"We've got parents with chronic health conditions..." Clancy Clonnal from @SHSorguk.

Who'd have thought that the consequences of constant high Covid infections would fall hardest on those most at risk?

Clinically Vulnerable Families have been struggling @NickMartinSKY.

1/
Unfortunately, time and again, our needs have not been considered.

Clinically Vulnerable people have a 5.4x increased risk of Long Covid and an 8.5x increased risk of death (data from the final ONS Covid survey).

Withdrawing protections from schools has hit us hardest.

2/ GHOST CHILDREN 22.3% of pup...
Our increased risks, without any protections in place, make our lives more difficult and impact our children - even if they are attending school. It is a barrier to attendance and a barrier to learning.

3/ Primary school was very sup...
Many Clinically Vulnerable Families no longer feature in official attendance data, as they have been off-rolled, because schools and local authorities do not want their own data blighted.

4/ We were forced to deregiste...
Clinically Vulnerable Families reject the incredibly distasteful title "Ghost Children".

This article by @samanthajbooth explains in more detail:

5/
schoolsweek.co.uk/dont-call-us-g…
Minimum estimates for Covid Orphans continue to grow.

Because by not protecting our children were are not protecting their households, families and communities.

6/ Orphanhood estimates: 16,10...
We have been collecting data,

We hope to share it with the Education Committee Inquiry into attendance, but we have yet to be invited to share our oral evidence.

Even winter pressures on healthcare affected our school attendance.

7/ 75% of Clinically Vulnerabl...
All children are now frequently getting sick with Covid itself, as it remains in high prevalence year-round. This also has a direct impact on attendance figures.

Whilst some people may be asymptomatic, others can take a long time to recover - if they ever do...

8/ It has been incredibly diff...
Children are developing post-viral conditions such as T1 diabetes which make them Clinically Vulnerable.

And highly vulnerable children are now locked out of high demand special schools due to a shortfall in provision.

However, there is something they could do...

9/ We were forced to de-regist...
And it isn't recycling the old "Schools Bill" to crack down harder on struggling parents.

Because fines, prosecutions, social services referrals, and school attendance orders are blunt instruments, which only make matters worse and won't fix our problem.

10/ Although both parents kept ...
All we are asking for is a safe learning environment. It is a very simple and basic request.

Because even those who are in school are struggling. How can children learn or perform when 'personal responsibility' means that they are constantly managing risk?

11/ My son is doing GCSEs right...
💙 We want to *live* with Covid
💜 #educationANDlives are essentials
💗 Everyone needs safe schools

Let's invest in health. Air filtration can reduce the risks for everyone.

By reducing Covid, 'flu, Strep A. & RSV we improve pupil & staff attendance and community health.

12/ harassment unmitigated ostr...
Join us in the unmentionable place to find the most supportive community and to contribute to our attendance survey:

Search for : Clinically Vulnerable Families FB group:  Clinically Vulne...
Additionally, please complete the DfE survey requesting evidence on children missing from education.

⬇️⬇️⬇️
consult.education.gov.uk/vulnerable-chi…
⬆️⬆️⬆️

14/

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More from @cv_cev

Nov 16
Who will get a Covid booster in 2025? Far fewer than before...

The JCVI decision means that Clinically Vulnerable people u70 and who aren't immunosuppressed lose access.

“Cost-effectiveness” prioritised over protection.

NEW CONCERNING STUDY 👇

1/🧵 Adult eligibility  Adult eligibility should be based on the willingness-to-pay approach that is subject to procurement and delivery at a cost-effective price. The advice for universal vaccination from age 75 years is an example. JCVI has no role in the procurement or delivery of COVID-19 vaccines or any other vaccine.
Until now, Covid vaccine policy prioritised protecting 'at risk' groups.

Their approach focuses on “cost-effectiveness,” raising age thresholds. Not providing vaccine protection to younger Clinically Vulnerable. It’s a deeply worrying change.

This data may have been used.
2/ Fig. 3: Using data from the spring and autumn 2023 boosters and the 2023/24 winter wave of COVID-19, vaccine threshold prices stratified by age-group, risk-group and modelling approach.  We calculate the vaccine threshold price for the two time periods (top row: winter 2023/24; bottom row: spring 2023), 16 age groups (y-axis), three risk groups (panels) and five methodologies (red, dark-blue, light-blue, grey and black). Dots show the most likely value assuming £20,000 per QALY; when assuming £30,000 per QALY the extended bar-and-whisker plots show the 95%, 80% and 50% credible intervals co...
Younger Clinically Vulnerable people e.g. those with chronic heart failure, COPD, or diabetes could be excluded.

The study admits data for our group is limited, meaning the most at-risk could fall through the cracks.

*It is unclear if the study was used in decision-making.*

3/ Image
Read 17 tweets
Nov 10
🚨COVID INQUIRY ROUND UP (Wk 7)

Rosemary Gallagher MBE (Professional Lead for Infection Prevention and Control at the Royal College of Nursing) supported non-IP specialists e.g. aerosols experts "shaping guidance".

1/
"If Covid-19 was, in fact, airborne [.] it had implications for infection prevention and control guidance [.]"

"What was the NHS estate going to do to make it safe?"

"Improving the ventilation or looking at other technologies [.]."
2/
Next, possibly the best quote from Baroness Hallett this week:

3/
Read 10 tweets
Nov 6
Questioning Jenny Harries is "like pinning jelly to a wall", according to one CVF💙💜💗 member!

Thanks @AdamWagner1 for trying!
🧱🍮🔨

"People should be enabled to wear what they wish, as long as it's safe."
"FRSMs recommended because of issues of handling and fit-testing."
1/
Would you agree that FFP3 masks, if fit-tested, mean that the Clinically Vulnerable patient *is* safer, they don't just "feel safer"[.]?

🔨 'Hierarchy of controls'
🍮 Don't want to tell people - no harm
🧱 Difference feeling safe and effective PPE. Equally support FRSM

2/
"The evidence of effectiveness between FFP3s and FRSMs in clinical use is very, very small."

3/
Read 6 tweets
Oct 29
♻️ RETWEET if you think that Clinically Vulnerable people (those at the most risk from Covid) were economically impacted by the pandemic. ♻️

The @covidinquiryuk rejected us for this module, leaving us with * NO VOICE * !!!!

1/ Image
Image
Clinically Vulnerable (CV) people and their families faced, and in many cases continue to face, enormous economic strain.

For many, shielding was the only safe option, but it came with serious costs—lost jobs, reduced hours, and in many cases, the inability to work at all.

2/ 82%  of Clinically Vulnerable households lost work or retired early due to high Covid risks  [Poll of 364 Clinically Vulnerable people March 2024]  Clinically Vulnerable Families
Without protections, CV people and their families couldn’t simply return to “business as usual” as measures lifted.

Many continued shielding, at their own expense, as they were unable to risk exposure. For some, this meant months / even years out of the workforce.

3/ #CVVoices
Read 9 tweets
Oct 8
💥Clinically Vulnerable Families 💥

Quite a moment as Dr Catherine Finnis take the stand as volunteer deputy leader of CVF.

1/ FOLLOW THIS THREAD Dr Catherine Finnis swears in
A brief introduction to CVF

We were founded due to the risks in schools, but the inquiry is focused on the risks in healthcare in this module.

2/
One of the benefits of the shielding programme:

"was that you had a passport through that shielding letter to enable you to work from home."

3/
Read 34 tweets
Oct 6
🚨COVID INQUIRY ROUND UP (Wk 4)
Due to sickness, this week of evidence ended early.

CMO 🏴󠁧󠁢󠁷󠁬󠁳󠁿
Impact witnesses:
Ambulance, GPs, Intensive Care
Former medical director of WHSCT
National Ambulance Adviser NHS England
Intensive Care Experts and witnesses

1/
🏴󠁧󠁢󠁷󠁬󠁳󠁿 The Welsh CMO, Sir Frank Atherton, spoke about "broadly accepting" advice from the now highly contentious 'IPC cell' led by Dr Lisa Ritchie.

2/
The term "precautionary principle" has now been redefined within the inquiry multiple times to suit different people's purposes.

This is CMO 🏴󠁧󠁢󠁷󠁬󠁳󠁿's interpretation.

3/
Read 11 tweets

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