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Amy Alkon

@amyalkon

Apr 27

I wrote out out a grievance at Kaiser Permanente, telling them my trash smells and I cannot walk safely to take it out. It is disgusting and not hygienic.

I am using kneepads and gloves to crawl around my house. And I’m sick all day from both the metabolic crisis that nobody at Kaiser has enough medical knowledge to notice or do anything about when I point out that I have a severe emergency, and the same goes for the tachycardia that I tell them is life-threatening, especially because of my dizziness and falls, which are increasing.

As for why I’m crawling, besides the fact that accuses me safe from falling since I would maybe not fall while crawling or just face plant from a few feet up: I have a trapped compressed calcaneal nerve in my heel that is causing progressive muscle death.
Of course we only know this because I wrote an MRI for my foot that my beautiful hero of a gynecologist put in for me. Not his job. There are no ovaries in the foot!

But he cares deeply about patients on a level that the careless medical director doctors and other doctors denying me IV magnesium that my gyno and 3 other doctors found safe and necessary and prescribed, have not a whisp of.

When a doctor cares, they’re like my psychiatrist who I called in a panic when my gynecologist, who knows he is the only thing standing between me and debilitation, did not see my messages. This means he is out. This guy is a maternity specialist and saves women and it’s just wonderful even if there is no risk, snd every patient he has is lucky to have him. I’m not special in how he cares for me. I know I’m not. You talk to the nurses and you hear it.

So I called my psychiatrist in tears knowing my gyno hadn’t seen this iv mag message. And my psychiatrist said something very appropriate and did something very important. First, because we partner on science and figuring out medication for me, he knew I needed the IV mag for GABA and NMDA regulation. But he said he needed to check with “renal,” nephrology, to make sure it was safe. I wrote him a thank you note for refusing it for that reason. Refusing it temporarily. Because they said it was safe, because I have a fucking lovely EGFR of 99 at this point and normal creatinine and lots of lovely health stats. So, he said he’d prescribe it for me but Kaiser blocked him. This is fucking evil it’s administrators and doctors with scope of practice violating the law and medical ethics. And leaving me with progressive loss function and life-threatening risks.

IV magnesium would help me save my foot muscle and my mobility and stop the dangerous tachycardia and increased dizziness and fainting and falling. Along with the life risking toxic metabolites the Kaiser doctors were too ignorant to see in my tests. I mean, they SAW the numbers, but they were clueless about what they meant and just ignored them. Because of the fluoroquinolone injury and damage to mitochondria and ATP production, I have developed a fatty acid metabolization issue that is very dangerous.

My primary care doctor gave me a two symptom quota so I was not allowed to tell him about the insatiable need for fat— I was eating a stick of butter a day and just could never get enough fat and ate all day and was still starved for fat.

I’ve eaten a carnivore diet for the past three years, and before I was given this monstrous fluoroquinolone that has destroyed my body and life and it progressively doing it as Kaiser’s doctor with no scope of practice in the condition I have deny me care out of their ignorance. Violating the law and medical ethics and fucking human decency.

Those who deny me I magnesium have not a clue as to the chelation/excretion effect during months from March 2025 to Oct 2025 that the biochemistry science strongly suggests severely depleted my magnesium levels.

Serum in RBC test are not accurate for the intracellular depletion.

I typed out grievance about this & kp system wouldn’t take it & I couldn’t get the text out. Again.

So @KPMemberService file the above as an urgent, expedited grievance and escalated. And send it to your risk management team and your legal counsel and the chairman.

Shame on every one of you at any sort of executive level for letting this progressive and now life-threatening destruction to my body pick up pace with never a diagnosis or any specialist since Oct 7 2025, when I demanded it. Expedited, bc of the risk of tendon rupture from “routine movement” noted in the FDA black box of 2008 on FQ antibiotics.

And you look at that message— the PDF of Oct 7 2025 — to yr horrible careless cornea surgeon, Dr K C, noting/supporting that you CAN get fq injury from ocular doses. And shame on your chief of service of ophthalmology said you couldn’t, ignorant of the research, yet said oh the patient must be engaging in a “superficial” read of research. Read my book GOING MENOPOSTAL: What you (and your doctor) need to know about the real science of menopause and perimenopause (@BenbellaBooks) — about Kaiser’s unscientific and harmful practices— and read my many messages about what is going on with me and that chemical pathology.

You can find this in the email + PDF I sent to the primary care doctor I just banned my care or sandiskKaiser. HIPAA privacy and the fact that he is endangering me by doing things like calling and actively revoking a cardiology referral that I got after he denied one to me. Filed grievance and had a doctor w some knowledge of science & medicine understand that you don’t deny a cardiology referral to a patient with tachycardia who is fainting and falling. A patient who had orthostatic hypertension with syncope and tachycardia starting in March 2025 that your negligent cornea surgeon did not a thing about. Including not stopping the drugs when these dangerous symptoms occurred.

The FDA says drugs must be stopped with severe cardiac symptoms like this. And your doctors are so negligent and all you do is sit there denying care to mitigate the horrific harm caused to me by not only the initial doctor but every single doctor outside their scope of practice violating the law and medical ethics and denying here was not a shred of knowledge of the science and Flora Quinn injury or the chemical pathology or anything. No experience treating it— none.

What has been particularly shocking is the institutional level of utter ignorance in Knox Keene and other laws. David V, the poor Kaiser administrator who was forced to commit a felony by Kaiser when they gave him the assignment of being my “care coordinator,” which administrators forced on me in a dishonestly presented meeting that violates informed consent and number of other things. God do you people not have lawyers?

That deceptively presented meeting where I was told I was having an appointment with the doctor and I was in a vulnerable exhausted state in the emergency room and only agreed to it because I trusted that doctor and she knows that.

Instead it was an ambush meeting of administrators I was not. I would never have agreed to it if it were presented to me honestly as the meeting it was. They all talked over me and engaged in the administrative delivery of medical advice when I told them I had these dangerous symptoms, with admin level non medical staff telling me to go to the ER.

I try to shout (out of my desperation to get the IV magnesium that will stop all of the danger and harm) that it’s not that kind of emergency —ot something they w treat appropriately and sufficiently there or at all — & they talked over me and hung up.

I told them that the ER doctor, just before, and giving me only 1 g of magnesium and told me that’s all I was getting I should go home. So the ER was anything but a place for me to get care.

A doctor in that meeting was honest that she knows nothing of Fq injury. She is well intentioned and I respect her and am grateful to her. She’s gyno boss in GOING MENOPOSTAL. Now also the associate dir of the West LA Kp Hospital.
CONTD

She tells me to trust the Kaiser doctors to care for me. She believes this Froot Loops tagline-like statement that Kaiser doctors practice evidence based medicine.

Exactly zero evidence has been applied by all the drs denying me care and iatrogenically harming me.

Treating me as if they would treat just any patient like with a sports injury, when any knowledge of the floor Quinn research will tell you that I have a damaged collagen matrix and frail tendons, and the head of your physical therapy department who gave me eccentric exercises with exercise bands harmed me and caused tears in my tendon documented on my neck shoulder MRI after the damage he caused.

He refused to look at my MRIs, and told me he had scope of practice in Fluoroquinolone injury, and I’ve been up till three in the morning 3:15 in the morning writing MRIs for my hero of a gynecologist to put through, so I just couldn’t stay up till 415 reading the PT research. I’m just human and I forgive myself for not reading it even though I really wish I had.

It was clearly untruthful that he had any scope of practice in Fluoroquinolone injury since a few days later, after reading the PT research on FQ injury, I saw that you never give a fq patient the eccentric exercises he gave me that caused “shear” stress on my frail and damaged tendons. You first give the patient bracing and then you test with MRIs to see whether their tenants have stabilized enough to do even isometric exercise exercises. And you do those with great gentleness to make sure you’re not harming the patient.

And when I told HB, your head of physical therapy at West LA that he had harmed me with these inappropriate exercises— but in the most kind and gentle way saying that I knew he didn’t intend to harm me— he told me he was ending the appointment and putting me through a member services and transferred me incorrectly and there was a fast busy signal and I was abandoned. And I believe this constitutes patient abandonment. Also, he refused to look at my MRIs and then said he did. And your grievance workers file just terrible Incorrect grievances over the phone, though I’ve had some really lovely people who try and care. And that counts for a lot with me but I began to realize that when I requested care initially for member services it seems people didn’t write down fluoroquinolone sometimes because they couldn’t spell it and didn’t ask me!

This came from something someone told me in a call when I was asking about a grievance and I don’t know how often that went on or if it did go on but I sure suspect it.

There is occasional black levity in between the horror of me begging for care, begging for a diagnosis, begging for a specialist who has expertise and clinical competency and a record of treating patients with fq injury.

And that is a guy was presented to me as one of the heads of primary care at Culver Marina, who was a doctor of mine previously and I found disrespectful (and I suspected it is disrespect especially for women but I have no proof of that and I don’t go around with misogyny colored glasses. Quite the contrary.) and I found him short on science. And there I do have the expertise to judge.

Anyway, I tell the member services person in the week of October 7 to October 11 to ask for a referral for my primary care dr, the now banned from having anything to do with me for my letter to Kaiser legal. He ends up being pretty much DOA or something or in a coma I don’t know what. From October to December. He was asked October 11 for a referral. Now I asked for the wrong dept, Ortho or sports medicine, and of course it is necessary for me to micromanage every bit of my care because I said the referral was for full body tendon damage from Fluoroquinolones, & a doctor who knows anything of the basics of which medical specialty treats what would know I needed to go to phys med & correct that.

This doctor refers me to plastic surgery. And when they call I think it’s a practical joke. CONTD.

Read 6 tweets

Amy Alkon

@amyalkon

Apr 22

Perplexity is increasing the risk I will be in a wheelchair for life.

Perplexity @perplexity_ai causes medical harm. Only because I have medical and research expertise am I able to catch the errors. (Also because I feed it all the information.

My brain is compromised by @KPMemberService Kaiser Permanente negligent prescribing of fluoroquinolone antibiotic that risks irreversible debilitation - like my inability to walk and balance normally - and causes NMDA receptor excitotoxicity that leads to always revving brain. This causes crushing fatigue, brain fog, executive dysfunction [motivation]).

Plus I have ADHD. I fed Perplexity the facts and it told me over and over it gave me a powerful version for the IMR (urgent medical review request for the Dept of Managed Healthcare) I have to file to prevent my being in a wheelchair for life from the progressive and progressing death of muscle in my foot from edema (swelling) compressing the calcaneal nerve in my heel and denervating the muscle. Cutting off nerve signal causing "fatty infiltration" on MRI *I* had to write myself to get it correct - and my absolute hero of a gynecologist put in for me.

My doctors are now blocked by administrators from giving me care. I must go through a "care coordinator," and the two I've been given are not doctors and tell me they cannot connect me to care. WOW.

Massive violation of @CADMHC and CA biz and professions code, especially because one engaged in the felony practice of the administrative practice of medicine. KP admin assigned as my care coordinator one week. He tells me can't connect me to any care bc not a doctor. I tell him emergency - must stop muscle death plus life-threatening tachycardia (cardiac mimicking but all cardiac possible causes ruled out with tests I fought for) and dizziness and falls from it.

I passed out on the phone in a recorded call with excellent Member Services grievance employee Rainbow. Told her to have KP higherups listen to recording. I also couldn't breathe on call before that, and lemme tell you: I cannot act AT ALL and wouldn't. I don't fake symptoms. And anyone with actual medical expertise in CVD etc. will identify what's going on in that call.

So here's how utterly evil as a shit source ui@perplexity_ai is. And I know exactly what needs to be in this thing, including the legal ways of stating things and the support necessary for DMHC approval; I'm just terribly sick.

Anyone who uses Perplexity without expertise in a subject area is really screwed.

@KPMemberService file this as an urgent, expedited, escalated grievance and all my grievance bits in KP portal and here from April 21 and 22 and any April 20 are all to be filed in this way and also sent to Risk Management.

Hey, @KPMemberService, way to go, leaving me with untreated daily tachycardia -- bpm while seated calmly at desk. Pounding heart, dyspnea (clutching lungs), and I won't stand because that intermittently causes me to pass out and fall.

Kaiser is doing nothing to treat and everything to leave me in danger. Each IV Magnesium dose (too low and not enough hours for repletion of my FQ chelation depleted intracellular magnesium) transiently allows me to walk normally and balance (though my legs still have terrible heaviness) and normalizes the leaping and diving BP though not the tachycardia.

A MAJOR reason I need magnesium is for the dangerous toxic metabolite buildup that Kaiser doctor just ignored despite lab saying TEST THIS PATIENT AGAIN! He was too incurious and apparently too determined to "prove" his entirely scientifically ignorant and illegitimate contention that my massive multisystems damage aligning entirely with the temporality of FQ and the chemical pathology were instead due to my eating a ketogenic diet.

He sees C6 C8 C10 and C2 C8 ratio and has not a clue as to what they are (I say that because though he is damagingly ignorant of science on FQ and lipids and much more, I don't see evidence that he's a psychopath trying to kill me). He is so utterly incurious - and my opinion is that it is because he saw the word "ketosis" or "keto" in the lab report - that he just wrote a quick note like "ketogenic diet" and ignored the rest!!! Monstrous negligence.

This indicates a toxic metabolite buildup due to a serious fatty acid metabolism issue and no, not genetic, from childhood MCAD - I've metabolized fat fine all my life till being physically ruined by the negligent prescription of a FQ antibiotic.

I could die from this - as noted in MCAD lit - from a hypoglycemic episode. Also I'm not getting nutrients I need because of the metab issue shown in this lab. It doesn't even give the numbers (awful) and I probably can't get them expediently. AS THE ONLY ONE WITH EXPERTISE AND SCIENCE KNOWLEDGE ON FQ INJURY in the KP / Amy Alkon "care" circle.

Not one doctor denying me care, iatrogenically harming me, or writing wrong MRIs that cause me harm in supposedly showing there is nothign wrong with me (Hello?! Radiologist "too wide a field of view" to see tendon detail. Head of physiatry wrote hand/wrist MRI ignorantly - MRI of them together instead of separate L/R hand and L/R wrist - and for wrong condit - "diffuse pain" - which I did not have.

Refused to write for FQ injury, denied I have it with no knowledge or clinical competency, violating duty/standard of care plus there's failure to refer.

She then caused massive delay in my getting correct MRIs as she wrote them after KP was forced to provide them by @CADMHC. In November, I called for her to retract. I refuse to be treated by her or any doctor without scope of practice/expertise/clinical expertise and competency in my condition, fluoroquinolone injury. I left message after message w member services demanding she retract. Nov, Dec, Jan, Feb. I finally told dept scheduler for her that I would sue her if she didn't retract.

I then had to find someone to put these in. Lovely ortho physicians asst did but didn't have ordering scope or knowledge to do them correctly. (I wrote and gave them to him - my MRIs are metic correct, checked by radiologist friend in top position /hospital.)

Then he went on strike so no correcting them. Then I fought and fought and got shoulder and hand wrist corrected and got them - showing major damage. This would have been prevented if KP had followed Knox Keene and CA biz/prof code and more (medical ethics and the law) on Oct 7 when notified in writing by me (to KP via cornea surgeon who harmed me) and provided me with specialist, diagnosis (neither of which I have now APRIL 22, 2026!).

My hands and wrists are my life - typing is integral to my rhythm as a writer and work process.

Kaiser is putting me in a wheelchair with every bit of delay of the IV magnesium. I will file with the medical board on every doctor who has treated or denied with no specialty in the condition I have, harming me with wrong and delayed and denied necessary care.

DMHC will surely impose major fines on KP because I will show that I'm far from the only one given no diagnosis, no specialist. It is a pattern of institutional negligence, failure of duty and standard of care, failure to refer and violation of Knox Keene, DMHC regulations, CA business and professions code and more.

There is proven safety gating for the IV mg 12 hr/ 2 g hr mag chloride (alt sulfate) with commensurate 0.9% saline from preeclampsia standards (Lu, Nightingale 2000) and NO DANGER. Serum and RBC tests not valid for this. False positive (though my RBC that came back April 6 by Dr. C, my hero gyno, is low - 3.9 below the normal level and should be high normal after more than one IV infusion of 2 g. Too low for more than transient improvement but only meaningful improvement and Kaiser just letting me be increasingly debilitated with no treatment leads to "refractory" standard (as I take 10,000 mg glycinate and aspartate daily without it showing up in my system because mg is chelated/not avail to system not only during taking the drug but afterward thru FQ remnants in system and harm to mitochondria and oxidative harm).

Also, it's simply INHUMANE for all these Kaiser doctors entirely ignorant of the FQ science, with no clinical competency, and one doctor using medical AI (Open Evidence) without synthesis of imperfect bits of evidence one must pull together from various papers then employ physiological and biochemistry science to validate IV Mg as a potential treatment) - when there are no others and when KP doctors denying care with no scope have not a clue as to what care should be provided.

So I'm left with progressive and terrifying inability to walk and balance and with dangerous episodes of untreated tachycardia (with all cardiac possible causes ruled out - and Kaiser cardiologist says she can't give me the necessary tests for the dysautonomia driven tachycardia and other symptoms. These are necessary to see the small fiber nerve damage leading to failures of electrical regulation causing the problems.)

KAISER IS SITTING BY WHILE I AM INCREASINGLY DEBILITATED AND UNABLE TO WALK AND BALANCE -worse every day-- and suffer life-threatening tachycardia and falls simply on standing up. And I have dangerous elevated toxic metabolites and many other dangerous symptoms.

DIAGNOSIS and SPECIALIST NEVER PROVIDED. SINCE OCT 7, 2025. It is now April 22, 2026.

@KPMemberService file this as an urgent expedited escalate grievance - emergency - and send to risk management and that jovial looking Kaiser CEO, Gregory Adams, earning $12 million plus a year to preside over the KP denial of care business as usual.

And again, I'm far from alone. And I will work to help others after I complete (I hope) my race to refuse to let Kaiser Permanente put me in a wheelchair with its massive law and medical ethics violating de facto refusal of specialist in my condition and diagnosis and all the providers treating with NO SCOPE OF PRACTICE in the specific condition of fluoroquinolone injury I have.

So, if I go through @KPMemberService I will be told to go to ER where they will not give me magnesium and have no other treatment they can give for dysautonomia driven cardiac mimicking symptoms. And I am told by Kaiser doctors with no scope of practice and admins to go to the ER. Where two male doctors have refused to let me detail the important information (data in my KP record like muscle death in foot and why cardiac causes I had ruled out are not the issue but neuropathy-driven dysautonomia is. And yes, I've been diagnosed by KP neuro with small fiber neuropathy and every day, my feet lose feeling. Nothing done by Kaiser.

So Kaiser is leaving me without diagnosis and without any practitioner with expertise in my condition.

I am going to "lie" on this form to get to talk to someone but only because it is an emergency and I have no other means of protecting myself. I'm notifying you of that - I will not say I have the frequent dyspnea I do (shortness of breath) because I leave myself at life-threatening risk if I check that since I cannot get treatment at the ER. They deem me "hypochondriacal" -- utter falsehood. I have documented harm in my KP chart but belig. male doctors B & B talked over me and refused to let them tell them important data to know to treat my progressive loss of ambulation and daily tachycardia and intermittent falls.

Two women ER doctors did ONE thing - these are Dr. Ba. and Dr. Esc. - they listened to me. Both diagnosed hypomagnesemia and gave me IV mag. Dr. Ba witnessed the incredible marked improvement in my ability to walk and balance afterward.

Read 4 tweets

Amy Alkon

@amyalkon

Mar 30

@KPMemberService your system will not let urgent grievance be completed or put through. Convenient.

It will not let me retrieve what I wrote because the error message just covers it.

File this & next msg as urgent grievance & fix tech already. I have told you this before. & before & before. Must send this msg to Gregory Adams CEO. And next.

Shame on KP bc I am so sick because of the horrific negligence of Kaiser. I demanded on Oct 7 2025 a practitioner with knowledge/ expertise/ scope of practice to diagnose, evaluate, treat the KP-caused fluoroquinolone injury I have.

KP has caused increased & progressive debilitation thru never providing anyone with expertise. No one. It is March 29, 2026.

Bc KP has denied me the necessary I diagnosis, & never provided me with a single practitioner with expertise and scope of practice, I am forced to spend every day/night since Oct 7 earning no money, being very sick, getting progressively debilitated & unnecessarily progressively debilitated due to denial of care/tests by numerous KP practitioners w no scope of practice or knowledge of Fluoroquinolone injury who deny I have it & deny me care & harm w denials & FQ injury-contraindicated care.

I’ve had to fight so hard to get the MRIs I needed to identify tendon weakness in October so I could avoid or minimize movement, and only got them in March because you head of phys medicine refused since Nov to retract her orders which I saw were incorrect when Radiology showed them to me. I also refuse to be treated by a doctor with no expertise in my condition. None could be ordered until she retracted. Monstrous. I told her that she couldn’t force me to be treated by her through her scheduler who called me. Only when I threatened to sue her if she didn’t retract them did she retract them and then I had the problem of trying to find someone else to order them (correctly) while being giving no one with any scope of practice to help me or treat me.

Wonderful ortho PA Siri put them in but didn’t quite have standing to put in the orders correctly as I wrote them or maybe didn’t know. I had to have them corrected but I had to wait for him to come back from strike. Obscene. While that was going on, the FQ nerve damage driven dysautonomia and neuropathy in my foot was causing edema. The calcaneal nerve was compressed to the point I had the death of muscle in my foot. It became unsafe to stand at all because I could lose my ability to stand if more muscle died. It’s called fatty infiltration of muscle.

I had to write my own MRI orders and read an MRI textbook to do it in September. My hero gynecologist understood that he was the only thing standing between me and debilitation and put them in for me but I could only do below the ovaries.

She and the other physical medicine doctor who treated me, the guy, have no scope of practice in FQ anything, and he even told me flat out in an appointment that he doesn’t know anything about fluoroquinolone antibiotics, and then shortly afterward told me I couldn’t possibly have fluoroquinolone injury from FQ ocular drops which is not true.

Every doctor who had no scope of practice was bound by law and medical ethics to do one thing and one thing only and that is refer me to a with scope of practice or tell Kaiser that I needed this referral outside the system.

I have asked my primary care doctor for this referral repeatedly. As we have seen, he has not referred me and he did not do what I began demanding— to save my health and mobility!— tell Kaiser that I need to be referred by Kaiser to someone with scope of practice in the system or if no such practitioner exist then someone outside the system.

Again, we see his de facto refusal to refer bc I’ve asked/begged repeatedly and he has not done it & I’ve asked him for his clinical reasoning & he will not give it. He won’t even say he won’t refer me. He just doesn’t answer. He denies I have FQ injury but will not answer/ducks q when I ask why. CONT’D

Urgent grievance you must file @KPMemberService continued and you must send this message to Gregory Adams the Kaiser CEO.

My primary care doctor claims to have experience in scope of practice in Fluoroquinolone injury, yet told me that IV magnesium was not necessary. I desperately need this to alleviate some of the symptoms and avoid progressive harm. When I asked for it, I had begun to have the death of muscle in my foot and if that continues I could lose my ability to stand without a brace or prosthesis.

The neuropathy and edema should never have gotten to this point but your ignorant doctors in neurology who have no scope of practice have refuse me a necessary standard test for small fiber neuropathy called a skin punch biopsy that actually counts the intra-epidermal nerves.

I asked Dr. H flat out on Monday whether she or the head of neurology have any scope of practice or knowledge of Fluoroquinolone injury.

Her reply : “I don’t think any of us are familiar.” Meaning she or the Department had Dr. M. He is the head of neurology who has no idea what reactive oxygen species are and thus did not test me for the oxidative harm that is a major part of the chemical pathology and horrific destructiveness of Fluoroquinolone injury.

Understand the oxidative stress is foundational to being a neurologist and he is clueless. He refused me all the test for oxidative harm and only tested me for auto immune disease which is absolutely clear I don’t have absolutely none of the clinical symptoms. Nor do I have any tested symptoms and my CRP is 0.3 which tells you I do not have an autoimmune disease right off the cuff. How are your doctors so wildly ignorant? Foundational stuff?

Because she had no scope of practice and neither did he they were bound to do one thing and one thing only and that is refer me to a doctor with scope of practice. They violated the law and medical ethics as have every single practitioner who has treated me without scope of practice. The ones who should never be included in this are those who have helped me escape the negligence of other practitioners by ordering me test within their scope of practice. I’m always careful to never put a practitioner at risk in their help for me.

Getting back to my obscenely law violating and medical ethics violating PCP, he is engaging in what I understand to be major medical malpractice by claiming to have expertise and treated me entirely contrary to what expertise would have him do. I am not speculating here. What does absolutely ignorant primary care doctor who claims to know Fluoroquinolone and their pathology does not know is that FQs chelate magnesium(bind with magnesium in the gut and form an insoluble complex that is that excreted).

I told this negligent and destructive PCP that I am taking 10,000 mg of magnesium orally to only get a fraction of it. This is a huge overdose of magnesium and it gave me severe diarrhea which is also extremely unhealthy. He told me I must be taking the wrong oral kind. OK bc magnesium is bound in the gut by FQs, you could take magnesium by the late Queen of England and blessed by the Dalai Lama, and you still won’t get it in your system. Oh, and I’m a transdisciplinary medical expert and absolute nerd about chemistry and physiology and science and I knew to take magnesium glycinate.

IV magnesium is necessary because it bypasses the gut. And I had to fight several days for it a very stressful battle that required me writing magnesium orders and justifications for it so the practitioner ended up helping me wouldn’t get in trouble, and I have symptoms that made it under his scope of practice. But he didn’t answer my message about this and I knew he was out and I was terrified and I had to call my psychiatrist in tears telling him and his amazing nurse that I had an emergency. They know me. I never do this. He treats kids with terrible problems and they need him desperately.

Ran out of space. CONTD 2nd in grievance series

Third in the series @KPMemberService

Urgent grievance you must file @KPMemberService continued and you must send this message to Gregory Adams the Kaiser CEO.

I had to send my psychiatrist the write up I wrote for the other doctor, and I was terribly worried because maybe it wouldn’t be within his scope of practice but I thought it was because of GABA Blocking and NMDA excitotoxicity had left me with horrible destructive all day brain fog and searing feeling in my brain plus a depletion of my normally high executive function, thanks both to my genetics and approach to life, and substantially to his excellence as a doctor and science based practitioner and the ADHD drugs he adjusted to be optimal and his wonderful work to keep me highly cognitively functional.

He actually had to deny me the IV magnesium at first. Saying he needed to ask renal. No I desperately needed that magnesium but I thanked him for denying it and for asking because this is appropriate and ethical legal and prudent medical care. Unlike my primary care doctor whom I believe claimed he had experience because (my suspicion and opinion only ) he did not want to tell a patient that he did not know and perhaps tell a woman that he did not know.

The upshot has been medically , physically, and emotionally as well as professionally destructive to me— my primary care doctor keeping me from getting necessary care, especially urgently needed care like that IV magnesium.

I am still debilitated and I still have cardiac symptoms but his less my symptoms substantially and less in my pain. But the pain and symptoms come back between infusions and the sign says that I need probably five days straight of IV magnesium infusions which I will fight for and explain. This is what it takes to replenish magnesium intracellularly. Primary care doctor has not a clue in the world about this, telling me I’m probably just taking the wrong kind orally.

Obscene. 10,000 mg a day of magnesium glycinate. Getting a fraction in my system.

Because of the horrific negligence of Kaiser denying me all this care, I realized I needed to show my real electrolyte levels. I drink a massive amount of Morton lite salt (for potassium) & salt in my water & I still have deficient abnormal electrolytes now in last reading in ER where I had to wait six-ish hours to get IV mag sulfate infusion Kaiser negligently does not have enuf space in its IV infusion clinic to do before April 1. Emergency need! Dying muscle in foot. Horrible cardiac symptoms with my BPM leading to 138 and going down to 45. These are caused by neuropathy & require an Ewing Battery & tilt table & QSART, but my ignorant PCPrefuses to give me a referral to a cardiologist. I told him of tachycardia 177 bpm while seated on my couch calmly. A pounding heart all day & clutching lungs and sometimes dizziness. And how I fainted (orthostatic hypotension with syncope) in March.

Your negligent cornea surgeon heard all this from me &saw validated stats for these numbers (device validated with med devices by awesome Culver Marina nurse [first name Me**n ]) & did nothing. She should’ve stopped glucocorticoid & FQ meds & rushed me to a cardiologist.

PCP is clueless that Holter monitor is not able to read small fiber nerve damage in heart. Refuses to let me speak and tell him anything to try to explain why his refusals are not legitimate. And I must see cardiologist w/specialty for the (neuro dept) diagnosed small fiber nerve damage I have.

He also called me “rude” for my insisting it is essential to treat according to the underlying FQ condition not his insistence to treat symptoms (only two at a time!) w/o consideration of cause. He also called me rude for saying his approach/actions suggest does not have scope of practice.

This is emotional bullying used to shut down a legitimate patient push for health-protecting care. His refusals to tell me his clinical reasoning amount to denial of informed consent I’m owed by law. CONTD 3rd in series

Read 7 tweets

Amy Alkon

@amyalkon

Mar 23

@KPMemberService file this is an urgent grievance. It is 2026 and I don’t have a fax machine and it’s not safe for me to walk due to the negligence driven nerve damage in my foot that is caused the death of muscle and will take my ability to stand normally unless I stop any more of the muscle from dying.

That death of muscle and the massive multisystem debilitation and destruction to my body and brain and every part of me is due to the negligent Kaiser cornea surgeon’s absolutely negligent prescription of a Fluoroquinolone antibiotic concurrently with a glucocorticoid in a patient over 60+ my low electrolytes and athleticism that made this enormously risky for me. She should’ve prescribed alternate drugs but I would bet my best bras and my favorite evening dress and even my Mexican cowboy boots that she is not a clue as to what they are.

Grievance pasted in below. I demand you send this to Gregory Adams, the CEO of Kaiser. So he sees what kind of medical institution he has presiding over. And the horrific destruction to me and continuing debilitation through the negligence and ignorance of every provider violating the law and medical ethics in denying I have fluoroquinolone injury and refusing to care.

@KPSCALnews bet you won’t be bragging about this. @KPMedSchool how many of these negligent doctors did you train?

My PCP has claimed to have experience in fluoroquinolone injury and scope of practice in it and it is clear he has none. For example, from his denial of what the science on the chemical pathology shows is necessary care such as IV magnesium to make up for how quinones magnesium and excrete from your system that means bind magnesium.

I had to spend days of stress and begging and writing to get the IV magnesium from another practitioner. And then I had to go to the emergency room because Kaiser negligently does not have spots in their infusion lab for a patient with serious cardiac symptoms who needs an appointment right away—Not just for that but to possibly reverse the neuropathy driven edema and other effects of the fluoroquinolone driven nerve damage to possibly save the muscle in my foot. There is fatty infiltration of muscle which means the muscle has died.

This is due to the utter negligence and abusive behavior of Dr. V in phys med. She refused me MRIs that were necessary while having no scope of practice in fluoroquinolone injury to do this ortell me what she did, gaslighting me and telling me I don’t have Fluoroquinolone injury after what seem to be collusion with the negligent cornea surgeon who harmed me with a negligent prescription of Fluoroquinolone antibiotics you have been concurrently to me, a patient over 60 with a massive overdose of glucocorticoids, which I should not be given whatsoever. (FDA fluoroquinolone antibiotic black box of 2008– multiplied risk of tendon and rupture from routine movement and risk of irreversible debilitation. I was given no informed consent, no disclosure of risk. I was treated like life drugged with harmful drugs without my knowledge. This doctor is so medically ignorant and ignorant of the research in her own field that she told me at my first appointment that prednisolone acetate has no systemic side effects. Clinician and researcher Marianne O Price is one of the researchers looking into the question of how they caused less patient harm with the systemic effects of prednisone acetate by using other steroids. Such as fluorometholone. There is one of us reading the research in this negligent doctor’s fiel it is me.

Both of these drugs were contraindicated from start bc I had low electrolytes. I should’ve been given alternate prescriptions. As called for in her field/by FDA.

3 other antibiotics she could’ve given w/o risk of mitochondrial destruction, collagen destruction, long-term debilitation, nerve damage, elevated matrix metalloproteinases, oxidative harm, & destroyed collagen matrix thruout my body. (1/2 urgent grievance continues that you must file)

This affects every part of me for my ability to balance and walk normally to my executive function and formally sharp cognition and all day energy, to my beautifully cared for skin (the most protective French sunblock since the 90s and never going out without an umbrella and or a hat) that is now destroyed.

Sure there’s aging but you don’t age to the extent of the destruction of college and you see in my face just over a period of months. This is Fluoroquinolone injury and she is monstrous for her cavalier negligence in prescribing what she did. She should’ve also stopped both drugs per the FDA and research supporting this that I read. My brain is messed up from this drug in its pernicious effects on GABA and the neurotoxic effects on NMDA.

My negligent PCP, Dr. S, is treating me symptom‑by‑symptom, refusing to treat more than two symptoms at a time, not treating me as a whole person with an underlying multisystemic injury. I use the Bradford Hill nine and various medical test that I had to spend months begging for from various providers. MRIs I had to write myself to get them correct, that my hero of a gynecologist put in because he cares about patience. He was allowed by the associate director of the hospital, the former had a gynecology.

PCP’s approach, like by insisting that tendon and balance issues will be treated as if they are any person’s tender balance issues and not due to the chemical destruction of tendons and nerves by the Fluoroquinolone that he knows clearly nothing about, is a violation of the law and medical ethics and a serious abdication of clinical responsibility in someone with a complex, multisystem condition. His denials have caused me to spend days and days writing to beg for care from other doctors and fighting through the

•He is accepting profound disability (can’t walk, can’t balance) as if it were a benign or static outcome, instead of referring urgently for neurologic, autonomic, and connective‑tissue workup. That is not standard of care for a sudden, severe functional decline.

PCP &KP Ignoring my explicit requests in writing since Oct 7, 2025 and it is now March 23 2026, to tell Kaiser I must either be given a provider in network with expertise and knowledge and scope of practice in Fluoroquinolone injury to evaluate me, give me diagnosis/tests/treatment, or KP must allow me to go out of network immediately. This may take going outside LA w remote appointments with practitioners in other areas or countries. There are not many qualified in this & I need doctor w scope of practice so I am not just denied tests I need by practitioners w utter ignorance of my condition practicing outside their scope of practice in violation of the law & medical ethics & harming me & making me unsafe in process.

The negligent neurologist is STILL refusing me a nerve punch biopsy for small fiber neuropathy. It is progressive. I have BAXTER’s neuropathy and dead muscle in my foot from the compression of calcaneal nerve. I have to ask dermatology, she says. But I don’t need a skin punch biopsy; I need a nerve punch biopsy. Dermatology PERFORMS test, but Neuro must order and interpret. Gold standard for small fiber neuropathy. I need to know the level of axonal damage/progression baseline.

I was told by neuro nurse who called me that this negligent neurologist denying me necessary nerve punch biopsy for FQ injury despite having no scope of practice had spoken with head of neuro & he said I don’t need this. I do. I need baseline for the nerve damage to see if it is progressing or stable or what.

Neuro headis so medically ignorant as to be a danger to patients He told me he does not know what ROS are. “What is that?” he asked. I thought I’d spoken too fast. I said reactive oxygen species. He again said what is that? What that is is foundational to being a neurologist & a factor in numerous neurological diseases!

(2/3 file as urgent grievance @KPMemberService continuation/must send to KP ceo Gregory Adams)

It is obscene negligence that he has not a clue. And that he denies patient care based on his ignorance. Monstrous.

This other neurologist is so ignorant of Fluoroquinolone injury that she told me even if I had this test I only needed one leg and not bilaterally. Well that is true if you have an autoimmune disease where the damage presents bilaterally. In Fluoroquinolone and injury, contrary to the ignorant doctor, Different limbs have different levels of nerve function. How am I having a medical provider deny me care based on massive ignorance by every single doctor who is treating me, save for those who are helping me by finding ways within their scope of practice to give me tests I desperately need that all of these negligent practitioners refuse me based on ignorance of fluoroquinolone injury.

Every single one violates the law and medical ethics by treating outside their scope of practice and I am progressively damaged as I have to fight and fight and fight and do nothing else since October 7, earning no money, having no social life or world, living off my savings that I will run out of and become homeless. Kaiser is monstrously negligent.

I demand you file this as an urgent grievance. And again of that every grievance Kaiser has taken down from me by member services employees on the phone is incorrect in some or many ways.

KP only allows submission by fax or mail. This is really great at preventing patients from submitting grievances. It is not safe for me to walk at all with the nerve compression and the death of muscle in my foot. Caused by the monsters negligence of Kaiser Permanente and the multiplied and ongoing negligence of denying me care and never providing me a single provider with scope of practice and expertise and knowledge of Fluoroquinolone injury to give me a diagnosis. I have no diagnosis whatsoever only ignorant practitioners with no scope of practice denying that I have this.

@KPMemberService file this third and the series of posts as a continuation of the urgent grievance in the previous two and you must send to Kaiser CEO Gregory Adams. I demand he be shown the utter negligence in violation the law and medical ethics and simple human decency that is causing me progressive debilitation and taking every bit of my time and gutting me emotionally as I fight Kaiser for so much as a practitioner with knowledge and expertise in my condition. Having been denied this since October 7, 2025 when I demanded in writing. And that was urgent Under timely access rules due to the FDA black box of 2008 for Fluoroquinolone antibiotics with multiplied risk of tendon rupture from routine movement from the concurrent prescription of a Fluoroquinolone and a glucocorticoid in a patient over 60. Me, on other words.

The level of work that I must do every single day to fight Kaiser for care that is appropriate and cop by the evidence not one of your ignorant doctors denying me care has red is monstrous. I will become homeless and die on the street because Kaiser is aggressively and monstrously negligent. And as I have demanded and demanded and demanded since October 7, 2025, Kaiser has never followed through on its own protocols respecting the law and medical ethics to give me a single practitioner with with knowledge and expertise and scope of practice to diagnose me.

Refusing a patient a diagnosis and then denying care is a serious violation of like a slew of laws and codes.

The IV magnesium denied me by my absolutely ignorant primary care doctor who claims to have expertise in fluoroquinolone injury and clearly has none, I got by massive work to explain and then beg other doctors to give it to me where there was some overlap in their area of medicine. Had to sit in the emergency room for six hours. Because your negligence as an institution has your infusion lab have no appointments until April one. Research and physiology suggests I would lose my ability to stand in that time.

Nonprofit? Hilarious. 3/3

Read 4 tweets

Amy Alkon

@amyalkon

Nov 9, 2025

Please, please, please, unless your patient will die without a fluoroquinolone antibiotic, and there is no other possible drug that could save them, please do not prescribe fluoroquinolone antibiotics and spread the word that they can cause horrific symptoms and lifelong debilitating. Especially when prescribed concurrently with a cortical steroid in a patient over 60. FDA black box 2008. Nerve damage is 2016. I forget what your aortic dissection is. And there are countless other ruinous risks to patient mobility and balance and lifetime health.

Undisclosed to patients. Like me. Had my exceptionally negligent Kaiser Permanente Crenshaw cornea surgeon disclosed the risks of FQs, I would’ve asked for an alternative that did the job without these risks. And there are three.

And yes, despite FDA egregiously & unscientifically claiming risks of systemic absorption are only from oral & injected, they are also from eye and eardrops. Case reports of both + I’ll campaign to get both researchers to study this so that can be brought out more than it has been by Sullivan and others, and press FDA to stop this absolutely scientifically unwarranted & harmful claim that only the oral and injected forms have systemic effects.

Has no one heard of Carl Sagan? and beyond case reports from ocular and ear drops, there are surely numerous undiagnosed cases of patients suffering FQ debilitation due to eye & eardrops.

Tho this sparse evidence DOES exist, Sagan: “Absence of evidence is not evidence of absence.”

As soon as I complete my absolute egregious fight since October 7 to get Kaiser to give me the diagnostic imaging I need to know which tendons are in danger of rupture so I can minimize or avoid use of those parts, and get tests for the progressive and progressing large fiber & small fiber neuropathy symptoms I have, I will fight to help other patients get care and I will also follow through on asking @SecKennedy to have me (as a medical expert in both transdisciplinary medical science and delivery of care) testify to FDA about denial of care now endemic at numerous medical institutions.

I’m also good with talking with an expert at the FDA to petition them to recognize the problem. I prefer testifying so it is transparent to the public and I can post it on social media and let people know.

I already have solutions (see Chap 2, GOING MENOPOSTAL: What you (and your doctor) need to know about the real science of menopause and perimenopause (@BenbellaBooks).

Essential is making up for lack of evidence behind much of our medical care, bc med schools obscenely turn out class after class without training them how to read and critically evaluate research. Med institutions must backstop doctors’ lack of knowledge/ability to read research and frankly, lack of time to read it at an institution like Kaiser.

They see patients every 20 minutes + have onerous elec medical record keeping requiremts. As I’m sure many of you do.

You either go home at 9 PM after transcribing audio recordings of patient sessions or you look into your screen thruout appt & possibly miss a subtle signal like a twitch in your patient’s face that suggests a potential serious problem.

@KPMemberService Kaiser Permanente is behaving monstrously—to exactly the wrong person. No patient should be treated this way. But this patient is an expert on laws on delivery of care; I write correct ICD-10 codes inc new FQ diag code, & I even wrote the only correct MRIs I’ve gotten. Put in for me by my fucking hero gynecologist.

Phys med head (who opened appt by calling Chinese “medicine” a “different way of seeing” & talked of meridians—pseudoscience!) is so terrible at her job that she didn’t know to write separate hand & joint (wrist) MRIs, which meant field of view was too large to pick up need detail.

Instead of clinical condition of FQ tendonopathy &signs of it like surrounding tissue edema that proceeds rupture, she sloppily &wastefully wrote MRIs for “diffuse pain.” (1/2)

Tragic waste of 4 MRIs that need to be redone. Simply evil arrogant carelessness. At least other phys med doctor I saw by using fact that I’m entitled to a 2nd opinion by law looked at MRI sequence I wrote at my request & ended up copying it word for word. Bc yes, I can write MRI orders that well, & believe me I had no idea how to write one in September.

I know the laws on delivery of care, I have filed such a strong IMR with the California Department Of managed care that they didn’t wait 30 or 45 days but went after Kaiser in under a week.

Still, my care is inappropriate and denied in many cases or they just don’t know the test or how to perform it. And we’re talking 3 mm skin punch biopsy for small fiber neuropathy. This is a Neuro standard and the head of neurology, who does not know what reactive oxygen species are, and thus did not test me for the mitochondrial harm and oxidative damage that he does not understand. Only inflammation metrics which I knew were fine. 0.3 CRP. Sed rate of 3, etc. I had to scheme my way to mito health/oxidative harm (MMPs + excess ROS) through begging various doctors.

Kaiser has behaved so egregiously to me that it’s mind blowing. I was told by the officious little social worker tasked with throwing me out of the building (or rather having the poor security guard to the dirty work) that Ameen Dinani was behind throwing me out. He told me that about a minute after he told me he was not at liberty to tell me who was who is behind throwing me out, because I am a mediator and I knew what exactly what was happening and I remain the picture of the picture of calm.

I didn’t bite at a single bit of the various forms of bait that the guy threw at me. I believe these were intended to rile me and get me to act out. Poor guy. The more he kept at it, the more I simply calmly and more calmly simply disputed all the textbook Robo-stated therapyspeak the guy was throwing at me. It was rather hilarious. It was like being in a medical car crash that would have no physical damage but was really fascinating.

He had nbeen asking me what my purpose was in the lobby. And the purpose was to beg for a cancellation appointment at another dept that was still open. But he talked over me every time I tried to answer.

And I of course did not raise my voice a smidgen or show anything but cool— the antithesis of the crazy patient making a fuss. Then he gets to throw them out & isn’t he a wonderful hero, this tightly wound little man, with the air of contempt and passive aggressive rage, irate that I didn’t fit textbook upset patient ranting and raving & just sat there probably barely containing a smile as he tried his next tactic: we should use active listening. Mediator tool that makes you sound like a robot. He just needed to use listening listening, like a human being, as the guard was. This poor guard, tall, kind face, African descent, enlisted to throw out a 61-year-old woman who can no longer walk properly. I looked at his kind face. And into his eyes. HE couldn’t help but show that he felt compassion for me. And I would guess probably rightly that he thought what they were doing to me was horrible.

Again, since October 4 when they started in October 7 when I put in the request that kicked off “timely access” rules of @cadmhc that probably only the rare patient knows about but I know about, all I wanted was to try to mitigate the horrific harm by their doctor with appropriate & urgently needed imaging & nerve tests so I might have a chance of stopping the progression of the nerve damage taking my balance and so I could know which tendons were at risk so I could avoid or minimize using those parts of my body.

My calm and continued calm so got this officious little social worker—with those bulging veins in his forehead an angry little eyes—more & more irate that I got him off his game totally.

He blurted out that it was head of BM & rehab at Kaiser West LA, Ameen Dinani who was behind throwing me out! (2/3)

Now, apologies if I’ve said some of this before, but I’m talk texting in my hands don’t really work. They really really hurt right now. So I’m just trying to not be repetitive but I probably am a bit.

Ameen Dinani, head of depts of phy med & rehab at Kaiser West LA, had actually called my cell phone previously when I was sitting in the lobby trying to make some other crazy magic happen to get care that I should’ve just been given.

He told me he would help me in this phone call he made my cell phone Wednesday, November 6 around 2 PM probably and then never called me back again though he had promised he wouldn’t.

And I hope I didn’t say this before but the reason I was in the lobby was that this med guy number two told me at 11:30 on Monday November 4 that he put through the hands and feet MRIs for me. I called Radiology to tell them I will take any time they have, 2 AM, 5 AM, etc. and they already know this about me. I will do one part at a time and come back the next day for another part and the next day for another part. Whatever they can do.

There’s a problem. The order is actually not in the system and Radiology appropriately tells me that I need to call physical medicine and get them to fix this. The Radiology person is a phone operator and not a magician. And she is right.

I call and message through Kaiser’s portal and call and message and beg him to fix this. No reply. I called the nurses and ask to check did he hit submit, is there some problem with their tech? Now Kaiser’s Tech is working because my motherfucking hero of a gynecologist has been putting through whatever MRI order he can for me, all of which I write. Which takes me till 4 o’clock in the morning but I get meticulously correct.

But the hands and the wrists are above the ovaries and so are the shoulders and I need this guy to order them. Monday goes by. Still no ordering, same thing on Tuesday. I’m told that he has not answered or looked at either message that I or the nurses have sent him to beg him to fix this. I asked him to please ask another human being there who can fix this or look into it. Nothing is done. Wednesday all day, I am begging and begging for someone to fix this or just tell me that you’re not gonna give them to me so I can go beg for an appointment and some other department to try to get somebody else to write these for me and put them in.

Nobody will put me thru to a person who will tell me anything. I just want a yes or no that they’re gonna give me the order. B’chaim it takes too much out of me to plead for appts + I have to limp around which is dangerous to my tendons. Of course if it’s necessary I will do it.

Finally, the clerk who answers tells me late in the afternoon on Wed Nov 5 that the orders have been put through. I’d begged them call me as soon as they were in bc I needed to call radiology ASAP to possibly get a cancellation appointment maybe at 5 AM when other people don’t wanna come in. All in Radiology have been heroic in extending selves & I’m beyond grateful.

Radiology is closed then
too late to Pur in for appt, but I’m a complete fucking dumbshit in that I actually believe phys med dept that MRI order is finally in system.

So all day Thu am, I fight & scheme to get care + have appt. Wonderful Radiology tech must take lunch & has three patient MRIs after that & says then he’ll come back & we’ll figure out appts for me!! Love this guy!

I wait gladly & gratefully for hours. 330 p.m. Thu Nov 6, he’s back. I limp to him at computer so he can make magic finding me 5 AM etc slot.

OMG. Order I was told was put in is not there! I’m sure I sobbed. Can’t recall. I sob a lot these days.

I go to lobby to map out anything I can do, ideally before KP closes, like which dept to limp to to plead for cancellation appt to beg another doctor to order MRI.

How DARE I be so disruptive a patient as to calmly strategize my way around Kaiser’s obscene & law/rule/medical ethics violating denial of care!

Cast that bitch out!

Read 4 tweets

Amy Alkon

@amyalkon

Oct 19, 2025

I’m being forced to make a terrible trade-off due to Kaiser Permanente’s ongoing aggressive negligence in the wake of their doctor's breathtakingly negligent prescribing.

I have to risk (possibly irreversible) harm to my tendons to try to stop the neuropathy—nerve damage—that may compromise my ability to balance and move for the rest of my life.

My negligent Kaiser eye surgeon caused both of these debilitating harms by basically using an FDA black box warning about a dangerous drug combination as a recipe for "care." (🧵1/9)

FDA 2008 black box on fluoroquinolone antibiotics (there are a bunch more in subsequent years):

Fluoroquinolone antibiotic + corticosteroid in patient over 60—risks irreversible tendon damage, including 46-fold increased risk of Achilles tendon RUPTURE from "routine movement." (🧵2/9)

I needed an urgent diagnostic appointment on Oct 7– ortho or sports med and MRI—to determine how damaged my tendons are and whether I need to avoid moving certain limbs, parts, or digits to avoid further damage or rupture.

It is now Sun, Oct. 19. I have no appointment today or on Mon (Oct 20)—or ever at this point.

Despite my spending every day since Oct 7th begging for care (including filing for expedited care, calling "escalations," and more).
(🧵3/9)

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