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Clinically Vulnerable Families 💙💜💗

@cv_cev

May 20, 2023 • 14 tweets • 6 min read • Read on X

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@SHSorguk

"We've got parents with chronic health conditions..." Clancy Clonnal from @SHSorguk.

Who'd have thought that the consequences of constant high Covid infections would fall hardest on those most at risk?

Clinically Vulnerable Families have been struggling @NickMartinSKY.

1/

https://twitter.com/SkyNews/status/1659561106317213701

Unfortunately, time and again, our needs have not been considered.

Clinically Vulnerable people have a 5.4x increased risk of Long Covid and an 8.5x increased risk of death (data from the final ONS Covid survey).

Withdrawing protections from schools has hit us hardest.

2/

Our increased risks, without any protections in place, make our lives more difficult and impact our children - even if they are attending school. It is a barrier to attendance and a barrier to learning.

3/

Many Clinically Vulnerable Families no longer feature in official attendance data, as they have been off-rolled, because schools and local authorities do not want their own data blighted.

4/

@samanthajbooth

Clinically Vulnerable Families reject the incredibly distasteful title "Ghost Children".

This article by @samanthajbooth explains in more detail:

5/
schoolsweek.co.uk/dont-call-us-g…

Minimum estimates for Covid Orphans continue to grow.

Because by not protecting our children were are not protecting their households, families and communities.

6/

We have been collecting data,

We hope to share it with the Education Committee Inquiry into attendance, but we have yet to be invited to share our oral evidence.

Even winter pressures on healthcare affected our school attendance.

7/

All children are now frequently getting sick with Covid itself, as it remains in high prevalence year-round. This also has a direct impact on attendance figures.

Whilst some people may be asymptomatic, others can take a long time to recover - if they ever do...

8/

Children are developing post-viral conditions such as T1 diabetes which make them Clinically Vulnerable.

And highly vulnerable children are now locked out of high demand special schools due to a shortfall in provision.

However, there is something they could do...

9/

And it isn't recycling the old "Schools Bill" to crack down harder on struggling parents.

Because fines, prosecutions, social services referrals, and school attendance orders are blunt instruments, which only make matters worse and won't fix our problem.

10/

All we are asking for is a safe learning environment. It is a very simple and basic request.

Because even those who are in school are struggling. How can children learn or perform when 'personal responsibility' means that they are constantly managing risk?

11/

💙 We want to *live* with Covid
💜 #educationANDlives are essentials
💗 Everyone needs safe schools

Let's invest in health. Air filtration can reduce the risks for everyone.

By reducing Covid, 'flu, Strep A. & RSV we improve pupil & staff attendance and community health.

12/

Join us in the unmentionable place to find the most supportive community and to contribute to our attendance survey:

Search for : Clinically Vulnerable Families

Additionally, please complete the DfE survey requesting evidence on children missing from education.

⬇️⬇️⬇️
consult.education.gov.uk/vulnerable-chi…
⬆️⬆️⬆️

14/

https://twitter.com/LongCovidKids/status/1659827897681551360?t=dmjsBOA6tA5fgrcjukdubQ&s=19

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More from @cv_cev

Clinically Vulnerable Families 💙💜💗

@cv_cev

Dec 8

🥳 This is a HUGE win for CVF!

- Safe access to public buildings is a right!

As a consequence of our advocacy, national voting guidance has been updated to:
✅ Improve ventilation
✅ Add air filters
✅ “See a mask, wear a mask”

* VERY IMPORTANT THREAD *
PLEASE SHARE!
1/

6 years since Covid emerged, we are finally making important changes... thanks to your help!

The new guidance not only recognises our needs - due to heightened health risks - but also the risks posed by mask removal.

2/

Why is this so important?

- It is the first national guidance to address our issues directly.... and it sets an important precedent that we plan to build on!

3/ Read more:
clinicallyvulnerable.org/post/how-clini…

Read 7 tweets

Clinically Vulnerable Families 💙💜💗

@cv_cev

Dec 3

https://twitter.com/SafeDavid3/status/1996198278720000333

A letter just landed on Baroness Hallett’s desk from CATA (Covid Airborne Transmission Alliance).

If you are a patient, an NHS worker, or Clinically Vulnerable... or you want to see safety measures updated - you need to see this!

1/

https://twitter.com/SafeDavid3/status/1996198278720000333

The Covid Inquiry is there to help us to learn lessons and change how we plan for pandemics.

But, NHS England quietly published a strategy (July '24) that says:

it will not be possible to halt the spread of a new pandemic virus, and it would be a waste... to attempt to do so
2/

https://x.com/covidinquiryuk/status/1813918026741240222?s=20

That clashes with Hallett’s recommendation:

"risk assessment that moves away... reasonable worst-case scenarios towards... a wider range of scenarios"

But their plan assumes mass infection is inevitable and acceptable.

For some, it isn’t survivable!
3/

https://x.com/covidinquiryuk/status/1813918026741240222?s=20

Read 11 tweets

Clinically Vulnerable Families 💙💜💗

@cv_cev

Nov 8

🧵 This autumn the UKHSA is rightly worried, as 'flu is a real risk...

TLDR:
Clinically Vulnerable people ALL need 'flu vaccines + antivirals this year (if symptomatic or exposed) + confused infection control guidance.

If you are Clinically Vulnerable, please read on...

1/

This year's strains aren't looking good:

The infections have started earlier.
A(H3N2) strains are dominant - and linked to worse outcomes.
A shifted strain (slightly different to vaccines) is also doing the rounds.

2/

If you have been invited for a vaccine, or live with a Clinically Vulnerable person (but don't qualify) please consider getting a vaccine - they can be as cheap as £9.95.

Everyone benefits from 'flu vaccines and children (up to 16) are offered them for free in school.

3/

Read 10 tweets

Clinically Vulnerable Families 💙💜💗

@cv_cev

Oct 23

CVF💙💜💗's Closing Statement

⚠️SAFE
- Schools must be made safe.

👩‍🏫SUPPORT
- Children must be given appropriate support to continue their education at home.

🛡️STATUS
- Clinical Vulnerability must be recognised as a distinct group in the Equality Act.

1/ @AdamWagner1 KC

⚠️SAFETY
"There is good evidence that many schools can be made safer for Clinically Vulnerable children and those in Clinically Vulnerable families."

Ventilation is uncontroversial!

2/

Ventilation works!

"There is sufficient evidence and consensus now for the Inquiry to recommend that clear air is prioritised in schools"

3/

Read 7 tweets

Clinically Vulnerable Families 💙💜💗

@cv_cev

Oct 21

🚨Boris Johnson - Children & Young People

Message to Gavin : 6/7/20
GW "need to push on the push compulsary attendance, and the message of normality"

AW "[You] encouraged him to continue the job.

Would you agree this was months before the vaccine...?"
BJ "Yes"
1/ @AdamWagner1

AW "Do you think in that race to return to normality [summer 2020] Clinically Vulnerable families may have been left behind?"

BJ "Getting back to school... would have been the best for all C&YP, CV or not."

2/

Johnson knew it would endanger our lives!!!

AW "It was sometimes not safe"

BJ "There was always going to be an argument... from that position... you were going to create a situation in which Vulnerable parents would be exposed to the virus picked up by kids in schools."

3/

Read 14 tweets

Clinically Vulnerable Families 💙💜💗

@cv_cev

Oct 20

🚨Whitty is on the stand today... follow this thread.

CTI "What about children who lived with parents who were still at risk...?"

Whitty "The risk to shielding adult... will be increased somewhat, but the risk to the child... scarring their life chances indefinitely."

1/

CW "Risk-benefit taking a child-centred approach, was to prioritise the needs of the children.

I don't think [there is] convincing evidence, that was with the benefits of hindsight, an incorrect judgement."

- Don't the needs of the children include not killing their parents?
2/

CTI "But looking at if from the perspective of a child who might be a very difficult position... to be in."

CW "The need to have a conversation with the doctor [or nurse] their family know."
___

How would these conversation reduce risks?
Wouldn't it waste the time of HCWs?
3/