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Clinically Vulnerable Families 💙💜💗 Profile picture
@cv_cev
May 20, 2023 • 14 tweets • 6 min read • Read on X
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"We've got parents with chronic health conditions..." Clancy Clonnal from @SHSorguk.

Who'd have thought that the consequences of constant high Covid infections would fall hardest on those most at risk?

Clinically Vulnerable Families have been struggling @NickMartinSKY.

1/
Unfortunately, time and again, our needs have not been considered.

Clinically Vulnerable people have a 5.4x increased risk of Long Covid and an 8.5x increased risk of death (data from the final ONS Covid survey).

Withdrawing protections from schools has hit us hardest.

2/ GHOST CHILDREN 22.3% of pup...
Our increased risks, without any protections in place, make our lives more difficult and impact our children - even if they are attending school. It is a barrier to attendance and a barrier to learning.

3/ Primary school was very sup...
Many Clinically Vulnerable Families no longer feature in official attendance data, as they have been off-rolled, because schools and local authorities do not want their own data blighted.

4/ We were forced to deregiste...
Clinically Vulnerable Families reject the incredibly distasteful title "Ghost Children".

This article by @samanthajbooth explains in more detail:

5/
 schoolsweek.co.uk/dont-call-us-g…
Minimum estimates for Covid Orphans continue to grow.

Because by not protecting our children were are not protecting their households, families and communities.

6/ Orphanhood estimates: 16,10...
We have been collecting data,

We hope to share it with the Education Committee Inquiry into attendance, but we have yet to be invited to share our oral evidence.

Even winter pressures on healthcare affected our school attendance.

7/ 75% of Clinically Vulnerabl...
All children are now frequently getting sick with Covid itself, as it remains in high prevalence year-round. This also has a direct impact on attendance figures.

Whilst some people may be asymptomatic, others can take a long time to recover - if they ever do...

8/ It has been incredibly diff...
Children are developing post-viral conditions such as T1 diabetes which make them Clinically Vulnerable.

And highly vulnerable children are now locked out of high demand special schools due to a shortfall in provision.

However, there is something they could do...

9/ We were forced to de-regist...
And it isn't recycling the old "Schools Bill" to crack down harder on struggling parents.

Because fines, prosecutions, social services referrals, and school attendance orders are blunt instruments, which only make matters worse and won't fix our problem.

10/ Although both parents kept ...
All we are asking for is a safe learning environment. It is a very simple and basic request.

Because even those who are in school are struggling. How can children learn or perform when 'personal responsibility' means that they are constantly managing risk?

11/ My son is doing GCSEs right...
💙 We want to *live* with Covid
💜 #educationANDlives are essentials
💗 Everyone needs safe schools

Let's invest in health. Air filtration can reduce the risks for everyone.

By reducing Covid, 'flu, Strep A. & RSV we improve pupil & staff attendance and community health.

12/ harassment unmitigated ostr...
Join us in the unmentionable place to find the most supportive community and to contribute to our attendance survey:

Search for : Clinically Vulnerable Families FB group: Clinically Vulne...
Additionally, please complete the DfE survey requesting evidence on children missing from education.

⬇️⬇️⬇️
consult.education.gov.uk/vulnerable-chi…
⬆️⬆️⬆️

14/

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More from @cv_cev

Clinically Vulnerable Families 💙💜💗 Profile picture
Mar 29
The government just published its Pandemic Preparedness Strategy.

TLDR: Some welcome commitments inc. on ventilation. But Clinically Vulnerable people are still not clearly defined or automatically protected, and the prioritisation framework won't arrive until 2027.

1/🧵 Department of Health & Social Care Pandemic Preparedness Strategy: building our capabilities Published 25 March 2026
What's new?

Published 25 March 2026, this is the UK's first major pandemic strategy since Covid.

It covers all 4 nations, sets out 12 principles and detailed action plans to 2030, backed by around £1 billion of investment.

But what about the detail...?

2/
They know another pandemic is coming... and epidemics are also a risk.

The question is:
Will Clinically Vulnerable families be protected when it does?

- This document raises the question more than it answers it.

3/ While pandemics of this scale are rare, major epidemics are far more common and milder pandemics still cause significant damage. A future pandemic is a certainty - we just don’t know when it will happen or what will cause it. It would most likely be caused by a virus, though it could also be caused by bacteria or fungi. It could be spread by one or more of the routes of infection transmission, with the 5 main transmission routes being: • respiratory • oral • blood or sexual • touch 1 Scientific Advisory Group for Emergencies and DHSC’s DHSC and ONS: direct and indirect health impacts o...
Read 20 tweets
Clinically Vulnerable Families 💙💜💗 Profile picture
Mar 25
📉 Kent MenB outbreak

⚠️East Kent Trust failed to report their first case for 2 days⚠️

Here's what you need to know.
TLDR: Peaked 13th March. No new cases since - with reporting delays, but that's even better news than it sounds.
1/🧵 👇 @laurabundock @SkyNews
THE OUTBREAK IS DECLINING but understates how well that's going. 📉

The earliest case became unwell on 9th March, with the latest on 16th March, and the peak was 13th March.

2/
Cases take time to be confirmed and reported.

The fact that nothing new has surfaced in the data as of 23rd March - despite the reporting lag - means the real-world situation is almost certainly better than the numbers show.

3/ Image of bar chart Figure 2. Cases of invasive meningococcal disease in Kent outbreak, by case category, outbreak bacterial subtype: serotype P1.12-1,16-183, attendance at Club Chemistry, and date of onset (data as of 23 March 2026) 6 5- 4 Number of cases 3 2 1- 0 07 Mar 09 Mar 11 Mar 13 Mar 15 Mar 17 Mar 19 Mar 21 Mar 23 Mar Date of onset Confirmed outbreak strain Confirmed Probable Attended Club Chemistry Includes 17 Confirmed - outbreak strain and 3 Confirmed and 2 Probable case(s). Excludes 1 Probable case with missing date information.
Read 15 tweets
Clinically Vulnerable Families 💙💜💗 Profile picture
Mar 18
Meningitis
* Important thread for those who prefer balanced and factual information *

In order to understand risk we need to break down a few things....

🦠Risk from the bacteria
💙💜💗 Individual risk
🎓 Environmental risks
1/
The Kent outbreak is predominantly MenB (Group B). This is a serious infection - and potentially an adapted strain - investigations are ongoing...

Bacterial meningitis is rare but more severe than viral, and up to 1 in 10 cases of bacterial meningitis in the UK is fatal.

2/
MenB isn't new. There are around 300 cases of MenB per year in the UK, even with vaccination programmes.

What's unusual is the cluster - multiple cases linked to a single location in a short window. It has now spread to a student at a second university in Canterbury, Kent.
3/
Read 9 tweets
Clinically Vulnerable Families 💙💜💗 Profile picture
Mar 5
UK COVID INQUIRY - CVF💙💜💗
@AdamWagner1 Closing Submissions

The Covid Inquiry has good ventilation protocols (as advised by CVF at the start of the Inquiry) including HEPA filters.

Under 1000ppm is therefore the safe threshold ( but without it would be under 800ppm).

1/
We need to understand airborne transmission in order to make all indoor environments safer for everyone, and especially for Clinically Vulnerable people.

2/
The need for Clinically Vulnerable people to have:

Safety
Support
& Status

3/
Read 14 tweets
Clinically Vulnerable Families 💙💜💗 Profile picture
Mar 1
🚨COVID INQUIRY ROUND UP (Wk2)

This week saw CVF's evidence & organisations representing: disability, domestic abuse, faith, migrants, homeless, prisons, local government.

Expert evidence focused on: later life, LGBTQ+, race and gender inequalities (Dr Clare Wenham, below)

1/
EXPERT RACIAL INEQUALITIES

Prof Laia Bécares discussed the risks in multigenerational households where there were keyworkers and children in schools.

2/
EXPERT LATER LIFE
Prof @JamesNazroo

CVF were concerned that many older people, who were at high risk, were not supported to shield - which included advice on how to stay safe, as well as food deliveries and community outreach.

3/
Read 15 tweets
Clinically Vulnerable Families 💙💜💗 Profile picture
Feb 26
🚨 NEW DfE GUIDANCE
- VENTILATION & AIR QUALITY -

Clean air matters - especially for #ClinicallyVulnerable children, staff and families. This is an important recognition that airborne transmission is preventable.

1/ Image
But the proposed CO₂ thresholds are too high. 800ppm should be the upper limit - not 1500ppm. By 1500ppm, air is already significantly rebreathed. That’s not a precautionary standard for children, let alone those at higher risk.



2/gov.uk/government/pub…
If we’ve learned anything from the pandemic, it’s that minimum compliance is not the same as safety. #ClinicallyVulnerable pupils cannot “choose” lower exposure if the baseline standard is poor.

3/
Read 8 tweets

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