Share this page!

Enter URL or ID to Unroll

You can paste full URL like: https://x.com/threadreaderapp/status/1644127596119195649
or just the ID like: 1644127596119195649

How to get URL link on X (Twitter) App

  1. On the Twitter thread, click on or icon on the bottom
  2. Click again on or Share Via icon
  3. Click on Copy Link to Tweet
  4. Paste it above and click "Unroll Thread"!
  5. More info at Twitter Help
Clinically Vulnerable Families 💙💜💗 Profile picture
@cv_cev
May 20, 2023 • 14 tweets • 6 min read • Read on X
Scrolly
"We've got parents with chronic health conditions..." Clancy Clonnal from @SHSorguk.

Who'd have thought that the consequences of constant high Covid infections would fall hardest on those most at risk?

Clinically Vulnerable Families have been struggling @NickMartinSKY.

1/
Unfortunately, time and again, our needs have not been considered.

Clinically Vulnerable people have a 5.4x increased risk of Long Covid and an 8.5x increased risk of death (data from the final ONS Covid survey).

Withdrawing protections from schools has hit us hardest.

2/ GHOST CHILDREN 22.3% of pup...
Our increased risks, without any protections in place, make our lives more difficult and impact our children - even if they are attending school. It is a barrier to attendance and a barrier to learning.

3/ Primary school was very sup...
Many Clinically Vulnerable Families no longer feature in official attendance data, as they have been off-rolled, because schools and local authorities do not want their own data blighted.

4/ We were forced to deregiste...
Clinically Vulnerable Families reject the incredibly distasteful title "Ghost Children".

This article by @samanthajbooth explains in more detail:

5/
 schoolsweek.co.uk/dont-call-us-g…
Minimum estimates for Covid Orphans continue to grow.

Because by not protecting our children were are not protecting their households, families and communities.

6/ Orphanhood estimates: 16,10...
We have been collecting data,

We hope to share it with the Education Committee Inquiry into attendance, but we have yet to be invited to share our oral evidence.

Even winter pressures on healthcare affected our school attendance.

7/ 75% of Clinically Vulnerabl...
All children are now frequently getting sick with Covid itself, as it remains in high prevalence year-round. This also has a direct impact on attendance figures.

Whilst some people may be asymptomatic, others can take a long time to recover - if they ever do...

8/ It has been incredibly diff...
Children are developing post-viral conditions such as T1 diabetes which make them Clinically Vulnerable.

And highly vulnerable children are now locked out of high demand special schools due to a shortfall in provision.

However, there is something they could do...

9/ We were forced to de-regist...
And it isn't recycling the old "Schools Bill" to crack down harder on struggling parents.

Because fines, prosecutions, social services referrals, and school attendance orders are blunt instruments, which only make matters worse and won't fix our problem.

10/ Although both parents kept ...
All we are asking for is a safe learning environment. It is a very simple and basic request.

Because even those who are in school are struggling. How can children learn or perform when 'personal responsibility' means that they are constantly managing risk?

11/ My son is doing GCSEs right...
💙 We want to *live* with Covid
💜 #educationANDlives are essentials
💗 Everyone needs safe schools

Let's invest in health. Air filtration can reduce the risks for everyone.

By reducing Covid, 'flu, Strep A. & RSV we improve pupil & staff attendance and community health.

12/ harassment unmitigated ostr...
Join us in the unmentionable place to find the most supportive community and to contribute to our attendance survey:

Search for : Clinically Vulnerable Families FB group: Clinically Vulne...
Additionally, please complete the DfE survey requesting evidence on children missing from education.

⬇️⬇️⬇️
consult.education.gov.uk/vulnerable-chi…
⬆️⬆️⬆️

14/

• • •

Missing some Tweet in this thread? You can try to force a refresh
　

Keep Current with Clinically Vulnerable Families 💙💜💗

Clinically Vulnerable Families 💙💜💗 Profile picture

Stay in touch and get notified when new unrolls are available from this author!

Read all threads

This Thread may be Removed Anytime!

PDF

Twitter may remove this content at anytime! Save it as PDF for later use!

Try unrolling a thread yourself!

how to unroll video
  1. Follow @ThreadReaderApp to mention us!

  2. From a Twitter thread mention us with a keyword "unroll"
@threadreaderapp unroll

Practice here first or read more on our help page!

More from @cv_cev

Clinically Vulnerable Families 💙💜💗 Profile picture
Jan 23
⚠️⚠️⚠️
Don't scroll past without 💕 + ♻️... 🙏
👇👇👇

- Can you help us to help you?

If you value our work at the C○vid Inquiry and beyond, your continued support is vital.

1/ Clean Air & Safer Access United Kingdom St Thomas' Hospital LEARN to LIVE with COVID #CLEANAIR HIGHLIGHTED: Another way to help CVF Arrow to start your own crowdfunder. Clinically Vulnerable Families CIC About the project owner Aim We urgently need your help to support families by improv providing vital support, and advocating for freedoms. access, £380 Target: £15,000 2% 4 supporters 42 days left Donate Share Help them get starte Your support makes a difference Become a fundraiser for Clean Air & Safer Access Start fundraising for this cause →
It is hard to explain how much effort has gone in over the past few years to raise understanding and awareness of issues amplified the emerge of C○vid.

2/ #ProtectVulnerableProtesters CVF logo Image of a masked protester
We have participated in NICE as stakeholders and the inquiry as Core Participants (as the only group representing Clinically Vulnerable people).

📉📊 We have collected evidence as data and thousands of 💬 impact statements from people.

3/ Clinically Vulnerable Families represent you as a Stakeholder in the NICE appraisals of Evusheld & Antivirals We can: NICE Comment Give Evidence Consult on Draft Guidance
Clinically Vulnerable Families have been designated as Core Participants in the UK Covid-19 Inquiry We can: Access Evidence Make opening & closing statements Ask the witnesses questions
Read 8 tweets
Clinically Vulnerable Families 💙💜💗 Profile picture
Jan 21
🚨'Can You Keep a Secret?'. The BBC response is below in full.

In short, it essentially says:
“It’s farcical, sorry we offended you, we’ve noted your complaint.”

BUT if you (like us) aren't unhappy with this response, here is our next move... 🧵

1/ Thank you for contacting us regarding episode one of 'Can You Keep a Secret?' 'Can You Keep a Secret?' is an adult, farcical and offbeat comedy that follows a couple, William and Debbie, who commit insurance fraud after William takes too much of his medication, is left unconscious, and is mistakenly declared dead. There was never any intention to make light of infection control or to trivialise the real challenges faced by those affected by Covid-19, including those who are clinically vulnerable. In the scene in question, their son Harry has just learned that his father is still alive, an...
Their response dodges the point.
Because the problem really wasn’t that “I didn’t get the joke”.

The problem is who the joke is aimed at and what it encourages most people to laugh at.

2/ Image
If the punchline is “PPE / precautions = anxious / ridiculous” then people who still need precautions (Clinically Vulnerable people) are the collateral damage.

So it is not about “offence” but creating stigma.

3/ Image
Read 10 tweets
Clinically Vulnerable Families 💙💜💗 Profile picture
Jan 8
Hi @bbccomedy.

We need to talk about the new @Dawn_French “comedy” series that implies that infection control is a joke.

This is a serious issue, particularly for Clinically Vulnerable people who remain at increased risk, and we are not laughing.
1/
In the first episode, a GP appears in a dramatic “protective outfit” and face shield, and we’re told it’s because “since Covid” they’ve developed “very, very, very bad health anxiety.”

2/ Image of doctor in white coveralls, gloves and a face shield pulling a face and grabbing the sides of the face shield whilst failing to examine a patient effectively.
Then the doctor refuses to get close to the patient, barely touches a wrist, and incorrectly declares them dead.

It invites audiences to mock precautions (during the current flu wave) and suggests that doctors who take measures are less competent.

3/ The doctor briefly grabs the patient's wrist...
Before rapidly pulling their hand away and dropping their arm. Failing to take a pulse, but then declaring the patient dead.
Read 11 tweets
Clinically Vulnerable Families 💙💜💗 Profile picture
Dec 8, 2025
🥳 This is a HUGE win for CVF!

- Safe access to public buildings is a right!

As a consequence of our advocacy, national voting guidance has been updated to:
✅ Improve ventilation
✅ Add air filters
✅ “See a mask, wear a mask”

* VERY IMPORTANT THREAD *
PLEASE SHARE!
1/ Support for clinically vulnerable electors - alongside increasing ventilation of the room either through opening windows or doors or using HEPA filters where windows or doors cannot be kept open, you can ensure face masks are provided for polling station staff to use (using see a mask, wear a mask as a basis) and promote the use of social distancing when interacting with clinically vulnerable voters. Your staff training should cover how you can offer to conduct photographic ID checks for mask wearers, including whether checks could be conducted outside for these voters if photographic ID is...
6 years since Covid emerged, we are finally making important changes... thanks to your help!

The new guidance not only recognises our needs - due to heightened health risks - but also the risks posed by mask removal.

2/ polling station staff not having awareness of health risks when asking a clinically vulnerable voter to remove a face mask in order to check photographic ID The Electoral Commission
Why is this so important?

- It is the first national guidance to address our issues directly.... and it sets an important precedent that we plan to build on!

3/ Read more:
clinicallyvulnerable.org/post/how-clini…
Read 7 tweets
Clinically Vulnerable Families 💙💜💗 Profile picture
Dec 3, 2025
A letter just landed on Baroness Hallett’s desk from CATA (Covid Airborne Transmission Alliance).

If you are a patient, an NHS worker, or Clinically Vulnerable... or you want to see safety measures updated - you need to see this!

1/
The Covid Inquiry is there to help us to learn lessons and change how we plan for pandemics.

But, NHS England quietly published a strategy (July '24) that says:

it will not be possible to halt the spread of a new pandemic virus, and it would be a waste... to attempt to do so
2/ See Appendix 5 https://www.england.nhs.uk/long-read/framework-for-managing-the-response-to-pandemic-diseases/#appendix-5-planning-assumptions
That clashes with Hallett’s recommendation:

"risk assessment that moves away... reasonable worst-case scenarios towards... a wider range of scenarios"

But their plan assumes mass infection is inevitable and acceptable.

For some, it isn’t survivable!
3/
Read 11 tweets
Clinically Vulnerable Families 💙💜💗 Profile picture
Nov 8, 2025
🧵 This autumn the UKHSA is rightly worried, as 'flu is a real risk...

TLDR:
Clinically Vulnerable people ALL need 'flu vaccines + antivirals this year (if symptomatic or exposed) + confused infection control guidance.

If you are Clinically Vulnerable, please read on...

1/ Graph showing the early rise of flu in the UK.
This year's strains aren't looking good:

The infections have started earlier.
A(H3N2) strains are dominant - and linked to worse outcomes.
A shifted strain (slightly different to vaccines) is also doing the rounds.

2/ Summary: Influenza is now circulating in the community with earlier than usual onset of activity in the 2025 to 2026 season, and with an A(H3N2) drifted strain (K, also known as J.2.4.1) predominating A(H3N2) predominance is associated with higher morbidity and mortality, particularly in the elderly, than when A(H1N1) predominates All eligible groups should be encouraged to get vaccinated with the 2025 to 2026 seasonal influenza vaccine as soon as possible Prompt antiviral post exposure prophylaxis and treatment for seasonal influenza should be offered to eligible groups Antivirals gui...
If you have been invited for a vaccine, or live with a Clinically Vulnerable person (but don't qualify) please consider getting a vaccine - they can be as cheap as £9.95.

Everyone benefits from 'flu vaccines and children (up to 16) are offered them for free in school.

3/ Image of a banner outside a shop. A pharmacist is on the picture. She is has black straight hair, brown eyes, a big smile and is wearing a cream suit jacket with a staff badge. Superdrug *REMINDER!!! IT'S FLU VACCINATION SEASON Flu Jab Service provided by our healthcare professionals Noyne Pharmacist MEMBER PRICE £9.95 NORMAL PRICE £19.95 MEMBERS SAVE MORE Service available here Help protect yourself against several strains of the flu this season with one simple visit in-store. وو
Read 10 tweets

Did Thread Reader help you today?

Support us! We are indie developers!

This site is made by just two indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3/month or $30/year) and get exclusive features!

Become Premium

Don't want to be a Premium member but still want to support us?

Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal

Or Donate anonymously using crypto!

Ethereum

0xfe58350B80634f60Fa6Dc149a72b4DFbc17D341E copy

Bitcoin

3ATGMxNzCUFzxpMCHL5sWSt4DVtS8UqXpi copy

Thank you for your support!

Follow Us!

Send Email!

:(