Taranaki healthcare staff volunteer to help colleagues with Long Covid - because there are no nationally coordinated Long Covid resources to help patients.
1/
rnz.co.nz/news/national/…
The clinic has no funding and relies on physios, occupational therapists and nurses volunteering to care for staff with the disease.

This is what #LongCovid looks like. Debilitating symptoms and limited support.
2/
Rebecca, a nurse at Taranaki Hospital, said Long Covid made her so forgetful she thought she had early-onset Alzheimer's.

She would get in the car and forget where she was going, or leave appliances on for hours.
3/
Long Covid made Rebecca, a normally healthy person, exhausted by a persistent cough and uncontrollably emotional.

"I was walking around nearly incontinent at times. I'd beaten up my pelvic floor muscles with all the coughing. Then the coughing makes you tired and fatigued."
4/
Thank you Rebecca for sharing your story so openly. Your courage shines a light on an overlooked issue. Long Covid is a serious health concern that has been swept under the rug.
5/
"People go, 'Pffft, Long Covid. I did Covid it was easy, it was no problem. It's harder having a cold'.

It was actually quite nice having someone come along and say, 'Yes, what you have is genuine'."
6/
As a staff member, Rebecca was referred to Taranaki Hospital's free Long Covid clinic. It was not until she started receiving care that her symptoms improved and she could return to work full-time.
7/
Fy Dunford, a cardio respiratory physio, saw a need for healthcare workers to receive Long Covid support early on in the pandemic.

Dunford said the volunteered time of hospital physios, OTs, speech therapists, social workers & dietitians had helped more than 20 staff members.
8/
Mel, another Taranaki Hospital worker, met the Long Covid team when the disease had her feeling desperate.

"I can remember being told that when you've got children, you're going to be the tiredest you've ever been in your life - and that was true up until I got this."
9/
Dunford said with no government funding, the clinic cannot be expanded to the public.

⚠️Te Whatu Ora has not been able to answer why it has not funded a national coordinated response to Long Covid.

This has been a known issue for 3+ years. @minhealthnz needs to step up.
10/
Dunford said people with Long Covid had been left to fend for themselves.

"These are members of our workforce, carers of children, and people that are going to have a high impact on ongoing spend in the future, so we have to be attentive to this health need."
11/
@threadreaderapp please unroll

• • •

Missing some Tweet in this thread? You can try to force a refresh
 

Keep Current with Living Safely With Covid #CovidIsAirborne

Living Safely With Covid #CovidIsAirborne Profile picture

Stay in touch and get notified when new unrolls are available from this author!

Read all threads

This Thread may be Removed Anytime!

PDF

Twitter may remove this content at anytime! Save it as PDF for later use!

Try unrolling a thread yourself!

how to unroll video
  1. Follow @ThreadReaderApp to mention us!

  2. From a Twitter thread mention us with a keyword "unroll"
@threadreaderapp unroll

Practice here first or read more on our help page!

More from @CovidSafeNZ

Jul 24
Novavax is commencing a phase 2/3 clinical trial of higher doses of an XBB.1.5 vaccine NVX-CoV2601 as a heterologous booster for people who have had 3+ mRNA vaccines.

The trial will test the original dose (5μg) compared with doses of 35μg and 50μg

1/clinicaltrials.gov/study/NCT05925…
#Novavax’s original Covid vaccine in doses ranging between 5μg to 35μg were well tolerated in Novavax's Phase 2 COVID-Influenza Combination trial.

Now, Novavax is testing even higher doses of up to 50μg in its XBB1.5 monovalent vaccine NVX-CoV2601
.
2/ir.novavax.com/press-releases…
In a recent VRBPAC meeting Dr Dubovsky stated that higher dose formulations in older adults led to better immune responses.

He also stated that the most durable responses come from a higher initial antibody response, so it makes sense to trial higher vaccine doses
3/
Read 8 tweets
Jan 16
Exciting news!
Novavax is working on an Omicron XBB specific vaccine with data expected to be presented at this month's FDA VRBPAC meeting.

Unlike Pfizer and Moderna #Novavax hasn’t yet updated its vaccine to specifically target more recently circulating strains of the virus.
1/
“Up through BA.5, our immune responses had held steady,” said Filip Dubovsky, Novavax’s chief medical officer.
“I can tell you right now that this #xbbvariant XBB, XBB.1, it looks different to us.”
2/
#kraken #XBB #XBB15 $NVAX
barrons.com/articles/novav…
Dubovsky said that Novavax has begun making the so-called viral seed needed to begin the manufacturing process for an updated version of its vaccine that would target XBB.1.1.5
#Novavax will present data on the XBB family of viruses at an advisory committee hearing this month
3/
Read 4 tweets
Sep 18, 2022
Ayesha Verrall on the most recent changes to Covid settings:
“I advocated for this package to be adopted.”

There was an obvious reluctance to step up protections in the future, because the government has promised "certainty" that events will go ahead.
1/
The certainty of summer festivals and events appears to be more important than preventing infection or allowing medically vulnerable people to safely access public transport or to participate in society.

Ableism, we see you.
2/
Q: Would there be restrictions again?
A: Gov takes into account economic/social impacts & population immunity.

That’s circular logic. Allow Covid to infect everyone. When new variants arrive gov claims people have natural immunity so no need to protect people from (re)infection
Read 7 tweets
Sep 17, 2022
When asked if COVID was going to be with us forever, like cancer and heart disease, and be one of our biggest killers @DrAndrewOld said we would be “very unlikely” to eliminate it from the world but hopefully it would be manageable with an annual vaccine like influenza.
1/
Dr Old says the jury is out on where cases will plateau but the expectation is that there will be a lull and then future waves, with the possibility of a wave over summer.
2/
Although the current wave is mostly over, MOH modelling suggests that the dropping of protections could result in an uptick of 10-20% of cases in the next few weeks before settling down to slightly higher than current levels (+2-4%).
3/
Read 10 tweets
Sep 16, 2022
BA.2.75.2 (subvariant of #Centaurus) is one to watch. Early data suggests Omicron BA.2.75.2 exhibits more extreme antibody escape than any variant to date. It’s too early to know whether this will result in a wave
Further explanation here. Neutralizing antibody levels for vaccinated & (overwhelmingly) infected serum is >5-fold lower than BA.5 & nearly 4-fold lower than BA.4.6
You can catch up on some of the history of BA.2.75.2 here. This variant has been growing quickly in India.
Read 7 tweets

Did Thread Reader help you today?

Support us! We are indie developers!


This site is made by just two indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3/month or $30/year) and get exclusive features!

Become Premium

Don't want to be a Premium member but still want to support us?

Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal

Or Donate anonymously using crypto!

Ethereum

0xfe58350B80634f60Fa6Dc149a72b4DFbc17D341E copy

Bitcoin

3ATGMxNzCUFzxpMCHL5sWSt4DVtS8UqXpi copy

Thank you for your support!

Follow Us on Twitter!

:(