Long Covid Kids - #LongCovidKids Profile picture
UK-based, international charity supporting and advocating for families and children living with Long Covid & related illnesses. https://t.co/QjkCJVG3tI
Perpetual Mind Profile picture Christina Cat Profile picture Amp Profile picture 3 subscribed
Oct 31 6 tweets 2 min read
Three years ago while #LongCovid was being denied and ignored, despite available evidence @LongCovidKids families came together to make this made this awareness video advocating for CYP injured by #COVID.
3 years on, children are still sick.
#LongCovidRuinsLives #LongCovidKids Listening to the witnesses at the @covidinquiryuk today has been extremely difficult, upsetting and traumatic for families.
We are distraught that the experiences of our children who both endured the pandemic and were injured by the virus, are not being heard. The inquiry
Oct 10 4 tweets 2 min read
1/3 These are the words children use to describe their #LongCovid experience.
Friday is #LongCovid day at @covidinquiryuk
@LongCovidSOS Co-founder @selkieO
will give evidence on behalf of the Long Covid Groups.

We can't do this alone, we need your support.
#StrongerTogether Image 2/3 Their words remind us why we are part of the @covidinquiryuk
Join Us.
✅0915> @ Dorland House, 121 Westbourne Terrace London, W2 6BU
✅0800> online to support as we ask the @covidinquiryuk to #listen, #learn & give children & families #Hope

#GiveUsHope Image
Jul 29 5 tweets 2 min read
“These figures are extremely concerning. Children rarely get ill, so a disease affecting 2% of young children to a level that it’s causing restriction of day-to-day activity is a huge public health problem.”

#LongCovidKids https://t.co/xFg2We5iwa
Image “In the absence of vaccination, prior infection remains the only means by which children can, ironically, become immune, and evidence shows that ensuing protection is highly variable and often insufficient….


#LongCovidKids https://t.co/4jUPn3lTAvinews.co.uk/news/science/t…
May 29 6 tweets 7 min read
🧵 “We now need to explore whether the lack of implementation is due to a lack of commissioning of services, or whether it represents centres choosing not to follow the guidance & use alternative strategies without evidence base.” @DocStrain

thetimes.co.uk/article/thousa… Image “It is important that decisive action is taken to address these issues and ensure that #MECFS patients receive the appropriate care they deserve,

#PostViralIllness #Disability #Health Image
May 26 8 tweets 4 min read
🧵 “researchers say they’ve come up with a list of 12 symptoms that can reliably classify someone as having Long Covid a working definition that should accelerate research into the disabling condition.”
#LongCovid @CNN
amp.cnn.com/cnn/2023/05/25… Postexertional malaise, or the worsening of health after mental or physical activity
• Fatigue
• Brain fog
• Dizziness Gastrointestinal symptoms
• Heart palpitations
• Changes in sexual desire or capacity
• Loss of or change in smell or taste
• Thirst
• Chronic cough
Aug 6, 2022 26 tweets 45 min read
🧵 Our guidebook provides information, support and signposting.

📕 Chapters for young people, parents & caregivers & schools.

🔬Evidence based information & case studies

🤗 Nobody has to feel alone.

To learn more ⬇️


#LongCovid #LongCovidKids ImageImageImageImage Long Covid Kids started as a grassroots organisation in September 2020.

In October 2021 we became a registered charity.

Our patron is beloved children’s author @MichaelRosenYes

#LongCovidKids #LongCovid #MichaelRosen #Charity #Support #Children ImageImageImageImage
Jul 6, 2022 8 tweets 6 min read
Minimising the experience of children living with #LongCovid has an ongoing impact on those suffering.

"This is Daniel. He is 16 - LC for 16 months.
Due to ongoing stomach pains, he is scared of eating & now has an eating disorder too, skin & bone"

#LongCovidKids #ChildHealth "This is Poppi. She is 7 - #PIMS March 21 after #Covid19, she was so poorly in @AlderHey for 2 weeks. Poorly ever since.
Reinfected in Feb 2022 at school - now worse than ever. Drs haven't a clue what's wrong with her I, want my little girl back"
Jun 1, 2022 13 tweets 19 min read
💈On the day the @ons report 26,000 CYP have symptoms for at least a year (⬆️ 3000 from last mth)
we received an email from @10DowningStreet in response to our visit on April 1st
It confirms the concerns of the children⬇️

"We feel ignored"


April 1st - 12 #children living with #LongCovid traveled
to #london to deliver their own letters documenting their #pain, loss of #sight, #mobility, organ damage, diagnosis of #PANS #MECFS #FND #POTS #MCAS and the detrimental impact it has had on their lives.

May 5, 2022 17 tweets 10 min read
1) Are you taking parental leave or having a break from work to care for your children with #longcovid?

A parent asks -

“I am wondering how parents are managing their work life whilst their little ones are so poorly. So far I have juggled things and taken annual leave but 2) it’s difficult to see how this is sustainable with no end in sight.

@longcovidwork @DHSCgovuk @CitizensAdvice
are you able to help ?

May 4, 2022 7 tweets 13 min read
Have you seen the #LongCovidKids Padlets?
@padlet is an interactive website/app that provides a visual library of internet links that our team updates as new information emerges.
Think of it as a scrapbook of useful links
Since the start of the pandemic, we have been collating resources & info to help us improve recognition, support & recovery
We have five Padlets suitable for different audiences;
• Children bit.ly/3DbaR2d
#LongCovidKids #ShineALightOnLongCovid
@FYI_SkyTV @suepeters21 @tes @ihv @earlyyearsontap @LucindaNatDoc @PYL_London
Apr 1, 2022 15 tweets 23 min read
These children have endured chronic and disabling symptoms.

Today they handed in their letters for @BorisJohnson to share their experience, hopes & ongoing infection risk fears.

#ShiningALightOnLongCovid #LongCovid #LongCovidKids CEO Sammie McFarland handed in the new charities NEW support guide available as a free digital resource for families, kids, schools, healthcare professionals parents and caregivers.

#ShineALightOnLongCovid #LongCovid #LongCovidKids
Apr 1, 2022 9 tweets 14 min read
Jacob is 11 years old & has been unwell since March 21. 2 weeks after #covid19 infection he lost mobility in his legs & required mobility aids alongside physiotherapy twice a wk ever since.

Jacob wants more support for families living with #LongCovidKids

#ShineALightOnLongCovid Emily is 9yrs old, she contracted Covid in Sep21. She was admitted to hospital for 13dys in Nov due to severity of her #LongCovidKids symptoms.She now uses a walker as has severe pain in her back & legs.

Emily would like more funding for LC services

Mar 13, 2022 16 tweets 18 min read
Please join us in welcoming our NEW #LCKchampion Dr Anna Brooks

BCA PhD Immunologist and Senior Lecturer at the Faculty of Science, University of Auckland, New Zealand

Give her some #LCKfamily 💕@DrAnnaNZ

#LongCovidKids #NewZealand #NZ @jacindaardern
longcovidkids.org/champions/dr-a… #LCKChampion
Feb 18, 2022 10 tweets 4 min read
Group Post
"Spent all of Wed in hospital , to be told my child was fine - I've just had to pull her up the stairs to bed. She's too heavy to lift - couldn't even crawl up
I'm angry angry angry & feel so let down by the NHS & our Gov
Our children are like ghosts!!
#LongCovidKids Group Post
"we got the results of S's extensive bloodwork. White blood cell count ⬇️and Iron &Vitamin D very low. Started him on Iron & Vitamin D,repeat bloods in 3 mths. It's not surprising he felt exhausted. They don't yet know why all this happened"
Feb 10, 2022 5 tweets 8 min read
#FactCheck 1 of 3

#LongCovidKids is not a campaign group.

We are a charity that represents and supports children and young people living with Long Covid and related illnesses and the parents and caregivers that look after them.

🏴󠁧󠁢󠁳󠁣󠁴󠁿🇮🇪🏴󠁧󠁢󠁷󠁬󠁳󠁿🏴󠁧󠁢󠁥󠁮󠁧󠁿🇨🇦🇬🇷🇮🇹🇦🇹 #FactCheck 2 of 3

Children's real risk of admission due to Covid increased during #Omicron

Jan 2022 3,797 child Covid admissions
Assume 53% primarily Covid = 2,012

Jan 2021 [Alpha] 1,243
80% primarily Covid = 994

Omicron TWICE as likely to hospitalise children due to Covid. Image
Jan 5, 2022 8 tweets 15 min read
1/8 What we need is;


Thanks to @CoSchoolsTools @guardian @zoesqwilliams
@HenryBurridge @Elodie_A_N

#LongCovidKids #Education #TEACHers #SpotCovid

shoutout.wix.com/so/24Nugz070?l… 2/8 To assist with @GOVUK rollout of CO2 monitors to schools @CoSchoolsTools have created 4 videos, and other materials, that aim to explain how #CO2monitors can help #teachers manage their classroom #ventilation for comfortable healthier learning.
Dec 29, 2021 4 tweets 3 min read
The Government have warned us that we will see large numbers over the coming weeks.

Parents have a situation to deal with. Knowledge is power.

Please know what to look for in your child. Trust your instincts. Seek help if you are concerned.

Symptom poster on following tweet For all those who care for children, this is how covid can present in a child.

From the lived experience experts 🧡
Dec 28, 2021 27 tweets 43 min read
8 yo Girl.
Off food for 2 days.
Bizarre itchy rash
Called 111 told Chilblains
Mum unconvinced

Please show #teachers #education #schools


Think #COVID19 #Omicron #LongCovidKids Image Symptoms of #LongCovid can be found in the gallery.


Nov 21, 2021 4 tweets 6 min read
🔥7 child deaths due to Covid in 1 week
🔥1 in 22 deaths of 5-9 year olds due to Covid
🔥Covid is top 5 cause of death 10-19 year olds
🔥30% increase in number of children suffering Long Covid in 1 month

📌This weeks Child Covid Specific Stats blog

longcovidkids.org/post/child-spe… @SGriffin_Lab @jneill @ProfColinDavis @TigressEllie @Antonio_Caramia @martinmckee @ChildrensComm @Jeremy_Hunt @sajidjavid @nadhimzahawi @MaryBoustedNEU @KateGreenSU @RCPCHtweets @RCPCHPresident @DRTomlinsonEP @theAliceRoberts @ShamezLadhani @ONS
Nov 14, 2021 19 tweets 11 min read
Group Post

“9year old had #covid in September and had continued to have dizzy spells and back pain. this week his lung has completely collapsed and needs major surgery...has anyone had this happen?”

#LongCovidKids Group Post
it is so sad to read how many children are suffering right now.

After mild COVID my S has

Extreme tiredness (able to stay awake for 4 hrs at a time)
Conjunctivitis x 2 (antibiotics)
Tonsillitis x 3 (antibiotics)
2 bouts of Gastritis (with acid reflux) & sickness.
Nov 11, 2021 11 tweets 18 min read
1 What does Long Covid look like?
Where do symptoms occur?

🆘🆘Anywhere 🆘🆘

#LongCovidKids #LongCovidKids #LongCovidKids
#Longcovid ImageImageImageImage 2 #LongCovidKids #LongCovidKids #LongCovidKids
#Legs ImageImageImageImage