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Clinically Vulnerable Families 💙💜💗

@cv_cev

May 20, 2023 • 14 tweets • 6 min read • Read on X

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@SHSorguk

"We've got parents with chronic health conditions..." Clancy Clonnal from @SHSorguk.

Who'd have thought that the consequences of constant high Covid infections would fall hardest on those most at risk?

Clinically Vulnerable Families have been struggling @NickMartinSKY.

1/

https://twitter.com/SkyNews/status/1659561106317213701

Unfortunately, time and again, our needs have not been considered.

Clinically Vulnerable people have a 5.4x increased risk of Long Covid and an 8.5x increased risk of death (data from the final ONS Covid survey).

Withdrawing protections from schools has hit us hardest.

2/

Our increased risks, without any protections in place, make our lives more difficult and impact our children - even if they are attending school. It is a barrier to attendance and a barrier to learning.

3/

Many Clinically Vulnerable Families no longer feature in official attendance data, as they have been off-rolled, because schools and local authorities do not want their own data blighted.

4/

@samanthajbooth

Clinically Vulnerable Families reject the incredibly distasteful title "Ghost Children".

This article by @samanthajbooth explains in more detail:

5/
schoolsweek.co.uk/dont-call-us-g…

Minimum estimates for Covid Orphans continue to grow.

Because by not protecting our children were are not protecting their households, families and communities.

6/

We have been collecting data,

We hope to share it with the Education Committee Inquiry into attendance, but we have yet to be invited to share our oral evidence.

Even winter pressures on healthcare affected our school attendance.

7/

All children are now frequently getting sick with Covid itself, as it remains in high prevalence year-round. This also has a direct impact on attendance figures.

Whilst some people may be asymptomatic, others can take a long time to recover - if they ever do...

8/

Children are developing post-viral conditions such as T1 diabetes which make them Clinically Vulnerable.

And highly vulnerable children are now locked out of high demand special schools due to a shortfall in provision.

However, there is something they could do...

9/

And it isn't recycling the old "Schools Bill" to crack down harder on struggling parents.

Because fines, prosecutions, social services referrals, and school attendance orders are blunt instruments, which only make matters worse and won't fix our problem.

10/

All we are asking for is a safe learning environment. It is a very simple and basic request.

Because even those who are in school are struggling. How can children learn or perform when 'personal responsibility' means that they are constantly managing risk?

11/

💙 We want to *live* with Covid
💜 #educationANDlives are essentials
💗 Everyone needs safe schools

Let's invest in health. Air filtration can reduce the risks for everyone.

By reducing Covid, 'flu, Strep A. & RSV we improve pupil & staff attendance and community health.

12/

Join us in the unmentionable place to find the most supportive community and to contribute to our attendance survey:

Search for : Clinically Vulnerable Families

Additionally, please complete the DfE survey requesting evidence on children missing from education.

⬇️⬇️⬇️
consult.education.gov.uk/vulnerable-chi…
⬆️⬆️⬆️

14/

https://twitter.com/LongCovidKids/status/1659827897681551360?t=dmjsBOA6tA5fgrcjukdubQ&s=19

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The immunosuppressed were left behind.

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What could we have done better?

Dame Kate Bingham is an independent and trusted voice. She has no reasons to defend decisions on therapeutics that weren't the right ones.

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"Would you support the development of a more diverse portfolio of vaccine formats and antivirals, both as part of future pandemic preparedness plans and during [.] 'peace time' to ensure that Clinically Vulnerable groups are adequately protected?"

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"Absolutely, I think it is really important to make sure that we have good therapeutics and vaccines for the whole population."

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Q - Why is it important to have that breadth of formats?

...not many [immunosuppressed] were involved in the initial trials.

We now know [.] that booster doses help in terms of vaccine efficacy.

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🚨Dame Kate Bingham🚨
Dubbed the "hero in a pink jacket 💕"

On Evusheld:
"I felt very strongly [.]. We were following a very clear 2 tier strategy where the CV immunocompromised were being deprioritised [.] I felt that was *manifestly* wrong both ethically and morally [.]"
1/🧵

The above video was taken out of sequence. The below should give more context...

KB "So actually, the first goal was around protecting the UK population."

CTI [Hugo Keith KC]
"Do you think you succeeded on securing or making available those monoclonal antibodies?"

KB "No!"
2/

Kate goes on to make the argument that by not protecting this population, we were also promoting viral mutation and the evolution of variants.

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Yesterday, @lara_wong, took the stand as founder and leader of CVF.
**Sorry for the delay!**

- New risks posed by Covid-19
- We need to be recognised as an equality group.

1/ FOLLOW THIS THREAD

Clinically Vulnerable people were, and are still, being let down.

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The lack of infection prevention and control in vaccination centres for an airborne virus was very concerning.

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💊 Important 🧵 - 'flu antivirals 💊

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When are antivirals recommended?

Antivirals are advised for:
💙💜💗 High-risk groups (see list below)
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Early action is vital!

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The 'severe immunosuppression' group is different again, but this list is "not comprehensive".

If you think you may qualify as Clinically Vulnerable to 'flu, it is always worth asking.

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Clinically Vulnerable Families 💙💜💗

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🚨Clinically Vulnerable Families - closing
** Shared in full**

Thanks to the @covidinquiryuk staff & team

"The vast majority of people who died [.] were Clinically Vulnerable [.] including people who caught Covid-19 in hospitals, which were supposed to be places of safety."

1/

"Most urgently, we need to make healthcare safe for Clinically Vulnerable people."

"And by making it safe for them - by improving ventilation and putting in place other protective measures - we make it safe for others too."

2/

🛡Shielding

CEV people are a diverse group with varied personal circumstances.

It provided a passport:
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💷 SSP entitlement
🚚 Food & medicine deliveries
💉 Priority vaccine access

3/