Listen to Long Covid Groups closing submission delivered by KC Anthony Metzer. 12/12/23
My Lady, I appear with Sangeetha Ienger and Shanthi Sivakumaran
Instructed by Jane Ryan of Bhatt Murphy
@Jane_Ryan_ @BhattMurphy @covidinquiryuk
#LongCovid #LongCovidKids #CovidInquiry
You heard from our client @SammieFMc during the impact films. In her statement, she said: “it has been extremely distressing to watch my child who had been previously completely healthy, happy and dancing around being unable to move and full of self-doubt. It was like watching
my child fade away – she is no longer the child she was.”

The LCG's have sought to understand how & why there was an inexplicable delay in the @GOVUK recognition of #LongCovid, when longer-term sequelae were foreseeable/ well-established from SARS and MERS.
#LongCovidKids
The evidence overall, including that from Mr Johnson’s own witness statement, makes plain that Long Covid was an inconvenient truth that Mr Johnson chose to ignore. This choice caused great harm and immeasurable suffering.

#LongCovid #CovidInquiry @Jane_Ryan_
Put plainly, Long Covid was not considered in the decisions taken in response to the pandemic.

Is it not simple common sense that long term harm from a virus is relevant to how a pandemic is managed?

#LongCovidKids #LongCovid
#CovidInquiry
The PM wanted to be the Mayor of Jaws and was actively trying to keep the beaches open while delaying the decision to take a second lockdown. He entertained strategies where he thought by keeping the known vulnerable off the beaches, the rest of the population could go out to sea
There are at least 62,000 #children with #LongCovid. Mr Johnson called schools ‘reservoirs of risk.’ In May 21, there was agreement between DHSC, PHE, NHS & DfE that messaging in schools should signpost for any child experiencing long-term symptoms following a Covid 19 infection.
The PM did not mention #LongCovid once. We now understand that there was no @GOVUK communications strategy for Long Covid. This left people believing that if they were otherwise healthy, they would recover quickly when they fell sick, as they had been reassured would be the case
@GOVUK @CMO_England admitted it would have been helpful to acknowledge #LongCovid earlier. The overwhelming picture is that people were not warned that they were all, including previously fit, healthy, active people, indiscriminately at risk of suffering from long-term ill-health.
Looking forward, we hope that this Inquiry will make findings and recommendations that will ensure that we are better prepared to respond to pandemics; it is simple common sense that long term harm from a virus must be a relevant consideration for Government to protect the public
These recommendations are equally relevant today; the pandemic endures yet #LongCovid is no longer being counted or reported on
These 4 categories of recommendations wd ensure that the avoidable on-going suffering of nearly 2 M adults & children in this country, is never repeated
COVID-19 INQUIRY MODULE 2
CLOSING SUBMISSIONS OF THE LONG COVID GROUPS 13 December 2023
#LongCovidKids
@long_covid
@LongCovidSOS
@LongCOVIDPhysio
#LongCovid
#CovidInquiry
@Jane_Ryan_ @BhattMurphy
@long_covid @LongCovidSOS @LongCOVIDPhysio @Jane_Ryan_ @BhattMurphy @threadreaderapp unroll please

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More from @LongCovidKids

Mar 17
🚨 New: Long Covid services are failing patients.

📊 A joint report from  @long_covid  & @LongCovidKids reveals:
🛑 Clinics are closing.
🛑 Care is inconsistent & often falling short of NHS commissioning guidelines.

Action NOW!

#LongCovid #ClosingClinics bit.ly/3FBNMvaCollage of diverse individuals including adults and children with varied expressions. Text: "Disabled, discharged and disappearing from view" over black background. Long Covid Support and Long Covid Kids charity logos.
🔹 01 - Over half of adults & children with #LongCovid told us they consider themselves #disabled.
Yet services are closing, & care is inconsistent. Long Covid must be recognised as a serious, disabling condition.
🔗
#ClosingClinics bit.ly/3FBNMvaChart shows 55% of adults and 50% of CYP disabled by Long Covid. Text reads: "Levels of disability" and shows the charity logos for Long Covid Support and Long Covid Kids.
🔹 02 - 61% of children & 28% of adults told us they didn’t know Long Covid services existed.
How can people access care if they don’t know it’s available?
📢 We need awareness & proper investment.
Read the report:
🔗

#LongCovid #ClosingClinics bit.ly/3FBNMvaOrange and black graphic titled "Insufficient awareness." Highlights lack of awareness about Long Covid services. Stats: 28% adults, 61% CYP unaware. Shows the logos for Long Covid Support and Long Covid Kids.
Read 12 tweets
Jan 22
‘Compared with the pre-COVID condition, the COVID group had greater severity of inattention, somatic complaints, thought problems, internalizing problems, poor school functions, and interaction problems with their parents in the post-COVID condition’

#LongCovid #LongCovidKids Image
84 children aged 6–16 received assessments within 6 mths after being tested + for 🦠

Parents reported observations 3 months before infection & the most recent 2 wks (post-COVID condition) on a wide range of psychopathologies & social functional impairments

#LongCovidKids Image
Preventing infection in children should be high priority.

Please share this study with those who have the power to protect all children.

@GwynneMP
@wesstreeting
@bphillipsonMP
@educationgovuk

#LongCovidKids #LongCovid #CleanAir #Education

sciencedirect.com/science/articl…Image
Read 4 tweets
Nov 27, 2024
Closing statement from Sarah Hannett KC on Children and Young People 27/11/24.

"Long Covid is a new childhood disease whose prevalence is equivalent to childhood diabetes"

#LongCovid #LongCovidKids #CovidInquiry
One teenager told Every Story Matters that "it's a big identity crisis, my Mum and I were fit active people, I was meant to be beginning pro ballet as a career"
"at a young age difficult a you are finding out who you are, it's an identity I don't want"

#LongCovidKids #LongCovid
"In the UK throughout 2020 there was no information published by @GOVUK stating that children & young people could have any, let alone debilitating symptoms from COVID/LongCovid"
"When families sought assistance for children suffering they were routinely dismissed"
@SammieFMc
Read 9 tweets
Sep 6, 2024
🧵 Module 8 Prelim Hearing @covidinquiryuk @LongCovidKids @LCKScotland
CYP with #LongCovid suffered the double burden of the direct effect of their illness and disability as well as the indirect effects of the pandemic & it's associated measures felt by all CYP
Sarah Hannett KC
Some CYP have lost their lives to COVID-19, many continue to suffer from the life changing, disabling symptoms of #LongCovid

Patients & their families suffer the additional burden & stigma of being disbelieved and disparaged or having symptoms minimised or dismissed as anxiety
We agree with the observations made by the CRO that the Pandemic, & we would add #LongCovid, exacerbated and continues to worsen existing inequalities amongst CYP in terms of, for example social economic status, ethnicity & disability
#LongCovidKids
Read 17 tweets
Oct 31, 2023
Three years ago while #LongCovid was being denied and ignored, despite available evidence @LongCovidKids families came together to make this made this awareness video advocating for CYP injured by #COVID.
3 years on, children are still sick.
#LongCovidRuinsLives #LongCovidKids
Listening to the witnesses at the @covidinquiryuk today has been extremely difficult, upsetting and traumatic for families.
We are distraught that the experiences of our children who both endured the pandemic and were injured by the virus, are not being heard. The inquiry
'listening' project WILL NOT hear directly from CYP with #LongCovid. Less than 20 children will be interviewed as part of a research project. Their experiences will analysed and shared alongside the experiences of a larger number of children who endured the pandemic. We feel
Read 6 tweets
Oct 10, 2023
1/3 These are the words children use to describe their #LongCovid experience.
Friday is #LongCovid day at @covidinquiryuk
@LongCovidSOS Co-founder @selkieO
will give evidence on behalf of the Long Covid Groups.

We can't do this alone, we need your support.
#StrongerTogether Image
2/3 Their words remind us why we are part of the @covidinquiryuk
Join Us.
✅0915> @ Dorland House, 121 Westbourne Terrace London, W2 6BU
✅0800> online to support as we ask the @covidinquiryuk to #listen, #learn & give children & families #Hope

#ListenLearnHope
#GiveUsHope Image
3/3 The words of the young people injured by #COVID keep us focused on why we are part of the @covidinquiryuk

#Hidden
#Lost
#Broken
#Forgotten
#Disabled
#Stuck
#Trapped
#LeftBehind
#Ignored

#LongCovidKids #LongCovid #LongCovidAwareness Image
Read 4 tweets

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