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Clinically Vulnerable Families 💙💜💗 Profile picture
@cv_cev
May 20, 2023 • 14 tweets • 6 min read • Read on X
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"We've got parents with chronic health conditions..." Clancy Clonnal from @SHSorguk.

Who'd have thought that the consequences of constant high Covid infections would fall hardest on those most at risk?

Clinically Vulnerable Families have been struggling @NickMartinSKY.

1/
Unfortunately, time and again, our needs have not been considered.

Clinically Vulnerable people have a 5.4x increased risk of Long Covid and an 8.5x increased risk of death (data from the final ONS Covid survey).

Withdrawing protections from schools has hit us hardest.

2/ GHOST CHILDREN 22.3% of pup...
Our increased risks, without any protections in place, make our lives more difficult and impact our children - even if they are attending school. It is a barrier to attendance and a barrier to learning.

3/ Primary school was very sup...
Many Clinically Vulnerable Families no longer feature in official attendance data, as they have been off-rolled, because schools and local authorities do not want their own data blighted.

4/ We were forced to deregiste...
Clinically Vulnerable Families reject the incredibly distasteful title "Ghost Children".

This article by @samanthajbooth explains in more detail:

5/
 schoolsweek.co.uk/dont-call-us-g…
Minimum estimates for Covid Orphans continue to grow.

Because by not protecting our children were are not protecting their households, families and communities.

6/ Orphanhood estimates: 16,10...
We have been collecting data,

We hope to share it with the Education Committee Inquiry into attendance, but we have yet to be invited to share our oral evidence.

Even winter pressures on healthcare affected our school attendance.

7/ 75% of Clinically Vulnerabl...
All children are now frequently getting sick with Covid itself, as it remains in high prevalence year-round. This also has a direct impact on attendance figures.

Whilst some people may be asymptomatic, others can take a long time to recover - if they ever do...

8/ It has been incredibly diff...
Children are developing post-viral conditions such as T1 diabetes which make them Clinically Vulnerable.

And highly vulnerable children are now locked out of high demand special schools due to a shortfall in provision.

However, there is something they could do...

9/ We were forced to de-regist...
And it isn't recycling the old "Schools Bill" to crack down harder on struggling parents.

Because fines, prosecutions, social services referrals, and school attendance orders are blunt instruments, which only make matters worse and won't fix our problem.

10/ Although both parents kept ...
All we are asking for is a safe learning environment. It is a very simple and basic request.

Because even those who are in school are struggling. How can children learn or perform when 'personal responsibility' means that they are constantly managing risk?

11/ My son is doing GCSEs right...
💙 We want to *live* with Covid
💜 #educationANDlives are essentials
💗 Everyone needs safe schools

Let's invest in health. Air filtration can reduce the risks for everyone.

By reducing Covid, 'flu, Strep A. & RSV we improve pupil & staff attendance and community health.

12/ harassment unmitigated ostr...
Join us in the unmentionable place to find the most supportive community and to contribute to our attendance survey:

Search for : Clinically Vulnerable Families FB group: Clinically Vulne...
Additionally, please complete the DfE survey requesting evidence on children missing from education.

⬇️⬇️⬇️
consult.education.gov.uk/vulnerable-chi…
⬆️⬆️⬆️

14/

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More from @cv_cev

Clinically Vulnerable Families 💙💜💗 Profile picture
Feb 26
🚨 NEW DfE GUIDANCE
- VENTILATION & AIR QUALITY -

Clean air matters - especially for #ClinicallyVulnerable children, staff and families. This is an important recognition that airborne transmission is preventable.

1/ Image
But the proposed CO₂ thresholds are too high. 800ppm should be the upper limit - not 1500ppm. By 1500ppm, air is already significantly rebreathed. That’s not a precautionary standard for children, let alone those at higher risk.



2/gov.uk/government/pub…
If we’ve learned anything from the pandemic, it’s that minimum compliance is not the same as safety. #ClinicallyVulnerable pupils cannot “choose” lower exposure if the baseline standard is poor.

3/
Read 8 tweets
Clinically Vulnerable Families 💙💜💗 Profile picture
Feb 25
🚨FINAL CVF EVIDENCE

We would encourage you to watch @lara_wong 's inquiry evidence in full.

However, out amazing team have clipped these extracts for you!

1/
CVF's Survey

In the summer of 2025, CVF gathered in depth survey evidence about the impacts of the pandemic on CV households - which has now been shared multiple times to inquiry experts and others.

2/
People were commonly told that

"They should hurry up and die so that they could get their lives back."

3/
Read 31 tweets
Clinically Vulnerable Families 💙💜💗 Profile picture
Feb 18
🚨 Profs Herrick & @Azeem_Majeed on clinical vulnerability

We are grateful that data collected by CVF (last year) was used by @covidinquiryuk to highlight some of the ongoing impacts faced by Clinically Vulnerable people.

1/
You can have a sneak (advanced) peak at @lara_wong's witness statement on behalf of Clinically Vulnerable Families...

Many and varied consequences (relating to mental health) were identified.
2/
Long term mental health impacts persist to this day.

3/
Read 7 tweets
Clinically Vulnerable Families 💙💜💗 Profile picture
Jan 23
⚠️⚠️⚠️
Don't scroll past without 💕 + ♻️... 🙏
👇👇👇

- Can you help us to help you?

If you value our work at the C○vid Inquiry and beyond, your continued support is vital.

1/ Clean Air & Safer Access United Kingdom St Thomas' Hospital LEARN to LIVE with COVID #CLEANAIR HIGHLIGHTED: Another way to help CVF Arrow to start your own crowdfunder. Clinically Vulnerable Families CIC About the project owner Aim We urgently need your help to support families by improv providing vital support, and advocating for freedoms. access, £380 Target: £15,000 2% 4 supporters 42 days left Donate Share Help them get starte Your support makes a difference Become a fundraiser for Clean Air & Safer Access Start fundraising for this cause →
It is hard to explain how much effort has gone in over the past few years to raise understanding and awareness of issues amplified the emerge of C○vid.

2/ #ProtectVulnerableProtesters CVF logo Image of a masked protester
We have participated in NICE as stakeholders and the inquiry as Core Participants (as the only group representing Clinically Vulnerable people).

📉📊 We have collected evidence as data and thousands of 💬 impact statements from people.

3/ Clinically Vulnerable Families represent you as a Stakeholder in the NICE appraisals of Evusheld & Antivirals We can: NICE Comment Give Evidence Consult on Draft Guidance
Clinically Vulnerable Families have been designated as Core Participants in the UK Covid-19 Inquiry We can: Access Evidence Make opening & closing statements Ask the witnesses questions
Read 8 tweets
Clinically Vulnerable Families 💙💜💗 Profile picture
Jan 21
🚨'Can You Keep a Secret?'. The BBC response is below in full.

In short, it essentially says:
“It’s farcical, sorry we offended you, we’ve noted your complaint.”

BUT if you (like us) aren't unhappy with this response, here is our next move... 🧵

1/ Thank you for contacting us regarding episode one of 'Can You Keep a Secret?' 'Can You Keep a Secret?' is an adult, farcical and offbeat comedy that follows a couple, William and Debbie, who commit insurance fraud after William takes too much of his medication, is left unconscious, and is mistakenly declared dead. There was never any intention to make light of infection control or to trivialise the real challenges faced by those affected by Covid-19, including those who are clinically vulnerable. In the scene in question, their son Harry has just learned that his father is still alive, an...
Their response dodges the point.
Because the problem really wasn’t that “I didn’t get the joke”.

The problem is who the joke is aimed at and what it encourages most people to laugh at.

2/ Image
If the punchline is “PPE / precautions = anxious / ridiculous” then people who still need precautions (Clinically Vulnerable people) are the collateral damage.

So it is not about “offence” but creating stigma.

3/ Image
Read 10 tweets
Clinically Vulnerable Families 💙💜💗 Profile picture
Jan 8
Hi @bbccomedy.

We need to talk about the new @Dawn_French “comedy” series that implies that infection control is a joke.

This is a serious issue, particularly for Clinically Vulnerable people who remain at increased risk, and we are not laughing.
1/
In the first episode, a GP appears in a dramatic “protective outfit” and face shield, and we’re told it’s because “since Covid” they’ve developed “very, very, very bad health anxiety.”

2/ Image of doctor in white coveralls, gloves and a face shield pulling a face and grabbing the sides of the face shield whilst failing to examine a patient effectively.
Then the doctor refuses to get close to the patient, barely touches a wrist, and incorrectly declares them dead.

It invites audiences to mock precautions (during the current flu wave) and suggests that doctors who take measures are less competent.

3/ The doctor briefly grabs the patient's wrist...
Before rapidly pulling their hand away and dropping their arm. Failing to take a pulse, but then declaring the patient dead.
Read 11 tweets

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