "restriction" by some, but today with evidence & awareness, they are now considered essential for safety.

💨😷 The Covid pandemic was a missed opportunity to normalise airborne protections that protect health and save lives.

3/

Read 12 tweets

Clinically Vulnerable Families 💙💜💗

@cv_cev

Jan 31

🚨Clinically Vulnerable Families 💙💜💗

Our oral closing statement highlights 5 key concerns - however, further details will be explored in depth in our later written submissions.

1: Therapeutics programme - wasn't good enough!

1/

The immunosuppressed were left behind.

2/

What could we have done better?

Dame Kate Bingham is an independent and trusted voice. She has no reasons to defend decisions on therapeutics that weren't the right ones.

3/

Read 26 tweets

Clinically Vulnerable Families 💙💜💗

@cv_cev

Jan 29

🚨Prof Sir Pirmohamed

"Would you support the development of a more diverse portfolio of vaccine formats and antivirals, both as part of future pandemic preparedness plans and during [.] 'peace time' to ensure that Clinically Vulnerable groups are adequately protected?"

1/

"Absolutely, I think it is really important to make sure that we have good therapeutics and vaccines for the whole population."

2/

Q - Why is it important to have that breadth of formats?

...not many [immunosuppressed] were involved in the initial trials.

We now know [.] that booster doses help in terms of vaccine efficacy.

2/

Read 5 tweets

Clinically Vulnerable Families 💙💜💗

@cv_cev

Jan 23

🚨JCVI - Wei Shen Lim🚨

Find out more about what led to his reaction below ⬇️

1/🧵

Do you agree that mRNA COVID-19 vaccine protection has been shown to wane after 5-6m?
WSL: Yes

Covid-19 has not transitioned into a seasonal virus like influenza?
WSL: Yes

If so, why did the JCVI not recommend more frequent vaccinations for all clinically vulnerable groups?

2/

To explain:
"Clinically Vulnerable" is defined by the JCVI in the vaccine Green Book. They are all those who qualify for annual autumn vaccines based on risk.

A small subset are also offered vaccines in spring. Those 75+, care home residents and severely immunosuppressed.
3/

Read 6 tweets

Clinically Vulnerable Families 💙💜💗

@cv_cev

Jan 21

🚨Dame Kate Bingham🚨
Dubbed the "hero in a pink jacket 💕"

On Evusheld:
"I felt very strongly [.]. We were following a very clear 2 tier strategy where the CV immunocompromised were being deprioritised [.] I felt that was *manifestly* wrong both ethically and morally [.]"
1/🧵

The above video was taken out of sequence. The below should give more context...

KB "So actually, the first goal was around protecting the UK population."

CTI [Hugo Keith KC]
"Do you think you succeeded on securing or making available those monoclonal antibodies?"

KB "No!"
2/