"We've got parents with chronic health conditions..." Clancy Clonnal from @SHSorguk.

Who'd have thought that the consequences of constant high Covid infections would fall hardest on those most at risk?

Clinically Vulnerable Families have been struggling @NickMartinSKY.

1/
Unfortunately, time and again, our needs have not been considered.

Clinically Vulnerable people have a 5.4x increased risk of Long Covid and an 8.5x increased risk of death (data from the final ONS Covid survey).

Withdrawing protections from schools has hit us hardest.

2/ GHOST CHILDREN 22.3% of pup...
Our increased risks, without any protections in place, make our lives more difficult and impact our children - even if they are attending school. It is a barrier to attendance and a barrier to learning.

3/ Primary school was very sup...
Many Clinically Vulnerable Families no longer feature in official attendance data, as they have been off-rolled, because schools and local authorities do not want their own data blighted.

4/ We were forced to deregiste...
Clinically Vulnerable Families reject the incredibly distasteful title "Ghost Children".

This article by @samanthajbooth explains in more detail:

5/
schoolsweek.co.uk/dont-call-us-g…
Minimum estimates for Covid Orphans continue to grow.

Because by not protecting our children were are not protecting their households, families and communities.

6/ Orphanhood estimates: 16,10...
We have been collecting data,

We hope to share it with the Education Committee Inquiry into attendance, but we have yet to be invited to share our oral evidence.

Even winter pressures on healthcare affected our school attendance.

7/ 75% of Clinically Vulnerabl...
All children are now frequently getting sick with Covid itself, as it remains in high prevalence year-round. This also has a direct impact on attendance figures.

Whilst some people may be asymptomatic, others can take a long time to recover - if they ever do...

8/ It has been incredibly diff...
Children are developing post-viral conditions such as T1 diabetes which make them Clinically Vulnerable.

And highly vulnerable children are now locked out of high demand special schools due to a shortfall in provision.

However, there is something they could do...

9/ We were forced to de-regist...
And it isn't recycling the old "Schools Bill" to crack down harder on struggling parents.

Because fines, prosecutions, social services referrals, and school attendance orders are blunt instruments, which only make matters worse and won't fix our problem.

10/ Although both parents kept ...
All we are asking for is a safe learning environment. It is a very simple and basic request.

Because even those who are in school are struggling. How can children learn or perform when 'personal responsibility' means that they are constantly managing risk?

11/ My son is doing GCSEs right...
💙 We want to *live* with Covid
💜 #educationANDlives are essentials
💗 Everyone needs safe schools

Let's invest in health. Air filtration can reduce the risks for everyone.

By reducing Covid, 'flu, Strep A. & RSV we improve pupil & staff attendance and community health.

12/ harassment unmitigated ostr...
Join us in the unmentionable place to find the most supportive community and to contribute to our attendance survey:

Search for : Clinically Vulnerable Families FB group:  Clinically Vulne...
Additionally, please complete the DfE survey requesting evidence on children missing from education.

⬇️⬇️⬇️
consult.education.gov.uk/vulnerable-chi…
⬆️⬆️⬆️

14/

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More from @cv_cev

Jul 20
🧵 The #UKCovidInquiry's first report on 𝗥𝗲𝘀𝗶𝗹𝗶𝗲𝗻𝗰𝗲 𝗮𝗻𝗱 𝗣𝗿𝗲𝗽𝗮𝗿𝗲𝗱𝗻𝗲𝘀𝘀 has been published.

While it addresses many critical areas, it missed significant issues faced by Clinically Vulnerable (CV) families. Here’s what you need to know...

1/ #CVAwareness
The report’s focus on general preparedness overlooked the specific needs and challenges of CV people.

Our community faced unique risks and often felt abandoned in the early stages of the pandemic. Our exclusion from *this module* (M1) of the inquiry was a glaring oversight.
2/ Clinically Vulnerable Families  are the ONLY Core Participant at the UK Covid-19 Inquiry representing CV / CEV / Immunosuppressed voices  We can:  Access Evidence  Make opening & closing statements  Ask the witnesses questions
Key areas missed include:

💔 The lack of tailored guidance for CV families
😷 Insufficient availability of appropriate PPE for home use
🫂 Inadequate mental health support

CV households had to navigate the crisis alone, compounding their stress and isolation.

3/ #CVAwareness
Read 12 tweets
Jul 19
🎉Happy #CVAwareness Day! 🎉

🎥 Please share your stories, masked selfies, and short videos ass a Quote Tweet of this one! We will all ♻️

4️⃣ years since Freedom Day!
Update your profile pic ⬇️

🧵 PLEASE RETWEET
4 years on, and we are in ANOTHER wave.

The constant risk of infection has made lives more difficult, and the damage caused by infection. We are still more likely to die and develop post viral conditions.

2/ 9.2x increased risk of death 5.4x increased risk of Long Covid
Clinically Vulnerable people were rejected from the first 2 sections of the #CovidInquiryUK, unable comment on planning for future pandemics, even though by Baroness Hallett's own admission we will "suffer the most".

3/
Read 7 tweets
Jul 6
1/ 🧵 Concerned about masked voting?

Our data, collected thanks to mask wearers during the General Election, reveals troubling issues...

#MyMaskMyVote😷 #CleanAir💨 SAFER VOTING  #MyMaskMyVote  Clinically Vulnerable Families members have audited the safety and accessibility of polling stations during the UK General Election:  • Safety of voter ID checks  • Indoor air quality - CO₂ levels  Ventilation open doors / windows
2/ Disenfranchisement is real.

Voter ID checks varied significantly:
- 38% were IDed with a mask on
- 42% asked to de-mask indoors
- 26% removed their mask indoors
- 1% ⛔️ were disenfranchised ⛔️

#MyMaskMyVote😷 VOTER ID CHECKS  #MyMaskMyVote  38% were IDed with a mask on  42% were asked to de-mask indoors  26% removed their mask indoors  1% were disenfranchised  General Election 2024  Clinically Vulnerable Families
3/ Some voters were masking to protect others from Covid.

Nobody should have to de-mask indoors. Everyone deserves to vote safely.

#SafeVoting🗳 Privacy Matters @PrivacyMatters. 1d  Still feeling like shit and weak with Covid. The polling station is 5 minutes walk. So will mask up. Then rest up.  Almost ready to vote. But first, some prep for the office assistant  #DogsAtPollingStations #GE2024 YO  #ThingsCanOnlyGetBetter
Read 15 tweets
Jul 3
🟥🟨🟩🟪🟦GENERAL ELECTION '24🗳

We need your help🙏

TODAY
💌 Even if you have a postal vote:
Contact your Returning Officer to ask for reasonable adjustments for mask wearers

Some people will be caught off guard as the 1st GE with voter ID

TOMORROW
Audit Accessibility...
🧵 GENERAL ELECTION  #MyMaskMyVote  The Electoral Commission have informed us that individuals need to contact Returning Officers to ask for 'reasonable adjustments':  • Outside demasking for ID checks  Distanced ID checks  • Masked staff  • Covid tested staff  • Ventilation open doors / windows
🗓 TODAY

Contact Returning Officers to ask for the following to make voting safer:

🪟windows / doors open
💨outdoor ID check
↔️distanced
😷masked staff
✅️covid tested

NB/ Screens for veil removal are not appropriate for airborne transmission.

2/
gov.uk/contact-electo…
🟥🟨🟩🟪🟦4th JULY🗳At the polls🗳

✅️ YOU CAN STILL HELP without a mask or without contacting your Returning Officer.
😷 If you could mask, it would help more!

📋Assess accessibility for us:
-windows/doors open
-outdoor ID check
-distanced
-masked staff
3/
Read 4 tweets
Jun 29
💙Left is the SmartAir QT3
💜Middle is a 3D printer prototype
💗Right is the AirFanta 4Lite

A quick explainer 🧵
If you do use one of these devices, it is worth knowing that whilst they have a net benefit, you really must be in the air stream to experience the most gains*.

* ..and that means being pretty close!

2/
Image
Image
A quick reminder that the QT3 can be improved by taping. Even with taping, the most gains are up to 40cm - and the closer the better.

Unfortunately, the fan is not very powerful, so the air flow is lower than the others above.

HT @CleanAirStars
3/ Image
Read 6 tweets
Jun 25
🧚‍♀️As I sat in the hall during our Primary School assemblies, I used to watch the fairies dancing within a strip of light from between the curtains.

Little did I know...
1/🧵 Image
... that when they 'disappeared' that they were still there.

Or that the whole room was filled with them!

2/ Image of a room filled with fairies and sparkles of light.
Oh, and they weren't really fairies...they were 'particulate matter' or PM for short.

Which is kind of mind-blowing when you are taking in all of these different particles. Some will scatter light, and others can absorb it - so you can't always see them.

3/ Image of QuingPing air quality monitor @SmartAirUK reading: 4 (PM10)
Read 10 tweets

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