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Dr Claire Taylor Profile picture
@drclairetaylor
Nov 7 • 15 tweets • 3 min read Twitter logo Read on Twitter
1/ JCVI don’t think long covid is real? 😲
I was looking up number of clinically extremely vulnerable in the UK and stumbled upon this.

Looks like they aren’t convinced that long Covid is a thing, based on 2 studies, despite many studies proving it’s real.

What on earth? Image
2/It was in their vaccine document here gov.uk/government/pub…
3/ They say:

‘high prevalence of most of the reported persistent symptoms among cases and controls complicates any firm attribution of causality to the initial SARS-CoV-2 infection. ‘
What? Image
4/ Over 2 million people have #LongCovid in the UK.
Aside from your vaccine decisions JCVI, this is damaging language.
Even the @WHO said 10% of infections result in #LongCovid
Do you disagree?
5/You are gaslighting over 2 million people in the Uk, and 65 million people worldwide with this sort of language.
6/ I can guarantee by the end of 2023 winter we will have a whole lot more long Covid.
Which, if you are still in doubt, starts with a Sars-CoV-2 infection (that you are doing nothing to prevent)-and people just do not get better.
7/ They develop multi-system symptoms that NO trawl through electronic records will ever help you with.
You have to SEE these people, take a full history and then you will see the lives curtailed SUDDENLY one day, by Covid.
Have you ever taken a history from an LC patient?
8/ There is no doubt long Covid is real. It is made up of many parts including
- dysautonomia
- hyper immune response
-mast cell activation
- viral persistence
- neuroinflammation
- endothelial inflammation
- effects on energy production
And more…
9/ There are thousands of papers to back this up. You have 2.
10/ And those 2 are on effect of vaccine on long Covid NOT whether it’s real!
You cite nothing to back up your actual claim about ‘symptoms and causality.’
Please consider changing this @GOVUK it’s a bit embarrassing for you with the @covidinquiryuk ongoing.
11/I’m happy to provide JCVI with everything they need to prove causality to the Covid infection.
12/population studies will never, ever show the extent of the problem.
Many with long Covid are not even being diagnosed, let alone coded in GP notes.
The ONLY way to see the extent of the issue is by seeing patients.
We will never know the actual numbers affected.
In fact, we stopped counting long Covid self reported numbers via ONS and we know GP coding is poor. So we don’t know the current number with long Covid in the UK. That is poor. I’m sure we know the number with type 2 diabetes….
13/ I am so fed up of this. How fed up must those with long Covid be?

This is from the current webpage last updated August 2023.
@dgurdasani1 have you seen this?

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More from @drclairetaylor

Dr Claire Taylor Profile picture
Nov 5
Now that we have ascertained we CAN’T get herd immunity- what is the plan? The inquiry has shown what the plan was- let the vulnerable die- but no plan for the 4/5/6 infections we would have by 2023.
How many infections are YOU willing to get before you get angry?
( caveat being since April 2022 no PCR which leaves us with LFTs. They are around 50/50. By day 7 better odds of picking Covid up. But a rubbish test.) that cold after cold you’ve had, esp in summer, may well have been Covid. Most people I know don’t test.
So rather compare how many times you have been sick in a year to pre-pandemic. For me it was 2 viral infections in 10 years.
Now it’s 2-3 a year. All Covid. Nothing else.
There’s something wrong with Covid that it can do do this.
I did not sign up to this.
Read 8 tweets
Dr Claire Taylor Profile picture
Nov 1
Behind the scenes while people like me faced Covid every day, Our PM wanted to let anyone old, infirm, vulnerable just die. It wasn’t ‘just’ the vulnerable anyway, I had young people die. Pregnant women died. We have at least 16000 orphans in the UK who lost parents. Horrifying
The economy isn’t doing very well anyway. What’s the biggest reason for economic activity? Being sick.
We stopped counting long Covid at 2 million people. There will be many more now. Not only that, long Covid ruins lives. Image
And kids- they still have absence rates well above pre-pandemic. Image
Read 6 tweets
Dr Claire Taylor Profile picture
Oct 28
1/Covid is a vascular disease. Even in children. 🩸

Why are the Sun&the mirror today reporting a warning about children&Covid from a paper from December 2020??

@Sunny_Rae1 and I talked about thrombotic microangiopathy a YEAR ago on Twitter space
Image
Image
2/This is recording of that space. It was listened to by over 20k people

@TheSun says today-3 YEARS later
🔴VIRTUALLY all children infected with Covid suffer from serious blood vessel damage, scientists have warned.
US study found a "high proportion” of kids with the bug had elevated levels of a biomarker tied to this type of cardiovascular injury. Image
Read 25 tweets
Dr Claire Taylor Profile picture
Oct 22
I want to share something I was recently told- verbatim.

‘We are dealing with an increased level of aggression in primary schools across Scotland’

Apparently
-there are meetings being held
-they don’t know what to do about it
- they don’t know why 🧠
I was told this as my 9 year old daughter was threatened with a KNIFE at school.
My attempts to speak to the head of education for my area have been blocked at every point.
Teachers tell me- we don’t know what to do with this group of pandemic children.
The automatic assumption is ‘lockdowns’
But three years on- we are still dealing with a much higher than average illness absence rates in children.
Especially‘persistent absence’ Image
Read 21 tweets
Dr Claire Taylor Profile picture
Oct 22
1/ To all the #longcovid doubters- I diagnose neuroinflammation all the time. It is clear to see in patients’ presentation.
It is not brain fog-it’s cognitive dysfunction🧠

@polybioRF have linked it with vascular problems.
Covid is a vascular disease🩸

biorxiv.org/content/10.110…
2/we don’t usually have access to PET scans&vascular inflammation markers for patients .
But then we don’t for other diseases either. It doesn’t mean we cannot diagnose&treat them.

This chart shows long Covid in red&normal in blue.
Clearly those with long Covid are different Image
3/ what is different? More of a PET signal=neuroinflammation
🔥
Read 37 tweets
Dr Claire Taylor Profile picture
Oct 17
1/ The vagus nerve, Enteric nervous system, Covid&other viruses

- I am especially blown away by how many #LongCovid and #MECFS patients have autonomic dysfunction or #pots
In fact it’s so striking I rarely see anyone with post-exertional malaise without POTS
🔴 test for POTS
2/ (post-exertional malaise is worsening of symptoms with activity, physical or cognitive, and by activity I mean even *speaking* for some people) it is pretty specific to post viral illnesses.
Around half of long Covid patients have PEM.
It’s why exercise can make them sick.
3/ The vagus nerve is a giant nerve known as ‘the wandering nerve’.

It ‘wanders’ from the brain into the organs in the neck, chest and abdomen.
A highway from the brain to the body and back.
It’s the longest nerve in the body. And neglected in medicine. Image
Read 30 tweets

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