1. (a) Patient data is patient data. It is not the Health secretary’s data, nor even NHS England’s data.
Clinics were correct in not disclosing data without having the express permission of the patient.
(b) In a letter to Adult GIC’s this week, NHS England’s National & ..,
Clinics were correct in not disclosing data without having the express permission of the patient.
(b) In a letter to Adult GIC’s this week, NHS England’s National & ..,
https://twitter.com/mimmymum/status/1778218947893969042
2. … Medical Directors (John Stuart & James Palmer’ stated:
“In her final report, Dr Cass has also expressed significant disappointment and concern that it had not been possible during the lifetime of the review to progress a key plank of its research programme due to a…
“In her final report, Dr Cass has also expressed significant disappointment and concern that it had not been possible during the lifetime of the review to progress a key plank of its research programme due to a…
3. … “lack of cooperation from the adult GDCs.
As you will recall … the Secretary of State for Health and Social Care granted an order under s22(5) of the Gender Recognition Act to enable data to be disclosed for a TIME-LIMITED period for the sole purpose of the data …
As you will recall … the Secretary of State for Health and Social Care granted an order under s22(5) of the Gender Recognition Act to enable data to be disclosed for a TIME-LIMITED period for the sole purpose of the data …
4. … linkage study … with an ‘opt out’ option for individuals who do not wish to have their data used as part of the study.
“… despite the best efforts of the research team, the necessary cooperation from the clinical leads within the Gender Dysphoria Clinics was not, ..,
“… despite the best efforts of the research team, the necessary cooperation from the clinical leads within the Gender Dysphoria Clinics was not, ..,
5. .. forthcoming.
At the end of the letter there are some ‘Immediate Actions’ for the GICs, one of which is
1.“you prepare your adult GDCs** to fully participate with the data linkage study and avoid the need for MANDATORY direction in this respect. Further details will be ..,
At the end of the letter there are some ‘Immediate Actions’ for the GICs, one of which is
1.“you prepare your adult GDCs** to fully participate with the data linkage study and avoid the need for MANDATORY direction in this respect. Further details will be ..,
6. … communicated shortly“
In an online meeting with Hilary Cass, at which I was present, Dr Cass ‘promised’ that ‘data linkage which impacted privacy rights under Gender Recognition Act’ would not continue once the final report was complete.
Yet, here are NHS England …
In an online meeting with Hilary Cass, at which I was present, Dr Cass ‘promised’ that ‘data linkage which impacted privacy rights under Gender Recognition Act’ would not continue once the final report was complete.
Yet, here are NHS England …
7. … proposing to enforce this data linkage. They cannot if you object
The data link study looks at whether transition leads to a Gender recognition certificate, as ‘evidence of successful treatment”
That implies if a GIC patient doesn’t obtain gender recognition the
…
The data link study looks at whether transition leads to a Gender recognition certificate, as ‘evidence of successful treatment”
That implies if a GIC patient doesn’t obtain gender recognition the
…
8. .. treatment & transition has not been successful.
As I research showed most people only apply for a GRC when needed eg to marry, adopt or retire.
I advise ALL GIC clinic patients (including PAST) patients who do not wish their data to be used in this way to write to …
As I research showed most people only apply for a GRC when needed eg to marry, adopt or retire.
I advise ALL GIC clinic patients (including PAST) patients who do not wish their data to be used in this way to write to …
9. … their GIC a short letter stating
“I do not give my permission for any aspect of my patient data to be submitted to, or collected for, the purpose of any research without my express permission in writing being obtained in advance”.
I also suggest that all who are able ..,
“I do not give my permission for any aspect of my patient data to be submitted to, or collected for, the purpose of any research without my express permission in writing being obtained in advance”.
I also suggest that all who are able ..,
10. .., to meet the current criteria, apply for Gender Recognition as soon as possible.
I am encouraged that the Tribunal’s service say an increase of applications has increased the waiting time for gender recognition to 30 weeks.
But I remind you: Privacy protections …
I am encouraged that the Tribunal’s service say an increase of applications has increased the waiting time for gender recognition to 30 weeks.
But I remind you: Privacy protections …
11. … regarding a GRC application come into being on application, not award.
This won’t protect patient data without a letter, but it gives a potential criminal charge if data regarding your application or award is disclosed without your express permission. That will help ..,
This won’t protect patient data without a letter, but it gives a potential criminal charge if data regarding your application or award is disclosed without your express permission. That will help ..,
12. .., the GIC doctors continue to refuse ti hand over your data
Finally the letter from NHS England’s National & Medical Directors refers to Gender Identity Clinics as Gender Dysphoria Clinics - in other words trying or stupidly not knowing but a re- psychopathologisation!
Finally the letter from NHS England’s National & Medical Directors refers to Gender Identity Clinics as Gender Dysphoria Clinics - in other words trying or stupidly not knowing but a re- psychopathologisation!
@threadreaderapp unroll
• • •
Missing some Tweet in this thread? You can try to
force a refresh
