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Naomi Harvey PhD #WearAMask “Naomi Hammy Dodger” Profile picture
@Naomi_D_Harvey
Jul 17 • 7 tweets • 2 min read • Read on X
Medical alert card for #MEcfs along with lanyard

Will post links to POTS and other cards in reply
etsy.com/uk/listing/120…
Medical alert card with lanyard for #POTS

amazon.co.uk/orthostatic-Ta…
@stickmancrips has some great communication cards including packs like this one for autonomic dysfunction #LongCovid #POTS #Spoonie

stickmancommunications.co.uk/product/autono…
@stickmancrips They also have #Fibromyalgia cards stickmancommunications.co.uk/product/fibrom…
@stickmancrips A #hEDS starter card pack stickmancommunications.co.uk/product/heds-p…
@stickmancrips And an ME cards pack and MCAS pack, I’ll just link all the cards in here now ☺️ stickmancommunications.co.uk/products/page/…
@stickmancrips Oh but also you can make your own set of cards on a keyring, and include whatever cards are relevant for you. They had ones about wearing headphones/eR defenders, and ones like this about smells and fragrances and all sorts stickmancommunications.co.uk/product/react-…

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More from @Naomi_D_Harvey

Naomi Harvey PhD #WearAMask “Naomi Hammy Dodger” Profile picture
Jun 26
Hi 👋🏻 I seem to have gained a few new followers lately. So a brief introduction seems due!

I’m a research scientist with a specialist topic in companion animal behaviour & welfare, skills in veterinary epidemiology & psychometric tool development.

I’m also chronically ill ♿️
I’ve been chronically ill with #MyalgicEncephalomyelitus since a virus destroyed my health aged 15. I also recently learned I have #POTS too.

I’m a patient-expert in ME and my body reacted so badly to my Covid vaccines that my ME is now Severe. I cannot work & am housebound.
I need a wheelchair on the rare occasions I can leave the house, but cannot push myself etc so I rely on my spouse as my carer.

I can stand and walk very short distances so I am what’s called an ambulatory wheelchair user.
Read 6 tweets
Naomi Harvey PhD #WearAMask “Naomi Hammy Dodger” Profile picture
Jun 24
“Our results demonstrate that pantethine, which is well tolerated in humans, was very effective in controlling SARS-CoV-2 infection and might represent a new therapeutic drug that can be repurposed for the prevention or treatment of COVID-19 & long COVID” nature.com/articles/s4159…
“cellular expression of the viral spike and nucleocapsid proteins was substantially reduced, and we observed a significant reduction in viral copy numbers in the supernatant of cells treated with pantethine”
Pantethine is thought to have antiviral actions because it reduces cholesterol levels. Viruses, especially SARS-CoV-2 use cholesterol to replicate and infect our cells.

The body often dramatically reduces cholesterol production in response to viral infection for this reason.
Read 7 tweets
Naomi Harvey PhD #WearAMask “Naomi Hammy Dodger” Profile picture
Jun 22
Brief thread 🧵 on potential ways to mitigate against glutamate exitotoxicity in #MEcfs and #LongCovid
Glutamate has long been known to be involved in the pathology of #MyalgicEncephalomyelitis and more recently in Long Covid.

Recent neurology research confirmed there is significantly elevated glutamate in the brains 🧠 of pwME and LC .amjmed.com/article/S0002-…
Glutamate is a necessary neurotransmitter but when it’s present in elevated levels it can become toxic to neurons.

It’s heavily involved in causing seizures and symptoms such as light and sound sensitivity.

More info here:

healthrising.org/blog/2013/02/1…
Read 20 tweets
Naomi Harvey PhD #WearAMask “Naomi Hammy Dodger” Profile picture
Jun 21
There are sometimes meds or supplements that make people feel worse at first. Sometimes.

These usually will be known about & predictable, as they work by breaking biofilms or can trigger deficiencies in other things when one deficiency is addressed (B12 is a good example).
In some cases, the worsening is a sign that what you’re doing is needed.

But there’s *huge* caveats here.

Some ppl are so severe, they can’t risk any slight worsening.

Some worsening’s are not safe or expected & should never be pushed through.

How do you tell which it is?
You need careful supervision and extensive knowledge of the pathways you are affecting to be able to know how to attempt to address a worsening, even when it is a sign you’re in the right path.

99% don’t have that and they should *not* push through worsening on their own.
Read 13 tweets
Naomi Harvey PhD #WearAMask “Naomi Hammy Dodger” Profile picture
Jun 13
Tyrosine 🧵

Tyrosine is an amino acid used to make dopamine, adrenaline and melanin.

Under situations where adrenaline is being released more, like under high stress, it can become depleted, thus reducing dopamine production.

ncbi.nlm.nih.gov/pmc/articles/P…
I can’t read the papers in detail unfortunately, but from what I did read, supplementing Tyrosine is not expected to increase adrenaline or dopamine production - unless you’re depleted already.

So, it’s considered useful to supplement under high stress conditions only.
However, we do know that in #POTS (and maybe other dysautonomia and MCAS) people’s bodies release adrenaline (norepinephrine) simply when upright, to help blood vessels contract.

Maybe useful for us? May improve cognitive function?

#LongCovid #MEcfs
my.clevelandclinic.org/health/disease…
In addition, your autonomic nervous system turns on a series of rapid responses. To compensate for the lower amount of blood returning to your heart after standing up, your body releases the hormones epinephrine (adrenaline) and norepinephrine. These hormones typically cause your heart to beat a little faster and with more force. Norepinephrine also causes your blood vessels to tighten or constrict. This all results in more blood returning to your heart and brain.
Read 14 tweets
Naomi Harvey PhD #WearAMask “Naomi Hammy Dodger” Profile picture
Jun 4
Grape seed extract 🍇

Seriously, get it in your cupboard and if it’s ok for you to take (I haven’t found any proven interactions though), use it for Covid prevention or when infected

200-400mg of 95% OPC extract reduces viral load & stops the virus from replicating by 50%
It’s a tricky one to shop for as some are just ‘grape seed’ & provide 2-3grams of grape seed powder. But what is needed is 200-400mg of OPC extract.

The study wasn’t done by any company trying to sell it (so there’s no conflict of interest) so there’s no ‘gold standard’ brand.
Solaray do a good 100mg one but you’d need 2 a day to get the minimum dose.

solaray.com/products/grape…
Read 15 tweets

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