Arianne Profile picture
Jan 3, 2024 15 tweets 5 min read Read on X
Thread-There's probably more to unpack here than X or my current flare will allow me to elaborate on.
From deflection to gaslighting and than on to dismissal of anything we #chronicpatients or even professionals say.
#ChronicPain #PainCareCrisis @DEAHQ
federalregister.gov/documents/2024…
2-Section 306 of the Controlled Substances Act (CSA) (21 U.S.C. 826) requires the Attorney General to establish aggregate production quotas for each basic class of controlled substance in schedule I and II...
Maybe next letter writing campaign to the U.S. A.G?
#PainCareCrisis
3-DEA received 4,699 comments from people with chronic pain, patients (ADHD), pain advocacy associations, U.S. professional associations, U.S. nurses, and far more.
4-Comments included concerns about potential domestic opioid drug shortages due to further quota reductions; stimulant drug shortages in the U.S/Australia; concerns that medical professionals might be impeded from exercising their medical expertise regarding opioid prescriptions;
5-..."concerns that medical professionals might be impeded from exercising their medical expertise regarding opioid prescriptions; two requests for a public hearing; concerns with the implementation of quarterly quota allotments..."
But who are we to even speak it seems?
6-"Commenters said because of decreases in aggregate production quotas for specific opioids, they have had difficulty filling legitimate prescriptions. These issues have negatively impacted their quality of life, caused mental health-related issues, possibly leading to suicide."
7-Lack of pain care is leaving people in agony with no hope left for quality of life.
They gloss over it like our lived experience is nothing or we're 'mentally ill'.
Jessica opted out. She wasn't mentally ill. She was tortured & lost hope.
#ChronicPain
8-DEA claims benevolence, blaming other factors for people in pain being unable to get needed medicine "DEA sets the APQs for controlled substances based on the available data and information received at that specific point in time set by the regulations, however..."
#ChronicPain
9-"subsequent factors and manufacturers' business practices may arise afterwards and potentially contribute to a temporary lack of inventory of controlled substances at the point of dispensation."
Yeah? Like driving manufacturers bankrupt with fines Through opioid litigation? Image
10-"DEA, in coordination with Food and Drug Administration (FDA), can utilize tools under the CSA to prevent or alleviate drug shortages and ensure that patients are able to fill legitimate prescriptions for controlled substances without undue delay."
Ask us about your epic fail.
11-"Issue (Nationwide Shortages): Some commenters stated that there is a nationwide shortage of opioid medication because their local pharmacies were often out of stock..."
#PainCareCrisis #ChronicPain
12-DEA response: "...drug shortages may occur subsequently due to factors outside of DEA control such as manufacturing and quality problems, processing delays, supply chain disruptions, or discontinuations."
Silence on the CHILLING EFFECT DEA & litigation has had on production.🧐 Image
13-Concerns were expressed about patients being driven to the streets, risking death due to unregulated drugs.
DEA basically says, how unfortunate.
Their response to this concern was: "DEA's quotas help prevent misuse and diversion of pharmaceutical controlled substances."
cont.
14-They go on to say #ChronicPain patients should work with providers to get alternatives for pain.
"Patients should work closely with their providers to utilize other FDA-approved medications for their conditions and fill their prescriptions only from DEA-registered pharmacies."
15-Anyway, the first post has a link-
You can read all about it yourself.
We don't matter to them, we never have.
We're acceptable collateral damage as they continue to ignore, dismiss, gaslight, abuse, and torture us with the blessings/intentions of the Executive Branch of GOV.

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More from @ravensspirit68

Jun 25
1-
Our pain is not just in our bones or nerves, and it's not just in our heads. It lives in the silence after we speak the truth about our pain and are met with disbelief. It festers in the sterile smiles of professionals who dismiss our agony with platitudes or excuses.
2-We begin to vanish from our own stories.
Rooms shrink.
Conversations end too quickly if they happen at all.
We become the unbearable weight in the room everyone pretends doesn't exist.
3-We are bound in bodies that betrayed us-but worse still, we carry the burden of the betrayal of not being believed. Chronic pain turns time into an enemy. Days begin to blur into decades of calendars of missed invitations; our absence misunderstood as an excuse.
Read 4 tweets
May 4
1-And to wrap things up today...
This is our Critical Analysis of fallout from the 'opioid crisis scam'.
Misattribution of Deaths: The lack of IMF testing until the mid-2000s falsely attributed overdoses to prescription opioids, inflating their perceived role.
#PainCareCrisis
2-It was clear by 2015, (due to more widespread testing upon death), IMF was the dominant driver of drug poisinings, yet policies like the CDC’s guidelines and DEA’s quota cuts continued targeting prescriptions, harming patients without addressing illicit markets.
3-Policy Overreach & the made up "overprescribing" narrative justified one-size-fits-all regulations; ignoring patient diversity. The CDC’s 2022 guideline update acknowledged harm from rigid limits-but the CHILLING EFFECT contines due to DEA scrutiny and pharmacy gatekeeping.
Read 10 tweets
May 4
1-Continuing the conversation about how the 'opioid crisis' scam is harming and killing vulnerable patients with serious illnesses and injuries...
#PainCareCrisis
2-Harmful Outcomes: Forced tapering or discontinuation increases risks of suicide, mental health crises, and illicit drug use. A 2019 Health Affairs analysis linked restrictive policies to an 8% rise in suicides among chronic pain patients.
3-Some abandoned patients with debilitating conditions turning to fentanyl-laced street drugs after losing prescriptions, with one user on X stating, “Doctors abandoned me; the street was my only option.”
Read 14 tweets
May 4
1-An overview of my conversation with @Grok, on how the 'opioid crisis' scam is harming vulnerable patients/ a scam that's led to policies which severely limit access to opioids, benzodiazepines, and ADHD medications, devastating patients who rely on them.
2-"Overprescribing" lacks a clear legal or medical definition. It is a made up term that emerged in the late 1990s and 2000s as a catch-all term to describe high prescription opioid volumes based on a medically baseless maximum 'morphine milligram equivalent', or MME.
3-The made up term was popularized by media, advocacy groups, and regulators to frame prescription opioids as the primary driver of rising overdose deaths, despite limited evidence isolating their impact from illicit drugs.
Read 12 tweets
Apr 7
This is a cry for help!
Not because I’m considering suicide.

This is a cry for help for millions in pain. It’s a cry for those who are taking their own lives to end the agony they've been told that they  just need to learn to accept.

#PainCareCrisis Image
2-It’s a rallying cry for people to start talking about what’s happening, what has been happening for years now, to people with serious illnesses & injuries in this country. Virtually no one is talking about this in the public forum-This is the other side of the ‘opioid crisis’.
3-There are people right now watching the news, rightfully outraged when they see profiling and discrimination, human rights abuses, violations of civil liberties and civil rights.
Read 14 tweets
Mar 29
1-BEER
Imagine: Beer poisoning kills a few thousand.
Gov declares beer to be highly addictive & dangerous. They implement gov database monitoring of sales & restricting access to beer, you are monitored through your DL. DEA put restrictions on sales & commercial production...
2-There is evidence that deaths are not the beer from the store that's killing most people, although alcohol related deaths do include store bought beer. Some studies say deaths are from a new strong smuggled beer, and beer being made in garages.
3-Since it's difficult to discern which beer is killing people, the government lumps all beer under the 'highly addictive and dangerous' label, and declares that in order to save lives, we need to get people to stop drinking beer, and all alcohol for that matter.
Read 11 tweets

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